Morphine Cuts For Palliative Care Patients

I am in palliative care for Multiple sclerosis, Small vessel vasculitis, kidney and heart failure. I also have Cerebral palsy w/spina bifida. I have severe spine degeneration from scoliosis. I can't take NSAIDs anymore. I am allowed only 15mg morphine 3x per day, short acting.
I am 65 yrs.old. Doctors tell me I am at risk of respiratory arrest because I also take 1mg of clonazepam 2x daily.
I'm in palliative care because I dying, they just can't put a timeline on it. I used to get 100 mg morphine 3x daily w/ norcos for breakthrough pain, for 20 years. I was able to walk, work as a paralegal, garden, ride my horse, go to school. Now I am mostly confined to a wheelchair, due to the FDA "guidelines" for pain mgmt., even though doctors are allowed to give much higher doses for palliative care patients.
The media hype over opioid abuse and addiction by people who refuse to take personal responsibility for themselves and their abuse of prescription drugs, and their families who blame everyone but the abuser for addiction and overdose, have hurt dying patients from getting the help they need. No one forced pills down their throats or held them down and stuck a needle in their arms. I'm sick to death of people who refuse to take personal responsibility for themselves. Narcotics should be administered on a case by case basis. We should not all be painted with the same broad brush.
After all "legal" drugs such as alcohol and nicotine kill millions more than any opioids.

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Your story is very disturbing to me! I cannot tell you how horrible it makes me feel to know that people such as yourself are suffering so much. What Hurts the Most is knowing that there are medications that have helped you that you are now unable to get! Although I suffer chronic pain I do not know much about palliative Pain Care and pray there is a way that you can find other Medical personnel who are willing to work with you and make your remaining days on this Earth much better!

I have been in similar circumstances where my medications have been reduced by more than half which was extremely stressful. I finally looked for another doctor who is now suggesting a morphine pump which I am contemplating and we'll probably go through with since I am in so much pain that I am often contemplating suicide!

Know that my heart goes out to you and I pray that you find the help you need!

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