Epclusa Ruined My Life (Page 9)
(Newest replies first)

Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

REPLY

REPORT

Re: Kathleen (# 148)

Same here ,kind of use to not going out mixing ect, hard to think to far ahead !just take care of yourself, hopefully won't get any worse,yes not looking forward to winter ,we don't have a very long winter but it can be harsh ,just hope it's not a flood year, stay safe.

REPLY

Was this helpful? 0

Re: Lou (# 147)

Hi Lou, have not been on that med. Currently not taking any meds for my cirrhosis. Just for new high blood pressure. Coronavirus so severe here. In California we have been in order to stay inside for a few weeks. Personally I have bed in home mostly since Epclusa so I dont mind. Mostly went out to shop. Now I save money. Hahaha

How are you feeling? I hope you have a support system? You are going in to winter now? Be safe. Thinking of you.

REPLY

Was this helpful? 0

Re: Kathleen (# 13)

Hi Kathleen ,hope you are ok ,I'm not sure if you were put on cortasteroids for your breathing, IV been on 3 mths cortasteroids ,I just finished reading a warning on line about coronaviris and cortasteroid s have you heard anything ? My dr said keep taking them ,I just don't know what to do,hope you are ok after your hospital trip.take care please.

REPLY

Was this helpful? 0

Re: Kathleen (# 144)

Hi Kathleen, hope by the time you read this you would have your trip to hospital Al finished and back at home ,once again we seem to be experiencing similar things ,my dr wants me to think about same thing ,as Bowell problems seem to be in my family, yes this coronaviris is a bit scary for me as well, hopefully we will be ok ,I think we've had more then our share of medical problems ,IV been trying to find out if doing the tx and having the virus for years ,might complicate things for us ,I v had have anti biotics for chest throat infections plus a couple of skin infections I seem to get more complications since treatment ,makes me worry about thiscoronavirus ! What do you think ? IV almost given up trying to talk to my dr , I really don't know how he got to be a dr ,probley comes from a family of drs,lol.anyway my friend please take care try and relax ,I know it's hard IV gotta try as well! There's nothing we can really do ,best wishes.Kathleen ,sorry about my spelling key board can't spell lol just realised I'm repeating myself a lot ,sorry take care ,hope you have better tv then us.

REPLY

Was this helpful? 0

Re: Kathleen (# 144)

Hi Kathleen, hope by the time you read this you would have your trip to hospital Al finished and back at home ,once again we seem to be experiencing similar things ,my dr wants me to think about same thing ,as Bowell problems seem to be in my family, yes this coronaviris is a bit scary for me as well, hopefully we will be ok ,I think we've had more then our share of medical problems ,IV been trying to find out if doing the tx and having the virus for years ,might complicate things for us ,I v had have anti biotics for chest throat infections plus a couple of skin infections I seem to get more complications since treatment ,makes me worry about thiscoronavirus ! What do you think ? IV almost given up trying to talk to my dr , I really don't know how he got to be a dr ,probley comes from a family of drs,lol.anyway my friend please take care try and relax ,I know it's hard IV gotta try as well! There's nothing we can really do ,best wishes.

REPLY

Was this helpful? 0

Re: Lou (# 143)

Hi. I am supposed to have endoscopy wed morning at hospital. Im 72. Told everyone over 65 should shelter in place.
I'm afraid to go to the hospital to have it because there might be people at the hospital that have coronavirus and I might get coronavirus while I'm at the hospital having an endoscopy. It's like a catch-22 my family wants me to have it done but at the same time we don't want to have me exposed. I don't even leave the house anymore I've been out twice in the last two weeks and both of those were to see doctors. I'm freaking out because I'm pretty sure that I'll be in one of the ones that gets it and I'm going to try to avoid it but I don't think it's not going to be avoidable. Anyway Lou take care of yourself make sure you have all the supplies you need and even if they're your friends when your neighbors don't be around them. We need to take our leaders advice and stay in place for 14 or 15 days and let this thing blow out of town. Take care I'm thinking of you often

REPLY

Was this helpful? 0

Re: Kathleen (# 141)

Same thing happening over here ,I'm not feeling any virus signs so far,hope you and family going ok ,I went to Woolworths this morning a lot of items gone already ,seems the masses are in panick mode ,no eggs rice hand cleaner toilet paper is rationed I pack per person ,I don't know how long or how serious it will get ,I think be hard to even get drs app,,I feel like IV already got symptoms since tx short of breath cough ect.,if I went to drs probley put me in quarantine ,that's something I don't need,I'm the same as you in a lot of ways I think,. I only have time for family ,which isn't very often but is worthwhile , anyway stay out of crowds if possible try keep your strength strong ,I feel for my granddaughter's they are still young ,strange world there growing up in.one has rumetoid arthritis great kid but not very strong when it comes to viruses .stay safe.

REPLY

Was this helpful? 0

Re: Kathleen (# 141)

Hi Kathleen ,sounds much the same here went to supermarket this morning ,very crowded for a Sunday,I saw my son last Friday he also does deliveries , He lives in Brisbane a couple of hunded miles away,but does coffee drops to shops down this way, IV heard of The Stand but haven't seen , it's really hard to believe this thing is happening ,it's one thing you or I don't need ,I think we've had our share ,it's 1am Monday morning having trouble sleeping as usual , anyway glad you are ok stay safe your friend down under,,

REPLY

Was this helpful? 0

Re: Lou (# 140)

Lou. Hello. Things here pretty crazy. Yes we are are a greater risk due to cirrohis and taking the poison Epclusa. Had to shop to self quarantine for a few weeks. Store was packed. Empty shelves. 55 min waiting in line. First time Americans feel like a third world country. They have closed all schools in my town. Many restaurants closed too. I have no desire to be around anyone outside my family. .my son delivers to rite aid pharmicies 5 days a week. I now have him shower as soon as he gets home. The world is in crisis. Ever watch a movie called The Stand? Eerily like movie. I hope you have supplies and can stay away from people. I think of you all of the time. Your true friend.....

REPLY

Was this helpful? 0

Re: Kathleen (# 17)

So true ,I feel exactly the same ,on to,p of every other thing I'm so bloated on abdomen feel so exhausted unbalanced sick ,and your right no way is my dr gonna say anything against Epclusa,they talked me into doing the crap med ,I could feel it doing damage ,I should have stopped ,never in my whole life have I felt like this no support at all,felt so much better before tx.now new virus to put up with ,I'd say anyone who has done Epclusa could be victims due to damage done to our immune system s.take care ,I'm in Australia lot of people same .,, Kathleen ,how are you? I'm really worried about this new virus ,feel like we are sitting ducks thanks to Epclusa I really don't feel I can take another problem,my breathing is so bad now ,after the fires now we have mud dampness mold everywhere ,stupid cortasteroid don't help much I think maybe they do I don't know ,I know dr getting sick of my problems ,he can't fix anything nor does he understand,hope your doing better then me ,it's starting to really get me down ,take care please .

REPLY

Was this helpful? 0

Re: Skpp930 (# 7)

So true ,I feel exactly the same ,on top of every other thing I'm so bloated on abdomen feel so exhausted unbalanced sick ,and your right no way is my dr gonna say anything against Epclusa,they talked me into doing the crap med ,I could feel it doing damage ,I should have stopped ,never in my whole life have I felt like this no support at all,felt so much better before tx.now new virus to put up with ,I'd say anyone who has done Epclusa could be victims due to damage done to our immune system s.take care ,I'm in Australia lot of people same .

REPLY

Was this helpful? 0

Re: Kathleen (# 127)

Hi,hope your liver pain has eases a bit for you , been thinking about how bad it must of been for you ,not being able to get relief from drs, Do you have any family or friend who you can talk to-your lucky if you do ,I used to have friends but as you get older they seem to thin out IV found ,as for family I won't go there today ,,i don't want to bore you ,lol I had a abdominal xray yesterday to see if anything they can see is causing bloating,the liver people say I have cleared the virus so far ,I'm confused as I seem to have symptoms of liver problems ,I will be interested to see what xray finds ,I'm really tired of trying to talk to drs ,all these aches pain really exhausting for me, I feel useless ever since this Gilliard crap started ,IV been getting these body jerks where I almost fall off chairevery day ,I told my dr ,he didn't suggest anything,I read on line where bloating and body jerks can be sign of liver problems , probley DAAs, take care,this stupid phone can't spell keeps putting wrong letter in, lol

REPLY

Was this helpful? 0

Re: Kathleen (# 134)

Hi Kathleen, so sorry to you have been in hospital, really hope you are feeling a bit better. I'm sure some of these drs don't understand what it's like to be in pain nor do they care. My dr is the same - I really needed something for anxiety when I had my loss of hearing, his words were "I could give you something for anxiety but it's very addictive you don't want a drug problem." I give up with some of these young no feelings dr they are so young uncaring ,not all I suppose but the liver dr I saw before I started Epclusa was so arrogant I must have spoke to him for 5mins at the most and reminded me of a snake oil salesmen from the ol west ,best dr I had was few years ago now he was an older gentleman been a medic in 2nd ww.,he was very caring did house calls if needed and was very caring,pity not more are like that,instead of being arrogant uncaring superior attitude ,anyone would think the meds you need are coming out of there pay,very hot humid here ATM muddy ,I realise now that it's not only hot weather that triggers my asthma but damp cooler weather also seems to effect me,since doing treatment my feet legs are giving me problems the dr I see has no answers ,all he does is ring the liver clinic and they assure him that Epclusa would not have cause my problems problem I feel as if ,no one really understands ,I am so sick of coughing and waking up all night ,my best thoughts and prayers are with you,please take care keep in touch ,

REPLY

Was this helpful? 0

Re: Lou (# 134)

Kathleen, sorry I meant to say hurricane,,we get cyclones here,but luckily no Hurricanes ,IV seen on tv the damage they can do so hot here today ,hope you are having ok day and enjoying nice cool weather ,

REPLY

Was this helpful? 0

Re: Kathleen (# 127)

Hi Kathleen, hope you are not feeling to bad,where I live has been very hot humid,near impossible to sleep at night, humidity above 85 most nights ,it must have been so bad when one of your cyclone hit America ,the grass is growing so fast as it was so dry for long time,the ground here is so muddy waterlogged starting to smell ,I live in a town that floods if get too much rain,I think this heat is making my symptoms worse Edema numb feet insomnia ect, how have you been?must be nice having cool weather ,do you get snow where you live? I have never seen snow ! Take it easy Kathleen,it's 4 am might try get one hour sleep before starts warming up.

REPLY

Was this helpful? 0

Re: Lou (# 131)

So spent week end in hospital. My liver was so hurting. I was nauseous and all they could do was put an iv and give me anti nausea med and morphine. No kind of helpful meds to help me at home.

Says if they start me on pain medication now did I return into an addict before I die. That's almost laughable. I'm terminally ill and they're worried about me being addicted to drugs. Oh well it just another slap in the face from Jolene. They obviously don't read this forum and they should. Kathy D I hope that you're feeling better and Lou I wish the best to you I wish we could get together and find something out how to how to get to these people I thought I had an attorney online but they don't even want to fight big Pharma so it's a battle between tour sick people against Pharma. Guess who's going to lose anyway I just wanted to say hello and give hope to all those out there that are just starting their hep C medication that it is held to get through but at the end if there's no cirrhosis then you started a new life so please take your medication on time everyday don't skip it try to take it early in the morning because it takes 10 to 12 hours to wear off so that you can try to get some kind of sleep at night. I learned through 12 weeks of epclusa that that was the best bet for me. Godspeed

REPLY

Was this helpful? 0

Re: CathyD (# 130)

Good luck with everything ,I'm 14mths Poste tx,IV just about given up trying to get answers and not lies , I'm at stage now where I keep thinking what's the next medical problem I'm going to get ,I really feel so much worse after doing there treatment , I keep flashing back to the day I signed up for treatment ,must have spoke to liver dr for 5 minutes ,he had his little speech worked out "don't worry this treatment is so easy,worse thing may be slight headache don't worry we are always here for support for you"total lies I had no support at all, if I had my time over I wouldn't touch Epclusa
Feel IV aged 20 yrs hope you are ok.

REPLY

Was this helpful? 0

Re: CathyD (# 130)

Surely Gilliard can't get away with this,when I spoke to the liver people where I live who are responsible for putting people on treatment ,they were so nice helpful ,once on treatment no support at all ,they had the same rehearsed answer to everyone who had complications "oh really well IV never heard of that before " they just don't care only interested in$$$ since when has drug companies been concerned with anything to do with people who may have been infected by a medication or lifestyle ??,too many lies are being told to people ,

REPLY

Was this helpful? 0

Re: CathyD (# 128)

Hi ,hope you are feeling not too bad ,I finished tx about 14mths ago ,tx got rid of virus ,but I think it has caused many more problems ,I had overlap asthma diagnosed pre treatment but was never as bad as it is Poste treatment ,we've had fires heatwaves here so my breathing hasn't been good,since tx IV had bloating numb puffy feet hands sometimes ,somedays so exhausted can't keep eyes open,Evan having a shower is hard work,this is a really good site ,I get a lot more info ,then from drs or liver people ,who I feel are guessing a lot of the time ,,I don't think anyone knows enough about DAAs yet and what harm they can do ,take care good luck.

REPLY

Was this helpful? 0

Re: Kathleen (# 126)

{edited for privacy}. I have been trying to fight Gilead since Harvoni came out. Then they added two other anti-virals but they all have sofosbuvir which we think is the culprit. Those on Epclusa have the identical horrible health issues from taking that drug as those who took Harvoni.

REPLY

Was this helpful? 0

I was on Prozac (fluoxetine) for about 8-9 years starting when I was about 14 years old. I'm 23 now and for about th...

25 REPLIES

I had mild psoriasis on my scalp, elbows, and a few on my legs. Within three days of being given an intramuscular inject...

3 REPLIES

Told to take Apixaban after "supposed" pulmonary embolism...but NO proof! They then discovered I had a lung infe...

I have been on prozac for the last two and a half years and it has ruined my life. Since taking prozac I have lost my jo...

4 REPLIES

I am 19 years old and I have been on Vyvanse for 3 years now. I started out with 50mg and it was amazing. I could stay f...

3 REPLIES

Hello, I am 7 years out from Epclusa. When I first started taking Epclusa, it was very frightening. Every time I took th...

I took Topiramate for seven days. On the eighth day I had pressure that went up to 60 and 70 in my eyes and ended up in ...

6 REPLIES

Hi there, I have a strange question that i cant find the answer for. I took Tramadol/Zydol for around 7 months for back ...

2 REPLIES

Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy....

167 REPLIES

Has anyone taken Epclusa and experienced back and leg pain? I already have 2 herniated discs but it seems that since I s...

33 REPLIES