Generic Drug Comment

Updated

PLEASE PLEASE PLEASE be careful with generic forms of medications. Doctor's, Pharmacy's, Pharmaceutical companies and ESPECIALLY insurance companies will not always tell you that the formula has been changed when they transferred to generic, in fact I have had a Pharmacist and my Insurance company flat out lie to me. I nearly ended up in the emergency room, and nearly had a car accident when Watson pharmaceuticals purchased Avasta Pharmaceuticals; then dropped the Watson name (I suspect because they have multiple legal suits filed against them) Avasta altered the formula of 10/325 Oxycodone which I use for horrific Fybromyalgia pain. Because of the side affects, I nearly ended up in the ER, the disorientation almost caused me to have a car accident.

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1

Ellen, I have Fibromyalgia, along with arthritis. Have fought the pain management program for about four years now. In the beginning, all was well, my doctor at the time prescribed Oxycodone 30mg, which over time he did have to increase the quantity. Had to deal with the pharmacies that along with treating me ugly each month, began to push generic and inferior brands of oxycodone on me.
You are so right, there can be a huge difference in the medications. I have a new doctor now and am on Opana ER 20mg and Oxycodone 10mg for breakthrough pain. With the Opana, the pharmacy tried a substitution (that my insurance refuses to pay for) and dumping KVK Tech 10mg oxycodone on me.
I developed a blood clot in June and was given Warfarin. The doctor stressed to me, DO NOT let the pharmacy give me a substitute or a generic. Neither are as effective. It's not just pain meds that the pharmacies are playing a money game with, it's my heart med and my husbands diabetes meds.

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2

Susie, I am so sorry to hear about your health and problems with pharmaceuticals. I have had Lyme disease for more than 35 years, finally learned to manage that and then got this diagnosis, the pain goes beyond description. Thank you for replying. I am preparing correspondence to Congress, Michelle Obama, the FDA and Blue Cross Blue Shield of South Carolina (which I expect will fall on deaf ears, as they are the ones who don't want to pay for it). I feel that what the pharmaceutical companies and insurance companies are doing is tantamount to genocide. There is a huge community of people who needs these medications and cannot afford them. I believe that Watson alone has basically changed their name because of the number of legal suits being filed against them. Well, I think they should get prepared for another one.
I hope that you can get through each day in reasonable comfort.

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3

Ellen
Hi, I know nothing about Lyme disease, what is it? Please tell me about it. I agree that something needs to be done and soon, I just don't know who or where is the correct place to get change.
I have a friend who has broken both her hips (thankfully not at the same time), and she also has other health issues. One hip healed fine, the other has caused her constant pain and never seems to be right. She feels that the Affordable Health Care act is part of the genocide being done by Medicare and the insurance companies. It may be, it's hard to determine what is really going on.
I do feel that when it comes to money vs our health care, the money is being considered first.

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4

Hi Susie, Lyme disease is a bacterial infection spread primarily by ticks, or small animal who are close to the ground (mice, squirrels, etc) and birds who have been infected by or carry the infection. The symptoms are extremely far ranging (often starting with flu-like symptoms, headaches, blurry vision causing people to be unable to read off a computer monitor, light sensitivity, sensitivity to sound and developing from there to arthritic conditions and weakness rendering patients unable to ambulate at all) and to this day a clinical diagnosis is the only way to determine the existence of the the illness. The serology is ineffective, wrought with false readings. It is very important not to mention any Drs name, and it is highly recommended that you use a name other than your own. People are still be persecuted for their acceptance that this illness exists. Drs have lost their licenses. Best of luck, and from my experience, I truly hope it is not lyme.

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5

Ellen
First I changed my posting name from Susie to CO Susie, cause another Susie also posts. I live in rural Colorado and I've heard news reports that we should be careful of Lyme disease but the news has never said exactly what it is. Thank you so much for the information. We have lots of wildlife in our yard daily. The little ground squirrels have a colony in our yard and I assume they carry the same fleas, ticks, and problems that come with Pairie Dogs. The deer live in our aspen, a mom and her yearly off spring and she doesn't miss a year LOL. Bear, coyotes, a herd of elk, mountain lions and almost every other animal natural to Colorado visit us. I have always figured they all have fleas.
Ended up with two small house dogs, we were foster care for them and they ended up staying, so we do the liquid flea prevention and a vaccine from the vet for a disease that deer carry.
We both have our health problems so I really don't want to fight another disease if we can prevent it. Thank you again for explaining.
You mentioned that you have had Lyme disease for 35 years, so that tells me there must not be a cure? What treatment do you do for it? Pain is part of it also? What do you do for pain? Is there fatigue involved from pain or from the disease?
I ask about the fatigue because the largest problem with fibromyalgia is the continual fatigue, then when you add pain, which causes more fatigue, it seems to be more than most of us can stand.

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6

Ellen
Members of my husband's family have Huntington's Disease. Thank God my husband tested negative for the gene. Which because it doesn't skip generations, his children and grandchildren are gene negative. When you mentioned about being persecuted because of a disease, we are well acquainted with that.
His brother was the first diagnosed and we got an education on the disease. All family members haven't been tested because of the persecution involved. The youngest brother went several years with all the emotional trauma of not knowing, because his insurance company would not cover Huntington's patients and with a family, he couldn't afford to loose his insurance coverage. I understand that the Affordable Health Care act was suppose to change that.
It isn't fair that anyone should be persecuted for contacting a disease. I can't imagine that anyone signs on to have something horrible. I didn't sign on for arthritis or fibromyalgia. It was just in the cards.
Being diagnosed is a whole nightmare of it's own. I started with symtoms in July of 2000. I woke up with a horrible pain in my hips, I thought I must have fallen out of bed during the night and broken something LOL. The doctor did a series of blood tests, to rule out different diseases, and xrays to check for broken bones. The xrays showed some arthritis but not enough to warrant all the pain I was having. Went through different doctors (whatever insurance I had and whoever was on the plan), eventually I started seeing a doctor that told me I had fibromyalgia, what is that, how do you get it, what do you do about it? There weren't many answers at that time.
She gave me no medication but recommended low impact exercise. She relocated and the doctor who replaced her, prescribed oxycodone for the pain I was having with the fibromyalgia and arthritis (which had over the years gotten worse). Oxycodone made it possible for me to function and to live an almost normal life. A couple of years went by with a fairly stable life, then for whatever reason, I began having trouble getting the oxycodone that worked and having side effects, and my pain and fatigue were getting worse.
I progressed to the point that I could no longer work, and was having impaired mental functions (which turns out, is part of fibromyalgia also).
I imagine you have gone through a whole saga with having Lyme disease. I'[m interested in hearing, if you care to share.

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7

Ellen,

On this website under 'doctors willing to prescribe pain meds', Marianne has posted a link to sign a petition to make some long due changes for the pain sufferers. I signed her petition. I am going to try to place the link here for you, so that you can check it out.

petitions.moveon.org/sign/stop-the-judgement-of?source=c.em.cp&r_by=10582339

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8

Ellen,

Marianne also gave a website to contact the Obama administration called my front porch

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9

Ellen
Did you get a chance to check out the website for Marianne's post?

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10

I'm sorry, I've been a bit busy and not feeling well. I want to be sure to give it my full attention.
Thanks for checking in with me.

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11

Ellen
Hope you are feeling better. I have my "good" and "bad" days. On "bad" I drop out of sight (hide In bed) LOL

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12

Bingo!

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13

Ellen
Today was a "good" day. Was able to see two friends that I haven't seen in awhile, which was wonderful.
I am doing so much better with the Opana ER 20mg. No way could I have visited to people in one day before, when I was just taking the Oxycodone 30mg. Opana has made such a wonderful change in my life. Even though I don't always have "good" days, I am having lots more of them.
Hope you are doing well

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14

Thank you so much, I will talk to my Doctor about that.

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