Anyone Else Trying Savella For Fibromyalgia? (Page 17) (Top voted first)

This is a new medication that just came out for fibromyalgia. I have several other conditions involving spinal degeneration , herniated discs, arthritus, etc.
I've been taking this medication for a little over 2 weeks now and have worked up to the full dose. My biggest symptom seems to be upset stomach but I don't know if it's from the Savella or from de-toxing from 7 other medications that I've been on for over 10+ yrs.
Is there anyone else out there that has started this medication that can give me any information that they may have on it?

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This is day 4 on Savella for me. I have read most of these posts and I have most of the same things going on. I was weaned off of Lexapro. I am starting to notice positive changes. So far I havn't noticed an increase in appetite which is good cause I could stand to loose a few pounds. I wake up at 3-3:30am for work which is when I take my morning dose but by 12N I'm done. I can't stay awake and almost feel lethargic. My mother described it saying she thought I either was messed up on drugs or she thought I forgot to take my meds. I'm aware that we are supposed to take the Savella 2x a day but I'm wondering if I'm taking it at the wrong times and that is why I fall out at noon. I take it when I wake up and before I go to bed. I was diagnosed with fibromyalgia, restless leg syndrome and carpel tunnel. Does anyone have any input on my fibro fog? I don't have an appt. with my rheumatologist for a few more weeks so I thought someone here might be able to help.

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I am just getting ready to start my final dosage of the titration pack (50 mg 2x per day). Most of the symptoms have waned and I am beginning to feel pretty good. I am still crying at the drop of a hat but hopefully that goes away soon also. I seem to have a lot more energy (My house has actually been kept clean YAY!) and I don't feel like I want to sleep all of the time.

Kasey, I have also been diagnosed with RLS. Are you taking Requip for that? I was curious because I am and I am usually pretty stoned when I take the Savella and Requip together at night.

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Carolee,
I was given Klonipin for my RLS but it doesn't seem to be working well. Some of the people I talked to told me to take 1/2 in the am and 1/2 in the pm. I tried and that isn't helping either. I have had lots of trouble sleeping at night since I started Savella but I'm hoping it gets better. Forgot to take my meds yesterday morning and boy did I pay for it today.

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I have been on savilla several months. Started at 25 mg per day helped with pain and mood. Then after three months had to jump up to 50 mg. After two months now have to go to 75. Don't notice decrease in appetite or sweats. I have had sweats 20 years as part of CFIDS, so I can't tell.

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Kasey,

You may want to ask your doc about Requip for the RLS. I had difficulty sleeping before the Savella and Requip seemed to help. Now with the Savella and Requip together I am sleeping like a baby.

I am on my 2nd day of the 50 mg and am doing wonderfully. Still notice pain but have a lot more energy and side effect have pretty much gone away.

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Bekk27 - I wonder if there is a natural supplement you could take which would help like Evening Primrose Oil. If the Savella is giving you good relief of the pain, I am not sure if your doctor would want to prescribe another drug to help your mood swings because of possible interactions? Hmmm ... they would know your medical history better to make an informed decision. Personally I always like to try natural supplements first. I hope you will find some relief! I'm also curious to know what others have done to help with their moods?

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I'm noticing a distinct pattern of fibromyalgia with degenerative disc disorder. I have spinal stenosis, have had surgery, spinal injections, plus fibromyalgia. Is this common?

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Bekk27: That seems to be the only side effect I have left. I love the energy it gives me and the small amount of relief from the pain but I have had the same mood swings. I was hoping those would go away as the other side effects have.

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Carolee- thanks will ask abou the requip. I had my first day going from 12.5 to 25 mg and it really messed me up!!! I hope I get used to this quickly cause I can't work and feel the way I did today. My boss knows what is going on but I can't do my job if I can't even think correctly.
I do have the mood swings and I hope they go away.

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Kasey:
That is exactly how I was. I think I felt the worst once I started the 25 mg. pills and seriously thought about contacting the doctor and telling him I wasn't taking them anymore. I am glad I didn't because it all went away and I am feeling better. I am just curious......Do your eyeballs feel like they are jumping for a few hours after you take your morning dose? I have not seen anyone else mention that problem but it's one I had.

Keep your chin up and hopefully the side effects will go away in a few days. Good Luck!

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Kasey, yes, my eyes jumped, and I also had horrible stabbing pains that felt like they were coming from the back of my eyeball and they ached too. I didn't know how to explain the weird eye motion, but you have it right, they jump or jiggle or are jittery or something.

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Tamjean,
Wow! I am glad I finally found someone who had the same problem with the eyes. I would try to explain it but just couldn't find the words. Luckily, that is one that has went away. I didn't have any stabbing pains but had a horrible headache for awhile. Hope your jumpy eyes go away soon!

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Yes to both of you. I am having the same eyeball pains right now. My left eye had a blood vessel popped in it Sunday morning and I thought that was why I was having this pain. Strange.
Called my Dr. and she told me to only take the savella at night so I can work during the day. She said to take both doses on the weekend so that my body can adjust to it. I am home today because I was so lethargic at work that my boss told me it was a good idea to stay home until I get used to the med but I told my Dr. that I can't miss work. I sure hope this works!!!

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Good luck Kasey! I was lucky enough to start taking the meds after I was done with work for the year (I am a School Psychologist). There is no way I could have functioned! I did have to go to one meeting during that time and I thought I was going to pass out! Couldn't do it on a daily basis!

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I'm an electrician so I can't be at work on this stuff either. Hopefully the one a day program will work for now.

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Ive read so many posts.. Im just wondering... is the general consencus that if you stick it out thorugh all these side effects while getting used to the meds, that you will eventually be glad you did?... in spite of a few lingering (tapering) effects??

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Donna:
That is my opinion so far. And I didn't know if was really doing that much good until I missed a dose and was miserable ALL day. I couldn't figure out what was wrong and then realized when I went to take my evening dose that I had missed the one in the morning. So, whatever you do, make sure you take it religiously! haha! I am very pleased so far but then I have just finished the titration pack yesterday, so we will see how it continues to work. Side effects are pretty much gone by the way.

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I have been on Savella 1-1/2 months. I love it. It helps for the fibromyelgia alot. My doctor weened me off Zoloft first and it was rought but when I started Savella I felt great. Only problem is I have sweats, I get flush easily.

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I have the same problem with the sweats and getting flushed and if I miss a meal I really start feeling sick. Stomach ache, puky feeling- so everyone make sure you remember to eat. The Savella is helping with the pain but I think I'm gonna have to ask the Dr. for something for my anxiety. My moods are out of control. I feel sorry for my poor daughter, she doesn't understand.

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I have now been on Savella for about a month and all is going very well. I have also added vitamins D and B12 as some others have suggested and just yesterday started taking a vitamin which includes calcium, zinc, and magnesium. Not sure about this as I have been sick to my stomach since taking it last night and am now a little nauseous after the morning dose. Have not eaten though. Usually don't have any problems when I don't eat with the Savella and other vitamins so maybe I have to eat with this new one. I also have experienced the flushing and sweats but nothing I can't live with. As for mood swings, I was having them quite often; however, they have subsided and I am actually much happier and have soooo much more energy. My house is actually staying clean!!!! LOL! No more sitting on the couch not wanting to do anything. Good luck everyone!!!!

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