Savella Class Action Lawsuit (Page 2)
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Hi, I was diagnosed with chronic fatigue syndrome about 5 years ago and was put on Savella for about 2 yrs. I developed tachycardia and chest pain and will be on a beta blocker for the rest of my life. Anyone else have problems with this one?

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I have been on Savelka for 7 years, no problems whatsoever. Since trying to go off, I've had uncontrolled tachycardia, pain and weakness so bad I cannot even fold laundry, and episodes of shortness of breath that have sent me to the ER twice, a cardiologist and pulmonologist. If you EVER go off, do do over six months to a year, please.

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There isn't any movement on a class action suit against Forest Labs/Savella, and I am truly sorry for the affect it had on you. Can you try using Latisse on your eyelashes? I had thyroid cancer and my eyebrows and eyelashes are sparse as a result, but Latisse made my lashes long and dark. I also used to use women's rogaine product on the top of my head to thicken my hair, but I don't seem to need it anymore.

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I took savella for fibro which I did NOT have. I was diagnosed with it after they ruled out everything else, except that what is 'normal' for thyroid wasn't normal for me and my adrenal glands weren't functioning properly and I can't process protein like most people. I found all of that out by going to a natural practitioner who actually looked at my blood instead of running it through a machine to determine what 'normal' is for everybody. He put me on all natural supplements and in 10 days I was pain free. But prior to that I had been on savella for 10 months.....I did not have the severe issues that you all had, but I have had the tendons in my wrist weakened. I even had one rupture while I was lifting weights (which was a listed side affect). I have lost over half the hair on my head and it has never grown back. I now have costochondritis in my chest, which I know is because of the fact that I have EDS and the savella made certain things worse. I can live with the wrist, as I have been off of the meds now for 5 years, and all natural supplements for 4 years and still pain free, I just have weak wrists now and it makes for doing my job as a photographer with professional equipment (which is heavy) hard to do sometimes at long day weddings. But, I get it done. The chest issue doesn't happen all the time, but I do have snapping and popping that hurts when it does flex, but what I really can't stand is the fact that I had a beautiful head of full hair, and now, it is see through. No matter how I style it, it is see through, and my eye lashes are so puny that even mascara does NOTHING. I hate going out in public because my hair is so thin, the wind blows and its everywhere and my scalp is visible. Sure would be nice if they would do something with a class action lawsuit!

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I am truly sorry to hear of your difficulties. I have been on Savella for several years now and it's saved my life. I was experiencing all the same symptoms you describe regarding muscle weakness, barely being able to move (slow motion), breathing difficulties, swelling, etc. and also experienced easily overheating, extreme pain, lack of sweating, and others...all BEFORE starting Savella. Some days, the only way I could get up the stairs, was to crawl. I should probably mention that I was overweight, but not by a lot. All of these issues have been in check since I started taking Savella. If it were taken off the market, my quality of life would be back to zero...I would be back to being able to do nothing. Now I can do everything I want. The primary side effect I've experienced is a rise in blood pressure...I have that controlled with an ACE inhibitor and all is well.

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I was put on Savella for Fibromyalgia and had to go to the ER with excruciating headache, elevated BP 200 and something over one hundred and something, nausea and vomiting, shortness of breath, extreme sweating. I believe if I had not gotten there when I did I would have suffered a stroke or died. I was put on a titrated pack and told the doctor that I was having problems. He insisted that I continue to take it, "my body would adjust." I stopped taking it on my own but by that time it was too late.

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You certainly did have problems with Savella...I actually had severe muscle weakness from it as well, and I got an infection in a tooth that had to be extracted, plus a severe kidney infection while I was on it. I also contacted the lawyer that helped me with my case against Yasmin (which gave me a DVT), and he said 'no' to suing the Savella people. What is going on?

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I have read stories from so many people about their terrible experience with Savella, but none have had the same symptoms that I did. I took it for a month in 2011. After the first week, called my doctor crying because I was in so much pain. She said it was because I was not on the full dose. After two weeks I had to go to urgent care, it was a weekend. I could hardly walk, the pain was unbearable, my legs and feet were so swollen. I was red and purple. They said I had edema. My doctor started weening me off of Savella. That took two more weeks. My hands started swelling and turning purple. I could not close my fingers. I ended up taking three weeks off of work. Over the period of about a year, I was in the ER three times. I saw every specialist in the city. I had tests for everything. I lost feeling in all of my fingers. If I laid down to sleep, my arms would burn and go numb. I had to sleep sitting up. I lost 50 pounds. I couldn't lift anything above my waist. I couldn't grip anything because I could not close my fingers. It was hard to walk, I felt like I had to move in slow motion. I had an intolerance to cold. Finally, I got in to see the RA doctor that had originally diagnosed my fibromyalgia several years before. He put me on prednisone and methoyrexate. I started getting better and could function again! I had to have five MRI's, my arms legs and hands. They showed I had severe inflammation in my tendons and muscles. I was diagnosed with an "orphan" autoinflammatory disease....which I did not have before I took Savella. It is similar to Lupus. It is now 2015, I am so much better! But I still have on going problems. I had to take prednisone for two years. It is a wonder drug, but I am happy to be off of it. I contacted two different lawyers about my troubles with Savella. Neither would take my case. My doctor bills were over $50,000....and I had great insurance. I had to file bankruptcy.

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