Anyone Else Trying Savella For Fibromyalgia? (Page 8)

This is a new medication that just came out for fibromyalgia. I have several other conditions involving spinal degeneration , herniated discs, arthritus, etc.
I've been taking this medication for a little over 2 weeks now and have worked up to the full dose. My biggest symptom seems to be upset stomach but I don't know if it's from the Savella or from de-toxing from 7 other medications that I've been on for over 10+ yrs.
Is there anyone else out there that has started this medication that can give me any information that they may have on it?

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Hi Lori & everyone - please let us know how we can help facilitate a more specialized forum for you guys. What features would you need in addition to posting back and forth with one another?

Wishing you and everyone on here good health!

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Personally, I would like the ability to have a live chat together, maybe once per week. If that is something you could arrange, that would be fantastic. What about everyone else? I can't ever make it to the saturday morning fibromyalgia support groups. I would enjoy visiting more with people who understand what this is like. Thanks.

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Prescription Drug Info:
WOW!! My thanks to you to offer what you can do to help make this site better fit our needs. Don't know about anyone else but that makes me feel pretty darn special so once again THANK YOU so much. I would like the ability to personally email someone, that is only if they would accept an email from me, vice-versa. I have truly enjoyed this site very much and have found it to be very helpful.

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Thanks everyone and prescription drug info...That is NICE!! I like idea of sharing email, etc, I'd accept you Teresa, I think we could share and then just not accept anyone we haven't talked to on here??? I'm not that internet savy or as good at knowing technical stuff about phone conf like Lori but it sounds GREAT!! Let me know I'm up for it.

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WOW! Having our own FM forum would be great. It would give those who suffer (and those who have someone that suffers) a great place to go.

Thanks Prescriptiondrug info for the offer. We would love it!

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Thank you Lori, Teresa, Tessie, & Rebecca for your feedback so far!

You have certainly provided some positive ideas which we are now taking to the drawing board. It has always been our goal to provide a helpful service for everyone, and these latest suggestions are wonderful.

It is our intention to continuously enhance the community to best meet everyone's needs.

Thanks again and we will keep you posted. We may also contact you to participate in beta testing certain features once they are ready (if that is o.k. with you).

Sincerely,

~ The rxchat.com Team

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~ The rxchat.com Team,

You may contact me anytime. If there is any way that I can help I'm more than happy to do it. Your site has been a blessing for me not only with info on Savella but many other prescription medications that I'm currently taking.

Thanks so much for your dedication to the work you do to help others!

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Prescriptiondruginfo Team,

You may contact me with anything I can help with. This is so exciting.

Thanks so much for all the work you have done (and will be doing) to help us all out.

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Oh yeah! Count me in. Thank you so much!

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Hi, I have been reading comments for several months and finally decided to leave one myself. I have had fibro since 2001 and have been on everything mentioned in the posts. At times I was unable to get out of bed for days. I was a reck mentally and physically. All the meds made me gain weight so I was sick and fat. I finally had to give up my part time job. I have always been a never sit still kind of person but I just couldnt stand the constant pain anymore. Anyway, about nine months ago I started taking Savella. It made me very sick to my stomach at first but I stuck with it. Now I am working as an office manager (no more brain fog) and have gone from a size 14 back to my normal size 6. I can't say enough about Savella, it gave me back my life! I do have to take Ambin CR to get six hours of sleep but on all the other drugs I never slept over two hours at a time and woke up in pain anyway. I just wanted to say, It has taken me a very long time and many drugs and doctors to finally get here. So don't give up! You will find the right meds for you. God Bless

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Prescription Drug Info, Contact me anytime, I'd love to help and be able to talk and offer help and receive help from these other wonderful women I've been talking with, Its GREAT!!

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I am very upset, No one has even given my question a thought. I havr been waiting patiently, But to no avail....I will find my answers elsewhere...... thanks anyway!!!!!

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Dear Saundra,
Please accept my sincere apologies for not responding to your post. Please don't give up on this site as there are so many wonderful, warm and caring people who are participating in this discussion of Savella. First you mentioned that you're reaping benefits from the Savella as far as your pain is concerned. As with all drugs there are side affects that are different for each of us. Are you still taking the Savella and having the same problems? Out of all the posts I haven't read one that states the side affects that you're having. I do know that some medications will enlarge your pupils. I think the skin problems that you mentioned could just be a cause of introducing a new medication into your system. You stated that you do not take many meds so that could be one of the reasons. I really don't have any answers but I do know that you are very upset and that upsets me. Please give the site another chance and see if anyone can give any other input to the problems that you are having.
I think we've been a little excited about the special attention that The rxchat.com Team, has been giving to our posts that we've over looked the most important part of this forum and that is to help one another. So once again, Please accept my apologies and God Bless you, Sweetie! Give us another chance!

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Kristi~ You are a Savella success story! Thanks for finally sharing your story! It is uplifting posts like yours that we all need to hear!! Keep up your posts---you never know how many people you may be helping!

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I have been suffering from fibro for a very long time and finally decided to medication. My doctor suggested taking Savella. I have tried muscle relaxers and pain meds but it did not help. I most concern with the constant fatigue. I am starting Savellla tonight, let;s see what happens!

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Saundra, I too apologize, we were all excited to be able to have to special help. I haven't had or heard of that side effect but all meds affect everybody different. I am finding most of the things I noticed that were bothersome when I first started the Savella are going away or else I'm just not noticing as much, whichever the case its good, I do believe however your body can and does get used to things, its amazing that way. Kathy whatever you do keep trying it for awhile, it is amazing for the fatigue, I too had tried everything and anything docs thought would help fibro before I found the Savella. Keep us posted.

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Lori, Teresa and Rebecca, Kristi and ALL, I was just thinking this morning we shouldn't quit talking/using this forum to keep connected until we figure something out...I was kinda discouraged this morning as we've had bad weather here which seems to affect my fibro or arthritis or both and make the fatigue and pain that much more miserable and I got wondering about the rest of all of you good people. It is nice to talk, complain, support and be supported by each other. Lets keep it going!! Kristi thanks for the encouragement, I NEEDED to hear it today. I get frustrated that my body won't cooperate with my mind....meaning I WANT to get up and get things I need to do done and my body doesn't want to or won't cooperate or I have to fight with it soooo hard I'm mentally drained. Just having a no good, very irritating, miserable, not in a good place day.

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Hi girls! Tessie, you're right; keep this going. I had to work today at my job. I had the shingles 2-3 weeks ago, after that, then I got a UTI. three days of bactrum, that cleared up, and the next day BAM! the muscles in my upper back/neck mostly left side are spasm and so much pain I got in an appointment thursday am (lucky) for trigger points. Today, I got the IBS flaring up, and then the job caused my whole left side (I'm left handed)muscles are flaring up again. This is a viscious cycle. I''m cycling through this and what in the heck is a girl to do? I am at a complete loss. My pain doc told me that I am at the highest dose for savella. Maybe I need a pain medication stronger, like an opiod, but I don't want the stuff. I need to maintain my mental alertness, and I don't want a drug dependency but I don't like not knowing what is tomorrow going to be. This is not an illness that is going away, so they say. So do I just keep cycling through this. my husband thinks I should apply for a disability. I can't do that, I couldn't afford to live on a disability, has anybody applied for a disability? I have like six to eight different diagnoses, but I have always been moving forward, we have a home business that I and my husband have been building up. I have to keep it all going. My legs hurt, I walked my butt off today. I wonder if I'll feel good tomorrow. Any suggestions, what do you guys do when you go thru this cycle? Or, please tell me if you do 'cycle'. HELP. Any suggestions short of jumping off a bridge would be welcome. thanks all.

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Second day on Savella and I feel amzaing better than I have in a long time. I still wake up stiff and it takes me a while to get going but once I take the dose of Savella I get a surge of energy. I have been doing stuff that I have not been able to do in a while. Hope the effects last. I wish I could go on disability but it is not an option for me since I'm the only one working at the time.

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Lori, & all. Funny you should mention that about disability because as I mentioned I was thinking about all of you the other day and wondered what your situations were like. I'm almost 43, I worked at a doc's office for 10 years and then did his medical transcription at home for another 5, I also had four small children at the time and had been diagnosed with rheumatoid arthritis at age 15, Lupus as 18 and fibro and other problems by age 20. I was ashamed and/or embarrassed at first thinking about disability BUT after working for and with doc for 15 years and seeing the people who WERE getting on it, I DIDNT feel bad and problems got so much worse by the I applied for the disability, (they ALWAYS deny you the first time by the way) and then after waiting for two years I was approved...GOOD NEWS for YOU guys this was BEFORE fibro was on their list, IT WASN'T recognized when I got approval, it now is. Anyway I am on disability and would be glad to provide info, help and encouragement for the process, its long but worth it, I've wondered how some of you keep working (course we all do what we have to). I know this isn't making any sense right now cuz I've been in fibro fog today bad, anyway depending on how long you've worked and how much you've paid in depends on how much you'll get. Anyway, as far as narcotics, let me tell you I take an OCCASIONAL pain pill (like once a week or less) BUT when I first found prescription drug info the reason I found it was to get off of the duragesic patches my doc had put me on over the last 3 years because of serious pain that they didnt know what was causing it. I finally decided I was only existing and they were making me WORSE. I cold turkey'd them and let me tell you withdrawals from these things (from the people on forum I talked to) are worse than heroine withdrawals. THAT being said, I used to take occasional pain pills previous to this patch. MY ADVICE, DON'T let some doctor put you on anything slow release or that stays in your system very long. Pain pills are okay in moderation and there are even some out there that don't make you too not alert. I found the Savella right after getting these narcotics out of my system. A REALLY GOOD anti-inflammatory that has worked for me for pain (non narcotic) brand name is CATAFLAM. Docs told me I couldn't take it anymore after my stomach surgery in June but after prayers, withdrawals from narcotics nearly ruining my life and marriage and not helping pain that much anyway I decided I'd rather have another stomach surgery than take SLOW RELEASE narcotics. Short term on an as needed basis works okay... If this doesn't make sense or anyone has questions...just ask. Anyway woke up to 2 feet of snow this morniing I think thats what I felt so yucky yesterday, feel a lil better today, still ache and hurt and the USUAL with fibro, etc but I know how you feel. LORI, if you don't mind, How old are you and What are your other conditions?? ANYONE else that wants to share tell us TOO the more info we share the more help we can get and give?!
God Bless and HUGS to all!

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