Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 28)

People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.

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REPORT

I haven't got the energy or inclination to write much here, much less clean my house, take care of Mom, the furbabies, cook, shop, wash clothes, etc, etc. I am now on Tylenol 3, my Lotabs taken from me that kept me pain-free and actually wanting to take care of the life I lead. I used to be able to lift 100 lb sandbags to load into a sand pot all day long. I am a want, but I worked like a man. Between that and various auto accidents, RSD, Migraines, Arthritis, Herniated Discs, Abdominal Hernia, blah, blah... could go on, but why...? It doesn't seem to matter... pharmacists took away my Dr's right to prescribe my medication, wouldn't fill. After a decade with same Dr, same meds, same pharmacy... I am told I can no longer have my medication... 2 of them cold turkey. I was dependant, Lord Help me, wish I still was. I am in pain almost constantly, even on a good day, I figure when I do something I have been needing done, the pain is back. It wakes me in theiddle of the night... I haven't slept past 6 am since I don't remember when. I need a break from pain... but I almost believe nothing can be done now about it... they have their system in place and are doctors mostly don't care. They spout guidelines and call them laws... Pass the Buck, so to speak. I read alot, I used to write alot and call for action. But that gave me hope. I no longer believe our rights as pain patients will be restored, no matter how much we scream. What can I say.... I'll believe it when I get my medication back...

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Re: Vintage Lady (# 541)

For years I have not had any problems getting my vicodin. Now, the pharmacy has intentionally stopped notifying me when my Rx is ready and when I call to check the status the response is they haven't received the Tx from the doctor and when I have checked I find my doctor's office had in fact sent in the Rx a week or more before. I'll be 75 in less than a month and the pain is off the charts. More and more I am up all night in agony from pain from several sources and when I do take the vicodin they don't seem to work all that well when I never had that problem before.

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Things are different today. I here every druggy say the pursuit of happiness just seems a bore though she's not really I'll their, s a little yellow PILL that keeps her running to the shelter of her mother's little helper although it don't sound rite it help's her minimize her flight so she can make it through the nite. Doctor please some more of these out side the door she took 4 More wat a drag it is coming down things are different today I here every druggy say hav ent taste sweet Roxy any more

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Re: Dead (# 543)

I love your advice here! How i remember that song! By the rolling stones "mother's little helper ". ..however i do not know the sweet taste of the pill your talking about because I have never taken it.. thx for taking time out of your day to give your opinion.

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Re: Dead (# 543)

The song was about Valium back in the 60/70's...

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Re: Roro (# 533)

Don't DO IT!!! Why mess with anything to do with the spine, it's ridiculous and dangerous!

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Re: Vintage Lady (# 541)

I don't know if it matters what state someone lives in but here in Florida the doctor has me on 3-4 percent 10s a day.or it's probably not the state but what doctors one has..because to only be able to get tylenol 3 is a shame. It does nothing for me at all.

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Re: Charlene (# 547)

According to my clinic cdc says no more than 50mg morphine or equivalent a day ..... hydrocodone is 1 to 1 & oxycodone is 1.5 to 1 (10mg = 15mg equivalent to morphine)

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Re: Charlene (# 544)

Welcome.. I do and have been taking this med for quite awhile... Anxiety, panic attacks. It's the only one they kept me on through the changes made with the so-called Opioid Crisis
Lost Lorcet, Soma that had enabled me to keep working throughout my 40's and 50s. Only 1 Soma at bedtime for sleep and muscle spasms, a tried and tried med from.as far back as the 60s. I may have been dependant, but always responsible in using meds, orally, the way they have been prescribed.. Now the Tylenol 3, about all I can get without going to pain management. So do.my best with what I can get and hope that the powers that be get their heads out of their butts and do right for the pain patients who need their medications
Always got to keep up the good fight, but how? It's a vicious cycle, especially when pharmacists can refuse to fill if they don't think you should have these prescribed by doctors. They have overstepped their bounds of power to do what they want... What about what WE WANT AND OUR DOCTOR DEEMS IT NECESSARY TO PRESCRIBE ACCORDING TO THEIR PATIENTS NEEDS. ????

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Re: Stacey (# 10)

I realize this ia an old post, but had to reply; IF this is your medical issue YOU should have had gallstones and gallbladder removed, and YOUR PAIN WILL BE GONE, THAT IS WHAT YOU WANT; RIGHT!?

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You are so right! So many chronic pain patients can no longer get their medication to literally save their life. I've been hearing about so many people now that have died from complications due to untreated pain. Makes me sick what's happening to pain patients right now and has been for years because of the CDC in their stupid supposed guidelines. This must change! As you said and I agree, we must be the ones to make that change. We must make them hear us loud and clear. They don't want to listen we need to organize better as if unified Force, vote them out. Thank goodness for the advocates we do have that are trying to make them listen and are making us some headway.
#dontpunishpain

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Thank you so much for speaking up. I am fully disabled and waiting on my 2 back surgeries and neck surgery. If there was a way to get everyone to rally about this and quit putting the disabled, veterans, and seniors in the same category as young kids that just want to get high I will be there. Give us at least a little quality of life! (Not to mention they are taking alot of the medicine out of the pills and replacing with filers that sometime interfere with the medicine. People can only take so much severe pain, not to mention it can cause you to give you a stroke or heart attack because your blood pressure is through the roof. So thank you for speaking up.

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Re: Jesse (# 552)

I also live in Lucedale, MS and have been a chronic pain patient for the past 10 years. I take oxycodone 20 mg twice daily. I was a patient of Dr. Dunk Ellis III in Mosspoint, Mississippi for five years. He was a great doctor and was one of the only ones who would write your pain meds even though the DEA had brought down so much unnecessary scrutiny upon pain doctors everywhere. Around December 2019 Dr. Ellis had to stop writing pain meds. I’m not sure of the entire reason behind it but I know it was Government bureaucratic bulls*** that did it. The governments concern is supposed to be for the patients with chronic pain who were prescribed opioid medications. Where was their concern for my mother who could no longer get her 40 mg oxycodone three times a day when they shut Dr. Ellis down? Where was their concern for her health after her car wreck crippling her back and legs for life? Where was their concern while she was dying in my arms from the heart attack induced from her withdrawals? Where is their concern for any of us chronic pain patients? It’s not there. I’ll tell you where it is. It’s stuck in their wallets and their bulls*** campaigns to try and get reelected by telling any and every lie they think we want to hear.

I have to drive to Mobile Alabama from Lucedale, MS in order to see a pain doctor. But if anyone is looking for a good, no make that a great pain doctor, then call; Dr. James M. Crumb @ Mobility Metabolism & Wellness, PC in Mobile, AL. (251)-345-0773.

Dr. Crumb is a great doctor and actually cares about your pain and cares if you have your medicine that you need. The only complaint I would have about the business is not about him, because he’s awesome but his receptionist and some of the nurses, not all of the nurses but some of them are so very rude and their bedside manner is that of an animal. If you can deal with a little bit of their crap I’ll tell you now that it is well worth it to get to Dr. Crumb and be one of his patients. He is a highly intelligent physician so if you’re thinking of going in and trying to bulls*** him or lie in any way just to get pain meds then I would think again before seeing him. If you are a legitimate pain patient and you have been done wrong by different pain clinics and different pain doctors then you will know what I’m talking about when you see him for the first time. You can actually be honest with him about anything such as taking a little more of your pain medicine due to being in more pain than normal or taking a different pain medicine not prescribed to you under circumstances where you didn’t have your meds and needed them. He won’t cut you off for that like most of the doctors would. If you’re honest with him he will be honest with you and do everything he can to help you live with your pain. He is a great man and I have much respect for him. For me to say this is really saying something good because I don’t respect any doctors because I’ve been lied to and tossed out an abandoned so much by them. But Dr. Crumb definitely has my respect. I’m glad to have a doctor that I can have an honest relationship with and not have to worry about him cutting me off because of stupid things as long as I’m honest with him. He is highly intelligent so I tell you again, if you plan on trying to lie your way into it then think again because you won’t get anything past him. But if you’re legitimately in pain and need the meds he’s a great doctor to see. Again I want to say you will have to put up with a little bit of bull crap through his staff but if you can do that this man is an awesome pain doctor.

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Send Me The Info! Kate Brown governor of Oregon is also putting pressure on the Oregon Pain Management's doctors! I have been deemed Stable on my meds for Chronic Pain for 23yrs! For the 1st time my Night Time dose was removed, due to my Amazing Doctors Fear, Rightfully So Of Losing his Lic! Good quality pain management is hard to find! My pain level should not be dictated by a Politician Views when they have never lived with a Spinal Injury or Worse! All Patients Can Not Be Treated the Same!

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I've been in chronic pain management for 30 years now. Up until this past year I didn't have any problems with the pharmacies in New York for my prescriptions (I live in PA). U had my 7.5 mg Vicodin filled at a Walgreens for years then all of sudden they wouldn't call me to let me know my Rx was ready until several days after the day I would have picked the Rx up. Then with the next time the Rx was renewed they would tell me my Rx wasn't ready when I called and they would tell me because of the delay in my last "pick-up" date, the day I could pick the Rx up was now changed to a new day and they would let me know when the Rx was ready, but AGAIN it was several days past the "new" pick-up date. I had my doctor change the pharmacy to Rite-Aid because now I was trying to make a 30 day Rx last for almost 60 days from both pharmacies pushing the pick-up day further and further out. I've since had my doctor change to a pharmacy in my state and we'll see how that works out. I think the DOB's in NY just don't want to deal with pain meds and have come up with a method to force people to alternatives. The NY law says I can't pick up a Rx before the last day/date of when I picked up the Rx the month before. HELL, the way things were going my doctor could write me a 30 day Rx and I'd be picking it up a year later. The government should NOT be involved in my health care in any way. The whole thing is a political con job for control over the people The ACA would more appropriately be called the UCA (unaffordable care act). My doctor knows what I need and don't need. SOB government bureaucrats have no clue but the politicians want government bureaucrats dictating what health care you can and cannot get.

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#dontpunishpain

We organize here in Wisconsin and probably across the country I'd imagine to go out and protest what is happening to us. I shared this on Facebook and I hope that's okay. Most people are unaware of what is really happening and listen to the lies of the hyped up media and as you said, indeed, politicians looking to further their careers and look like they're doing something great. When the CDC has a board filled with pain med Nazis what chance do we stand of living a halfway normal and decent life anymore? This has been going on for years and yes the suicides need to be tracked as well as the horrible living conditions of pain patients forcefully tapered off their meds and now bed bound and contemplating suicide.

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I totally Agree. I have never did drugs but now that I'm fully disabled and dependent on my medicine for some what quality of life.

For one thing, opiates have been fully tested for 10 years as was required and a small package was given to our veterans when they went war in case they got shot but now pharmaceuticals are making so many different drugs and none of them the fully amount of years tested, which is why so many people end up with more health problems, some even leading to death. That's why I wouldn't take any of these drugs because they don't really know what the end result will be. We all know it's all about money.

Not only that, their allowed to put less medicine in and more fillers, some which interact with the medicine and might not even work for you. When a doctor orders the same quality you have received in the past, you end up running out because they don't put the full amount of medicine it. Even though the doctors know this, they might cut you off because you run out of medicine or the medicine don't even work for you because they change and go through a cheaper manufacturer so they have different fillers in it. I have talked to several doctors and some pharmacist. Some of them were honest with me because I am highly allergic to alot of medicine and told me this too. Also, when your in severe pain you could have a heart attack or stroke as told to me by the hospital because it raises your heart rate.

They are so wrong putting someone that really needs the medicine for some quality of life with kids that just want to get high. Those that are trying to be a judge will get old some day too and with the environment what it is today, will also need medicine at some time, so when you see more suicides from old, disabled, and veterans then you'll know why. It will be on the backs of all of those that want to judge us. If they care, they would do something about it and understand what "quality of life" really means.

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