Epclusa Ruined My Life (Page 14) (Top voted first)
UpdatedHas anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.
Re: Kathleen (# 246)
Best wishes and prayers Kathleen from your auzzie mate Lou
Re: Kathleen (# 251)
K,how are you? Are you ok ? I can understand you not feeling up to texting,I'm often same ,Xmas is tiring for us ,just bit worried about you,what this Epclusa treatment has done to too many people is criminal in my opinion.
Re: Kathleen (# 251)
I hope this finds you and you are ok??
Re: Elizabethgrace (# 226)
Hi I read your message mths ago. I finished Epclusa 3 yrs ago now have numerous problems. I was wondering if you decided to do the treatment and how you are feeling? There's another lady named Kathleen I communicate with through this site from California. I have not heard from her, she has been very ill since taking Epclusa treatment. I'm very worried about her. Maybe somebody else on this site may have heard if she is ok. Anyway hope all is well with you. Happy new year.
Re: Verwon (# 1)
Hello Verwon, I am a bit concerned about Kathleen ,on this Epclusa Poste,she was in ill health,she was a regular on this Poste and a friend.thankyou
Re: Skpp930 (# 7)
Hope you are feeling better now days ,it's been a few yrs since I did treatment ,still got unwanted things going on ,puffy feet Edema nausea ect,I had Astrazeneca recently send to have made everything worse ,I don't think I should have had vaccine Astrazeneca I'm 68,with immune system not so good thanks to epclusa hope you are ok ,I'm in Australia.
Re: Kathleen (# 10)
Hope this finds you my friend or maybe a friend of yours can contact me.
Re: Kathleen (# 248)
All best wishes for new year ,hope everything improves for you ????had my booster shot yesterday ,bit of sore arm so far ok .short of breath this morning probley side effect all the best to you and family ,I'm really tired been awake seems like days ,
Absolutely! I’ve had this horrible restlessness in my legs with a buzzing feeling. it causes me to cry out “Please go away please go away“ when it gets really bad. I’ve also been getting this unnatural feeling in my lower stomach and have bad diarrhea that is a yellow orange color (Sorry to sound gross). My hands and feet feel clammy sometimes. I have other less prominent symptoms that I can’t think of at the moment (bigger symptoms overshadow the smaller ones I guess).
Had it 2017. Was OK at first but missed 11 weeks. On the last week I felt too poisoned to take it. Spent 2 years waking up with swollen fingers, then seizures from flourescent light, then bad electromagnetic hypersensitivity. It took to 2022 and still learning what they did to us. I spent 8 months on a mattress hidden in corner of lounge as a bedroom full of static wall sheets on floor and everything. I got bad. I never went back in the room then I grounded with wire that I put though vent in ground. Bad headache but felt better so I slept with an anti static wrist band around my ankle, hiding and living on a mattress. My body got so weak I had to stay laying down. I had strength to do some quick exercises but no normal strength in spine, legs, arms - all weak. I could not even sit in a chair, I had to lay down. I thought this was it for me, near death, could not do anything. Just on phone laying there with bed rash on elbows because I spent all time on elbows on phone.
Re: Davoe (# 70)
I've been on the med for 5 days feel brain fog no energy. Lots of anxiety and headaches. I feel like a I can hardly move I'm afraid it has upset my sober life too. I hope I wake up refreshed not like last 5 days
Re: Lou (# 259)
Sorry just read couple of my messages I meant to send to covid vaccine not epclusa sorry
Re: Emmy (# 265)
This stuff is an immune suppressant. In other word it kill your immune system. DAA switch of T-cells. You never get better. You think you are better at times then bam, back. Look it up, all the same thing. Hep-c is not a virus as I thought. It is elevated levels of things in you that the body produces. Every thing about viruses are false fraud. Not saying can't get ill but how is it people who drink get it by drinking? It's because the drink causes damage, not because it something you catch. Fraud.
Hi Barbara ,hope your condition has improved these days ,I found one old message of yours and your were not going very well with epclusa ,I was the same restless led body jerks I still get puffy feet ankles heaps different infections ,I don't think I feel much different these days ,I had no support from Gilead or other people. Where are you? I'm in Australia ,only person who helped me a bit was lady called Kathleen from U.S. I wonder what happened to her as I havnt heard anything for a few years , do you remember her? Now I'm really scared with covid about as since doing epclusa I have weak lungs COPD asthma .I'm in 60s really don't feel strong enough to put up with a virus.anyway hope you survived .
Re: Susie (# 27)
Susie,sorry to bother you I'm in Australia,do you remember Kathleen ?she often mentioned how hard epclusa had been for her,have you heard anything from her,thanks hope you are doing ok.
Yeah!I've been done with epclusa for approximately 3 months now, still feel itching under my skin that I cant scratch or satisfy, I've had diarrhea from the day I started epclusa until now, so six months of this,I wake up every morning with sever anxiety I feel like i wake up with adrenaline coursing thru my veins, which makes me extremely shaky, its made my job almost impossible to perform, its lead me to become depressed,I feel physically sick every day all day, cant focus an anything except how my stomach feels and how sick I feel. I honestly felt better before I took this medication and now,Dr.s have not been helpful whatsoever. Im at a loss, may have to quit my job, I don't know what I'm gonna do or what I CAN do, but my life is not the same as it was before I took these pills.
Re: Erin (# 271)
I'd be very interested in just finding out whats wrong with us after the medication.i don't even know where to start,none of these people,pharma,dr.s etc care at all.ive had diareah from the day I started,ive been done for 3 months and still have diareah, trembling in my hands, insanely high anxiety,i have no joy,I cant focus on anything but how sick I feel all the time
Re: Skpp930 (# 15)
Why do you say that it killed 'other stuff'?
Re: skpp930 (# 11)
Same, it's been many months since I finished treatment, I've developed tremors, severe anxiety, confusion, can't remember anything, can't even think of certain words I typically use when I try to describe something. My life's declined rapidly since beginning epclusa. I'd rather still have hep c than to feel this way every day. I still can't sleep, I have aches and pains all over my body that I never had before. I had diarrhea for the entire treatment and then it continued on for months afterward, every single day. I finally had to go to the emergency room, not once but a multitude of times, colonoscopy etc etc and they can't tell me what's wrong with me. I'm about a week shy of checking myself into a psychiatric hospital. I don't even have a life anymore. I'm a tattoo artist (in a studio as a professional) but the trembling has forced me to give that up, the anxiety that seemed to come from nowhere, the diarrhea, the aches and pains, the constant itching that I can't satisfy, it's all led me to a seriously dark place.
Re: Lou (# 276)
I'm 46,have a wife and two little boys ,I did this treatment hoping I might get some years back and see them grow and prosper. I haven't had a good day where I was able to push thru without all this sickness stealing any joy I might be able to find in the things that should be milestones. The depression is killing me too,i understand where the depression comes from,ive quit my job, I have no income, its just a snowball effect with no remedy. I definitely cannot live out the rest of my days feeling like i do now. I'm so irritable just cause of how sick I I always feel,how weak I feel and how hard it is to carry out normal tasks,even my coordination is delayed,my fingers dont work like they should,just limited control.
Why won't they help us?
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