Prolia Side Effects (Page 90) (Top voted first)
UpdatedI would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.
The lesson is don't trust the doctor. Don't take medicine easily. The doctors are the sales person of the drug company. I have been very careful of taking drugs, but this time taking the injection is ruining my health so much and destroying my life so far. I cry almost everyday for the uncertainty.
This Paolia is so strong that it attacks everywhere in your body. I don't know it is the cartract or retinal or macular problem? Just noticed the vision is getting blurred everyday. God blessed me!
I have a question to throw out there for everyone. It was suggested that this shot was supposed to be given in a certain way. I read online that it was to be refrigerated until it was given. My shot came from Caremark - my prescription company and it was given in my left arm. Where did everyone else's shot come from and how was it given? Maybe this has something to do with our side effects. Just a thought.
Canadian~it says that any tingling around fingers, toes or mouth are a SERIOUS side effect of Prolia and need attention immediately. Go to ER since this is the weekend.
Apparently, from the side effects, your eye problem is not serious and is caused by Prolia. It causes blurry vision and cataracts. Cataracts take a long time to grow though. Hope this helps~Pood
Poodle, I told the Dr who prescribed me the Prolia injection 2 weeks ago, she said I was too nervous only. Now the tingling in the left toes and fingers happened sometimes. I don't know how to explain to the ER doctor. But the itching of the skin is happening during the day. Also, have the black rash spot spread in my face, body, leg and arms, hands. Those spots look like after the suntan, the aged black spot grows. In fact, I did not go out under the sun recently. I will see the other family doctor next Thursday and will show her my skin problem (I suspect that it may be the Melanoma), and will also tell her the Prolia side effects on me. These two day, my vision get blurred again, I hope it is not the tear of my retinal, I have abnormal dizziness last 2 days - it is connected to my eye? I don't exactly know. I will keep an eye on my vision or go to emergency to have my eye checked. Now, I am also talking the Rice Beverage enriched with calcium and Vita D and magnesium. Look like my stomach is working well with this beverage. Thanks Poodle.
Taking too much vitamin D is toxin, they are a fatty-solution element and will be stored in your body. The Dr asked me to take 3000 IU a day. Usually an adult only get 1000IU per day. If you take too much, will it my skin by growing the black spots i(melonama) in my body.
I am in month 5 and thought I was doing really well until I came down with a severe gut infection from our good friend Prolia. I asked my Dr. about a flu shot and he just ignored me which means no. Next week I go to the gastrointerologists and am taking my Prolia information with me so they will know what they are working against. I'm sure I'll be their first case so I want to have the truth printed in black and white for them to read. I'm sure they will find the infection and treat it accordingly. I curse the day I took that injection against my better judgment. Pood
Poodle, too bad to hear that you have the severe gut infection. This Prolia is horrible. . I have already lost 7 lbs in a month. Hope you and everyone here suffering with the side effects will be well very soon!
Poodle, what are the symthoms of having the gut infection?
Canadian~Constant uncontrollable diarrhea even with prescription medication to stop it. It just appeared one day and has refused to leave. My Dr. tested it for bacteria, but, of course, none are present. I'm being sent to the IG specialists and have my Prolia side effects with me so they know what they are working against.
NOTICE TO ALL: I JUST READ ON AMGEN'S SITE THAT PROLIA WORKS IF ONE TAKES IT FOR 10 YEARS. Can you even begin to imagine 10 years of Prolia? Also Canadian, the basal cell carcinomas first appear as a slight whitish colored bump that eventually turns red and seemed to me to have an indentation in the center. It said if you get it, have it removed as it can eventually make its way to the bone beneath it. You can check out most of the side effects on Amgen's website under the drug Prolia and then do a search for what does …… look like? Be well all~Pood
I also do have several as you said whitish coloured bumps in my right leg and right arm. They are flatted in surface now. Still white coloured.
I asked my Psychiatrist today is temazepam is 'addicting' and he said no problem at all so that would be a good one for sleep since it is a sleeping pill and it comes in two different strengths that I know of.
Kathy~my blood pressure was very erratic in the beginning and then it finally settled down. I believe it was the first month was too high or too low. Just totally off the wall. I have a home device to take it and it is not correct but it has always been consistently incorrect. On the Prolia it was jumping all over the place so I knew it was the Prolia acting up. I'm glad the nurse at the hospital called to report it. I did too. Pood
I was told by my doctor that Temazepam is addicting and is in the Benzo family, i.e. Valium, Xanax, etc. I am currently on it but trying to taper off it, even though I have horrible Insomnia. The reason is I also take a small amount of Xanax with the Temazepam at bedtime and that's two benzos. I have only been on the Temazepam for about 2 1/2 months and I really don't think it helps me sleep at all - as I keep a sleep log and my sleep goes from 4-7 hrs. to no sleep at all with the same amount of medications. Think part of the problem is the Prolia!!
thanks pood, but my primary care says just the opposite. It is good for a 2-3 week max. of insomnia and then one should go off of it because it is addicting. In al reality, I really don't think it helps me get to sleep and stay asleep for the time that I do get......I think it is the very mild .25 dose of Xanax along with 10 mg. melatonin
Ann if you think the tomazapam does not work, try changing to something different. You will see that it really does work! I was on Tomazapam and my insurance made me change and what a difference! I want my tomazapam back, I want to sleep!
Victoria~not all medications are the same for all people. Temazepam works for you and me but it sure could not work for someone else. Just like some people in this world can tolerate Prolia while others cannot. There is a newer sleep medication on the market and I asked to try it. I got one whole hour of sleep so that ended that experiment and went back to the same old ones that we know work well. Be well all~Pood
Taking Ddrop vitamin D3 (non-medicinal ingredient: fractionated coconut oil) - good for the skin infection and inflammation? Anyone try this before and any experiences?
I had my last Prolia injection in January. I have been able to keep the symptoms in check with low dose Prednisone.
I am currently three days in on a month long vacation in Europe. The blistering rash and stiffness started again today. I am just about at the end of my rope. I think that stress has got the symptoms going again. I am just plain miserable. I can't walk very far, can't sleep and I am really stuck. I may have to fly home if nothing improves .
Prolia is a horrible drug. It has made an old women out of me. I'm 70. Nothing ever slowed me down until now. I just want to curl up and die.
Anne~you need to be put on a Rx pain medication so have your Dr. refer you to a Pain Specialist immediately. Secondly, muscles hurt really badly could be a sign of not getting enough calcium as our bodies cannot store calcium so Prolia robs it from our muscles. OUCH!! You need a minimum of 1200 mg calcium a day with 1000IU's each dose of Vitamin D. Some magnesium helps too but don't take too much as it can cause diarrhea in certain types of magnesium. Look on the net for the magnesium supplements that don't cause diarrhea or loose stools. If that does not help your muscles, go to Physical Therapy where they do what is called 'dry needling' as that will break up the tightened muscle bands. You will also need a referral to them. We can survive Prolia but we need a lot of help to get through it. Your immune system is not working well now so be very, very careful and I don't believe one can be careful enough because viruses, etc. are just in the air we breathe. If you had your injection in March, you should be pretty much clear of Prolia even tho the company writes that certain side effects can last 5 more months after the beginning of month 6. Hope this finds you much better~Pood
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