Where To Purchase Tanganil 500mg For Cerebellar Ataxia (Top voted first)

My sister is diagnosed with Anti-NMDAR Encephalitis and left with cerebellar ataxia, dystonia, dysphagia, severe mobility disorder, tremor, etc. Where may we purchase Tanganil or Acetyl-Leucine? One of her neurologists has suggested she use this in addition to other prescription medicines she is currently on.

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From what I could gather, Tanganil 500mg (Acetyl-DL-leucine) is manufactured by a French company by the name of Pierre Fabre. According to wikipedia their headquarters are in the city of Castres, Midi-Pyrénées, France.

You can contact Pierre Fabre directly with product inquiries at: pierre-fabre.com/en/healthcare-medical-products-contact

Perhaps they'll be able to inform you about Tanganil's availability, including which stores distribute their products.

NOTE: Pierre Fabre also has a U.S. contact page that can be accessed at pierre-fabre.us/contacts

One final thought as a last resort may be to visit a compounding pharmacy who can synthesize custom formulas.

The excipients in Tanganil are: wheat starch, pre-gelatinized maize starch, calcium carbonate, magnesium stearate.

Hope this helps!

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Re: Mary (# 3)

Hi Mary, did you get in touch with that French company for Tanganil? I have Ataxia and it is getting unbearable! Even did Ste cells for a year with nothing to show for it.

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Re: enapoletano (# 4)

Hi, my friend's twins have Gangliosidosis. Did you guys find where can we get Tanganil in the USA or other options?

Thanks

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Re: Antonieta (# 5)

Hello Antoneta,

I found this site called "P212121" where I purchased the equivalent of Tanganil (acetyl-DL-leucine). Hope that helps!

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Re: enapoletano (# 6)

Can you repost the website that you found the equivalent supplement? I can not find it anywhere on the internet.

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Re: enapoletano (# 6)

Please repost the info on where to purchase Tanganil. Thank you!!

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Where can I purchase Acetyl-DL-leucine supplements? I am having trouble finding it online.

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Re: David (# 2)

Hi David. I wilI 64 years old in may. I have a condition called Dandy Walker Malformation (late diagnosis 2015), they also mention Ataxia. Can Tanganel (Acetyl-Dl-Leucine be used to help with my condition my condition? If it's possible you could help, would I be able to speak to you, where do you practise, is it in Australia??

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