Multaq Anyone Else Take It (Page 32)
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Okay I will start off by saying this drug scares me because it has not been out for very long. I have Afrial Fib which is not behaving I can be 70 beats one min and regular and the next I will be at 190 and in atrial fib and flutter. this is my last chance at a med I have tried all the others I usually end up in the ER two or three times a week. I have had one ablation so far. If anyone else takes it please let me know what it is like. I am starting it on Tuesday.

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Have been on Multaq for three months 400 mg twice a day I was also taking Diltiazem along with Multaq and did develop a rash on my back and upper chest, Cardiologist discontinued the Diltiazem and rash has cleared. Has anyone experienced unusual sensations in hands , I seem to be very sensitive to anything hot or cold, metallic objects. My A Fib episodes have decreased, seem to come on when I am under stress, but I will say I think the Multaq is working. Also am experiencing periods of tiredness.

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I have been Multaq 400 MG (1 dose twice a day) for almost 6 weeks, noticed skin rash on palms of both hands about four days ago...some dots look almost like tiny blood blisters. I came to this site to see if others have the same issue.

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I have just been prescribed Multaq after several years on Flecainide. Being in the UK I imagine I may be one of the few on this medication as it has only just been cleared by NICE for use here. In response to queries about dosages, my consultant started me off on 200mg morning and evening as I suffer adversely to most medication. Having said that I had to increase to 400mg as it did not seem to be helping me and I felt I was having irregular heartbeats nearly 24/7. I have now reduced the meds to 200mg 3 times a day to see if that helps (was scared about the toxic effects of the drug). At the moment I have periods of normal sinus rhythm then periods when it is still slow but not in rhythm, I just hope this is not harmful. With Flecainide, My stomach used to get chewed up so was apprehensive about Multaq but thankfully stomach issues do not seem too bad. My blood pressure appears lower and at the moment I have a dry cough but this could be brought on by something else, not many people on this forum highlight chest or cough symptoms. Anyway though I would just share my experiences thus far. Will see cardiologist in the next few weeks.

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I had a follow up visit with my cardiologist on Monday. My BP was 112/70 and my EKG was perfect he said. I no longer feel any irregular beats and the bloating has gone away. I take 400mg of Multaq 2 times a day. I have not felt the exhaustion others have said they have felt. My irregular beats were almost entirely felt at night when I would try to go to sleep. They were very disturbing to say the least. Those are gone and I am happy for that. Oh, and my blood sugars continue to be great. This morning I was at 97. The doctor had not had anyone else report this coincidence (?).

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I am writing on behalf of my 81 year old dad who's suffering from Atrial Fib and is on Multaq 400mg. He has had Congestive heart failures in the past and has a pacemaker. His cardiologist put him on Multaq 2xdaily, however on his first dose he felt extremely tired. So he cut back on only 1 Multaq daily taken at night. My question is - is there any harm in taking a 1/day dose instead of the normal 2/day dose. Should he NOT take Multaq as 1./day may not be effective, therefore should stop? Or is taking 1/day is still better than not taking any? He is desperate as he appears to have no strength to walk while on Multaq. Can he regain his stamina back if he stops taking Multaq?

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I have been on Multaq for almost 3 weeks. I have noticed a few side effects but they seem to have gone away. At first it felt like I could not take a deep breath and I also felt like I was stuffed after just eating a normal meal. I take several medications in addition to Multaq....tenormin, diltaziam, crestor, lovastatin, metformin, glimiperide. Since I started with the Multaq I no longer feel the irregular heartbeats I was having (A-Fib). The one thing I have noticed is that now my blood sugar is near perfect every morning. I have had readings of 91 to 104. I wasn't super high before, somewhere around 130 or more. I have not changed eating habits and was never a very good diabetic, eating just about anything I wanted. This lowered blood sugar level I consider a
benefit. I see my cardiologist next week and ask him if he ever heard of this.

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I have been in the hospital since Friday. While on Multaq, I was given a z-pac for congestion by doctor at a MEC. The day after starting this my atrial flutter flared up, with pulse over 150. Didn't feel it, but found out it started the day after starting on the z-pac. This was told to me when my doctor's office check my pacemaker. This pulse had been going on for a week. The doctor had me go right into the hospital to try to get it converted. That was yesterday, my pulse is till not right, but under 120. I am off of Multaq and now they are trying something else. Just be aware that the Z-pac can possible cause this problem.

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for NancyO what is Metrop you reference in your post. I am on Multaq 400mg twice a day, seems to be working but am very tired, not on a blood thinner, have been on Multaq for 5 weeks

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The day after my last post I decided to cut my dose in half myself. This was just yesterday -- I took half a 400 mg pill a.m. and p.m., always with food. I also am eating activia. It's only been a day, but the bloating is gone! I am not concerned about cutting the dose. I am still on a low Metrop at night and Wafarin. The afib is really an aggravation, but not life threatening if you are on a blood thinner. I have never had it bad enough to go the ER, though and I am sorry for those of you who have! This bloating started so soon after I started taking Multaq that I'm sure it is the cause. I will post in a week to let you know how it's going. Also trying to switch from Warfarin to Pradaxa (which is a new blood thinner than does NOT require IRN testing) but until my ins covers it, it is about $200!! a month. Best to you all and thank you for sharing your experiences.

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Been on Multaq for 4 weeks, after doctor's appt. this week I was told it is not working for me. I am to keep a log of when I feel tired, then that will be matched with my pacemaker (to keep my pulse above 60) check up to see what I am doing when I get a tired feeling. I am an active 69 year old, but do have tiredness from time to time. After a little rest I can usually go again. I'm not looking forward to another ablation. I don't know if it will cause problems to go on with irregular heartbeats mostly PVC's. And forget all this guess work.

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I started taking Multaq 10 days ago -- 400 mg 2X/day. I am fine during the day but I can sleep 10 hours a night. I am also on 12.5 mg Metropolol and 3-4mg Warfarin daily. My biggest change has been extreme bloating. I thought I had an ulcer -- I have NEVER had bloating/GERD/Acid Reflux or anything like this before. I may see if I can cut the Multaq in half. Otherwise, it is working -- still have irregular beat, but I have to check my pulse to feel it. No more of the rapid heart rate. I have a low pulse (50 resting/63 during the day) anyway and low blood pressure.

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I have had A-fib for many years. I'm 78 yrs. old. My cardiologist put me on Multaq 4 weeks ago. The last 2 weeks my mouth, gums, lips and throat have started burning. My Dr. doesn't think it is a side affect to Multaq but doesn't know what is causing this. Has anyone out there had this side affect? Would appreciate any answers.
p.s. So far Multaq is working great and would hate to have to stop taking it.

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My new cardiologist dropped my amiod since I am only 54, I was on amio since 2001! I didn't like amio's sun sensitivity and possible vision issues. I am in fib a lot with it, actually, but with warfarin, what is the real problem? I would rather have less toxicity and a little more flutter. I find that going out to the deserted park, bynthe river for a hike, and lying down, resting on some towels is a real lifesaver! The slight exec rise then rest, has brought me back into rhythm so many times! Work, life, traffic, this economy, etc., are all so stressful that we all need a peace and nature break each day, during lunch and after work. I find this works as it allows my heart to go back into NSR. I have thought of purchasing the parks I frequent, because they work so well, but
they are free!! Try this, I am saddened to read of so many running to the ER whenever their heart jumps out, when, really, on warfarin, this is not a problem. Or had to undergo 2-6 ablations! Really, ablation is like trying to find a needle in a haystack, but it's your heart! Based upon these comments, it obviously does not work. How many maps and burns can anyone's heart really take?!
I am not a nature freak, but I am a lover of hiking off trail, finding an isolated spot and resting and
Feeling my heart go right back in! Maybe its kind of like yoga relaxation, so someone else may have to add their experiences here. We all have to live with this fib, and I think Rx and relaxing, resting in nature can work well together.

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After being on Multaq for almost 2 weeks, I am getting into normal rhythm. I have not felt totally exhausted for the last week. I have atrial flutter and have pvcs. Had a pacemaker put in 2 weeks ago. The pacemaker is suppose to keep my pulse from getting below 60. I have had one ablation, and one mini maze to correct atrial fib. The new problems I have now started after the two procedures. Now, if my blood pressure doesn't drop too low. Now too encouraged by all the medicines and procedures I have had and still on another medicine, plus Coumadin. Nothing has lasted for a long period of time. Still waiting to see what Multaq does after a period of time.

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well Eddie i just turn 40 in july been with pacermaker /dif since 33yrs old started taking multaq for a week had to stop it do to having an infeaction will start back on it after of antibiotics.been off affi meds for 4yrs. out for fast walking and device went off two times heart rate was 178 so that why i,m back on anti /aff meds set my device for 220 and pacer no lower than 75 beats.

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I have been on Multaq fora little over 1 week. After three days on it I experienced an exhausted feeling. This lasted 2 days. The last 4 days I have had more energy. My heart is beating irregularly. The doctor wants to see me in two weeks. I have experienced headaches, which I've always had from time to time. I had a pacemaker put in for low pulse rate just 1 day before starting on Multaq. I'm still now sure about this medicine. My big problem is that medicines for my heart causes my blood pressure to go so low that I have to get off it. We're waiting to see what this medicine does. Sure doing a lot of praying.

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I wouldn't be without mine. I haven't been to the hospital since I started taking it in Feb. I was going at least every two weeks.

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After ablation, mini maze and many of the medicines for atrial fib, now atrial flutter and having pvc's the doctor told me I needed a pacemaker. I don't have high blood pressure and the medicines I take cause me to have low blood pressure and then low pause rate (around 40). I was put into the hospital on Thursday, after the doctor told me to stop Sotalol on Monday. This caused all kind of rhythm problems, plus low pulse rate (just starting that problem.) the doctor said I needed a pacemaker and that would stop me from having a low pulse, and they could give me more medicine to keep my rhythm corrected. I was put on Multaq and I'm praying that my blood pressure doesn't drop so low that I have to lay down for awhile. It's an up and down road, as most of you know.

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I have been on Multag for nearly three months, no atrial flutter since starting it. Feel some skipped beats but I think thats ventricular, not atrial. I do have to eat or it makes me really nervous. I have noticed that I have a little tremor in my hands.

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Multag

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