Prolia Side Effects Ongoing (Page 10)

I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dry cough, near migraine type headaches, very severe weakness, trouble walking, constipation, had to have dental work that I usually have great teeth, some trouble sleeping. My rheumatologist did nothing to try to help me with the symptoms but my primary doctor gave me medication that help with the stomach pains, take Excedrin for Migraines and enteric aspirin for back and body, and other meds to try and find some comfort. I'm somewhat better than the few weeks after the infusion but still have a lot of problems. Hopefully this doesn't last for 6 months.

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Re: Sib (# 171)

I feel betrayed by this drug as well... I hate that I allowed this to happen to me by taking this drug at the excitement and support and pressure of my doctor and endocrinologist!

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Re: Poodle (# 9)

I just left a message with Schmidt Law firm. Someone is supposed to call me back. They need to know how this horrible drug is ruining people's quality of life.

Hugs to all!

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Re: Verwon (# 1)

Need to correct your assumptions. It does not prevent fractures as it thickens the bone but does not provide strength therefore the bones get more brittle and therefore the risk for spontaneous femur, hip and further spinal fractures. The clinical trials do not confirm the premise that is being marketed and I have read many. Just want to ensure that we share all information and not what the physicians or pharma companies push.

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I am now being pushed to get a drug called reclass for my bones. Does anyone have any information on this and should I just skip this too. Prolia did only damage to my body.

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For me it has lasted 7 months and still going on and I have some nasty long term effects.. I have right ventricular heart failure and my asthma has become severe where before it was mild. It is poison.

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Re: Dawn (# 185)

My asthma has gotten worse and I now have something called Asthma COPD Overlap Syndrome. I know this is from Prolia because I never had chronic bronchitis until I took it.

Has anyone else been dianosed with this?

Nikki

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Re: Nikki (# 186)

I have been diagnosed with Epithelial asthma which is directly related to the drug reaction I had from Prolia. Since Prolia alters you immune system it negatively enhances any condition you already have associated to your immune system. It is a nightmare.

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Re: Shirl (# 2)

The pain in your jaw will be from the prolia. I still have that side effect after stopping the infusion 2 years ago.

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Re: Shirl (# 2)

Yes your problems are all from prolia....its the gift that keeps on giving.....i refuse to have any more and am taking actonel as a relay drug to prevent spinal fracturers that are a side effect from stopping prolia

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Re: Poodle (# 14)

I also got Celiac from Prolia....Thanks Amgen.

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Re: Shirl (# 2)

The pain in your jaw is definitely a side effect. I have had that as well as other similar aches in L and R thigh bones, UTIs and headaches. Unfortunately I allowed myself to be bullied into about 7 shots by 3 different medicos but never again. The last one was well over 2 years ago with no respite since.

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Re: Poodle (# 9)

Update on the Schmidt Law firm: they are only taking cases of the bones that break while you are walking/stand up. No other side effects are being considered. I now have asthma-related COPD and they don't think a breathing disease you can die from is sufficient. Hopefully, they will take on other cases. This is 2020 when I checked with them.

Nikki

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If you're in America go to the FDA website or TGA in Australia.

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Re: Dawn (# 187)

Just a note to let people know you cannot get Celiac unless you have the gene markers for it. You cannot get it from a drug. Celiac is an auto-immune disease. It isn't a wheat allergy and it isn't the same as gluten sensitivity (but it's treated with the same gluten-free diet like Celiac.)
I happen to have gluten sensitivity and my body reacts to gluten like someone with Celiac, which is one of the reasons why a person needs to get the genetic test so they can be sure what they have.

I hope this information is helpful!

Nikki

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Re: Nikki (# 192)

Understand what your saying and I must have had the gene for celiac but something has to trigger it....thee has been a large amount of ppl developing autoimmune diseases after having prolia. No one that we know of has in my family has celiac. I'm now 70 and of course I must have had the gene but its really odd that I get no symtoms what so ever but have had a blood test that shows I'm celiac....

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Re: Kazz (# 195)

I have lots of English, Scottish, and Irish blood. I thought for sure I had Celiac. It wasn't until I had the biopsy and the genetic test did I know for certain. Gluten free products are getting better, I just wish they weren't so expensive.

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Re: Nikki (# 194)

You are correct it is an autoimmune disease but I can tell you from all the research I have done on Prolia which is almost 2 years worth of reading clinical papers etc it can alter you immune system. So if you have the Celiac gene and Prolia wakes the sleeping giant then it could be involved I a person at 70 all of a sudden getting Celiac. This Prolia is deadly for those that do not have cancer in the first place which is what it is really for.

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Re: Dawn (# 197)

Hi Dawn,
Prolia does alter the immune system. I know that many people think they have Celiac when the proper testing hasn't been done or they have something that's inaccurate. I wanted people to know there is a difference between having Celiac and being gluten intolerant even though treatment wise it's the same.
Thank you for all the wonderful information you share. I appreciate it.

Nikki

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Re: Nikki (# 192)

Thank you for this information. I must have missed it in my read. I too have asthma related COPD since Prolia. As I noted many times my asthma was controlled until I took my one and only injection of Prolia. I also still get the angioedema symptoms 3 years after that injection. My face gets red and ears especially my right side and at times I swear I have lupus but tests were negative up to now.

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Re: Dawn (# 199)

Sending you hugs! At least I'm not the only one with this issue.
I might have sleep apnea, too. Not sure if that is Prolia related.

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