Accutane Long Term Side Effects (Page 30)
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I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

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REPORT

I have been on isotroin for 3yrs.until one day i had severe dry red swollen kgps n i stoppd.nw m on severe dpressn.my skin is supra sensitive,itchy and when i scratch red spots happen.i gt rashes and easily sunburnt.how i wish i hadnt taken it.

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Were you diagnosed with sjrogren's? How can we get a hold of eachother. I have sjrogren's, type 1 diabetes from Accutane. What have you tried. I would stay away from acidic foods also. {edited for privacy}

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Can you please resend that link. I can't seem to get it to work. I took accutane and have sjogrens. I am looking for ways to treat it.

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Eff.. I think my son has celiac as he stopped wheat and gluten due to his stomach problems. Unfortunately my mum was diagnosed in later life. His stomach is much better but he hates blood tests as this also makes him feel ill on top of joint pains, migraines and tinnitus ... Wish i could turn back the clock

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I myself have been tested for celiac and unfortunately is not that :(

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I was prescribed Accutane for spotting when I was 28 years old. Although not full on acne I had had spots since around 15 years old and at 28 had had enough. I too suffered all the common side effects of dry lips, eyes, nose bleeds etc but the worst was yet to come. I have a blood disorder (low platelet count so increased bleeding) and advised the dermatologist of this but he just brushed it aside. After 3 months of taking the drug I was admitted to hospital with a blood count of 400 due to gastrointestinal bleeding. Several blood transfusions, 2 endoscopies and 2 weeks later I was released from hospital with the bleeding finally stopped. This had never happened to before nor since. I told the Doctors I was taking Accutane and again was brushed off. None of them could explain why this happened but I know it was the Accutane. Now 20 years later at 48 I have developed an auto immune arthritis in my ankles - long term side effect - who knows? Please parents, really think hard about this before giving this to your children.

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Obviously this is years past, but you should have your son checked for celiac. Honestly anyone on here who experiences red face/red ears, bloating, any bowel problems should have themselves checked for celiac. Osteoarthritis is a sign of defieciency within the body and accutane has been shown to be linked in activating celiac.

Symptoms of celiac disease can include anemia, fatigue, weight loss and bone problems. Look up celiac symptoms and it can be linked to almost anything as it affects everybody differently, but its wide range of effects is why it is so elusive. Health radiates from your digestive track/ small intestines, which accutane ruins....

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Hi Tom
Yes - of course I will let you know what I find out. My goal is to help myself and everyone else affected by this "medication". I looked through my paperwork last week and cannot believe the amount of bloodwork I have had in the past 10 years not too long after taking accutane. It is unbelievable. Most of them are within "range". But what is that? How do they know that is your "normal" when the range can be so broad. Anyways, I've been tested multiple times for vitamin d and those usually come in very low. I've had elevated androstenedione which was why I went years ago for a CT on my adrenals in case it was a tumor causing those high male hormones. I cannot wait to see what that DNA test comes back as. It was only $99 online and figured what the heck might as well give it a go and see what it might say. I just hope I did it right and didn't throw away my money. I am truly considering taking my line of credit and paying for the MRI. I also want my doctor to send me for a colonoscopy and a bone scan As Scott suggested earlier. I haven't had the time yet but I wanted to make sure I had the right info to print and show my doctor that no, I am not nuts. There are a lot of people out there going through the same thing as myself. With one thing in common "accutane". What are you dealing with for long term side effects?

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Hey Andrea. I am also a sufferer. Can you please tell me how the DNA test or MRI turns out? I have all hormones in my body possible tested through my blood and everything is low but still "in range". I do not have the money for the brain scans and MRIs right now because I am in college.

Thank you Andrea. Keep in touch on here.

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I just read the article about the horse trainers nephew, very sad. It's either accutane will kill you while you're on it or kill you afterwards from the side effects. I went to a family function yesterday and had the worst anxiety ever. It was muggy outside so my face was a little flushed, my lips were purplish and same as my hands. I just look at all of them and wish I could be back to that. I threw a football around with my little cousins and had to stop because I was overheating and didn't want to exert myself. It makes me depressed to feel like this. Especially when all I was doing was throwing a little football around. How much longer will I be like this? When will it end?
I decided to finally order that DNA kit and it came on Friday. It should be mailed to them tomorrow and I will have the results back in a few weeks. I am so curious as to what they will say about me. Wonder how many things will say I am "high risk". Wonder if this is even worth doing? I'm also wondering if I should just go for it and spend the several hundred dollars to pay for the MRI myself. I have to wait just under a year for my appt. so do I wait it out, have them come back to me and say everything looks fine and be back at square one? Or do I suck it up, spend the money and it will either be what I'm hoping for or nothing at all. There has got to be an explanation to what this drug has done to us? There has to be and no one seems to have the answers yet. I curse these doctors for being so damn ignorant. They only want the money and do not care about your ongoing health. Just as long as it "cured" your acne. I wish this drug disappeared!!

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Hello everyone,
I felt really bad and sorry just reading from what happened to your family and friends who took this product. I, myself, have suffered from severe acne a few years ago and had been desperate enough to find solutions for it. Good thing this product wasn't recommended to me by my doctor. But my doctor's recommendations didn't totally solve my acne problem either. And then a year ago due to my desperate pursuit of a solution, I discovered Usana Health Sciences, a US-based nutraceautical company, they manufacture products that has a lot of health benefits from easing acne, detoxification, fatigue and addressing several degenerative diseases like what most of you mentioned. At first I was quite skeptical on nutraceauticals and supplementation. So I did a lot of research and found out clinical studies and journals about the science of supplementation. Given you take a QUALITY nutritional supplementation, it will bridge the gap from you unhealthy condition to your desired health.

Well, I wouldn't benefit anything from sharing this. But I think you guys should consider trying this. The damage has been done 'coz of Accutane. I think you guys should now focus on regaining and avoiding further damage on your health.

Thanks!

Hope you well.

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I know some one like this but he doesnt believe the cause. The drs must have convinced him. Theyll never blame a drug that they perscribed cause thats all they are taught is to drug and cut. Nutrition, side effects? Ha!!! What to do. This poor kid(18) accutane 1 yr ago

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How is your son now?

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Andrea,

Incredible to watch somebody that doesn't know anything about this drug prescribing it. This "doctor" is misinformed and frankly unintelligent to say the least. He's a very sick man and is just lying about the side effects to sell more poison. To not take a class x drug serious and realize if it does damage to a fetus then it can do damage to a full grown adult is perplexing and criminal. I'm astonished how cruel these doctors are just to further their agenda of prescribing drugs so that they can make millions of dollars while poisoning the general public. In their mind it is ok to kill somebody for profit. I've heard the numbers between 300,000 and to 1 million people dying a year from doctors/pharmaceuticals. They are pretty much killing these people in the name of medicine. It's so blantantly obvious how bad these people are yet nobody sees it. Nobody in our population knows their sick. Everyone's brain is void of logic and reason. If I was a doctor and going to prescribe a drug I would have known the mechanisisms and the dangers. The problem for us in the public is that we trusted the doctors. Some of us trusted our parents who said this is what we need to avoid scarring. Of course most of us did not have bad enough acne to scar and a simple diet could have taken care of the problem. Anyways, I just had to rant on this fancy doctor that likes to hear himself talk and misinform the public all over youtube. He's an arrogant worthless excuse for a human being and I hope he doesn't get his paws on anybody else to destroy their lifle. Everybody that takes accutane is chemically affected and will eventually have to pay the piper. Don't ever think that someone else got away with it. The drugs damage on the immune system will happen whether it's 1 year or 30 years down the road. In the meantime the body will wither away.

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Unfortunately I didn't have that bad of acne as I thought I did, which makes it harder to think why I even got recommended this drug in the first place. I suffer from anxiety/mild depression, but the root cause if from my physical problems. I get depressed because I can not do the majority of things "normal" people can and the anxiety from people judging my flushed face or purple skin. I am only 28 and feel (sometimes look) like I am in my 70's. I see people who are older have this circulation problem and that. Not a 28 year old who should be healthy female. I'm tired of trying to find ways to get back to being the old me. I keep thinking that if this drug was used for chemo in people with brain, pancreatic and other cancers. What the hell did it do to us? I researched yesterday on doing a DNA test, it's actually an at home one you do and mail in your saliva. I think the cost is $99. I am curious at what it may show and read some good reviews on it. Not sure the depth they go into, but it may be worth a shot. Scott mentioned maybe I get my doctor to run a bone scan as well as get a colonoscopy. I think I am. I need to print all this information and plead my case to my doctor about which tests he should run so he doesn't think I'm a mental case lol. Anyways, he's already booked me for an mri to check my brain for tumors. But that isn't scheduled until June 2014. I'm not sure what a PET scan is, I wonder if that shows your brain function. I just need to figure out what to do to get myself and everyone else better!!!

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Hey Andrea,

I have every problem you have except for the flushing and female problems obviously. I can relate to your flushing problem though on the physical/visual level. i took accutane when i was 14 and it stunted my growth. im 5 foot 6 now on a good day. its hard to be happy going out in the world when you feel you have a physical abnormality, such as the acne we had...... :(
Do you suffer from any kind of anxiety or depression?
i have been in contact with a woman who had to go through neurofeedback to fix some of her frontal lobe function. She now takes welbutrin and SAMe to deal with the depression. She says these treatments have helped her cognitively as well. I currently am taking a low dose of zoloft and take natural l theanine, gabatrol, and whey protein, which I feel really help me mentally, due to the amino acid blends. Amino acids are responsible for so many bodily functions, especially neurotransmitter function in the brain. The MOST important thing I have started is 30 min of cardiovascular exercise everyday NO MATTER WHAT. It's hard, but so worth it, for mental and emotional health, as well as getting the blood flowing an helping to produce oil again. I also drink loads of water. ALSO, if anyone is ever interested, we can all join a different forum which allows us to post email addresses to talk about similar treatments, taking action, helping each other, etc.

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I just looked at some old paperwork and found a note from my derm to my family doctor at the time dated April 12th 2003. He mentioned I had inflammatory acne on the cheeks then wrote I will return and be started on accutane at a dose of 40mg daily. If I did not have cystic acne isn't 40mg a little too high for me? I had a few major pimples on my cheeks. And I remember towards the end he upped it so I could finish sooner. I wish I could remember where I got my prescriptions filled so I could see the starting dosage and when I ended it. Seems ridiculous to me!

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Hi Scott

I live in Vancouver, Canada. I posted a link last night on the doctor who actually prescribed it to me 10 years ago, but my post is being screened first. Not sure if I was allowed to put that on or not.

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Andrea,
Try calling Hook and Bolton Law Firm. I hear they are the best with Accutane law suits, but I believe you have to have Crohns or Colitis to have a case. Hang in there. I also wish I could do something more to help you. This firm looked into my sons case but could not help him. Its a sad fact in America that the government and others turn a blind eye to letting a cancer chemo drug be handed out like candy at doctors offices. Its all about the money, for others its about their everyday struggles due to these drugs. I must believe there is hope for forums like this one, we still have the ability to educate others. What state do you live in?
Scott

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WOW! So I go and google Dr Oz Accutane to see if I could find anything and then this YouTube video comes up. This is the dermatologist that put me on it 10 yrs ago!! If you watch the video tea the "comments". I also have low vitamin d levels as well. The funny part about the video is that he says it's so easy to get pregnant 1 month after taking it no have gone years without protection and have never gotten pregnant. I am only 28 so I think it may have had something to do with it as well, no?
youtu.be/BWAlDX2iSJA
Not sure if I'm allowed to post this link or if it will even work. But worth listening to it. Cause this is what he told me too!

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