Nuvigil Side Effects (Page 8)
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I'm having severe side effects from nuvigil. Muscle and joint pain with numbness and tingling down my arms.

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I also notice ear ringing. Insomnia too is drivin me nuts. Docs not listening to me since I wanna take yohimbe and its non prescvription but helps my severe narcolepsy better than anythhing else.

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I have taken for a couple weeks. Told doc it doesn't work and he upped my dose from 250 to 300. My back hurts on left side at night hurts to move and hard to sleep. I want to take yohimbe with caffiene for narcolepsy cuz no side effects and IT WORKS!

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I just got super jittery, heart raced, felt like I'd collapse.

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I took 200 m. Provigil for a long time with no problems but Dr. insisted I try 250 mg. of Nuvigil. At first just had weird dreams. After about 2 months, developed extremely high blood pressure. Have always had low blood pressure. With Nuvigil it went up to 159/57. Stopped it and BP went back to normal. Took Nuvigil again and it went way up again. Stopped taking it and told Dr. what happened.

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I've been on Nuvigil for just over a year now. I take it for Narcolepsy and it has been life changing. I don't have the cataplexy type narcolepsy, but just the "need to sleep so bad it hurts" kind of narcolopsy. During my MSLT tests, I as hitting REM in 30 seconds. Anyway...I take half a 150mg tab in the morning about 15 minutes after eating. I'm able to stay awake all day, but the effects start to wear off around 8pm, so it works out pretty well. At least I'm able to stay awake for work, driving home, and talking to my wife (helpful hint: it's not good for a marriage to fall asleep during a conversation LOL). I've had very little side effects, but have started to develop tingling in my left arm and leg. I'm not sure if it's the nuvigil though, because the tingling seems to be positionally dependent, in that it starts to "go to sleep" any time I let it hang for more than 2-3 minutes. My doc isn't concerned, but I am, so I'm a bit concerned about my doc. At this point, the positive effects are way outweighing the tingling, but if it gets much worse, I'll have to reconsider.

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Well, I'm very glad things are better for you. A side note though... Lopressor is for blood pressure, not anxiety.

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Julie: Yes I was on Paxil for a couple of years and was eventually winged off of it. It made me a zombie. I started taking that after a low point in my life. After I stopped I didn't return to a state of depression that I noticed. But I did eventually develope an anxiety disorder in which I am now taking Lopressor for.

Thanks for the tip but so far ever since that spell, half a pill of Nuvigil has worked for me.

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Oldb77 : Try taking half in the morning & half (or even quarter) about an hour before you usually start feeling sleepy. I really feel that would work well for you based on your comments. And the stiff neck really does get better. Also, probably a stupid question, but... have you tried anti-depressants, and if so, how many tries?

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Started April 25th taking it. Worked great for that week, probably too good as I couldn't sleep well at night and a pressure feeling at the back of my neck. So I split my 150mg pill in half Saturday. Did not take Sunday because I didn't have to work. Took half a pill Monday and was sleepy by lunch and all throughout the afternoon. Took half a pill Tuesday, same thing. So I took a whole pill Wed. thinking 75mg just won't working and I was still very tired and nodding the whole day. Not to mention a tremendous headache and an extreme pressure or tension feeling on the back of my neck. Got home from work and slept for 10 hours! Cut it back to half a pill today and so far so good. No way I take a whole pill again.

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Yes, feeling much better. Been on for a few weeks now. More energy, better mood, appetite and muscle strength are back. Good luck to you, and God bless.

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are you still experiencing this? I had that side effect for the first month or so (lost some weight) then I got used to having no appetite and forcing myself to eat and gained it back now for some reason the symptoms have been back really badly.... I literally gaged up a carrot with hummus...I can't bring myself to eat it's so frustrating been dealing with this for like three weeks now

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Day 2 of Nuvigil so far for my narcolepsy. Last night I would constantly wake up, toss and turn then fall back asleep. Also took me longer to fall asleep. Knew I was tired because I had been yawning since 6pm. Did the job as far as keeping me awake during the day. No bad side effects so far. I've noticed that I'm itching in various places off and on, but it is tolerable. If it keeps me up a few more nights I might try splitting my 150mg pill in half.

Hopefully I don't have anything as severe as some of you guys have had. Scary!

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I have an overlap of auto-immune disorders Lupus/Sjogren's Syndrome. I was going through a difficult flare-up the beginning of March. I went to a neurologist to rule out Lupus affecting CNS. He prescribed Nuvigil to give me increased energy. I am very wary about taking any new drug, but after another week of being mostly in bed I decided to try it. On the 2nd day I took it, I had an episode of severe muscle weakness, difficulty breathing, joint pain, tingling in hands and feet, and feeling as though I was going to pass out. The symptoms faded after 1-2 days. I didn't even think of the Nuvigil as having anything to do with it. My rheumatologist and neurologist had no answers....they attributed it to my auto-immune problems and my current flare-up. So after another 2 weeks of still feeling fatigue, muscle aches and mild weakness, I thought I would give the Nuvigil another try. Later that afternoon, I had a similar episode with the muscle weakness, tingling, fluttering in chest/difficulty breathing, but it didn't get as severe as the other episode. Also, I broke out in a rash this time. The symptoms faded 1 day later. The rash is what tipped me off to a possible allergic reaction. These two episodes have been in addition to my flare-up and my recovery time is longer. I'm going on almost 2 months out of work. I am allergic to Sulfa meds. Of course docs say "It doesn't sound what a reaction to Nuvigil would be like". and many other things to make you feel like you're imagining your symptoms. A very big coincidence if you ask me. But doctors don't want to here what I have to say, they just want to tell me that "this is not the typical pattern of......" or "I don't see any signs of ......" or "your bloodwork doesn't show any signs of .....". So basically I get the impression from the docs that I enjoy being sick and love to make up symtoms that go against the research so as to perplex everyone. Well I wish it was just a bad nightmare that I would wake up from. The symptoms are very real and have impacted my daily living significantly.

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I have been using nuvigil for about 2 yrs, was on provigil for 7 yrs before , for hypersomnolence following mva . I have noticed stuttering and a weird mouth movement both. I thought it was a late sequelae to my motor vehicle accident . Also developed muscle spasms around eyes, thought mva because lot of injury on face.

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Mary -

I am having the same pains, did they ever go away?

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I am on day 4 of Nuvigil 250mg in the morning. The first day was good, still tired, but such an improvement. Second day was great. 3rd & 4th days I feel horrible. Tiredness is masked, sleepy but can't sleep, waking up at 4am & can barely keep my eyes open. Mid headache and neck/base of skull pain (like my head is heavy). No appetite, but no nausea either. Also muscle weakness... walking 10 feet feels like I just did 100 squats! Definitely have the weird tongue click thing, but that's a common side effect when your messing with CNS meds. I am very disappointed with results, and it's a weekend, so I an't even reach my doctor. I took it again though, because I am also to that point of desperation. I am a mom of 5 kids aged 6-15, and can't even fix a meal or do a pony tail.

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I've given up on it! I tried for a few months and it just got worse. Jittery, anxious, sleeplessness, palpitations of the heart!

Just not worth it.

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Just used it today for the first time and I will say I felt great as well I am getting cottonmouth but could be because I had chest pains and coughing 2 days ago b4 i took this.Imma try to sleep now see how that goes I only plan on taking the 30 days and hopefully only couple of weeks b4 I see whats wrong with my thyroid maybe my matabulism will speed up sorry about the spelling LOL

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My husband was on Nuvigil for over a year, felt fine, sometimes a tightening of chest and erratic blood pressure after a year. He was stopped cold turkey, became depressed, suicidal,had to seek psychiatric help. 10 months later he has Parkinsons!!! Believe he was on Nuvigil too long, not enough trial studies by mfg, caused depression AND Parkinsons. Was really healthy 11 months ago!!! Dangerous drug! Watch how long you take it! Wean off it, not a rapid stop.

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I have been taking Nuvigil for 2 days now. I feel so bad on it I am considering calling the dr. I have horrible headaches, I am so nauseous that my stomach is in knots, I cant concentrate, and I cant seem to focus on stuff. My mind is everywhere and I am taking this for narcolepsy so I dont have anything like ADD. I feel so out of it. I got the tingling of hands the first day but not today but I feel so anxious and I do not have anxiety. I dont know if this is worth it. This drug is just masking my tiredness so I still feel like poop. So all it has done so far is make me feel worse than I have ever felt on any drug before and I am still tired. GGGGRRRR. Was hoping this would work.

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