Epclusa Ruined My Life (Page 16)
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Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

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Re: Skpp930 (# 7)

So sorry to hear about all the suffering you are going through. I have been listening to guided imagery and healing hypnosis videos on youtube. It helps some when I'm feeling very anxious or need to calm down to get to sleep. My biggest complaint is the nerve pain mostly in my scalp and neck also forearms, feet and lower legs. It just flares up out of nowhere. I have been on some pain pills and a small amount of xanax in the evening to help with sleep. I'm thinking about getting treatment at a chiropractors office that specializes in neuropathy. There are many new modalities but it is very expensive. They want over $6,000 for 42 treatments. My brain also feels very forgetful and I lose words in conversations. I'm also very weepy all the time. I'm so tired of feeling this way but I won't give up. I see this passing at some point. I can't accept this.

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Re: Skpp930 (# 7)

And I've done everything about my diet, but nothing changes it! This stuff kills a lot more than Hep c.

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Re: Susie (# 6)

I've had every test done there is, doctors don't know anything about this medication, and they told me they didn't. Even Gilead couldn't tell me why I was having this reaction. I had to be put on Klonopin to take, my insides and body was shaking so much. It felt like I was burning up inside from my brain down. No one did anything to help me, they thought I was crazy, except one E.R. Dr. He called the gastro Dr. that prescribed it and told him I needed to be taken off of it, and the gastro Dr. said no and that I was making it worse than what it was. I was the 3rd patient he had given it to. The other 2 didn't have a problem, so I shouldn't either. He was a monster. I went through a living hell and am still in it. Can't remember, can't think straight still feel Crawley inside, especially in my brain, they have me on Xanax now. After the treatment, I tapered off of all the benzos, my brain was so messed up, I didn't even know who I was, anymore, how to get to places I'd been to many times, I totally lost my mind. I've stopped benzos, and alcohol before, never had any of these horrifying feelings. I had to go back on Xanax to be able to function. This medicine epclusa damaged my nervous system, I don't care what anybody else says, I felt it doing it when I took it. I finished treatment the last of January 2017, my hair is falling out more now than after I finished treatment. I'm still having to live with my daughter. I hate Xanax, don't want it, I want my brain back I had before epclusa. When this Xanax stops working, I'll have to be put in a place to be taken care of because of my mind. It's the only thing keeping me calmed down, and if I don't take it I hear music in my head over and over everyday. I'm scared I'm slowly losing my mind. I feel like epclusa burned it up. And to top it off got denied disability. Something needs to be done. None of these doctors are gonna blame the Hep c medicines, they are going say our Hep c did this to us, but it didn't, the medication did it.

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Re: Skpp930 (# 5)

That is similar to what I am feeling. Have you tried to treat symptoms with supplements or dietary changes? What does your doctor say about it? I am anxious to find a way to feel better.

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Re: Suzanne (# 2)

My hair is falling out more than before. This anxiety is different than regular anxiety. It's like your mind and body are not able to relax anymore. I know it has damaged something in my brain that controls gaba, or something that calms you down. I feel like my mind is slowly going away.

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Re: Suzanne (# 2)

I just started taking this medicine and I have a question... Was your hair loss experience right away or over the course of treatment? Thank you

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I have experienced those same symptoms. I am 4 months post treatment with no improvement.

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Yes I started with hand/arm pain about a month after starting treatment. Now I am three months post treatment and the pain has now been nerve pain in my hands, lower legs, hands, arms and scalp and hair loss. Also intense anxiety at times.

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Hello, Barbara! How are you? Has there been any change?

Those are not normal side effects of this medication according to recent FDA reports. They typical include nausea, dizziness, insomnia, depression, and diarrhea.

Are you on any other medications? Do you take any supplements? Do you drink a lot of sugary, or caffeinated beverages?

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