Fentanyl Withdrawal Symptoms (Page 74)
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I'm trying to wean myself off the Fentanyl patch. I went from 75 micro-gms to 50 now I'm on 25. Having a problem and not sure it is related to the decrease in the med. It's been 20 days on the 25 micro-gm and I'm going crazy. I need to keep rocking, moving in any way b/c my body is very restless. Is this a symptom of withdrawal and what do I do? I cannot take it any more.

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Hi, I had been using a fentanyl patch for 4 yrs due to back surgery among other things. On Dec 16 I put on a new 50mcg patch, the newer ones without the liquid inside. I took that one off last night Dec 27!!! I have been absolutely symptom free for all of that time, but, I just went through a one hour period of MAJOR withdrawals!!! I don't understand this? Why now? Did the patch actually last 11 days?? I took a flexeril & 600mg Ibuprofrn and I am OK right now. Has anyone ever heard of it lasting this long?? I have always left the patch on for 4 days instead of 3 and knew if I had missed changing it because of the kibbying!!! I refuse to put another patch on, so what can I do if the symptoms of WD come back??

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Erin, If you are mostly worried about the sleep, I went days/nights without by cold turkey of course but I found the rehab doc my brother worked with prescribed me some ambien, as with the benzo's you need to be careful but I like you need my sleep, if I don't have it I get stressed, then in more pain, then angry with hubby and kids, the ambien has two forms one that is short acting, worked for me for about four hours but it puts you right into the REM for the four hours, it was so wonderful to finally sleep, then there is ambien cr that lasts for 7-8 hours, I only used a couple of those when I was really really wiped out because I still kinda felt groggy after the 8 hours but with the regular ambien I got a GOOD 4 hours, a couple times 5 and didn't feel a bit groggy, tired or anything upon awakening. Anyway I know how you feel about a big weight, worry and stress are a big part of the battle, I was really worried about what I was going to do about pain once I was through withdrawals, but I really read, studied, etc and for me personally I just made the decision to stay away from anything that is SLOW RELEASE or stays in your system for longer periods of time because for me after time they seemed to not work as well and/or I needed more to help pain and yet felt worse and far as just enjoying life/kids, etc. Good luck. Glad you have a good doc. I know these posts are getting older and older BUT anyone out there like yourself or even me when I first started was really inspired by some of the people who had been off the stuff for months as well as people in the SAME situation as me. Someone who is using the Mylan and wants to quit may read yours in a day or so too. It really helps to know you're not alone and WHAT TO EXPECT. hugs, prayers.

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Hi Tessie. Thank you so much for letting me know about the clonidine. He did not prescribe it for me yet, he wants to see if I can handle the drop from 100 to 87.5 first. I think I can. I mean 100 mcg is a lot. I can certainly feel the medicine when it hits my body. Good thing I don't like the euphoric feeling like I see others do. I am more worried about losing sleep and becoming restless. I need my sleep. If that becomes a problem then I will ask him to prescribe me something for sleep. It is a tough road with narcotics though. I certainly thought that I could just give them up no problem whatsoever. Boy did I learn that the hard way or what. I will get there. Today is actually the first day that I have felt calm about the situation. I feel like everyone is now on the same page It is sort of like a weight was lifted up! Thank you for helping me and listening to me. I know this thread is sort of old, but maybe some others could chime in and give us their success stories? Hugs~

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Erin, so GLAD you got a GOOD doc and help. I THINK the clonidine is a cousin to the xanax, etc BUT YOU WILL BE ABLE TO TELL DIFFERENCE WITH IT, it helps with the wd SOOOOO much!!! I too have a supportive husband!! You'll find no matter how old your kids, they too will learn and grow with you from this trial. MY 4 kids, 19yr 18yr, 13 yr, 12 yr, and husband ALL PULLED together sooo well and we are all closer and stronger than before...yeah I had bad, hard days but you can FEEL and enjoy the GOOD ones when you don't have this patch and I'm totally with you, THERE ARE SHORT acting pain pills out there if you have pain, you can be drug free or use occassionally for chronic or acute pain and BE OK., ITS people like my brother who is an admitted addict, that if you can imagine, has quit before, wants to quit, does quit, but then relapses because of the NEED/WANT...I'm so blessed to NOT WANT....although sometimes I NEED some help with the pain, I can take or leave the pain pills whereas addicts need and are constantly looking for their next fix. Also, whether its an accident, health problem or whatever got you started there is still this stigma about being hooked I had a good doc tell me everyone's BODY can/will get hooked/addicted eventually, but you can get through it and get off it, ITS when the BODY and MIND is addicted that you really have the trial. Glad you have a good doc and found a solution and you sound to me like you'll do great, I really think you'll find that with the clonepine you can taper without the 12.5 IF YOU WANT and go a little faster if thats you're goal. My access to the two rehab docs my brother had was INVALUABLE....the benzo's really can and do help the WD symptoms and the faster you can get it out of your system the better. Best of luck. Prayers and hugs. Tessie.

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Tessie, thank you so much for your prayers. I sure appreciate them. I myself am going to be saying some myself. I have been having the worst three days I think I can have. I have come to the realization that this Fentanyl patch can cause so much damage, BUT it also allowed me to do so many things when it came to recovery. I mean I could not even get out of bed without it. Just walking, sitting ect..But, now things are getting much better in my recovery, and I want to get off of this drug. I totally agree with you that pills are much easier to get rid of. The pills only last for a small amount of time while the Fentanyl is made to be in your system all the time. I am super blessed to have such and awesome doctor as well. I didn't even have an appointment today, but he listened and talked to me for an hour. We came up with a plan to wean me off the patch, and I hope I have very little w/d's. He also said that he could prescribe me a drug called clonidine which also would help with the w/d's. I am very happy that he is willing to make sure that this tapering process is as easy as possible. Thank you for your help and support! Hugs~

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So I went and spoke to my doctor today. He is so awesome by the way. I broke down in his office. I told him about the episode I had, and he just shook his head, and said he was afraid that would happen. He says that everyone on the Fentanyl patch for any length of time will have the w/d's if they take it away too quickly. He also explained to me that taking the Oxycontin was a smart idea because the w/d's would have gotten much worse. SO we built up a plan to wean me off of the Fentanyl. I am so thankful too. I can't wait to be free of drugs. The only problem is going to be dealing with any pain, but I think by weaning me off of the Fentanyl slowly, we can figure out just how much pain I am going to have and how much medicine I will need to counteract it. So the plan is, starting Monday. 75mcg + 12.5 mcg for 1 month. Then 75 mcg for 1 month. 50 mcg +12.5 mcg for 1 month ect..reducing the 12.5 patch. I can do it faster if I want to, depending on how bad the w/d's are. He said that if I don't really feel too much of the bad w/d then just skip the 12.5 patch all together and go to the next 25 mcg dosage. But, he said that most will feel something by decreasing 25 mcg at a time. I thought that was a great plan. I just am so thankful that it won't be as bad as I thought it would be. It gave me hope that there is life after all of this. My accident happened on July 23rd, and I feel like ever since the accident there hasn't been any normalcy in my house. My babies have been through enough with almost losing their Mommy, and being without me for so long. I am so blessed to have such a wonderful husband who is so supportive. Happygirl and Tygerlily, thank you so much for talking to me about this. I felt very alone, and very scared. I had no clue how powerful this drug was, and seriously thought I could just take it off and it wouldn't be an issue. I am so glad that you both are off the strong stuff. It gives me so much hope that I can do it too. Thank you so much for listening, I hope that we can keep chatting this out. It is so helpful to talk to others who have been there. God Bless you both! :)

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Tygerlily, If I'dve know, and Erin: FIRST OFF ALL apologies for the absence I got the freakin FLU, IT SUCKS TOO although I was counting my blessings that it wasn't WD and at least you can kinda sleep through the flu, second I'M so EXCITED to hear that Tyger you are doing well, It does feel better huh AND THANKS FOR THE KIND WORDS, Happy Girl and Maui Girl were my inspirations as well and although some may visit or quit the sight I feel if I CAN HELP ONE OTHER PERSON FEEL BETTER ITS SO WORTH IT AND I NEVER FORGET TO PRAY FOR ALL. IF ID HAVE KNOWN, I have the lupus, rheumatoid arthritis, fibromyalgia, had a bad GI bleed that they had to do surgery on me for in June, that being said I HAVE MAJORLY struggled with depression most of my life (was diagnosed with the arthritis at 6th grade, the juvenile form) anyhow, AN ANTIDPRESSANT medication, especially some of the new ones out HELP THE DEPRESSION AND ALSO THE PHYSICAL PAIN, depression itself inhibits your ability to fight pain, thats why so many physicians prescribe antidepressants for pain (not for everyone) but in my case there I have needed it off and on and it does MAJORLY help the depression as well some of the chronic pain. The newest one I have tried is Cymbalta, working good for me at present.....also IF you tend to be stressed out easy or have panic attacks, etc, tyger is right the valium and/or xanax can help (PERSONALLY, I take the xanax because it is for anxiety but also contains antidepressant benefits...just my opinion) HANG IN THERE AND IM SO PROUD OF YOU, once that patch is out of your system YOU NEVER WANT ANOTHER ONE ON YOUR BODY!!! Last, but CERTAINLY NOT LEAST ERIN, GLAD to talk to you and I agree with other posts, sometimes I think it would be cool to meet in person, thats why I won't give up on this sight as long as people keep posting and ILL NEVER QUIT PRAYING for everyone out there that wants to QUIT THIS FREAKING PATCH!! Back to you Erin, I worked at a medical clinic for 10 years and am a certified MA, not that it makes my opinion anymore valuable than anyone elses, I've just been blessed to see more people, learn more things luckily through experiences of OTHERS sometimes. IF YOU HAVE A GOOD DOC YOU LIKE AND TRUST, they will work you, HOWEVER, LEGALLY they can't give you stuff for WITHDRAWALS, THEY CAN HOWEVER TAPER YOU. IF I WERE YOU (because I tapered off 50 mg with this method about 2 1/2 years ago, then ended up back on 25mg patches cuz of an accident and my stomach problems) however I tapered ONTO a slow release PILL, MS CONTIN which has same medication but isn't as powerful because as I've stated in previous posts patch has to be so dang potent to stay in your system so long PLUS it is in a alcohol base, WHICH ALTHOUGH THE MAKERS SAY IS A MINUTE AMOUNT, EVERY DRUG LABEL IVE EVER READ SAYS DON'T MIX WITH ALCOHOL AND I BELIEVE that one of the reasons this patch is so wicked awful is because of that infinitesimal amount of alcohol base they have to put it in!! As a devout Christian myself AND IF YOU LOOK INTO ANY TWELVE STEP PROGRAM, REHAB PROGRAM, ETC., FIRST STEP, NUMBER 1 is admitting we are powerless without GOD or a higher power to help us. That being said, MY PRAYERS ARE WITH YOU, PRAY, IT SAVED ME, HOWEVER, I ALSO BELIEVE GOD GAVE US SCIENCE so that smart and caring scientiests and doctors could discover help for those in need. sorry I got ahead of myself, anyway the MS Contin is a slow release morphine, I EASILY went from the 50 mcg patch to what would be the equivalent of 25 mcg patch 2 1/2 years ago, it you can get patch out of your system IT IS MY OPINION its easier to get off PILL form (because they are easier to taper) than these patches, ALTHOUGH if you read past posts and where you haven't been on for years, I believe a couple people said with the MYLAN they cut and cut and cut and with little or no benzo's,thats xanax or valium they did great!!! alot better than the horror stories you are hearing, HOWEVER mine were the SANDOZ and you can't cut em and they only make 25 in SANDOZ so you couldn't really even taper, the reason I COLD TURKEY rather than pills was SINCE STOMACH SURGERY IN JUNE, the pills HURT my stomach, SO I WAS KINDA BETWEEN A ROCK AND A HARD PLACE and I too am a mother and have two tweens still at home. MY PERSONAL OPINION....FIRST make a decision (as to whether you WANT to cold turkey patch or taper) MY ADVICE is if you choose to taper, my experience with tapering was its easier to taper the pills because you can get to a much lower dose more easily. THAT BEING SAID, if you decide to COLD TURKEY and you still have pain, problems from your accident, etc, GO TO A PAIN CLINIC DOC THAT FREAKIN KNOWS WHAT THEY ARE DOING BECAUSE your regular docs no matter HOW SMART< GOOD< ETC they are, UNLESS THEY HAVE HAD Withdrawals, THEY HAVE ONLY READ ABOUT EM and IT ISNT THE SAME (as you can see from all these posts) that being said, cold turkey can be done MUCH MORE PAINLESSLY than some of us have said if you use the benzo's, benedryl, antidepressants, etc if needed. Like I said, check with A GOOD TRUSTED KNOWLEDGEABLE doc and read through the posts good cuz people have BEEN THERE DONE THAT and doing it is DIFFERENT THAT READING OR KNOWING ABOUT IT!! YOU're IN MY PRAYERS AS WE SPEAK!!! any more problems or questions I can help with, let me know and Ill keep checking the sight for YOU!!! HANG IN, YOU KNOW THERE's nothing YOU & the LORD can't do together!!!!!! TO ALL MERRY CHRISTMAS AND KEEP IN TOUCH!! TRY NOT TO GET THIS FLU CRAP lol....like you can help it!! LOVE AND PRAYERS, Tessie

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Erin, I used vicodin and oxycontin for over 3 years. The last oxycontin dosage was 40mg slow release every 12 hrs. That worked well for at least a year, I could even swim, bike ride, hike, garden. Then it was not enough (I had built a tolerance to that dosage). My doc tried me on hydromorphine, which I could not deal with. So the patch was given: 50mcg hr for 72 hrs. I hated the sluggish feeling I had. I stayed on it for 1 month: may 09. Went to 25 mgc hr for 72 hrs. and did that for a month and a half, using motrin too. Finally my doc gave me the 12mcg and I used them for a month. Finally I folded them for 2 more weeks. each patch was kept on for 72 hrs. At the very end of the folded 12mcg. patch I left it on for 4 days for the last 2 weeks in July then quit.During this time I did almost NOTHING! I showed up at work, did min. house work, and sat on my deck reading great novels the rest of the time. I also used my hot tub every evening.
I dealt with twitchiness, restless legs, sleeplessness for the entire time. I knew I would be better soon..... It seemed like a nightmare, but looking back it was ok knowing that I was in God's hands and that His plan for me was good. I could put my trust in God's care. You can too. Take your time and be patient.You are a courageous woman. Thanks for sharing with us, Erin. God bless you!

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Thank you Tygerliliy. I think I am going to have a little talk with my doctor about this. I want to have all of the right tools at home with me so that I will be able to deal with the w/d when they happen. I just cannot see myself going through them. I can't handle or risk putting my family through some sort of nightmare. They have been through enough as it is. I am off to have blood work drawn today, and I am going to see if it is possible for me to speak with the Dr. If not then I will make an appointment. I think that tapering will be the way to go. There was a post on this thread, I think number 107 or 108 that gives a way to taper from 100 mcg. It does seem like a long road however. I just am very sad that I will have to deal with the w/d's. I will let you know how it goes today. Big Hugs~!

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Erin, I don't have the extensive experience of HappyGirl & Tessie, but the recommendation from all I hear would be to ask your doctor to wean you off slowly, and use other shorter acting pain killers to compensate. I quit cold turkey from 100 mg to zero, but I was only on it for 6 weeks....and I didn't know any better! By the time I spoke to someone I was already off for a little over a day and going crazy...but I did not want to backtrack. Cold Turkey is NOT easy!!! From what others have said weaning SEEMS to be better....but it takes a LONG time, its a SLOW process, and from what I can tell you STILL end up in withdrawal at the end of it all anyway. I can't tell you which way to go....but I THINK if you have enough other meds to help you through, then the withdrawal may not be quite so bad. When I couldn't stand it, I took a small Hydromorphone which put enough drugs into my system to get over the current hump. Some Valium also helped considerably.

I am 8 days without, and today I am feeling wonderful...couple more days and I expect to be totally 100% free. Whichever way you decide, we are all with you, & will pray for you because we've all been there.
Hang tough, take of your little ones, and may God Bless you and yours.

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Happygirl, Thank you for replying so soon. I am so very sad about this whole thing. The patch did make me somewhat drowsy, and at time slow. But, it was the only thing that made the pain go away where I wasn't lying in bed all day long. I could actually get up and do things. However, when it wears off, there was lots of pain, especially if I overdid it. Sort of like, I am not sure what my tolerable pain level is right now. Before I changed my patch last night, my pain was at a tolerable level, and it was the first time in about 3 months that I had worn it for almost 72 hours. BUT, I did feel the w/d symptoms come on. It scared me very much, because I haven't ever been addicted to something like this. I know that the medicine was needed for the pain. I was on massive amounts of pain killers while I was hospitalized. I had 6 surgeries in less than 30 days. 2 blood transfusions, and 51 days in the hospital. I have been home since Sept. 11th, recovering. I feel that the patch helps my daily life so much, but I do not want to risk going through severe withdrawls. So I feel that I should just get rid of it. I am so incredibly scared, and I am so very sad. I just want to be a good Mommy to my babies, and get back to our life before this accident. How long did it take you to get off the patch? I am not against taking a different medication for pain, maybe something not as strong as this. I am sure that I would need something for sleep too. How should I present this to my doctor when I see him? Thank you for your prayers. I sure need them right now. Hugs~

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Erin, you have been through a huge trauma with your accident. I'm wondering if your pain is subsiding by now. Your dosage was very high, but your doc must have thought you needed it. Didn't you get drowsy and slow?
If your pain is tolerable, ask your doc to wean you down. I did each reduction of 25mcg for 3-4 weeks each. I did have wd symptoms, but they were somewhat tolerable. The sooner you can start it the better (let your back pain dictate when to start lowering dosage).
I'm praying for you, Erin. Keep us posted how it goes for you.
Happygirl and Drug free over 4 months!

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I tried to reply to this thread, but it isn't showing up. I am going to give it another go. I have been on the Fentanyl patch for 5 months now, due to a horrible accident. I was hit by a drunk driver while riding my bicycle. I had a crushed spine, and broken pelvis. I had a spinal fusion of the T11-L3 and a pin placement in my pelvis. Before the accident I was an avid triathlete. I am wanting to get off of this patch. My doctor has me on 100 mcg every 48 hours. Yesterday I went 72 hours with the patch, and toward the end of the evening, I was very restless and I felt like I couldn't sit still. I have Oxycodone for breakthrough pain, and I immediately took one, and decided to change my patch. I felt better in a couple of hours. I am very afraid of the withdrawls. I do not think I have the energy to go through them if they are as horrendous as I have seen described. I am considering cutting my next patch in 72 hours. I have the Mylan patch. I know my doctors would be supportive of tapering down. Is that the better option? Or would c/t be the best? I read on the thread about not having w/d symptoms if you taper the dosage of the patch. I am getting very depressed about this. I am very sad that my body is addicted to this drug. I just want to be pain free and drug free. I am a Mommy and I could not imagine taking anger out on them. They have been through enough with this accident. If any of you can please help me, I would be so grateful. I am also a devout Christian, and I do believe in the power of prayer. Thank you so much. Hugs~

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If I would have known: have recounted & today is day 8...and its as if the SUN has come out to shine once more! I am FREE!!!!(I HOPE)
THREE YEARS!!!... I cannot imagine...I was only 6 weeks!..I did sort of deal with a tiny bit of depression....more like extremely vulnerably moody...started crying at anything...but I'm positive that the Valium helped with that. Have you managed to get any yet? It for SURE helped me! I am so proud of you for not giving in!!!
Spoke to a neighbour today who I discovered is a drug & addictive substance counselor...she says Fentanyl is one of the absolute WORST things to get off from....and many many people can't handle it and give in and put on another patch. If you can possibly do it...keep hanging in...it will only get better day by day considering how long you have been off now. KEEP IT UP....WE ARE ALL PROUD OF YOU I'M SURE.

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Thank you allllll.Today is day 8 ...nights are realhard BUT iam sooooooo excited I did it ........Thank you to all.Iam going through a real bad deppression ....has anyone had that happen to them ..i feel like iam loosing my mind .....BUt I promise I will not put a patch on ...never again .I reall y wish we could meet in person ..to really have that bond that we share on here ....I was on patches for almost 3 years .If i would of know what they were I never would ......

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Tygerlily, there are hundreds of people going through the exact thing you are going through. I can't help you because I have no desire to get off of the opiates I need to live a somewhat normal life. I have noticed that when the people here get better they stop posting,. I am not saying Tessie will do that because I dont know her, but you aren't out of the woods yet and you need to talk to some people that are going through what you are. I wish you the best in your taper, and remember, if you do feel PAWS coming on, get to your doctor ASAP..... Happy Holidays.
Pat

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Looks like everyone has deserted. Its day 6 for me and I can definitely see the light at the end of the tunnel. I think as you said Tessie, the turning point will be day 8....I hope I don't regress!
If I would have known....how are you coming along? Getting better? Let me know.
Tessie...you have been my lifeline! Thank you ever so much for your support, your advise, and your prayers!

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If I'd have know, DON'T PUT PATCH BACK ON, IF YOU REALLY WANT OFF IT!!! Tyger is exactly right, it is a slow release, therefore even after you take it off its still in your system again. She is also right about any short acting opiate especially now that you are this far out or the benzo's, valium, xanax, etc really do help!! If you feel you truly NEED/WANT something go with the short acting, like the percocet or whatever you doc recommends, I had some some of the hydromorphone tyger was talking about and a little tiny bit can help. How long did you say you had been on patch though because tyger is right about that too, I was on for over five years, I felt like it took a little longer than some others to get out of my system. The rehab docs I spoke with and my two friends who have rehab experience BOTH say at seven days, with patch, you are at end of worst, I noticed the same BUT I didn't feel GREAT, the 8th day just a HECK of a lot better than the others, it still takes a little while to get back to yourself. I don't know if you read my previous posts but when I first went off the stuff and was lucky enough to have friends with access to rehab docs (who know what the heck they are talking about) I was told the PATCH is 80 times more powerful than morphine, that is to say because of the amount they have to put in one to get you through 3-4 days and then the left over effects that stay in you after you take it off it is a *&^% of a POTENT bad drug, thus what people have said about it being easier to withdraw from heroine than the patch, believe it or not, every minute, every hour, every day its getting out of your system and your body is getting better and better, I HAD DAYS I HAD TO JUST THINK THAT OVER AND OVER!! Hang in, you can do it. Is your clozepam stuff like the muscle relaxant stuff or does it have an anti-anxiety in it?? Do you have a GOOD doc, or one that will prescribe you a little bit of valium or something?? THAT is what really helped me and it sounds like it really helped tyger too!! Also, I will & do pray for all of you!! and everyone who is trying to get rid of this evil patch!! I don't like pain, and I'll be the first to admit I'd take a percocet rather than gut out some BAD pain but these freakin patches are plain wicked!! Good Luck!! Hope this helps. I know its hard when you feel like crap but keep up your status, it helped me feel better to read other peoples status and there will be others who need your help. Good luck to all.

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Steve...sorry I wouldn't know...I don't have any access...but I think if you look back, someone DID recommend it.

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Does anybody find that smoking Marijuana can help take the edge off withdrawals for a few hours ?

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