Epclusa Ruined My Life (Page 5) (Top voted first)

Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

REPLY

REPORT

Re: Kathleen (# 13)

Hi Kathleen, got my results back and I'm cured apparently, very pleased, but now I seem to have numb tingly fingers on one hand and a couple of toes, but worried this may get worse. Have you heard of this before. Hope you are going ok. I've had brain fog often plus family dramas lol. Take care.

REPLY

Was this helpful? 0

Re: Davoe (# 65)

I di not have numbness. I have fatigue beyond belief.
I just saw new gastrointestinal dictor two days ago. He seemed surprised that 5 months post epclusa I still feel so tired. Having another ultrasound next week.
I also have cirrohis frim bloid transfusion so I am not sure of your illness.
I know that doctors do not tell us all side effects.
I have had to be an online detective to learn.
I hope you talk to your doctors about symptoms.
We are guinea pigs for hep c meds.

REPLY

Was this helpful? 0

Re: Kathleen (# 66)

Thanks Kathleen, yes I know wat u mean about being GUI ea pig

REPLY

Was this helpful? 0

Re: Davoe (# 70)

Epclusa is poison. Im 71 and it ruined my last good years. I am going to lobby for the future of a Kousa in my home state of Sacramento California. I am recently seeking attorneys and spokespeople please be wary above clusa it is the Devil in Disguise

REPLY

Was this helpful? 0

More people need to speak out.
I am one if many hundreds that have serious problems after epclusa. It's a new product that followed harmonee which was fairly new also it is made by the same people. It is an awful product that makes you feel like you're being poison 24 hours a day for 90 days at the cost of $1,000 a day to feel that way. I have never been so sick in my life and I have been off of epclusa for 14 months and I'm sicker now from the residual of epclusa than when I started. Every time I would talk to a doctor or a nurse's position about my symptoms they blew me off like it was nothing. Either they were ignorant or they were being paid to try this product on us being guinea pigs. Please try anything before you try epclusa. I am 71 years old and I'm looking forward to death as a relief from the effects of epclusa. I write often and I've had never had a reply from anybody from Pharma asking me how I feel or giving me any explanations or any hope

REPLY

Was this helpful? 0

Re: Davoe (# 68)

Yes i remember you.
Am saddened that you also have dire problems.
There seems to be a complete lack of care or concern from the makers of epclusa. They deny deny deny. And we die. I don't know what else to do my life is ruined I didn't even know I had hep C or cirrhosis until I had testing done from the time I took the inclusa the first month in January of 2018 to now my life has gone downhill. I have so many medical problems. I hope there's a future for you and a bright one at that

REPLY

Was this helpful? 0

Re: Kathleen (# 63)

Hi Kathleen,it's now about a year since e treatment ,I'm 66 yrs old ,I can't say I feel very well exhausted all the time,numb fingers on one hand some toes numb, I felt ok pre treatment,what have I done to myself,no one understands or cares just waiting to see what next problem will be!,if it was back in the 70s, I would.know exactly what to do.i feel like a guinea pig , please let me know how you are going really interested.

REPLY

Was this helpful? 0

Re: Kathleen (# 74)

Hi Kathleen, sorry you aren't feeling too good atm, I feel so similar as you, I must have spoken to the liver Dr for maybe 5 minutes, he assured me how wonderful Epclusa is with very few side effects, I'd like to see proof of surveys done on people and what age people were who were tested, even the nurses I talk to at liver clinic all say the same thing exactly "oh treatment wouldn't cause those problems your having, I've never heard of that happening before", well all they have to do is get on Google or Facebook and look up Epclusa side effects. If I can help in anyway please let me know, it's about time gilliard aimed up an took responsibility, at least showed a bit of support, I'm sure we are not alone. Please take care, thanks.

REPLY

Was this helpful? 0

Re: Lou (# 77)

Hello my friend.
Yes pharma shoulf be held accountable.
Seriously you and I and many others were some of the first group on Epclusa.
The cost was1100 dollars a day.
For 90 days.
We got no response frim anyone at Gilead.
I am totally exhausted every day.
I have ringing in my ears 24/7.
I am no longer with kaiser medical group. I list total faith in them and they do not care.
Im sorry you are suffering.
Lets stay in touch and support each other. Ir means so much to me. Take care. Kiss a rou for me.

REPLY

Was this helpful? 0

Re: Kathleen (# 78)

Thanks for reply,yes I agree it does help to have someone to compare with ,just starting to warm up over here ,I don't like heat much plus humidity always high ,this is just a short message oh by the way how are your feet ? lol I had to some shopping today always seem to get puffy plus toe nails gone bit wierd numbness seems worse in hot weather , yep gilliard has some explaining to do I think, great hearing from you please take care try to kick back ok, might be bit hard to find a room but. Any good ideas or have a yak anytime .

REPLY

Was this helpful? 0

Re: Kathleen (# 78)

Hi Meant to say bit hard to find a kangaroo atm.just a brief message how are your feet? mine get puffy in the heat which is just starting toe nails bit wierd.take care

REPLY

Was this helpful? 0

Re: Lou (# 79)

Hi. Dont have any feet problems. Not pain either...yet. Because of the hep c I now have Cirrohis which is a death sentence. Because I had hep c for almost 40 years undetected I progressed to Cirrohis. So some of my symptoms are related to that. I feel like Gilead measures their progress in the elimination of viral load. Their concern for side effects are not important. Hot in California too. Running a/c all the time. The heat is overwhelming with my health issues. I hardly leave home anymore as I overheat and feel exhausted. I hope you have good days. I think if you often as you and I have communicated often through our hellish battle. Take care.

REPLY

Was this helpful? 0

Re: Kathleen (# 81)

Hi Kathleen, how you doing? Hope feeling not too bad. It's starting to warm up a bit over here. I find heat really hard to take. In fact, a couple of times this past few weeks I've driven to shops, felt ok, then after walking to an appointment or shops I find myself totally exhausted hardly being able to walk! I find a seat do some slow breathing and start feeling ok again very slowly. I don't know if this is brought on by stress or something else. My dr isnt much help. He says "You must do things slowly, maybe having the virus since the 70s or 80s has caused you to feel like this." I don't think so as I felt pretty normal pre-treatment. I just don't know. I think maybe the sudden hot weather and jasmine in bloom plus smoke from fires who knows. It actually scared me a bit when I had trouble walking all of a sudden. Do you find air con helps you feel a bit better? I'm trying to decide whether to get it. It's pretty expensive over here and would like to know what you think. I've just got 2 fans atm and they're ok. Hot weather really effects me.

REPLY

Was this helpful? 0

Re: Lou (# 82)

We seem to have exactally same results from Epclusa.
I cant take the heat.
I am exhausted just walking to car.
I can not do errands any longer ad there is no energy left in me.
I also had hep c since 1979 when was given tainted blood.
I only started feeling this way after epclusa.
My doctor also blows off my concerns.
We need to realize they get kick back from gillead for every script they write.
During my three montd on epclusa I never saw a doctor. Was just another lab rat.
I would advise you to use air conditioning.
It really is a great way to ferl a little better.
My thoughts are with you.

REPLY

Was this helpful? 0

Re: Kathleen (# 83)

Thanks Kathleen, I'm the same the 3 MTHS I did treatment I never saw a Dr or nurse ,no support at all ,I think when I started treatment and had hearing problems 2nd week, they should have looked into it to see if maybe I wasn't suited, maybe in a perfect world ,lol I'm hoping that this sudden shortness of breath is because sudden heat change of seasons ect, IV had 3 different drs in 5mths lady I had first was good she was retired but still worked 2 days a week ,but she had been around and was concerned about what was happening,unfortunatel she had to stop working due to ill health,she was replaced with a lady from England ,she also was concerned about my side effects ,by this stage I was getting sick of telling my story ,at least she gave me something for my anxiety and not sleeping, ended up she was called back to England due to sickness in family,now my current Dr looks like a kid straight out of med school ,he seems to get all his info from Gilliard and seems very uncaring , nothing for anxiety just tells me to excercise and maybe try phisios appointment IV tried that didn't do anything at all,great hearing from you ,I'm sorry to hear heat effects you too.!! Take care ok

REPLY

Was this helpful? 0

Re: Kathleen (# 83)

Hi ,hope your not getting bad effects from the cyclone ,the pictures on TV looked terrible ! Those poor people ,I think the climate is getting extreme ,Do you know of any information about results or people over say 50 yrs old ,who have done the treatment and are now getting serious side effects from it,?IV been trying to find something on Google but having no luck ,I remember before I started treatment the liver people kept telling me they have a very high success rate with very few side effects like 90% success no I'll effects ,I've heard of quite a few older people becoming sick, hope you are feeling ok and staying safe.

REPLY

Was this helpful? 0

Re: Lou (# 85)

Hi. No cyclone is on the east coast. I live in the West coast. 95 miles east of San Francisco.
I live in suburb of Sacramento the state capitol called Carmichael.
Less than eighty thousand people.
Last year when I was in the throes of hell on Epclusa I met two people at dr. Office who were going through same treatment.
We talked about how awful we felt since starting it.
They also never saw a dr. Only p.a. like I had.
But no one at this time has reached out on this forum.
My life is crap.
I have nothing to look forward to.
Every day the same.
I try to pull myself up but difficult..
Hope this finds you with your spirits up.

REPLY

Was this helpful? 0

Re: Kathleen (# 86)

Thanks Kathleen for reply,I just wish there was someway of letting people know,that this med is no miracle and to get some real facts about it.sometimes I go onto another forum they seem so pro Epclusa keep.talking about it being so great,every time I try to say my story,the subject kinda changes,it's probley controlled by gilliard ,lol,let me know if you get any ideas. Might try find a forum where i can tell my story,we have a lot of sugarcane around where I live they burn it 5mths of year, I have always had lung infection s fairly often now IV been diagnosed with emphasemia, that on top of the Epclusa side effects ,is so exhausting,take care.

REPLY

Was this helpful? 0

Re: Kathleen (# 86)

Hi how are you Kathleen, hope going ok? Really starting to warm up over here, we have had fires, very smokey. Went to see my Dr on Tuesday. He has had me on an inhaler for COPD (emphysema) which got worse after treatment. He said he forgot to tell me I also have asthma, age over 50s can get it, but I think treatment brought it on (but they won't admit). So anyway he's been giving me the wrong inhaler and now I've got a steroid inhaler twice a day, but I still feel short of breath. Also real bad taste in mouth and more nausea. I'm not looking forward to summer at all, it's 3am saturday here. Gotta close windows to stop smoke etc, I can't sleep. Anyways I really hope you're feeling ok.

REPLY

Was this helpful? 0

Re: Lou (# 88)

Hello. Did they tell you to rinse your mouth out after using an inhaler? Very important. I also had to go to the emergency room for a cough. Put me on two inhalers. I feel that since Epclusa my health has declined. Sorry about all the fires there. Same thing here in California. Fires are everywhere. Did you smoke? I never did but did smoke other tobacco lol. Hope this fall has you and I feeling better. Thinking of you.

REPLY

Was this helpful? 0

I was on Prozac (fluoxetine) for about 8-9 years starting when I was about 14 years old. I'm 23 now and for about th...

25 REPLIES

I had mild psoriasis on my scalp, elbows, and a few on my legs. Within three days of being given an intramuscular inject...

3 REPLIES

Told to take Apixaban after "supposed" pulmonary embolism...but NO proof! They then discovered I had a lung infe...

I have been on prozac for the last two and a half years and it has ruined my life. Since taking prozac I have lost my jo...

4 REPLIES

I am 19 years old and I have been on Vyvanse for 3 years now. I started out with 50mg and it was amazing. I could stay f...

3 REPLIES

Hello, I am 7 years out from Epclusa. When I first started taking Epclusa, it was very frightening. Every time I took th...

I took Topiramate for seven days. On the eighth day I had pressure that went up to 60 and 70 in my eyes and ended up in ...

6 REPLIES

Hi there, I have a strange question that i cant find the answer for. I took Tramadol/Zydol for around 7 months for back ...

2 REPLIES

Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy....

167 REPLIES

Has anyone taken Epclusa and experienced back and leg pain? I already have 2 herniated discs but it seems that since I s...

33 REPLIES