Fentanyl Withdrawal Symptoms (Page 64)
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I'm trying to wean myself off the Fentanyl patch. I went from 75 micro-gms to 50 now I'm on 25. Having a problem and not sure it is related to the decrease in the med. It's been 20 days on the 25 micro-gm and I'm going crazy. I need to keep rocking, moving in any way b/c my body is very restless. Is this a symptom of withdrawal and what do I do? I cannot take it any more.

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Karen, I hope it helps to know there are people out there praying for you like me and you will make it. Put it on early would be my guess.... but I am not a doctor... Also you may go through alot of severe boughts of not sleeping or only about an hour or two a night... According to my doc and his PA this is normal... whatever the hell that means.... they say normal as if they know the feeling... in my opinion every doctor that prescribes these types of medications should have to use and come off of them first... Maybe then when we cry to them they would have grown a heart and really try to help... It is true oppiates do intensify the pain after a certain time on the drug, well I have been on for almost four years... If I can do it you can too, but remember I was on much more medication then you so I am having more horrilble withdrawls then ever. No Sleep, No Eat, Seizures, lost over 110 pounds, lost all muscle tone.... you have a better shot just keep pushin through ok promise... Thats the only way I am sorry to say. Paige I do care. pteunis at yahoo email me anytime ok. best of recovery and a great renewed life!!!!

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Oh and I started at working down from 175 mcgs every 48 hours yes ladies and gentleman 48! Not the recomended 72 but 48. I am off it now just for about 3 weeks and am freaking but the valium helped to make it somewhat managable. Remember I am not a doc but I sure do feel like one after all I have been through... Hang in there tight ok.... you can do this.... you can do this.... the bathtub is my best friend and that is no joke... Paige

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YES, this is all to common been where your at and am off now. Maybe your doctor can prescribe valium to you. That stops some of what you are feeling. Remember all of our bodies are different. Do not do anything until speaking to your physician of course but mine was and still is a lifesaver. I dont know if anyone let you know but these withdrawls your still having can go on for up to but not limited to a year or more until you feel right again. Great drugs they have for us huh.... All that I can say is marijuana.........marijuana...... ahhhh what a relief. But remember your state may have certain licenseing rules you must abide... sorry for the length.

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Dear someone that got off the Fentanly. I am where u were. I have just put my first 50 mcg.F Patch, 3 days ago and time to change it again. I was a 75mcg, before that and they had changed the brand and my body was eat up everywhere that I had to put it and was running out of places when it was time to change it. I am not going to lie at all and say that I haven't experienced the trembling and the cold/hot sweaty feeling and wonder..Can I do this? The trembling that is in your whole body, it is like RLS, but everywhere.I know that I can do thsi and I have been taking this med. for a total of 4 yr. now. It started w/the 25mcg '07, then in '08 late in that yr., it was 50mcg, and in eary in '10 the doc moved me up to 75mcg, when all I wanted to do was up the breakthrough meds..not change my patch dosage...I just didn't want to go up on the patch. I knew that one day, I would have to come off.
I have had just a constant quiver the past few days after I changed it from a 75 to 50 and THIS IS HORRIBLE..BUT I CAN DO THIS..I keep telling myself that and it helps my mind to accept it. I am shaking while tryinig to type, but I must say that I still have my herniated disks..in my back,all three of them..THAT ARE KILLING ME, but taking more of breakthrough..I feel like defeating the purpose, but at least the FENTANYL would be gone..I PRAY. They won't do anything about my herniated disks. They just ignore it and give me meds..I DON'T want. I just want surgery to get them fixed and NEVER, EVER have to take this med. again and I won't ONCE I ever get it out...that is.
I know my doc was happy when I told him of what I wanted to do.. Heck, he even shook my hand. He did notice that my heart had been racing while I was there and I hadn't even changed anything yet. My heart has been acting up the past 2-3 wks. with a episode like anxiety and that makes me even more afraid of going through this, but it has to be done. I don't want to have to depend on this...for one day, I might not have it. I just feel eventually this medication will be ruled out for terminally ill patients alone and 4 anyone else that would be bad, but this stuff..IT IS THAT BAD. I never realized how until the past 3 days of this shaky quivering non-ending coldness or hotness. IT is awful, but I want to stop having to depend on it to relieve my pain. I will just have to suffer more, that is until I can get the surgery done. I think sometimes, I may be a little premature in doing it until after the surgery, but I am not getting anywhere. Maybe soon this new Doc(NS) that I am trying to get in with will perform surgery to fix my C5-C6 that was messed up in '06, that caused all of this in the first place. I know also they have found T8-T9 herniated, T10-T11 herniated with hypertrophy. I can't stand for long periods, maybe 10-20 min. then my back is on fire and the pain is like someone stabbing you or leaving an axe in it. SO, I usually am in bed for most of my day, but I do make myself get up and move. Heck, I even go outside to set 10 or more minutes a day for some Sunshine. It is hard, but if I have made it okay for the first 3 days without the higher dosage..wouldn't that make me through the first round or do I have more to suffer??? I just wanted to say that your words have moved me and made me to wonder if I made the right choice with me having 3 disks herniations left behind to deal with. Do I have more of the shaking to come? I am suppose to change this 50mcg tonight after 3:00 am, but am going to get into tub around midnight to move the time up some. I don't like to change it that late in the morning and with me shaky, I thought it might help me a little. What do you think? I could try to wait until 6:00am but think it would be better to change early than late on this one. OHH okay, that is all I can think of right now..shaking is hard to type with ...:)) <3 Karen
I have never abused my patch. I put it on like it says and it has helped my pain, but little did I think of the consequinces of getting off.

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I am on my 27th day without Fentanyl. This is my first post on the internet, since my journey began. Reading online forums was very discouraging. And now i have found out why. If your reading this you may be someone that is trying to get of fentanyl or someone that is hoping to get off fentynol. #1 i would like to give a big F$%^ YOU to all the doctors that over prescribe this drug. If you are not terminally ill, do not take this drug. IT WILL RUIN YOUR LIFE. People that say dont worry, you will not get addicted if you use it properly are just plain stupid. I used fentynol for 3 f'ed up discs in my back. Along with perks. I was using 100 mg per day with 7-12 perks for breakthrough pain. Do i have an addictive personallity? YES. Do people admit to having an addictive personality when they are face to face with thier doctor? NO. I didnt even realize i had an addictive personality until i started recovery. This drug will turn you into an addict. I promise you that. I never once got high off the drug. You will find yourself within weeks, yes weeks worrying about being addicted to the drug. I tried everything to get off the drug i tried weening myself off by reducing the dosage by 10mg every 2 weeks, tried cold turkey (do NOT try this) talk to the dumb ass that prescribed you the drug in the first place, i also tried changing the type of opiate which just opened up a can of worms that i am still kickin myself in the ass for. There is no magic pill that gets you off this stuff. If you are on Fentanyl you have a very rough road ahead. Im sorry to say this but it is true. I am going to explain how i got off opiates this past 27 days.

#1- Checked myself into the local Detox. This was tough i know a lot of people in my town. I was embarassed. Addicts are the people that steal, live on the streets and have constant problems with the law. DEAD WRONG. I met people from all walks of life. It was there that i learned about legal addictions, illegal addictions and addcitions to almost anything you can imagine. We live in a world of addictions. You probably know somebody that is struggling with an addiction. Do not be embarassed. Most detox centers have recovering addicts employed there. If you go this way, talk with them. Be honest. These people can help you a lot. Your probably wondering how did i feel at this point. I felt like hell. I went into detox cold turkey. This is the only way you can go cold turkey. You need to be watched 24/7. I had a seizure my 3rd day in. Im telling you if i had access to a gun i wouldnt be writing this right now. It is that bad. After the seizure my doctor prescribed Suboxone ( i will get into this later). I stayed at the detox center for 7 days. And your probably saying "F THIS" a seizure? yes it can happen. You need to talk to your doctor before you get yourself off the Fentanyl. Also the mental part of withdrawl is extreme. I did not want to be alive anymore. The physical withdrawls were terrible. Vomiting, nausea, living on the toilet, chills, body aches, dehydration, headaches and sweating like its 120 deg. but feeling like its -10. It is truely hell on earth.

#2 Suboxone- This is where everyone starts to argue. Methadone or Suboxone. Methadone is a powerful narcotic. You will be just switching your addiction. You will be racing down every morning for your drink. I talked with many addicts. And they loved the methadone. Now talking with recovering addicts, well thats a different story. Most have tried the methadone but truely they were not ready to get off drugs. They used the methadone when they were down and out. When they ran into money they were back using opiates. Now I dont want to say Suboxone is a miracle drug, because its not. You can get severely addicted to Suboxone. But I am on Day 3 with NO SUBOXONE..and of course - NO OPIATES! How to i feel? Like sh!t. I have body aches, i get the chills here and there. Basically it feels like i have the flu right now. But I am starting to feel the difference of having no drugs in my system. I am dreaming again at night, something i do not remember doing when i was using the opiates. I notcie things that i didnt notice before. The sun, rain birds etc... When you are using opiates you go on living day by day and start to kill yourself spiritually...i do not need to tell you about that. If your reading this far in you know what im talking about. But getting back to the Suboxone, i do not think i could have gone this far without it. There is a line in your head and it gets crossed when you are getting off the Fentanyl. You just cant do it physically. The problem with Suboxone is that it is used too long. My wish was to get off drugs. All drugs. Yes you can take Suboxone for the rest of your life. Do you want that? I didnt. I used the Suboxone to get through the withdrawl period from the Fentanyl. Heavy withdrawl symptoms last 14-? days from fentynol. I do not know if im withdrawing from the Fentynol or the Suboxone right now. But i can tell you that the symptoms are minimal right now in comparison to the withdrawls i had in the first few days before Suboxone. And for that I am grateful. Suboxone does not make you feel great. But it helps tremendously with the severe withdrawls. At the bottom of this post I am going to put my dosage of Suboxone for everyday i was on the drug.

#3 Support- When i started with this, I was going to do this by myself. I was privately addicted and i was going to get off the addiction privately. Well that was my big mistake. When I was in detox i met a guy that really changed the way I thought about the whole issue. First off, I got along right away with the guy. He works at a large steel plant here in town and me being a plumber, well that was the first person that i met with an addiction that has a good job, works in the trades and seemed to be in the same boat as me. I got his number before he left and i went on through my withdrawls. The 16th day in I called him. He said he was going to a meeting. He asked me to go and i went. It was a NA meeting. There is where I found the support i needed. For now I go to these meetings every night. I do not talk at all. I havent even looked at the book that they have. I know they have a 12 step program. But just going to these meetings and listening to people and being able to ask them anything at all makes the recovery part really easy. Am I going to do all the steps? I have no clue. All i know is that going every night makes all the pains and aches go away for that 1.5 hours and it gives me hope. I wanted to mention one more thing. If you go to these meetings, whatever you do is never compare your addiction to others. You will be lining your self up fpr a relapse. You will hear stories that are enough to make a grown man cry. Making it seem like your addiction isnt "that bad". My addiction was bad enough that i didnt want it running my life anymore. And if your reading this, your likely in the same boat that i am in.

So breaking everything down, there is no magic pill that makes everything go away. Just some plain effort. You can get off the Fentynol. And if you are looking into taking Fentynol. PLEASE read up on it and look and people that have used it. This stuff is killing people everyday. I am sure it is used to help some people. My grandmother took it for the last 5 months of her life. She was terminally ill.


Suboxone

You WILL need to start getting sick before taking Suboxone. If you take it while you are taking opiates it will make you sick right away. I suggest being sick for 48 hours before taking it. You will get a taste of how bad you would feel by not taking anything. Your doctor will tell you this anyways. Your first does is usually at the doctors office anyways.

Day 3-7 8 mg Per day 4 Mg morning, 4 mg 4PM- Dont take Suboxone late - you will not sleep

Day 8-12 6 mg Per day 4 Mg morning, 2 mg 4PM

Day 12-16 4 mg Per day 2 Mg morning, 2 mg 4PM

Day 16-24 2 mg Per day, In the morning

THIS WAS A PLAN THAT I CAME UP WITH. THIS WAS NOT MY DOCTORS ADVICE. I WANTED TO GET OFF ALL DRUGS. IN ORDER TO USE SUBOXONE AND NOT GET ADDICTED TO IT I WANTED TO USE IT ONLY FOR A SHORT PERIOD OF TIME. WHEN YOU MAKE THE DOSE CHANGE YOU FEEL LIKE HELL. JUST TRY TO REMEMBER THE 48 HOUR PERIOD OF HOW YOU FELT WHEN YOU WERE IN TOTAL WITHDRAWL. IT HELPS

If anyone needs any info, please contact me. I hope this helps somebody out there, remember your not alone :D

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I have chronic neuropathic pain in my cervical and lumbar spine(caused by deteriorating facet joints)( am 47 yrs old) It is extremely painful. I also have degenerative disc disease in most of my vertebre. Currently I am on 200mcg of Fentanyl, Nabilone also called Cesamet (the THC(cannibus) med, oxycontin 10mg, Percocet, Baclofen(skeletal muscle relaxant). There were days I could not get out of bed I was in so much pain every cell in my body ached. My neck was the worst because of whiplash from a car accident 25 years ago! It litterally feels like my head is in a vice-grip and someone is turning the handle until it feels like my skull is beginning to crush; then they just leave it there. Sometimes the pain is so bad, everything feels surreal. It just didn't make sense. The more medications my family doctor prescribed, the more pain I would have. Why, if I am constantly being given more opiates (or higher doses) is my pain WORSE when logically my pain should be in control?
Then, one day I saw a show that would CHANGE EVERYTHING! It was Dr. Phil. He had a young woman on there who had broken her back in a car crash 2 years ago and was on Oxycontin and Percocet. She was still taking them(& getting them from a doctor who was running a "questionable pain clinic 120 miles away from her home.) Both a top pain doctor and neurologist Dr. Phil had contacted(who had gone over her file) agreed that her vertebre was now healed (she went for an MRI which confirmed this)Both doctors agreed she had a condition called opioid-induced hyperanalgesia and did not need to be taking these narcotics. In a nutshell what happens is the receptors in the brain get sensitized (build up a tolerance) and despite increasing doses of opioids, the pain gets worse. A pain that a "normal" person would have such as a little ache, would feel like an immense pain to someone like us. If you google " definition of opioid-induced hyperalgesia you will get a definition. This may not be happening to you, but be open-minded.
That week I went to my pain doctor and told him the "Dr. Phil" story. I said I was sure this was happening to me and he said it probably was. I told him I wanted to go on gabapentin (an anti-seizure med that is now getting prescribed & working for chronic pain.) They think it somehow "tricks" the brain into thinking that the pain is just a little ache or an itch. Talk to your doctor about this.(or research it online)
My pain doctor is now working with my family doctor and I have started decreasing my fentanyl (very slowly) and I am very excited to get off of my opiates. I tired of feeling so groggy and tired. I want my life back. I am also getting pain and facet blocks to relieve my pain. Next is a procedure called radio-frequency ablation, also called a rhizotomy. This is where a thin prob is inserted (under fluroscopy) into the nerves that are causing the pain and burns the nerves. This can give someone up to 1 year pain free. To someone like us that is good news!! I live in Ontario Canada, so your meds may have different names....

Hope this helps you or maybe someone else who may be in this situation. Good Luck...... Penny C

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Hi Mary,

It has been two month now, for me, with my withdrawal. You are having typical withdrawal symptoms. The twitching and restless legs and body goes on for some time as you withdraw. My pain management physcian gave me a blood pressure medicine to take that actually helps to decrease these side affects. And I supplemented with a 1/2 of a percocet tablet, too. These both really helped me. You may find that you will also start sneezing often every day. That is a withdrawal symptom, too.

You are not going crazy, though. Your body is just cleansing itself from your drug. You may find that you need to withdraw a little slower, if you cannot get the medical support you need. You have made quite a stride coming down from such a high dose to 25 mg. It does take time to get this drug out of your body.

The first two weeks are the roughest because the fentynal withdrawal actually causes pain to be accentuated. Don't get discouraged. All the discomfort is worth the angst. Almost all of my original pain is gone now and can be managed without fentanyl...hopefully this will be your story, too!!!

When my body kept jerking, I would get up and take hot showers and then distract myself by watching TV. If I fell asleep in front of it, so be it. Laying down was the worst position for me when my body was in its 'fits'. I found if I could keep my mind engaged, the restlessness was easier to handle. And you may feel weak and fatigued, too, for a long time. That will all go away with time, the farther you get from your limited or non-use of drugs.

I wish you well and commend you for getting off Fentanyl. Hang in there, it is worth the journey, Mary.

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Ihad 2 come off 200mcg of fentanyl over 6 months Why did I get abso no help from mental halth services when am crying me eyes out down the telephone am completely off it now but it was so hard

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No Using A Vap Will Showw THC in Urine. Regardless Of This It Is Still By Far The Better Option To Pain Management As THERE IS NO MAGIC PILL That Will Relieve Our Pain No Matter What Doctors Say. Mary Jane Also Will Not CURE YOUR PAIN But It WIll Allow You To Dis-associate Yourself From The Pain And This Is A Far Better Management Technique Than Adding More Health Problems And Addictions And Calling It Treatment. I Stand By My Decision To Medicate With Cannabis. I am At Or Beyond The 60 Day Point Now ANd Am Very Happy To Report That I Have 0 Withdrawal Symptoms. I Wish Everyone The Best Of Luck In Getting Off This Deathride They Like To Call A Needed Treatment.

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Are you doing this under the guidance of your physician? I was given percocet to supplement for the patch and would only take a 1/2 tablet to help stop the restless side effects. I was also given a blood pressure med that helps to stop the jitters and it aids in sleep. If your physician is unwilling to help you I would suggest that you change to a pain clinic where there are specialists who now how to really help you withdraw. They will treat you with respect and understanding. Most of the docs are anesthesiologists and know the character of the drugs that you deal with or may need to help with your transition.H

Also, it takes months for fentynal to leave your system. The first month is the hardest. It is worth the effort, though. And depression is also a side affect of withrdrawal so don't be so hard on yourself. You can do this. It is worth the battle.

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I have been on fentanyl 75mcg/50/mug tapering since they first put me on it 21/2month ago for a burn injury which required skin grafts. Was on morphine via pump for 2 weeks prior to the patch. I regret it to no end that I ever consented to this drug. Tried to take the 75 mug patch off on my own, had horrible side effects. I am going to put the first 25 mcg on tonight. I am so scared! By the way, I had taken pain medication 4 years ago for ca. 2 month 4 years ago. How could I have built up a tolerance (have been reading up so much about this). I feel so helpless. Also I have been having depressions off and on since I have switched to 50 mcg. So far I can deal with the physical pain. I just do not want to have "withdrawal symptoms" . Feeling scared and lost

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Hi! I am a chronic pain patient who has had 9 spinal surgeries to number a few of many surgeries. I have been taking pain pills and such for years. Then Fentanyl was added to the regime 10 years ago. It has been a blessing in its ability to cover pain and provide a 'normal' means in which to live more comfortably. But, with the way the economy is going and me, reaching an age that if Obama's health care program is put into effect, I stand a high chance of being denied the prescription. My pain doc also said that some of the procedures given to reduce pain would be denied me as well, in 'Obama care'.

So, that caused me to want to try to get off the fentanyl. With the help of the PA at the pain clinic, I began withdrawing a month ago. The first two weeks were challenging. I was able to substitute percocet for the patches. I was able to tolerate the WD symptoms during the day but needed the pain pills to stop the jerking and pain at night. As I got farther into the process, I have found I only now take 1/2 of a percocet only once or twice a day instead of 4-6 full tabs. I was also given a mild blood pressure medication which is supposed to help induce sleep and stop the restless legs. It seems to help. I, too, have had the chills, sweats, sneezing, runny nose, horrible weakness, and depression. I also know that magnesium, zinc, and calcium help with the nerves and aiding one's sleep.

I was led to believe that one could withdraw from this drug in a week or two. That is not true. I have now had three of my doctors tell me that it takes months for the fentynal to leave one's body. The symptoms will get less and less, but at a slow release pace. That has been my experience so far. So, I have to remind myself that each day is a day closer to complete withdrawal and to not beat myself up when some of the symptoms bug me.

Through this journey, I have discovered an amazing thing. At first, the pain increased so badly that I thought that I would never be able to tolerate it. But, with the farther I get away from the patches, my pain is decreasing!!! I am in less pain now than I have been in 30 years! In my case, I believe that the nerve endings that had been so damaged have been slowly healing over the years without me knowing it. There is no other explanation for this. It makes me wonder how many give up their fight to be free of this drug because they are frightened with the intensity of body pain induced when stopping fentynal? Getting past the period of terrible body pain is well worth the effort!

So, I am very tired but am also very glad that I have chosen to withdraw from this narcotic. If only a 1/2 of a percocet is all I need to dull what pain is left, then I am a blessed person. My goal is to not use any pain meds...we will see if that is a possibility.

I just wanted to share my experience with everyone in the hope that it may encourage someone to take that step and get off this drug. Who knows, after you have traveled your journey, you may find that you no longer need as much assistance with your pain as what you thought was required.

I would highly recommend that you not go off it cold turkey. That is a cruel way for a doctor to expect you to do this. There are drug aids to help to make the transition easier. Do your research and go armed to your pain clinic, internist, or family doctor with all the information on how to comfortably and safely withdraw.

Thanks for this site. I wish I had found it earlier in my journey but it is nonetheless helpful and encouraging to me to read other's experiences and insights. God bless you all in your seeking a healthier life!

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You wish you had some...but if you did, you would wish you didn't. Don't you see the trouble it has cause for ALL of us??? PLEASE, I beg of you, DO NOT get hooked on this. Even if it is prescribed to you. You will eventually regret it. I gauruntee it. Just read ALL of these and you will see for yourself...or learn from your mistakes.

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Doc's will say that it is not related, but we ALL know that your symptoms are related to withdraw. Keep up the good work. In the end, it' all about winning the fight. I get Mylan brand patches, cause you can technically cut them in half, quarters, etc. That is how I did it. I am once again OFF the patch thanks to that. Praise God for the kind that don't have the gel in them!

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Hey, girl friend I hear ya. I have been weaning myself since Jan. I was on fentanyl 50 mcg every 48 hours. Then went to 72 hours over a month, then 25 mcg 48 hours for 3 weeks now just today went the 72 hours. I can't sleep, I have the restless syndrome BAD to the point of pain. mainly at night. I told my doctor she said it was unrelated to the withdrawal, but I knew better. yesterday and today I haven't feel good (headache...) I want to feel better and I'm trying. Doing a lot of praying as well. good luck.

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OH I wish I had some...love it.

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Yes, I have had those exact symptoms. I feel thing crawling on me, as long as I keep busy it's not so bad. I was on the 50 mcg,now I'm on 25 mcg. I did 48 hours then 72 on the smaller patch. hang in there.

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I too, have nerve damage. I'm weaning myself off the fentyanl patches SLOOOWLY. It was on neurontin for months. I became deeply depressed to the point of planning my death. My sister who's a nurse recognized the symptoms and I told my doctor. He weaned me off of it and put me on fentanyl in 2006 after a surgery gone wrong!!! I have been having withdrwals and I'm weaning slow. I know the withdrawal would be much worse otherwise. I can't wait to be free of drugs.

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Hey, guys. I started taking my patch again. My sleep is off, my manic episodes went out the roof. I cut it in 4 pieces and wear one for 5 days. Maybe it is all in my head. I felt great at first but maybe I really do have to go through some withdraw. I thought I could do it with absolutely no withdraw, but, everyone else has had it or does have it, so what makes me any different. Good luck, just wanted to let you all know, I am not as "free" as I had hoped.

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Mary Jane does help with fentanyl withdrawal. It did for me, after using the patch for 13 years at 225 mcg every 36 hours (for 5 years) and it has taken 7 months to start to feel human again (not NORMAL) and I know that in about 4 or 6 months I might be normal. Good luck.

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