Accutane Long Term Side Effects (Page 55)

Updated

I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

1933 Replies (97 Pages)

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1081

Please use pure coconut oil daily internally and on your skin. My son had accutane 10 years ago and now suffers extremely dry skin. The pure coconut oil has pretty much fixed it. Reseach it, you'll be surprised at how medicinal it is.

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1082

i had cured my acne many years ago . the doctor gave me a drug but it is not accutane , it is white flat and round , the doctor didnt even tell me the name of this drugs but after i took it my skin did dry and not oily like before , so i was wondering if it's not accutane what can it be ?? i have do some research and it said that .. there are many clinic buying the same chemical (maybe isotreatanoin) in accutane and make their own drugs , is that possible ?

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1083

Are there any sufferers in the Uk who would like to take action against the people who gave us this awful drug?

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1084

cc,

Unfortunately there are similar generic drugs as accutane but have different fillers etc, but the end results are the same. Check out this site:
drugwatch.com/accutane

Best Wishes,
Scott

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1085

cc, maybe it was spironolactone. It fits your description. I have never heard of clinics buying chemicals and making there own medications, but IDK. I suppose anything is possible. Were you handed this medication by the physician, or a script for a prescription to pick up at a pharmacy?

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1086

I was on accutane 6 years ago... The first one was for two months and I had to stop taking it because there was constant ringing in my ears. It was very annoying as it wouldn't stop for the full two days and I consulted my doctor. She told me to stop taking it and I did. A year later I asked my dermatologist to put me back on accutane and she did. However, she gave me a lower dose because of the side effect that I had experienced a while back, and I was on it for 4 or 5 months with regular monthly checkup (blood, urine, I can't remember what else). Fortunately, I have been doing fine and I have not experienced any bad side effects ever since finishing my dosage.

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1087

Yeah Scott there are generic alternatives, but it seems cc is referring to a tablet. From my understanding, any form of accutane or isotretinoin is always in capsule form. Have you ever seen accutane tablets?

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1088

1983,

I m only familiar with Amnesteem in 40mg and 20mg capsules. Thanks for the heads up.

Scott

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1089

thanks scott and 1983 for the information, i think it could be spirono cus at the time the doctor didnt ask for my blood test and yes .. i am so hairy right now .. i think this could be the one, thanks to 1983 now i feel so relief that i didnt took those drugs and btw are there any bad side effects from spironolactone ?, and are you positive that all isotretanoin products didnt come in capsule ?? thanks again for your reply :)

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1090

cc I can't say with 100% accuracy that all forms of isotretinoin are in capsule form, but I've never seen any in tablet form. I only have positive effects from Spiro. But than again females have more desirable effects than males, such as lighter and thinner body hair, amenorrhea, and maybe breast enlargement. It's an anti-androgen medication so males can sometimes get secondary sex characteristics, but nothing too dramatic. It wouldn't normally cause an increase in body hair, but some people can have reverse reactions from any medication. For instance, It's suppose to increase potassium levels, but my lab results actually indicated that my potassium was slightly low. I only started taking isotretinoin hoping for permanent acne relief. I took 20 mg for 6 months before I found this site, then I stopped it immediately. I was certainly feeling the effects from it anyways, but idk why never thought of permanent side effects. So thank you everyone who took the time to point that out! I've been off of it now for a month and now I breaking out with an unknown ailment only on my forehead. I've never broke out on my forehead before and I really doubt it is any form of acne as my skin is so dry. The rest of my face and body is clear.

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1091

Daughter used this drug 18 years ago and has suffered chronic pain, dryness and arthritic problems as well as IBS since. She has just been diagnosed with sjorgren's syndrome. Is this all a co-incidence? At 36 she will probably never be able to work full time. She is a qualified high school PE teacher, and after suffering joint problems studied for her Masters in Public Health and went on to do a Law degree. I can relate to all other sufferers and their families who have been affected by this "acne" treatment

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1092

Wow .. That's horrible !! Are you located in the USA or Canada ? How old was she when she took accutane and what dose? I was 16 and I took 40 m twice a day.. I too believe it drastically changed my body as well.. My sympathy goes out to your daughter.. Hope she gets better

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1093

I'm on claravis 30mg twice a day. I'm now on my fourth month and I've showed no side effects outside of getting a tad bit more sore after working out. Your son did not take the drug long enough to even have side effects so this is just something like anxiety or all in his head. I play basketball everyday and have no depression whatsoever. This is a great drug it works miracles for acne. Do not let all these posts discourage you from using this drug you must realize that most of the people on this site either had medical issues going into treatment or the people posting problems are the only ones who actually had issues with the drug. This is a very small sample size compared to the amount of people who had success on this drug. They're numerous testimonials pro accutane.

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1094

Sorry my post wasn't sent to the right person. But I am 20 years old on my 4th month of accutane I have experienced no side effects besides increased confidence do to my new smooth clear skin. I'm doing great in college now, my social life has increased a ton with my now perfect skin. I was an all state football and soccer player and like I said in the above post I play basketball and intramurals all the time. People who have issues with this drug blame it on accutane as an out for all of their previous health problems. And I know someone is going to say well 10 years down the road this health issue occurred... Well my theory on that is you were going to have that health issue regardless and you blame it on accutane because that's all you have that you can blame it on. The only reason your on this website is because you have a health issue even though studies show millions of people that have had no long term side effects. All you people out here blaming your health and depression problems on accutane is an absolute joke. Not to mention my 18 year old brother is done with accutane for 5 years now and he is 6'3 200lbs and a great athlete Benches 325lbs no problem and plays sports in high school just now he has clear skin. Please don't let all of these people blaming health problems on accutane effect your decision. My doctor calls this drug the "miracle drug". Also let me mention this... I am on my fourth month and I honestly drink pretty heavily at the bar and Everytime I go in for a checkup and blood test the doctor says everything looks great... So great that I don't even have to get a blood test monthly anymore only every other month. These people are such a small sample size out of the millions of people that take this and of course those postings on this site are going to be all the people with problems. Great drug from a very honest and real person on claravis 30mg twice a day and my brother took 80mg daily.

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1095

Scott,

This is specifically directed at you. Your blaming all this on accutane when your clearly in denial that your son has a severe abnormal health issue. There is a reason why youve been to seven different doctors with no success. You can't blame your child's health issues on this drug he clearly was intended to have these issues regardless of whether or not he ever do this medicine. You should have done your research before you put him on the medicine if you were so concerned you sign a waiver form letting you know what your getting into. There is so much information on the Internet made available to you and as a parent you should always reSearch before you give your kid medicine. I'm sorry but you can't blame something on a drug for your own mistake if this "drug" even actually caused your sons 100 issues, which I highly doubt.

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1096

@derrick sad to say that these stories of depression and hallucinations and stomach problems are true. u may not experience this yet but most people suffer greatly from pain and had no clue all their lives that it was due to isotretinoin. Both my brothers have suffered greatly from this drug and I am so sure that accutane was the culprit. Why take the risk loosing so many things good things in life over a pill that takes away pimples? Do you really think that pill is a miracle drug? Why even sign all the documents for taking a medicine? because it is a chemo drug that doctors dont want you to come back to sue them. it is because it is a highly dangerous drug. Is getting rid of your pimples even worth all the risks in destroying your life forever? you people are so young. it is very normal for teens to have pimples. lets face the facts... if you take isotretinoin, you risk your health forever. there is a fine line between being ignorant of the side effects and refusing to believe that it will destroy your life. Maybe by taking all these, it has already destroyed your brain a little bit that is why you are being stubborn and refuse to believe that it caused negative and permanent side effects. May God give you wisdom and strength in fighting the harmfull effects that this drug has done to your body.

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1097

Derrick,

I was a bodybuilder before accutane. I was in the best shape of my life. I had a huge amount of confidence before the drug. I took the drug, because I was pressured by the doctor that I needed it to avoid scars. I had well over 30 friends. I was very witty and intelligent. I had absolutely no problems before this drug. If the side effects don't show up at first they will show up years later. You just don't know how the drug is changing your body. You won't know until it's too late. If you read into the science which obviously you haven't you would know. You don't even know the science behind depression and why this drug causes depression. All the big pharma studies are flawed studies that do not even go past 5 years. This drug is a chemotherapy drug. Read up on chemotherapy drugs. Absolutely, ridiculous of you to make a post like this without any facts or knowledge of the drug. Most people don't link there problems to the drug, because they don't understand the specifics of the science. It took me a while to learn exactly what these companies did. All I can say is welcome to hell in a few years. Don't encourage people to take a drug that will kill them. Acne doesn't kill people and accutane does plain and simple. BTW there is not a study showing millions of people without side effects. Most of the studies are actually done over seas and are heavily falsified. Anyways, attacking everybody saying they have made up side effects is very immature especially when you aren't even done taking the drug. You seem somewhat angry which is a side effect of the drug. Anger and depression go hand and hand. BTW that wonderful liver tests doesn't do much for you. I won't explain why, because you seem to know much more about this drug than everybody on here who has been severly impacted by it. Well have another wonderful day without your acne!

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1098

Did you not read my post or something? I have no side effects and I'm pretty sure one of the side effects if I were to have them is not brain deterioration, especially since these are so called "long term side effects." It goes back to people like you being ignorant and in denial at the fact that your stomach issues etc... Is a bodily function that is or was going to occur whether you like it or not. You do know that people have these issues that have never taken accutane right? It all goes back to people are looking for something to blame and of course if you develop arthritis from the ten years you've been sitting in front of a computer typing, your going to be like oh wait I took accutane ten years ago... Yeah wait a minute that's why I have this condition. And thank you for your sympathy concerning my overall state of mind but I think I can hold my own. Have a 3.75 in chemical engineering in college and already have a internship with shell that I work when I'm not in school.

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1099

Let not forget that steroid can do that too let's not get the two mixed together. And there is plenty of testimonials pro accutane contrary to your beliefs. And last time I checked I didn't know debating over the Internet shows signs of aggression.

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1100

Derrick... Ignorance is BLISS..... My son started getting ill after 6-8 wks into taking this drug. He stopped at 8 weeks of the 12 week course. Now 2 years later he has suffered immense pains in Head, chest, joints, bones. Migraines and the list is endless. Bury your head in the sand if you must. My son is nearly 19 and has had no life for the past 2 yrs. He did voluntary work outdoors at weekends. He was training to be a power lifter. Did not take any form of steroid or such.. Explain away cos no one else can explain why he is sat in his room every day in pain, depressed !

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