Harvoni Side Effects (Page 12) (Top voted first)

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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Has anyone had any cellulitis or bursa problems? I was just finishing the Harvoni and was doing great when I started running a fever of 103 and throwing up. Right elbow swelled up and I was admitted to the hospital for IV antibiotics. Drs could never find out what happened. 2 months later same exact situation only with my left leg. I was admitted to the hospital with septic shock. This was a month and a half after I had finished the 12 week dose of Harvoni.

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About Harvoni prices. I recently read an article about how Harvoni is composed of 2 drugs that have been around for quite awhile. Gilead put them together to create Harvoni but their research was largely funded by NIH. I too think it is a crime that they can charge the price they do. Especially since the studies were largely underwritten by NIH. India turned down their patent request for this reason and the course of treatment there costs $300. For someone really wanting/needing Harvoni I would guess that you could fly to India and rent a place to stay for the 2-3 months needed for less than$5,000. Just my thoughts.

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I felt horrible while on Harvoni. It's highly unlikely that I would/could have taken it for 24 was if it hadn't been for the support of my Primary physician (NOT the doctor who prescribed the Harvoni. I, too, feel like the Harvoni was heavily pushed on me and would have never started it if I understood how little anyone knows about this drug. The liver transplant doctors who were in charge of my case had no interest in my symptoms and horrible state of depression that started about three weeks into my treatment. In fact, their lack of interest only added to my depression. I strongly believe that those doctors receive some kind of huge payback every time they obtain approval from a patients insurance company to cover the cost of the drug. They certainly didn't show any interest in my well being during my treatment. I can't imagine trying to work while taking Harvoni. They flat out lied to us without having to take any responsibility for their lack of knowledge about Harvoni.

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New Day, I hope you are able to find the strength to remove yourself from this horrible drug. Yes, it helps to cure many but many of those are now sicker than before with other ailments. I am a victim...also with the drug pushed on me. Bless you and your decision, whatever it may be.

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New Day, Thank you for letting know that my support helped you understand that you made the right decision by stopping the Harvoni. I wish I had known what I do now before rushing in to getting approval and taking the drug last March. I thought I was doing the right thing and not one person suggested I wait until it was out a little longer. No one really knew - even doctors I highly respect believed that taking it right away was the right thing to do. "This is your one chance" one Professor of Hepatology told me at the UCSF liver clinic. I am a Patient Advocate and have been for 25 years. I know most of the good doctors in the Bay Area as I have a working relationship with them. I don't blame them for this but I feel they were a bit naive about rushing in to this "cure". I am upset, however, about the lack of their support when I was so ill during treatment. I was on my own other than my Primary doc. The Hematologist who obtained my approval called my Primary doctor and told her to back off - that I was HER patient and I should only talk to her. Of course my Primary was shocked but wasn't really bothered by this doctor's unprofessional action. I had to fight to have another doctor in the liver clinic take my case after that incident as I had no trust in the first one. Unbelievable stories I could tell and may someday become more active in the field. It has taken me a full six months to recover from Harvoni and I'm still not fully over it. I was cured from Hep C but still wish I hadn't taken Harvoni. For yourself, be proud of the fact you knew what was best for yourself and made your own decision. There are new drugs coming through that will be less harmful. Remember to wait until they have been on the public market for a long time unless you're really sick from Hep C. I was not but they convinced me that I was until they performed an honest, accurate diagnostic that showed I had no liver damage. This was done after they obtained approval - they told me they wanted to wait to do the good scan until after the approval. I had the scan about one month after I started Harvoni and there's no way that it worked that fast. Take care. Feel free to email me at {edited for privacy}.

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Draining Medicare, what about Medicaid or the equivalent of? Google inmates on Harvoni you will see a chart that is a 100% rise. Do you have any idea what that is doing to the budget of inmate population? Not that you care but its all money.

I feel like who better to experiment on but inmates, that's what scared me. Googling around I find this stuff. In addition I could see if we were really ill but if we are stable why PUSH this like its going to go away tomorrow? Talk about drug pushers sheesh!

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I did a lot of research last night read everything there is printed on this drug.

Wen MD seems to have mostly positive results with ppl that have completed treatment that said there are only 4 questions asked. Go over to FDA website and it's another ball game. I see my doc in about an hour. I think that the long term effects for ppl basically we'll have not been studied give it @ 5 yrs. I read some disturbing things. Cancer that just popped up immediately after, things that no one could prove but seemed to much to be a coincidence . There is major issues with memory and confusion that is creepy in addition. Some people are more sensitive then others our bodies are all different. Personally I sense a huge big pharma push behind this drug and was not told of the side effects I was told some weakness that can be managed with diet and water.

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The side effects should be reported to the FDA, not Gilead. They are the ones who lied in the first place. I'm doing a little better the past week or so. The joint pain is nearly gone and the brain fog seems to be lifting a little. It's so important that we all work together for support and for the sake of others. I truly believe that the truth will emerge about this drug if we can unite and make it happen. Please let others know who are trying to get approval for this poison because they shouldn't take it. Not to mention the money it's costing them and the entire system.

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I'm not sure why you would not tell others to stay away from this drug until more information is made available to those who are interested. Do you want them to suffer the same damage that others on this post and elsewhere are reporting? They are unable to learn about the toxicity from doctors, etc. Why keep information from them. It's a personal decision of mine to inform others.

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How can I possibly take away someone's choice by giving them my opinion? I don't pretend to have that much power. People must think for themselves and make decisions based on the information they have. We don't have enough information on Harvoni but you can go ahead and tell people what ever you want. I have been working as a Patient Advocate for many years and I believe in patients empowering themselves with information before making any decisions.

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Good for you for posting your side effects, etc. from Harvoni wherever you can. This may help someone else who has been told by EVERYONE in the medical field that this is such a great drug. I give you credit for having the courage to quit Harvoni; I didn't and that was a mistake. The only thing I did that helped was talk with my Primary Doctor for support. She doesn't know anything about the drug but she listened to me and didn't act as if the side effects I reported were something that I imagined. That was the response from every Doctor at the liver clinic the prescribed the poison. Please turn your anger in to something productive like educating others about your experience. I tried to give you my e-mail but it was blocked. I'm a Patient Advocate and feel stupid for falling for the propaganda they fed me about Harvoni. But it's done now and I have to move on. Thank you very much for you posts. Keep writing!

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You have the same symptoms that I had for nearly 5 months following my Harvoni treatment

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I am 6 months post harvoni yes the hep c is gone but what am i left with. High cholesteral, joint pain and swelling, dizziness and vertigo, chronic brain fog. Fatigue is terrible. I felt better before! Wish I hadn't taken it, and I can't drink alcohol at all, it makes me feel even worse. I'm talking one beer. Hello and digestive problems.

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How are you doing now? Was it nerve pain?

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Ive been on harvonni for 3 weeks and i also have some back pain.. In the morning its very stiff and so are my hands

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Thank you very much for posting that your doctor validates your problems from Harvoni and states that others are having the same issues. This was not the case with my doctors but I took Harvoni from March to September of 2015. I think they know more about the drug now; not that Gilead posted any of the real side effects. The patients are coming back with information. Again, thanks for passing that along so others don't feel so isolated.

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I started having joint pain right before i was put on harvoni, the docs thought it could be caused from the hepc. My inflamation profile was extremely high. I took harvoni and cleared it. 1a. anyway it made me feel like crap. 6 months out i am feeling somewhat better but having inflamation in my knees to the point of retaining fluid, hands and body pain everywhere. I know taking harvoni set me back even thou i am clear of the hep c. Thought i would feel better.

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You may qualify for assistance in order to obtain Harvoni. I hope you check this out and, if you qualify, remember that you had the advantage of knowing about what to expect while and after you take it. I don't think anyone on this site regrets being cured; they simply want to know when their symptoms will stop. If they suffer permanent damage, they may or not be glad they took the drug. That's totally up to them.

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KKH- I sure as heck didn't have the money to pay for mine. I'm on SS but the fulfilling pharmacy applied for assistance and it cost me next to nothing.

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I just finished my 3 months of Harvoni treatment. Started having excruciating sharp pain in knee joint. It comes in an attack and leaves in about 10 or 20 seconds. I just scream. Feels like a knife just stabbed me. Please not something else going wrong!

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