Prolia Side Effects Ongoing (Page 5) (Top voted first)

I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dry cough, near migraine type headaches, very severe weakness, trouble walking, constipation, had to have dental work that I usually have great teeth, some trouble sleeping. My rheumatologist did nothing to try to help me with the symptoms but my primary doctor gave me medication that help with the stomach pains, take Excedrin for Migraines and enteric aspirin for back and body, and other meds to try and find some comfort. I'm somewhat better than the few weeks after the infusion but still have a lot of problems. Hopefully this doesn't last for 6 months.

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Re: teddt (# 173)

It's non-RX. I like the Hydraplenish brand or NOW brand. The capsules are 100 mg. I take 2 a day. I can't begin to tell you all the thanks I have received from folks I have recommended it to. It's all natural... our bodies contain it. It brings moisture into the joints, tissues and skin. It actually helps IBS, too.

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Laura (# 177) --

I began by talking about the drug Prolia which caused me to develop a tumor made of bone over my right eye socket. Since then my rheumy tells me there are sufficient cases documented to investigate Prolia for creating boney tumors on the lower palate. But...this discussion (here) has gone on for a few years and somewhere in the chain someone asked about relief for osteo pain including joint pain and inflammation. I said that my friends and I found great relief for those pains from a natural product: hyaluronic acid.

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Re: Sib (# 171)

I feel betrayed by this drug as well... I hate that I allowed this to happen to me by taking this drug at the excitement and support and pressure of my doctor and endocrinologist!

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Re: Poodle (# 9)

I just left a message with Schmidt Law firm. Someone is supposed to call me back. They need to know how this horrible drug is ruining people's quality of life.

Hugs to all!

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I am now being pushed to get a drug called reclass for my bones. Does anyone have any information on this and should I just skip this too. Prolia did only damage to my body.

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For me it has lasted 7 months and still going on and I have some nasty long term effects.. I have right ventricular heart failure and my asthma has become severe where before it was mild. It is poison.

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Re: Shirl (# 2)

The pain in your jaw will be from the prolia. I still have that side effect after stopping the infusion 2 years ago.

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Re: Shirl (# 2)

Yes your problems are all from prolia....its the gift that keeps on giving.....i refuse to have any more and am taking actonel as a relay drug to prevent spinal fracturers that are a side effect from stopping prolia

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If you're in America go to the FDA website or TGA in Australia.

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Re: Nikki (# 192)

Thank you for this information. I must have missed it in my read. I too have asthma related COPD since Prolia. As I noted many times my asthma was controlled until I took my one and only injection of Prolia. I also still get the angioedema symptoms 3 years after that injection. My face gets red and ears especially my right side and at times I swear I have lupus but tests were negative up to now.

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Please look at this, put vit C and E on it.

doctoryourself.com/basal.html

Too bad I also find some areas in my body have similar spots. My God.

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Janey~I was on a Prolia Forum in another Continent today. One person who got thru Prolia just fine was telling the other person to go for it so I put in the comments about us, here in North America, and hopefully that person will be like Janey and wise up really quickly. She didn't even have osteoporosis, just osteopenia in two places in her spine. I cannot understand why her Doc would even recommend any type of meds for osteopenia unless that Doc is getting $$ for giving it. That makes a total of 2 now that I know of that got thru Prolia easily. You cannot see your whole body, so use mirrors to check as much as possible on the back side. Yes, you can see the back of arms, legs, feet and hands, but not head, neck and trunk of the back. Be well~Pood

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Your pain from the shot may last up to 3 months. I am still having problems
with Prolia and I have not had a shot since Feb. Hope you get better soon
but I am still trying to find solutions to all the side effects that I am having.

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Poodle, Finally, I did not take the Stomach scanning in the hospital today. I talked to the Doctor As I was having the side effects from the Prolia but he could not link them together, just asked me if I the pain becomes more serious go to see him again. A week ago after the Prolia injected in my tummy, i already noticed that my hands, face, neck have some red, brown and black colored spots growing quickly in these areas. I may have a chance of getting cancer also. My goodness. What other else?

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Janey-Since you have had so much Prolia I would hazard to even guess when you will get well. Have you called the people at Amgen? They may have a clue in the clinical trials since it was for 11 months. I would guess that was from only one shot tho otherwise they should have continued. I know for sure they are doing a long study now and I sorta think we are the guinea pigs and don't know it. I know it will eventually leave but cannot guess when. I guess you could start doing half lives and counting out on a calendar each 26 days for 1/2 of it gone and 26 more days would be 1/4 and 26 more days would be an 1/8 and keep on going through each shot. I am so very sorry for you!! Pood

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I appreciate your comments and I have definitely stopped Prolia and I have talked to Amgen but they said they may contact me later.

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Canadian~You may be getting the dreaded Prolia rash. Go back to your Dr. and tell him these are KNOWN Prolia side effects and you want to know if they are the rash problem (which needs medical attention) or are you actually getting basal cell skin cancer. Then, ask him what he is going to do about it. Steroids or what?? This is so new that Doctors, themselves, really don't know much about treating Prolia side effects. It was just put on the market in North America in 2011. Our FDA decided the side effects were worth the benefit. Just another bureaucratic bunch of nitwits IMHO. Go back ASAP or if you cannot get in with your MD, maybe a Dermatologist could be a better option but in the US they are booked for months and months in advance. It's one or the other. Maybe a search on the net to see which both look like would help you too if anyone has put up any photos. Apparently Canada thought if it passed the FDA in the US, it's fine for Canada too.

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Beware of dermatologists if you have the rash. I supposedly had one of the best guys. Right!! Each time I got the rash he insisted on taking biopsies. Each one came back benign Planus Lichen??? but 4 months later each biopsied area had turned into squamous cell cancer. It would not heal because at the time they did not know I have Sjogrens which affects healing. The Sjogrens was laid back in my system until I got the Prolia shots. Only two.... PS... the derma kept wanting to cut. I came in with the rash on both legs. He fought me to take a biopsy off both legs. If the rash is the same on both legs, why not take just one cut? Came back benign and then turned into squamous cell cancer 4 months later. Beware of dermatologists. I have had more damage done to me by them than any other practitioners.

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Poodle, thank you for your info. I am going to see the doctor tomorrow for help. I will bring your comments with me to show her. God blessed me.

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Janie, would you please explain the rash in great detail for Canadian. Her's does not read to me to be the typical Prolia rash since it is of 3 colors I believe she wrote. I could not find any photographs on the net. Mine were just reddish blister type things that wanted to ooze and I had the 'leathery' type skin that goes with them. I know real skin cancer comes in differing colors as it progresses and, as a matter of fact, the man that came here today to take care of my furnace showed me his that are REAL skin cancer and he has to go to a large city to have them removed.

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