Epclusa Ruined My Life (Page 13)
(Newest replies first)

Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

REPLY

REPORT

Re: Katherine (# 4)

Hi Katherine, with my post treatment problem s besides the numb fingers toes edema ,joint pain in knees an shoulders plus anxiety,I feel really exhausted I'm bit worried that this tx has given me heart problems, of course the liver people with all there no support don't believe Epclusa could do this,I really felt better before the treatment .hope you are ok.

REPLY

Was this helpful? 1

Re: Katherine (# 4)

Hi Katherine,don't know if you remember me,I also did the treatment,how are you feeling now?it has been a while since I've been able to get on line ,I am almost 12 MTHS poste treatment ,I have few numbness problems in fingers feet, tend to get edema in feet legs at times,plus joint pain in knees very painful, I don't know if it's from tx or just an ageing thing! but I don't like it, IV had no support from liver clinic that started me on tx,IV rang them ,all they say is tx wouldn't cause problems,so when I go to my local Dr try tell him about my pain issues,he just rings liver clinic an repeats there claim that tx has no long term side effects,I have appointment with neurologist ,probley 10 nth waiting list unfortunately,anyway hope you are going ok with your issues,it's been hard winter here for me not sleeping very well,not looking forward to the heat of summer a
mth away,you have been getting extra hot weather also as with europe,seasons sure are strange ,take care .

REPLY

Was this helpful? 1

Re: Kathleen (# 66)

Thanks Kathleen, yes I know wat u mean about being GUI ea pig

REPLY

Was this helpful? 0

Re: Davoe (# 65)

I di not have numbness. I have fatigue beyond belief.
I just saw new gastrointestinal dictor two days ago. He seemed surprised that 5 months post epclusa I still feel so tired. Having another ultrasound next week.
I also have cirrohis frim bloid transfusion so I am not sure of your illness.
I know that doctors do not tell us all side effects.
I have had to be an online detective to learn.
I hope you talk to your doctors about symptoms.
We are guinea pigs for hep c meds.

REPLY

Was this helpful? 0

Re: Kathleen (# 13)

Hi Kathleen, got my results back and I'm cured apparently, very pleased, but now I seem to have numb tingly fingers on one hand and a couple of toes, but worried this may get worse. Have you heard of this before. Hope you are going ok. I've had brain fog often plus family dramas lol. Take care.

REPLY

Was this helpful? 0

Re: Skpp930 (# 7)

I hope you are feeling better now. I get final blood test done on Friday. I'm 65yrs old - I agree with what you said. I did not feel to bad before treatment started. I've had side effects. Nearly went deaf in right ear, had to take a steroid to get hearing back. Anxiety, nausea, edema are just a few. Oh - recently numb fingers on right hand, numb toes left foot. Weird thing is every time I mention these symptoms to nurse at liver clinic they say never heard of that happening before. I don't believe it, they have been no support at all. Not even a phone call. I'm starting to think the whole thing was a waste of time. Hope your condition has improved. I'm a bit worried that my Dr doesn't really know anything about these new meds. Please let me know how you are. thanks

REPLY

Was this helpful? 0

Re: Davoe (# 62)

Hi. I finished my epclusa june 5th.
It was a hell of a ride.
Felt poisioned evety day (duh). Considering that I was being poisoned. I was not told by my Physicians the side effects that would come with epclusa I'm not sure it would have changed my mind about taking it but I was very poorly informed. Even going on the internet I did not know of all the side effects that could happen and it's been eye-opening to see all the things that have changed in me since epclusa. I am a woman I had beautiful hair I know do not have very much hair it is very thin it won't grow back very well and as far as nerve damage I'm not sure my spine hurts all the time now and that's never happened before and my shoulders hurt. I did have pain in my hips but that is gone. It's been a long struggle to get over epclusa and to get a clear head and to try to look ahead to the Future. Tell me what happened with you and how you were feeling I'm very interested to know

REPLY

Was this helpful? 5

Re: Skpp930 (# 7)

I totally agree. I'm 2 mths past. tx edema in legs, nearly went deaf, nausea, depression, and they told me no side effects... mmm$$$$

REPLY

Was this helpful? 0

Re: Kathleen (# 60)

So glad you're feeling a bit better, the fires look so bad....every year around here there's usually a fire, and yes, it really effects lungs badly. Plus people with ride on mowers, leaf blowers, etc all do us harm i think. Just wish i could shake the coughing, a lot of flowering trees does not help....

REPLY

Was this helpful? 0

Re: Lou (# 59)

Hello.
I have not had swelling or much pain.
Mostly exhausted all of the time.
Epclusa is in realm of so new that I feel we are guinea pigs.
I will probably die before all side effects occur.
California on fire for month.
Don't know if my lungs hurt from fire or side effects.
Congrats for doing 3 months
On Epclusa.
Hell of a thing.

REPLY

Was this helpful? 0

Re: Kathleen (# 58)

Hi Kathleen hope your not feeling too.bad ! I v been finished tx about 1 mth dont feel real great ,nausea seems to be with me often,my dr had me do blood tests most numbers looked ok i think i have a copy here wih me alt ast in normal range first time in.yrs still dont know about VL gotta wait 2 mths for that ! Iv noticed i have a blotchy rash on my forehead ,went to see liver clinic on fri to show them , but guess what they were having annual xmas party so cud not see any one..also we had heat wave conditions last weekend 104 deg i felt so bad dont rember it having such an impact on me,i have 2 fans going all day just felt exhauzted put feet in cold tub of water ,feet legs puffing up ,i went into town next day booked into motel with air con try an get energy back ,i noticed room had strange odour but too tired to keep driving .i put air con on went strait to sleep ,anyway i woke up in morning with worse chest constantly coughing ect i went to a dr she said temp was ok bp ok ect dont need anti biotics !!im still coughing yuk up !no one here knows anything i dont think any way been a week tomorro she said may have picked up germ from dirty air con i just hope its not my immune system stuffing up .got to see my dr on mon be interesting get her opinion.maybe hope your enjoying calif. and feeling bit better ..your in my prayers

REPLY

Was this helpful? 0

Re: Lou (# 24)

Hello lou.
You should be done with epclusa by now.
Its been 5 months since i funished my epclusa.
My side effects are widening.
My wrists and shoulders hurt.
I have shooting pain in my legs.
My hair is so thin.
So many side effects we were not told to expect.
My hep c viral load was zero after one month but too much scarring in liver.
Im terminal with no check out date.
I never drank or did drugs.
Its just a toss of the dice.
All I can say is do all yoy can to stay strong. Dont take this medication and get healthy without realizing what a blessing and gift you have recieved.
Lou made it to California.
Hopefully my health will mellow out for awhile.
Good luck to you all. Take meds same time everyday..as if your life depended on it.

REPLY

Was this helpful? 4

Re: Kathleen (# 56)

Hi Kathleen ,how are you going ?hope you are well sorry iv been out of touch ,finally finished epclusa bit of a rough ride last 10 days ,anyway my feet ankles puffed up my local dr was a bit concerned about my kidneys ect.so i had blood test it showed my alt ast s in normal range but iv always had very low cholestral 2.4 ect now it is 5.0.iwould epclusa make it rise do you think ,?i cant see my dr for 2 weeks to ask her, and i was in so much shock seeing alt ast results i didnt get around to asking her about cholestral prob just normal ,i cant ever remember seeing my alt ast s in normal range.starting to get hot over here now,the fires in California look so terrible hope you are safe and not feeling too bad !just thought i wud let you know that i finished tx ..thinking of you please take care

REPLY

Was this helpful? 0

Ive finished my 12 weeks of epclusa at the beginning of June of 2018. I'm feeling okay. The medication made me feel like I was being poisoned everyday but I guess that was the point. They didn't tell me about all the side effects like being a woman losing a majority of my hair. Being depressed. Feeling like all the life was gone out of my body. Feeling no hope Joy or happiness. I have cirrhosis of the liver stage 4 caused by the hepatitis C being undetected for almost 40 years. If it wasn't for inclusa I probably wouldn't be alive right now. Every side effect outweighs the alternative. I would just say ask your doctor every question you can think of about what to do while you're on at clusa like for sleep for depression for listeners for hopelessness. Good luck to all of you

REPLY

Was this helpful? 1

Anybody else taking harvoni or epclusa tx with emphasemia or copd? I'm on week 8 and feel so exhausted. I feel like stopping the pills. I'm 65.

REPLY

Was this helpful? 0

Re: Kathleen (# 10)

Hi Kathleen. I hope you are going ok. My phone has been out of action. I'm on my week 8 now and i think i've been getting depression, anxiety, copd. It seems worse and i feel like giving up. My dr is useless and the liver clinic wont even answer my calls. No help whats so ever..its raining here now & that makes breathing worse. I wonder if its worth it. Sorry just having bad night. Hope you are staying strong.

REPLY

Was this helpful? 0

Re: Skpp930 (# 7)

I'm in australia. I lost hearing in my right ear on my 2nd week. I'm lucky my dr put me on the prednisone steroid drug which saved my hearing. Of course the liver clinic said epclusa doesn't affect hearing..crap...no feedback, no help. I think it's all $$$. On the 8th week I felt like throwing out pills due to depression and anxiety. Bo side effects they said...mmm.

REPLY

Was this helpful? 0

Re: Lou (# 51)

Did u chat with your doctor about the patch?. I don't think smoking while taking a clusa is a good idea. Especially with your COPD. I don't mean to harp on you but liver damage is nothing to play around with and being on epclusa is a gift and something you should take very seriously. The side effects from the occlusive are harsh and they make you want to quit but the outcome is me. I have a life now although I am looking forward to a transplants somewhere down the road I have a life right now and I can get out and I can do things. The side effects from eclusa are a small price to pay for taking them. I have never smoked nor drank but if I had a chance to be given my life over again with epclusa I would definitely give up all things like that for a chance at a life. I'm not going to California until next month I'm still in Tennessee.. I really hope that you read my words and understand I'm coming from a true and genuine Place worrying about your health. There comes a point in life when our priorities have to be straight. I'm not sure what inhaling 700 chemicals in your lungs does to make you feel better. But trust me you'll feel better without those chemicals in your body. Please don't take this the wrong way or think that I'm being cruel. I just want you to look at what the gift has been given to you and to take it seriously and maybe someday we can meet because you'll take all of this seriously. Your friend Kathleen

REPLY

Was this helpful? 1

Re: Kathleen (# 50)

Hope you enjoyed your drive ,the scenery must be beautiful ,one day i may get to see it ,silly me tried a quit cig patch yesterday i forgot to take it off at night ,felt sick all day yesterday dont think they go with epclusa very well ! Day 41 today felt so horrible yest its hard to take today but i will ,once again theres no one to get back up here in aust if not feeling well.how are you ?i guess you must be tired from driving so far ! try take it easy hope you are feeling happy being in california.

REPLY

Was this helpful? 0

Re: Lou (# 49)

Epclusa and depression go together. It's not bad now. Just feel fatigued. The hardest part for me is sleeplessness. I never smoked so no breathing issues. Copd sounds scary. I have never been into drugs or alcohol. So finding out I had hep c and cirrohis was extremely scary.
The side effects are not nervous system damage but definitely affected my joints. Others say epclusa did the same damage. Driving back to California. It's 2000 miles. Take care. Take medicine the same time every day. Drink lots of water.

REPLY

Was this helpful? 0

I was on Prozac (fluoxetine) for about 8-9 years starting when I was about 14 years old. I'm 23 now and for about th...

25 REPLIES

I had mild psoriasis on my scalp, elbows, and a few on my legs. Within three days of being given an intramuscular inject...

3 REPLIES

Told to take Apixaban after "supposed" pulmonary embolism...but NO proof! They then discovered I had a lung infe...

I have been on prozac for the last two and a half years and it has ruined my life. Since taking prozac I have lost my jo...

4 REPLIES

I am 19 years old and I have been on Vyvanse for 3 years now. I started out with 50mg and it was amazing. I could stay f...

3 REPLIES

Hello, I am 7 years out from Epclusa. When I first started taking Epclusa, it was very frightening. Every time I took th...

I took Topiramate for seven days. On the eighth day I had pressure that went up to 60 and 70 in my eyes and ended up in ...

6 REPLIES

Hi there, I have a strange question that i cant find the answer for. I took Tramadol/Zydol for around 7 months for back ...

2 REPLIES

Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy....

167 REPLIES

Has anyone taken Epclusa and experienced back and leg pain? I already have 2 herniated discs but it seems that since I s...

33 REPLIES