Prolia Side Effects (Page 71)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Jeanne, I too have dry mouth. It was one of the side effects I've been dealing with. My dentist told me that it was because of dry mouth that I ended up with a tooth infection. It can cause tooth decay. I almost lost my front tooth. As for dry mouth, I am now seeing a dentist who specializes in oral medicine and orofacial pain. Very expensive bills but at the moment I'm on antiviral meds and will be starting an oral rinse from a compounding pharmacy! Maybe this info could be of use to your mother.
What really angers me about all of this that it is mainly men promoting this drug. Maybe they should give it to their wives,daughters and girlfriends! When I phoned the company it was a male "expert" that I spoke to!

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PLEASE do not get this. My mom has not been healthy since getting this. Extreme pain in lower back and tail bone. Extreme headaches, and fatigue. Muscle cramps, leaking bladder, extreme dry mouth, diarrhea, lack of appetite. The list goes on and on. This drug should be taken off the market.

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I am a nurse and I have done all the things you stated. I just posted this so that other women DO NOT TAKE this shot. My mom list of side effects keeps growing. It is horrible. The doctor and the company has no answers how long they last. This med needs to be off the market.

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Poodle,I was at my GP today and she felt that I was dealing with way too much and has referred me to a psychiatrist . She also said that I was not to worry about my high WBC .....that I had had a tooth infection which could explain it. She has also written another script for lorazepam as I was so afraid I'd become addicted and didn't ask for anymore when I ran out. Thank you for your support as I get very little from any of my sibling , none to be exact.i do have 2 daughters who I can talk to and my husband tries but is dealing with his own issues from 2 strokes.

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Yes Pood, I bath with oatmeal and some grape seed oil with some baking soda every night, then oil down after using the topical steroids. I have started using cbd oil diluted with grape seed and jojoba oils and lavender to sooth the skin.

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Jeanne~for your Mother to stop the muscle cramping everywhere except feet she needs a Magnesium supplement, 500mg/day. Be careful in buying it as certain ones cause diarrhea. If she gets the cramping in her feet, then 5-7 days of a pure salt tablet will take care of that. Because Prolia really messes with our immune system she probably has an infection in her bladder. It is one of the most common problems with Prolia. Hopefully, these will help her some. She can go to her PC Doc to see if she has a bladder infection and get an antibiotic for it. The culture should come back from the Lab pretty quickly. Right now she is not going through anything that most of us have not done and had. To her good health~

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Elaine~YES to your question regarding steroids. They most certainly do. Be well~Pood

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Linda, that is true that Prolia never completely leaves us but (my favorite word) it comes down to just one cell and causes us no harm. Prolia is a biologic drug just like aspirin is. Anything living or having lived on our Earth is carbon based and that is where your dentist was leading you to. When something is carbon based it has half lives and they go on into infinity. Amgen says the half life of Prolia is 16 days so in 16 days half of the Prolia is deleted from your body and then in 16 more days another half of that half and in 16 more days another half of that half on into infinity. Is that aspirin you had 20 years ago bothering you? No, because it's half lives have been pretty much diminished so there is only one cell of that aspirin in you and the same is true with Prolia. This is how we can find out how old an antiquity is if it were made from something grown on this Earth -- carbon dating. You have a smart dentist that understands science. Be well~Pood

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Sam~how much calcium with Vitamin D are you taking and are you getting any natural calcium too? Prolia LOVES calcium and that is why it attacks your muscles as the human body really cannot store calcium but there is some in our muscles. Insomnia acute is normal with Prolia. May I suggest you get in with a Psychiatrist to get all the sleeping meds you need so you can sleep peacefully. You should also be on pain medication. Will your PC give you a referral to a Pain Specialist? They are a little afraid of passing out what you really need to make you comfortable. If you are lucky, this will get much better in the 5th month and well by the 6th. Not all of us are the same so I cannot promise it but it should happen. As for the nausea, you can take OTC meds for that. Someone here found one worked better than the others. Look thru the posts and find it. If I can help you in any other way, please do not hesitate to ask. I am a survivor of this poison and I pretty much know what we need. Be well~

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Judy~can your Dr. refer you to a Psychiatrist if you have any available near where you live? They thrive on what you are currently experiencing as depression and anxiety. They know the better meds to combat those feelings. What were we supposed to do with our teeth other than brushing and flossing?? I use little Christmas tree shaped things to massage my gums in between the teeth and also dip them in salt with baking soda. That keeps the gums healthy but what else can we do?? My dentist flat told me to stay away until all my symptoms of Prolia were gone and if I had any problems go to the specialists - Maxofacial or something like that. I got one implant from them before Prolia. As I have written before I had a Primary, Cardiac surgeon, Psychiatrist and Rheumatologist/Immunologist. I've also noticed on Lawyers and Settlements they are getting a heck of a lot of people like us so maybe legal action will start one of these days, hopefully. It's not about money. Amgen needs to be stopped one way or another and then I read that people that have been on the oral bis's are having severe problems years later so good thing Merck has a lot of money in that pot. Do you get to go to Florida??? Be well~

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Elaine~Prolia causes leather like skin with nasty blisters. That's a fact! Have you tried taking a bath with some oatmeal in it and a little epsom salts too helps too. What you really need are cortisone pills from your Doc to counteract that. Most don't like to give you very much but Rheumatologists pass it out like candy. It cannot hurt your bones because of the Prolia but you do have to come off of it very slowly or your blood will go crazy and you will get DVT's and PE's. Slowly tapering off when the Prolia stops bothering your skin. Maybe a year or less. Be well~Pood

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I haven't posted for a while as I'm overwhelmed with everything that's going on in my body after the 3rd shot. Infection in front tooth( was not warned that you should take particular care of mouth besides brushing!) , bursitis, indigestion, virus in mouth( they think!) I've been on antiviral but reacted to it. Finally had a cortizone shot and even though it helped, I had a reaction, flushing and now unbelievable itching in arms and legs. Just had more blood work done and my white count is high? I'm constantly tired and now I'm worried sick hat I'll never get over all of this. On top of it all my sister has been diagnosed with a mass on her intestine and will be getting surgery this week. I'm so depressed right now and feel so hopeless that I'll never return to the active happy person that I was. My doctor is setting aside 1/2 hour tomorrow( a day she isn't usually in the office) to go over everything I'm dealing with and hopefully help me with the anxiety and panic I now have.
Those of you contemplating taking this drug .....DON'T!!!
It may work for some but don't risk the chance that it won't for you!

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Just to let people know. When my prolia rash started (so typical),then 31 days out my skin all over my body just dryed out so much even oils and lotion and drinking lots of water only gives minimal relief.

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Yes, that's exactly what it seems to do to so many. Truly sorry. Make sure your doctors monitor your blood calcium levels. Patients need to be on mega doses of calcium and Vitamin D but that doesn't always make you feel better as this drug does too many damaging things to a body. Again, sorry!

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Had shot Jan 2017. First 2 weeks no side effects. Next 4 weeks severe joint muscle and bone pain. Can hardly do my yoga and walking. Five weeks out no sleep. Sleep 2 hours a day. Six week out upper digestive pain with nausea. Going to PC tomorrow. Pain is severe all over body. Flu like symptoms. Will never take again. I think my calcium is depleted.

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My mom took this shot and has had nothing but problems. Extreme pain in her lower back. Fatigue that is so extreme she can't hardly get out of bed. She has had muscle cramping in her legs and arms. Headache, fevers, chills, problems now with her bladder. PLEASE TELL PEOPLE NOT TO GET THIS> Her doctor has no idea how long these will last. When getting hold of other people it has been months to over a year with these problems.

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These symptoms are most likely a sign of low serum calcium. Your doctor should monitor your calcium levels as it is a reported side affect.

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Linda, it is true that Prolia never totally leaves your body but it becomes so very tiny like one cell - so it cannot bother you. Your dentist was trying to explain half lives to you and I've written it time and again and again on this site. There is never an end to a half life. It goes on into infinity. Now you can stop worrying about the future. Be well~

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Pood, first of all, I have some Biotene but it only gives me some relief. I do see a oral surgeon on Thursday who specializes in dry mouth among other ailments. She 's expensive but supposed to be very good. Saw the rheumalogist today. She was very encouraging, suggested I stop the Prolia which I have. Feels, at the moment with the blood work my GP sent, and after examining me that it is not a rheumatologic condition. However she is doing more extensive testing and I go back in 2 weeks. In the meantime she has given me a cortiZone shot in both shoulders. She did say it could take up to 2 days for a full effect. I hope it works.she also said that diagnostic ultrasounds, as you get older, are not always conclusive as tendons do thin and can be prone to tears. I should continue the physio as the exercises strengthen the muscles that support the shoulder. Saw my dentist yesterday as my front tooth with the temporary crown was achy and sore. I was convinced I was going to lose the tooth and was panicky.it was the gums causing the problem as they were stressed from all the work that had been done and he gave me something to massage them and stimulate blood supply to help with the healing. He said he would never allow North Toronto ladies to walk around without a front tooth!!! Made me laugh.
Wow, I'm exhausted from all of this. Maybe I just have SAD. The weather here today is brutal....freezing rain, awful. Give me snow any day . I'm a Quebecer and I'm used to lots of it!
Thanks everyone for all the info and support. We should plan a I Hate Prolia March! But somewhere where the weather is nice. Toronto is beautiful and fun in the spring and hey, your American dollar goes a long way!!

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Poodle- thank you... it's too bad people do not come back to report in their prolia experience after the fact. I will make it a point to do so. From a year ago I feel better. I could do little for my age 6-8 months ago. I thought I was dying so went to Mayo Clinic. Even a few of their doctors are on the pro prolia fence. I had a team of docs there who helped sort things out and now my primary care at home follows those directions...it's been a long road back to health. The TV commercial has been in 3 times today for prolia. Makes me so sad! Today I am back doing some volunteer work ... I had had to quit substitute teaching last March as I was too sick from the Prolia. I am so ready to feel better and look forward to each months end to see improvements as I enter now Year 2 post prolia. I only had one shot in January 2016. I too have a psychologist, nephrologist, cardiologist, rheumatologist, OBGYN, endocrinologist, prostedentist and a general practitioner following my case. I follow your comments... you help many- thank you...

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