Prolia Side Effects (Page 73)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

REPLY

REPORT

Hi Diana,
Four months after I had a Prolia shot I was diagnosed with ovarian cancer. I wrote the FDA and Amgen but no respond from either. I searched the internet to see if there were any class action suites but found none. If you hear of any please let me know. Good luck to you.

REPLY

Was this helpful? 0

I'm in if you start a class action.
After 10 months I'm still having very bad aches & pains in my joints & thighs. The hair loss has stopped, I think, but it's not growing back very fast.

REPLY

Was this helpful? 0

Anne, for your muscle spasms, please take 500 mg of Magnesium every night when you go to bed. That should keep that part okay for you. As for the skin condition, many have used Pred short term to get rid of it. I know it is an evil drug too and destroys our bones but that has to be weighed over some comfort. The FDA's phone number is listed on the net and that is the number I used to call them with each and every new side effect I had. I think you may have mentioned that you don't want to take pain medications?? That is the only thing that got me through Prolia plus all of the drugs for acute insomnia. A year and 3-4 months later, my hair still is not right. I've reached a point where I just really hate to wash it because I don't like seeing the results clogging up the drain in the shower. Diana is trying to find a big name firm that is willing to go against Amgen. The smaller ones just won't work. Why this is not on their radar, I cannot tell you. It may be that Prolia is soon new that it just has not hurt that many people yet. I think it came out in 2010 so that is a brand new drug as far as MDs and lawyers are concerned. Hold the faith. We will get there!! Be well~Pood

REPLY

Was this helpful? 0

I was put on hydroclothizide to halo calcium loss from kidney.

REPLY

Was this helpful? 0

I stopped Prolia in March , I took 2 shots, I still am suffering from indigestion , insominia, aches and pain, stomach bloating, etc. When I went for my yearly check up , the Dr it is time for my bone density and I refused it because I am not taking any of these meds ever again, I rather take my chances. I am so sorry that I ever thought any of the pills, and this shot would be worth it. Thanks to Pood , I do take my magnesium every night and upped my calcium. My blood levels for my sodium were low and liver enzymes were a little high, so now under care of Kidney Dr and Gastro ( which I was before) but the whole thing is very scary, hearing about woman getting cancers. I already had Breast Cancer and now waiting for the next shoe to drop. Everyone take care of yourselves. Sheri

REPLY

Was this helpful? 0

One month after my second Prolia shot, I started to have a slight pain in my right groin area. It moved from there to my upper thigh and around my buttocks. The pain in my thigh got so bad I could not walk. I went to several orthopedic doctors and surgeons. The last Doctor saw did a CAT scan and an MRI both with contrast and without. I had fractured bones on my right Femur bone. I have not been able to walk without a walker and cannot go up and down steps. It has now been 7 months and I'm just beginning to feel a little bit better.
I've been doing research and found out that this is possible side effect.
From when I first told my surgeon about the Prolia,he questioned me about it and thought that may be the problem. I never even told him about the bone fractures.
If the fractures do not heal in the next few weeks there is a possibility I might need surgery to insert a rod into the bone.
Has anyone else experienced this? I have also gained weight.

REPLY

Was this helpful? 0

Thank you for sharing your story. I Am so Sorry about what you have been through... The road to recovery from the side effects of Prolia is a long one. Recovery is also so very different yet similar to each of us. It is so important for all of us to support and share with each other...

REPLY

Was this helpful? 0

Hi Trish~and welcome. You are not the first here to have a broken femur from Prolia. Look in the back pages at messages from Canadian. She had one injection of Prolia and hers broke for absolutely no reason at all other than Prolia. The Docs tried to give her a hard time but finally admitted it was the Prolia that caused her break. It did heal well so I expect yours will too. I'm just so sorry you had to be another of us, the Prolia guinea pigs. I sincerely hope that you will stop all Prolia as of now. Be well~Pood

REPLY

Was this helpful? 0

Skittle~I know a breeder of excellent Poms when you get in the mood and health to add a new one. They have fantastic temperaments and do not go over 4 pounds in weight when full grown. My friend got one and named her 'Flirt'. I thought my Pood would be terribly jealous but she enjoyed having the little Pom here and she was like a little playmate. She does not over-breed her dogs so there is a good lag time between litters. When you feel better, let me know and I'll try to arrange one for you. They are not cheap in the least but the best never is. Be well my friend~Pood

REPLY

Was this helpful? 1

DO JOT TAKE PROLIA WHATSOEVER, ANYONE !!!!! IT CAUSES BROKEN BONES, TERRIBLE EYE PROBLEMS ( I am losing my eyesight from PROLIA b/c of a epitetinal tear from this drug.)

THIS DRUG SHOULD BE TAKEN OFF OF THE MARKET AT ONCE.

ANTONETTE ROYCE RNC BS CS MA

REPLY

Was this helpful? 1

I had no reaction to the first two Prolia injections. The third,which I received on Tuesday, resulted in terrible constipation. A laxative relieved that, but I now have dreadful diarrhea. I had to sit up in the bathroom for 5 hours, the other night. I was so tired! The diarrhea stopped, then returned in just over 24 hours. I am 81 and dread thinking the next six precious months of life are going to be ruined by diarrhea.

My caregivers had never experienced anyone who had side effects. I was told to take it after a fall broke my pelvis in two places and my spine in two places. My bones are "turning to dust." I reacted to Fosamax and Miacalcin, and 6 months of daily Forteo injections resulted in decreased bone mass. I now use a walker. I guess this is the end of livable life for me.

REPLY

Was this helpful? 2

Thanks Pood, I will let you know if I go with a dog. I have been ill I was in the hospital with a diabetic emergency and I'm still not well. I'm having a hard time eating and managing my blood sugar etc. I'm eating soft and liquid foods only for now. I don't think I'll be able to travel now for a while and their have been a few other disasters. I know missing my baby both isn't helping. But I still don't feel ready yet to take on another while in sick. I hope you and everyone are ok or doing better at least or at least not worse. I'll post more later.((((Hugs))))

REPLY

Was this helpful? 0

Hi Skitty- sounds like you are going through a rough time... Hospitals are no fun, glad you are home- that's a good thing! Be gentle with yourself. Managing a diabetic diet is never easy and it's worse when you can't eat... Sending you positive thoughts! Hugs...

REPLY

Was this helpful? 1

Thanks Jan, this is pretty rough... I just hope I normalize a bit soon and I can go back to regular foods and eat more. So far as of today I'm on yogurt/jello/hardboiled eggs/bone broth/bananas until further notice ;-) ((((hugs)))))

REPLY

Was this helpful? 0

I too am having vision problems along with muscle & joint pain & it' been 9 months since my last injection. This stuff is like poison to me. It should be removed from the market, I agree.

REPLY

Was this helpful? 1

I am so sorry to hear of your awful side effect from this dangerous drug. I'm 77 & know it's sad to think of loosing precious time to being ill. I had a bad reaction to Fosamex, too & have decided I will no longer take drugs for my bones. Hang in there??

REPLY

Was this helpful? 0

Marti~I believe your vision problems are probably due to cataracts. Prolia causes them. I had mine removed as soon as I hit the 6th month mark -- actually a couple of days before. Have you been to an optometrist to confirm any damage to your eyes from Prolia? If not, GO!! Muscle pain is Prolia wanting more calcium. The only way to counteract that is with a minimum of 500 mg Magnesium every night when you go to bed. Sometimes I may take one (250mg) in the day time if I start to feel any cramping. This is a year and a few months after only one injection of this poison. Just because the Prolia goes 'poof' does not mean in the least that it's nasty side effects leave with it. Some do and some don't. Be well~Pood

REPLY

Was this helpful? 1

Skittle~Please take good care of yourself and GET WELL NOW!! It's none of my business but is the restricted diet due to any problems you had with Prolia or are they a separate issue. God Bless You and will keep you in my prayers~Pood

REPLY

Was this helpful? 0

Yutigirl~have your Doctors done blood tests on you to check your immunoglobulins? It reads to me that your A is very low and a change in your diet would fix it. It's an autoimmune disease caused by Prolia. I had it and you are writing a lot of what I went through. You could check it out for yourself by not even going to a Dr. Pig out on gluten (foods that contain a lot of wheat) like maybe Macaroni and cheese and some cookies. If it makes you worse you will know. Then back off and eat no gluten -- none at all. You can have oatmeal if you are not terribly sensitive to it but stay away from anything that has wheat, rye, barley in it and see if your diarrhea stops. Eat fresh meats, veggies and fruits as long as the kitchen puts in no wheat. You can have corn and rice. They do not affect it at all. Let's see if that doesn't fix your diarrhea problem. I really believe it will. You also have to be very careful about canned soups too as they often sneak wheat into them. How about a nice piece of meat, baked potato, salad and fruit for dessert. For breakfast it's bacon or sausage and eggs. No toast and a nice glass of OJ. Lunch could be a large salad with chicken in it, 1/2 of a hard boiled egg, lettuce, tomatoes, cucumbers and other fresh veggies. For dessert would be fresh fruit as in watermelon, grapes, cantaloupe, banana or whatever you like. This should straighten our your gut in one day just by deleting gluten. You can also have milk, yogurt, jello, ice cream (depending on kind as Cookie Dough as gluten in it) so stay with the normal vanilla, chocolate, sherbets, strawberry, cherry, etc. Hidden Valley Ranch dressing has no gluten in it so you are safe there. Do this and get back with me please. Be well~Pood

REPLY

Was this helpful? 0

I am due for my third shot of poison in Oct. I will NOT take it. I requested a form from the FDA to report the drug name and all side effects. No I am seeing a thoracic surgeon because I have a growth on my thoracic bone. I had one biopsy done in which the result was not difiinitive. Now I have to have a PET scan done. I'm so sick of all the diagnostics I've had done and the radiation I've been exposed to. I have been in the beginning stages of cataracts for the past six years. I see my eye Dr in Oct. I may go earlier because my left eye has been tearing a lot. I do not know if this poison caused all of the above. But one thing I'm going to do is post this on FB to all of my friends and have them forward and so on down the line.

REPLY

Was this helpful? 1

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

318 REPLIES

I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

200 REPLIES

I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

34 REPLIES

I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

7 REPLIES

I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

85 REPLIES

I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

11 REPLIES

Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

27 REPLIES

I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

128 REPLIES

I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

15 REPLIES

What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

29 REPLIES