Prolia Side Effects (Page 77) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

REPLY

REPORT

I have an appointment with my endocrinologist for my first shot of prolia at the end of next month. Thank you so much for all the warnings. Osteonecrosis had always been my biggest fear of the drug but clearly it has so many other issues. I feel very sad for all the problems this drug has caused so many people. I have previously taken actonel and protos. My endocrinologist says that I am lucky to be alive after taking protos as I had a clot in my leg and developed a bleeding disorder after taking it. I am definitely cancelling my appointment for the injection after reading so many helpful postings. I hope the drug will soon be out of your system so that you can enjoy life again. I am still not sure what to do about the osteoporosis but feel that suffering a fracture would be a minor problem compared with the effects of the drugs given to prevent it.

REPLY

Was this helpful? 0

Dear Mary, if we were able to save one life of untold miseries and health issues, when even Prolia - doesn't know what the results will be. Its been 17 months since my 1st shot - and I have the same symptoms as from the beginning - still have terrible bone pains - bony growths on the gums, in fact the bottom jaw is hurting me and the gums, developed new red blood blisters on both legs - dermatologist checked it, have heart issues - hot and cold uncontrolled body temps. So many other things, its a horror story. Thank you for listening to our stories, they are real, an injection once in, you can't get it out of your system. God bless, Faith

REPLY

Was this helpful? 0

Mary, I am like you. I found this site before taking the injection of Prolia. When my Endo dr. told me it was a twice a year injection, this sent us a red flag to me. Something that can help with only 2 inj. a year, had to be very powerful. Yes, when I started reading all the horror stories of what this drug causes, I was so glad I went with that little voice in my head. It pays to listen to your inner feelings.

REPLY

Was this helpful? 0

Hey Schatzie - Thanks for your post -- lots of info for me to think about. We are the same age -- I am considering Strontium Citrate -- but how much should I be taking ? Can you suggest anything. I am reading Lara Pizzarno's book "Your Bones" and have found it very informative.....I have been taking Calcium Carbonate for a number of years -- now I see I should have been on Calcium Citrate.....why don't doctors know this ? Thanks for sharing your info....and keep strong!

REPLY

Was this helpful? 0

Please help me with your experiences. After only 1 day, I have back, joint and muscle pain. I am very tired. Has anyone had any experiences on how to minimize the effects of the Prolia shot? I already was suffering back, hip and foot pain. This made it all much worse. What has helped you to endure the side effects?

REPLY

Was this helpful? 0

I think the dosage of Strontium Citrate is 640 mg not with calcium. so many people leave it on their bedside and take it when they get up to go the bathroom in the night. you don't have to stay upright after. I am not aware of any side effects - and don't think I have experienced any.
I buy it online Doctors Best Bone Maker - best value.
Hope it helps!

REPLY

Was this helpful? 0

As to the dose of Strontium - if you read all the comments on Amazon, you can see what other folks are taking and what their results have been. As Daphne said, 640 mg is the most usual dose (which is what I take) and as she also said, not WITH calcium. Though you must have adequate calcium intake, either from a supplement or from your diet, for the strontium to work, calcium supplements should not be taken at the same time as the strontium. Most take calcium supplements in the AM and the strontium at night or vice versa. Since I have yogurt or almond milk at almost every breakfast, both of which have high calcium content, it works better for me to have the Strontium at night. I have had no side effects and have read of none. Please - everyone who has had the Prolia and is experiencing severe side effects, ask your doctors to submit this info to the FDA. We have to let the public know what is going on with these drugs. I just happened on this board but the great majority of potential patients will never see this. If it is published by the FDA, however, the doctors may stop prescribing this stuff and we may be able to help someone avoid what many of you are experiencing. It breaks my heart to read of the pain and suffering so many of you are going through just by following doctor's orders.

REPLY

Was this helpful? 0

Hi: My six months was up on August 13/12 and I did not get the second shot. I am in so much pain this week I don't know where to turn. I am taking Oxyconcept for the pain but I don't like the feeling I get with it. It does ease the pain a little but it makes me more tired than I am already. I am seeing a pain specialist this week, hopefully he can give me some advise. I have also started taking strontiium with no side effects. My Dr. says there is nothing one can do for all the problems we just have to wait until the drug wears off. Who knows how long that will take. I am not getting much sleep these days because of the pain. Hope everyone feels better soon. Irene

REPLY

Was this helpful? 0

Dear Sister, I have been prescribed Tramadol 37.5 mg which I take reluctantly 1 a day - it has a lot of side affects, but it helps. It also makes one very constipated, which is unpleasant. But the tiredness, and the pain in the bones, now I have jaw pain which is new and my gums which are still swollen 17 months after 1 shot are worse then ever. When I was told to go to ER 1 month after I received the shot, nurse at Prolia Vital thought I was having a stroke - the docs there didn't know what Prolia was, and after checking stated, it was too soon - none new anything about this - I had blood tests, cat-scan for the head, they didn't find anything and send me home. I went back to the hospital and got my papers I discovered that someone read my cat-scan and it showed I had fluid in my left ear, also a cause of Prolia which can cause dizziness and pain. Since Prolia doesn't know how long it will take - I have no answer, except my spine is hurting me every day and each day is pure misery.
Wish you all the best

REPLY

Was this helpful? 0

I had my first and ONLY Proila injection in December 2011. I'm still having quite a bit of discomfort from the shot. Some days are better than others, but on a whole I always have pain. I keep hoping this will ease as time goes on, but it has been over a year now!!! When mentioning this to the doctor, she looks at you like your crazy. I honestly think doctors NEVER research this drug. I would never recommend this drug to anyone. In fact, when I talke to people who are having problems with osteoporosis I advise them to do research on this drug before allowing the doctor to administer.

REPLY

Was this helpful? 0

Dear Joyce
I had my last shot last September, i had 3 of them.
Still suffering just over 1 year later, so you might have to wait a little longer before life gets better. I now have the occasional day were the pain is a little less but still far away from normal.

REPLY

Was this helpful? 0

When did the pain begin? Why did you have 3 shots?

REPLY

Was this helpful? 0

Please advise everyone you know who has osteoporosis to study and read accounts of those who have had the serious side effects of Prolia. My specialist did not check my record nor listen to me when I told him about Type II diabetes, tryroditis, thyroid surgery and suppressed immune system. His office and the hospital where I was given the injection said NO ONE ever had a reaction or symptoms such as mine.

I have debilitating bone and joint pain, pain in muscles, vertigo, nausea, itching all over my body and ache all over. I am weak.

I went to another doctor's office where I was told someone else had the same symptoms and it could take 6 months for this to subside. . I have to push through pain, vertigo, nausea,and exhaustion. The doctor prescribed a dose pack of prednisone to help with itching. So far, I have no relief.

The doctor's office told me to report the serious side effects of Prolia to the FDA. I did. I hope that anyone who reads this or has had this nightmare happen will let others and the FDA know about this drug. No one should have to suffer this much or this long.

REPLY

Was this helpful? 0

I had 3 Shots because the doc said the pain was not from prolix and if it was it will go away. Unfortunately it never did. Now i'm looking forward to the day when it will get better.

REPLY

Was this helpful? 0

this is my 3rd shot of prolia and this is the first time im having side effects,dizzyness,nausea,weak and just dont feel well,why did i not get this with the other 2 shots,

REPLY

Was this helpful? 0

Hi Daphne and Schatzie -
Thanks for the info -- I will use Strontium Citrate - 640 mg and be guided by your advice - take at bedtime - and take Calcium in the morning with yogurt etc.
I will ensure that my Family Doctor monitors this forum - how can we get the message about Prolia circulated? I guess everyone must do their part - and keep the Prolia persons in their prayers that the side effects will go away and they won't be left with permanent damage.

REPLY

Was this helpful? 0

The National Osteoporosis Foundation also has a blog that has lots of useful information and relevant discussions. Check it out.

REPLY

Was this helpful? 0

I am trying to get the word out to my physicians and dentist. I recently printed off information from the National Institute of Health and from the Prolia manufacturer and took them to my dentist and my family doctor (it was my rheumatologist who wanted me to have the injection). I highlighted the side effects and warnings for them. Neither of them had even heard of this drug. I told them about the number of postings on this site and the serious adverse effects reported and both of them seemed very interested. They also advised me not to take this drug under any circumstances. I also had another Vitamin D drawn. The Pharm-D tells me my levels should be between 60 and 90. My last level, 3 months ago, was 26. I have been taking 10,000 iu of Vitamin D3 with vitamins K1 and K2 each day for a few months now. I will let you know what my new level is and if this dose, as recommended by the Pharm D, is working adequately. My prayers for speedy relief continue for all of you who are suffering as a consequence of taking this drug.

REPLY

Was this helpful? 0

Can you provide the link where I can find the info from the National Institute of Health - and the Prolia Manufacturer. I too will copy the info and share with my Doctor (who is in a clinic with about 7 other doctors who may be interested). Thanks

REPLY

Was this helpful? 0

I was diagnosed with osteoporosis 10 years ago when I was 50. For 5 years I took actonel and I now have a problem with a feeling of a lump in my throat when I am eating and feel as though the food is stuck there. I found out today that it is a common side effect of actonel. Then for 4 years I took strontium ranelate. My specialist (who was not the doctor who prescribed it) says that he doesn't like the drug. He says I have been putting heavy metal into my body and blames it for the bleeding disorder I was diagnosed with last year as well as the clot I had in my leg during sclerotherapy treatment (which he says could have killed me). Prolia was the next plan-until I read all the advice here. I have come to the conclusion that I would prefer to have a broken bone than take any more drugs and if I don't fall over maybe I won't get one. My next plan is diet and exercise. I go to Curves 3 times a week to build muscle. I had read that jumping helps and found a site called Oregon State University, Extension Family and Community Health, Physical Activity for Life. This site speaks about a Better Bones and Balance course which is largely based on jumping and is available in various parts of the USA. As I live in Australia I have asked an exercise physiologist to write a program for me. Although I have been told you shouldn't do full jumps if your T score is less than -2.5, I have been jumping for the last 10 years without any bad effects (my spine is -3.1).
I liked the posting by the lady who has resisted taking the drugs for 25 years and has never broken a bone. I have learnt a lot from this site.
I hope all those with such terrible side effects from the Prolia will soon start feeling better.

REPLY

Was this helpful? 0

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

318 REPLIES

I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

200 REPLIES

I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

34 REPLIES

I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

7 REPLIES

I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

85 REPLIES

I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

11 REPLIES

Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

27 REPLIES

I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

128 REPLIES

I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

15 REPLIES

What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

29 REPLIES