Prolia Side Effects (Page 69)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Pood
Your doctor sounds lovely! My doctor feels terribly as well. She says she no longer recommends it in her practice..,, j may have helped another Osteoben patient with my own personal hell.... thank you for always taking the time to respond to me and others.... I agree- take rx off TV... just talk with your doctor!

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Judy~Ask your pharmacist which governing body in Canada or your specific Provence approves what drugs are allowed to be used in Canada. I'm sure you have your own version of our FDA and a pharmacist should know what its name is and how to contact it and if the pharmacist fails, call your Dr. and ask. Canada is a controlled country just like the US is. It's not like Mexico where one just goes to the drug store and buys at will over the counter.

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Jeanne~truthfully, the FDA was very hesitant about approving Prolia. It took a lot of discussion and medical testimony before they finally gave in. We have complained so much to them that there is a black box warning on it now but, do our Docs look at the boxes for FDA updates??? Seems to be the HUGE question here. Be well~Pood

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My mom's doctor keeps telling m y mom that she is the first patient that he has had that has had all these problems.

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Jan~I personally believe ALL prescription drugs should be removed from advertising. All the new ones out for diabetes or whatever else one may have leads to very, very serious side effects or death. Maybe all of us in the US should write to the FCC to get all that junk off of TV. Prolix's is an advertisement for it's drug. Plain and simple. Just to think how much one commercial costs to have it on every TV in the nation?? We kind of figured that one out during the last election we recently had. If people don't see it I think they would be less inclined to use the drug but mine was over my better judgment and my Dr. promised me that she had not had a problem with it until I came along. She said: "It's the safest of all the biologics I prescribe." She now spends the remainder of her life making it up to me after she apologized for pushing me into it -- her words, not mine. Pood

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Jeanne, as to filling in a form about side effects, I suppose this only pertains to American citizens? I am Canadian and am also dealing with many side effects. I lost a tooth and nearly lost a front tooth due to infection. I'm still seeing a specialist re mouth issues. Unbelieveable dry mouth to the point that I can only eat if I swallow food with water. Also white blood count and platelets are high and so far they can't figure out why after some tests. We're away on holidays and hoping it's just was stress due to my many issues with Prolia.

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Everyone needs to flood the FDA website (fda.gov/Safety/MedWatch) to fill in the form with your symptoms. The is the only way to get this horrible drug off the market.

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Dear Victim~It may not be too late for you. Check with an attorney in your area to find out what the Statute of Limitations is. You are still going through this and it reads as if the bottom teeth are a new issue. This would, therefore, give you the reason to go against Amgen on an individual basis. You call all the attorneys in the phone book and find one that will do a 40/60 split for you. You will get the 60 and the attorney gets the 40. Please read my previous post on how to do this as it is best done in Mediation, not Court. Yes, your oral surgeon was generous with you. When the bottoms go, you can get two implants to hold that partial in place. They also have use of cadaver bone to help rebuild your jaw once the infection is gone. I am so very sorry this happened to you and now after you stop the Prolia, your bones go back to pre-Prolia so you have gone through all of this for nothing. Doctors like to say Prolia builds up bone which it does, but it is not good bone. It shatters very easily so in essence Prolia builds up bad bone. Be well~Pood

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I have been talking to a attorney that might start a class action. If this firm agrees I will post information

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I too had a problem that is believed to be caused by Prolia. I had 2 dental implants. A few years ago, all of a sudden my jaw popped loud and hurt like crazy. A few days later, I went to my GYN apt to get my 3rd Prolia injection. At the end of my visit, my doctor asked if anything new going on with me. I told him "nothing pertaining to his field", and then about my jaw. He immediately showed alarm and said I could not have the Prolia injection, that we had to stop it until I saw a oral surgeon and got the issue taken care of and clearance. Got in on emergency with an oral surgeon. Doctor and nurses were also alarmed that Prolia was on my med list! Long story short, the x-rays showed my jawbone had crushed around my right implant, and I had developed a real bad infection due to it. He had to perform surgery to remove my implant, scrape all the crushed jawbone particle out and remove as much infection as he could. The Xylocaine wouldn't numb because the infection was so bad. He used A LOT, he said the maximum allowed. The surgery took a while and was extremely painful! The cost for the dental implants are so expensive, the partial made to fit with the implants was crazy expensive, and the bill for this emergency surgery out of pocket was $1675, after he gave me a "compassion" discount fee. Believe it or not, for what all he had to do, my husband and I felt he was fair on his charge too. I can't afford to have my lower partial replaced, but they don't fit secure at all and are uncomfortable. The oral surgeon told me that more than likely I'm going to lose the other implant also.
After all this happened to me, I searched Prolia to see if it showed there is a connection, and discovered there is. I kept watching for a class action lawsuit to try to recover my expenses back so I can get another partial made, but none. I'm very surprised there still isn't one. now I wish I had started one, since I may now be past the deadline.

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Jan~to have a class-action suit against Amgen all the people involved have to have the exact same problem(s). Now everyone could sign up because it totally messes up our immune system. Others could sign up for the teeth issues but I truthfully believe those will be better fought against Amgen individually like I told one lady to do. Implants are around $5,000 each so we are looking at some pretty big money here quickly. Call attorneys in your area and ask them if they would be willing to do it on a 60/40 basis. When I did mine I had to call almost every attorney in town and finally BINGO. I got a good one and we won. Everyone has to keep in mind the Statutes of Limitation of where you live. In the US every State is different and in Canada it could be every Provence is different. It has to be xx number of days of when you were first diagnosed with that specific problem caused by Prolia. Many States in the US have their State Statutes on-line so you can find them. Canada - I don't know about but I believe Jan is going to find out for all of you. Make sure you have a copy of every bill from every doctor, dentist and hospital. You are not getting pain and suffering. You are simply getting your bills you paid reimbursed to you by Amgen and they will have an attorney in that room too so make sure you have all your p's and q's together. Make eye contact with the Mediator and smile. Be extremely courteous to this person because s/he can make or break your case. Please refrain from hateful looks at Amgen's attorney. Answer in as few as words as possible but give the correct answer IF you remember it from Amgen's attorney. You are paying your attorney to talk for you. Those are the guidelines so go at them ladies. Pood

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Jan~the gluten intolerance is in your and my DNA. There is something about Prolia that brings it out. I was in remission for maybe 5 months and now it seems to be like it is staying with me. My Dr. wondered why and I told her it could be the possibility of worrying about my upcoming total knee replacement or otherwise I don't know. I never knew I had Celiac Disease until that **** Prolia injection. I assume your IgA was done to confirm it. I remember the day my doc called me and she said 3 times your IgA is only 64 like she herself could not quite believe it. She said there is a more definitive test than that but I would have to eat some gluten so I passed. I cannot even smell gluten. There is a super replacement for it one can order. It's called Cup4Cup and I know you have that site too because yours ends in ca I believe. It does everything perfectly just like wheat flour does except one cannot make bread with it. I've used it for angel food cakes and other baked goods and it is totally awesome. Be well~

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Doris~have you had that leg X-rayed? Often times the pain in the groin area is from a leg starting to break from Prolia. Another one of it's lovely side effects. It can happen with only 1 injection. We had a lovely Chinese lady on here from Canada and it broke her leg. It's way, way back in the back pages. She didn't fall or anything else. Just took a step and that was it. They had to put pins in it to hold it in place until it healed. I assume she is still alive. Be well~Pood

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I justt looked into that...Again... appears classaction only happens when all he negative finally comes out. Then the class action lawyers step up... the last 2 I contacted stated: there isn't a case yet... I think it will first take individual claims to pave the way and those of us who are recovering have less power than those who have suffered death and permanent damage... even with my dad's case against Kaiser and his specialist, by the DA (not me) the burden of proof it was "willful intent" and miliicious intent - rather than malpractice and judgement and error and lastly cover up. I hope someone be can find an attorney to take this on.

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She has been on pain meds for years. I am a nurse and believe me I watch this close. Looking into starting a class action law suit.

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Just do'nt throw the remote control through the tv next time her smiling face is touting prolia on TV... so very sorry for your prolia story... hugs...

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Pood- yes, that is the commercial I am referring to. Makes Prolia look like the BEST thing for all Grandmas Everywhere... I'm not out enjoying a family day. I'm dealing with side effects. I want the commercial off... makes grandmas want to take prolia out of fear of Osteoperosis. I too had the gluten intolerance flair up after Prolia. When I eat gluten my digestive issues are a million times worse. Otherwise, I have now cyclic diareah gas and bloating that comes and goes in a regular basis. The gerd is regular. On a bad day I can't leave the house for hours until I am "empty." I had a diagnosis of probable Sojogrens disease which is autoimmune as well... I am looking forward to having this go away as the prolia leaves... I had jyst 1 injection of prolia. That fateful day was January 3,2016. It's now 14 + months post prolia. A year ago I was at my worst with reaction and side effects. My health was out of control. I would not have made a lovely commercial for prolia. Instead I was a spokesperson for Mayo Clinic and fearing death from COPD and uti and pain and sores and rashes and cramps and more... as time progresses and prolia half lives continue, I appear to feel better and hope the side effects continue to lessen as each month passes.it stole the last 15 months from me and cost s lit with lost wages and dr visits and supplements and rxs... thanks for your kind and knowledgeable response.

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Yes, she shines on HGTV which is where I found all the destructive side effects. They go so quickly with them that, when we've had time to review over time, whammy re incapacitated. PTL II don't have the teeth issues...but the groin/pelvis/thigh is enough.

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Jeanne, have they run your Mother's immunoglobulins? That may stop the diarrhea right there if iGA is low. Otherwise, she should be on pain meds. If you are in the US, you can get them from a Pain Specialist or a Rheumatologist. Mine worked with an Immunologist and that is why I got well so quickly. Month 5 was feeling pretty good and by 6 it was basically gone. I still have terrible pain in my spine and from the injection site that runs up my neck. I doubt it never leaves. Wish we had a really good acupuncturist. Be well~Pood

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Jan~do you get the same commercial with Blyth Danner (I think is her name). She made a TV mini-series in the last few years. 'It helped my bones". Every time I see it I think 'what a lie'. It may help your bones if you live through it. Then a guy comes on and starts giving some of the bad side effects of Prolia. ...just some, not all.

I truly wish my Celiac Disease would go into remission. I never knew I had it until Prolia was put in my body and it caused my DNA to come out of hiding.

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