Accutane And Infertility (Page 29) (Top voted first)

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I took accutane almost 14 years ago as a teenager. I am now a 32 year old woman who has just been diagnosed with infertility that they believe is linked to autoimmune issues. I truly believe that accutane is the cause of this; from the research that I have done it seems that accutane has been linked to other thyroid-related diseases, but that they have not yet been able to prove a link between accutane and infertility. There are, however, actually more people like me out there than I originally thought. Being diagnosed with ovarian dysfunction has been a horrific, horrific blow. And while there was plenty of information about accutane and birth defects, no one ever mentioned a possibility of future infertility. I was a teenager! This is a tragedy and I believe something should be done about it. If you too have been affected diagnosed with infertility and have taken accutane, please email me. There are plenty of suits against accutance. If there are enough of us, we can come together to do the medical research and get the help we now need.

635 Replies (32 Pages)

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599

I dunno either. I suppose the first thing to do is talk to a lawyer.

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603

I took a low dose of Accutane for 1 year in my early 20's. I am 39 and was recently informed by my Endocrinologist that I could no longer have biological children. I never thought of Accutane until I came across a chapter on Accutane in my textbook. (I'm a clinical Esthetician studying for state exams in laser hair removal). Just thought I'd let you know.

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604

Similar story as so many before me! Accutanr at 14, ovarian tumor at 24, unexplained infertility at 25. 2 years of fertility treatments and finally IVF was able to give me my son.

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607

Hi my name is Sarah n The same has happened to me I also took the same medicine when I was 19 n now when I'm 30 I'm unable to conceive due to unexplained infertility

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609

I'm an advanced practice critical care nurse for many years. To the women that are in grief and shock at the horror of infertility I don't think anything I say here can lesson the pain. However, I'll say this in case some find some measure of optimism. I'm old now and my Aunt has passed away at age 80. She and her husband tried for years to get pregnant. They didn't have ivf back then, so she adopted. They were able to get through this pain of not having biological children and my Aunt, I recall so clearly, said it was the best thing that happened to her . Otherwise she would have never had the joys, and life events and plain 'ole life with her adopted boy and girl. She couldn't imagine life without them. The love was visible.

I know, it's ya, ya, we can always adopt. But don't think of adoption as a bad second choice. It's not. It is a fine way to have children and raise them and have a family you've always wanted. The genetic thing is just that. Proteins on chromosomes that make tissue of a newborn from the egg and sperm. If you think of it scientifically, and spiritually, that we are really all one, perhaps the pain can be less with some optimism for you and be the end of this long time trying to have biological children. Bless you. Happy lives to all of you. Rob

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610

You know I've heard that a lot, Rob, and the main issue here is that adoption is costly. Some couples will spend tens of thousands of dollars and if that's not something you can afford than it's not a practical solution. I think the whole point of this forum is to share our experiences and gather information as to what the next steps might be in perusing compensation from this drug company. Maybe if we are successful in filing a lawsuit then we can afford adoption.

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613

I too have taken Accutane in my 20's and have struggled with Infertility for over 10 years. I believe Accutane is the cause of it and that patients are just now putting 2 and 2 together. I also agree with Sara, about a legal suit and that we all need to come together to get the help we now need. Please let's make this happen!

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616

Re: Charly (# 615) Expand Referenced Message

Thankyou so much charly. I really appreciate it. Good luck to you as well

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617

Re: Mike (# 14) Expand Referenced Message

I took Accutane and 2 years later had my normal son. 22 years later he tells me...im sterile! ...?

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618

Re: Cherub (# 611) Expand Referenced Message

I also took Accutane (3 times in the late 90's). I found out in my early 30's that I have very low ovarian reserve (almost out of eggs....way early). I strongly believe that this was due to taking Accutane.

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619

I have exactly the same problem. Doing IVF now :(

{edited for privacy}

I'm the same age as you and was prescribed this around fireworks years ago.

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620

Re: Carol S (# 38) Expand Referenced Message

Carol, I have lost my baby too due to CDH. I was on Accutane in 2016 for almost a year. Got pregnant in sept,2017. On the 20 weeks ultrasound, found out baby has CDH. All the tests on baby came out negative with no abnormalities. I also think Accutane has played some role in this genetic dis order. My advise to anyone planning for pregnancy is to please don’t take this medicine until you r done with all ur pregnancies.

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622

Re: Megan (# 613) Expand Referenced Message

Hi. I was diagnosed with diminished ovarian reserve at the age of 27. I had 2 rounds of IVF without success and onto my next one next month.

Would also like to make a claim.

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624

I agree with you. I took Accutane when I was 18 and I went through menopause at 38! Every doctor I have seen cannot figure out why . All my labs look good and my thyroid is fine .. they all same that I am an interesting case .. well I think it was most definitely the Accutane .. that drug was poison and toxic! I read that is was used as a chemotherapy drug .. that makes a lot of sense considering that can do a lot of damage to a woman’s reproductive organs. So just wanted to share that now I’m 40 and have completed menopause and currently on hormones .. sucks ! I just know Accutane was the cause of this ??

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625

Re: Kristen (# 207) Expand Referenced Message

Hi I took roaccutane in my late 30's, I was told at the age of 41 that I was going through early menopause, has anyone else been told this?

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626

I took acutane twice as a teenager, 15 & 17 years old. I am now 35 and am undergoing IVF due to low ovarian reserve. I believe acutane impacted my fertility.

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627

I took Accutane when I was in my early twenties. I am now 48 and have no explanation for not being able to get pregnant. I recently met a lady who is similar in age who took Accutane. She had to adopt. Doctors had no explanation as to why she couldn't conceive.

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629

I'm about to be 30. I took Accutane for 5 months when I was like 18-19. I got pregnant at 21 and lost it at 7 weeks. Unexplained infertility since and I have quit ovulating within the last year. I haven't been to a specialist yet, but I know in my heart and mind I'm not going to be able to fix this. I firmly believe Accutane and maybe the help of Gardasil has caused this! I'm torn but I'm learning to accept it.

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630

Accutane ? Is there a relation ship to
Depression in later years

Just witnessing this and wonder of a notable connection ?

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632

Re: Jane (# 513) Expand Referenced Message

If you have a lawyer I’m willing to write the first $100K check to make sure there are nine figures in damages.

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