Prolia Side Effects (Page 47) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Sheri~do you know for 100% sure that bloating is excess water? If you are writing about swollen feet, ankles, legs - that's edema from Prolia. Only 'cure' is to keep them elevated until they come back to normal. If you want to add a 'water' pill to the mix, I would certainly ask my Doc first. It is used for hypertension. Losing water in large amounts will show up in your blood pressure, that I promise, and it could go too low if your Doc doesn't know what you are doing. Do things safely. Hugs~Pood

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healingtree~when you write you were puffed up, may I please ask with what? Sheri is feeling the same way and wants to use water pills. Yours sounds like the kidneys were not processing water quickly enough or do you know the exact reason you puffed up so we can help Sheri? I'm worried about her taking water pills as they can affect her blood pressure. Thank you~Pood

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Canadian~have you been to your Dentist yet to find out what is hurting in your mouth or muscles around your jaw? Pood

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Canadian~the mouth is good news at least. You need to call your Dr.'s office and ask how to contact Health Canada. They are your version of our FDA. They are the people that regulate drugs in Canada. I tried to give it to you but it was deleted. I'm sure a nurse knows and maybe even a receptionist. In a way the Dr. is correct. The leg (thigh) fracture is NEVER supposed to be with one injection BUT you have it so there is only ONE CAUSE whether they like it or not -- PROLIA. If they believe it was not Prolia, what was it? You were not in an accident or hurt yourself skiing or playing in the snow. Nor did you fall down a flight of stairs. Tell them to go read their information on Prolia and ask if you have to hand feed them medical knowledge. Use those words. That's not nice but it does get the point across. I don't think you want Forteo either. I believe they have had numerous class action suits against the manufacturer. If you can have it, Evista is good as it is hormones and builds good bones like when we were young and Salmon-Calcitonin is good. It's not fast but it does work. Drs. like to say it does not as it is not new or expensive. My mother used it for years and never broke another bone and I noticed on my bone scan that my numbers were better with it. I'm going back on it. Skittie sure was correct about Prolia killing people. What a terribly sad event. Do you know in what country she lived? You will get through this with a lot of help from your friends, here. Please get or borrow a crutch and keep as much weight as possible off of that leg. Get well and stay well! Hugs~Pood

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no, my doctor said it wasnt from Prolia and even if it was I would have to endure some side effects to get benefit. I told him I could not live my life with the amount of pain that was generated beginning two weeks after I started Prolia. He has recommended I see an endocrinologist.

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I am somewhat better Still have episodes of burning bone pain - my calcium levels are high, i have constant tinitus and reoccurring bouts of painful bursitis in my hip. I started Prolia at age 70 and never had bursitis before. I have not felt well since my prolia injection and my doctor is insisting that I take something. He says all side effects I think I'm having are not from Prolia, but they did start after Prolia. He said I should suffer a little discomfort to help my bones. I think pain is a warning signal and when my bones were burning I did not feel it was a good sign.

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No - Doctor said it *swelling and yellow skin) wasnt Prolia but after 7 months I was back to normal except now have high calcium on blood test that is new.

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Hi Pood, last time I have been to Dr. my blood pressure has been fine. I never realized my ankles swelling was due to Prolia. After my first shot and taking the pills my ankles swelled my Dr's thought it was due to my bulging varicose veins, so I subsequently has vein surgery on both legs. But after second shot it happened again and I knew it was from shot. I wear support stockings to help with the edema and diuretics to help it further. I have been through cancer,chemo, radiation and at least there was end in sight there but this seems to be we are doomed for so long of suffering.

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FYI: New posting on FDA site Prolia. Labeling revision. Approved 3/2/16. Posted 3/3/16.

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Sheri~there is an end to it. Yours may be a whole year after your last injection because you had two. I promise there is life after this. It's just getting through all the side effects that is terribly difficult. I am very close to a year and still have a couple of little problems. They could easily be solved if I felt more like going and doing. I'm still dealing with the new hip I had put in after the 6th month was up. Yes, I know they delete things and then change a word or two and then post it. I don't understand but it is not my site nor am I the administrator. I think they want very truthful information as many MDs come here to find answers on a new medication. Sad more of them don't. I too had cancer in 92 and had what you did (usual course of treatment), fell year before last and broke my hip in 4 places and my back. Truthfully, it hurt a lot less than Prolia and my bones did heal like they are supposed to. I spent 6 whole weeks in bed. Big deal! My Doc apologized all over the place for pushing Prolia on to me. She knew she made a big mistake and told me I have every right to hate her. She did her best to mitigate the damage from Prolia but it was a little late in the game. I was the 'perfect' person, I guess, as Amgen told me I would get better in month 5 and I did so when month 6 arrived I started in on the surgeries that had been on hold. I will take Salmon Calcitonin again for bones and that's as far as I'm going on that route. I would love Evista but with previous cancer it's out of the picture. I got through this nightmare and so will you. Just deal with it a day at a time and know in your heart of hearts that it will end for you too and there is a bright future. Unfortunately the bone we built up will disappear or mine already has. It's okay as it is not good healthy bone. It's brittle bone that easily breaks. Hugs~

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@healingtree if your doctor was "sharp" and had your best interests at heart he would never have given you prolia period- this is a dangerous drug. There have been 4-5000 deaths believed to be caused reported to the FDA since prolia has been on the market. I'm sure the numbers of people with side effects is also high but many like everyone here are told their side effects aren't related, even though those side effects are listed, and they believe what they're told, or at least pretend to.

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Don't let these doctors tell you that the side effects that you are experiencing are not from Prolia. They all are and they get a "kick back" from each shot they give so don't take any chances. This is not a good medicine to take for bones.

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@healingtree~after I was 1/2 to 3/4 dead and walked into my Drs office she did admit it was the Prolia and she should never have pushed me into it. Apologies all over the place. Then, she got busy to find out what she could do to make me feel better. She ran immunoglobin tests and I had a very low iGa which means Celiac Disease or allergy to wheat, etc. Then I started to get better after switching to rice flour and had top notch pain meds and anything I wanted. Some mess up but they can also care. Will I ever trust her again? NO! She deals in all the biologics and I told her I wanted my T-cells and T-cell helpers counted and she said I would have to pay for that out of pocket as they are only allowed to run that test if there is a high suspicion of HIV-Aids, but she does have an immunologist that works with her. That is what we need access to. Immunologists know how to stop the nasty side effects of Prolia. They can get people with HIV-Aids feeling really well, so they can help us too. This 5-12 months of suffering is needless. Pood

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Can not encourage you all enough to keep writing letters to the FDA. Talk to all of your doctors and tell them of your experience.

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FDA Post of 3/16: It says that we are at risk of hypercalcemia after quitting Prolia and that bones can continue on growing without it. This is 100% opposite of what Amgen wrote after the first clinical study. Talk about warning creep!!

Good Grief. This is really bad news for the people that have Sjogrens and already have Prolia gone wild. Thank you Kitty!!

I believe I am okay as when I had my hip replaced they kept doing testing and I was always fine. Hope it does not change.

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Canadian~acupuncture, as far as I know, is only for pain relief. Is it not from your Country? What have you heard about acupuncture from elders in China? It changes the 'chi' in the body so it possibly could help a break heal. I've never heard of that in the US. You don't care what your Doctor has to say. You just call to get the email address for Health Canada. Why you want it is none of their business. You do not need a MD to make a statement to Health Canada. You are making the statements yourself and you say on xxx day xxxx Dr. gave me an injection of Prolia. Since that time I have had: (list all of your side effects including the broken femur. In fact, I would put it first on the list. You have had severe and debilitating pain of: xxxx, xxx, xxx, xx, xx, xx, xx, xxx, and despite having appropriate calcium levels in your body you continue to have tingling in the arms and hands. Then look for Amgen Corp. on the net and find a number to call them. They used to have it arranged by drug and then by Country. Repeat everything to Amgen you told to Health Canada. This is why you need a written list so you don't accidentally forget something important. Pood

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Janie - another side effect I'm thinking - my Primary is dead set on me taking more Prolia although I now have to go to an endocrinologist because my calcium is also up. Most common cause is I'm told, problems with parathyroid. I'm very curious to find out if this is another side effect of Prolia, though I've been off for six months, I'm still have symptoms, leaving, returning off and on. Which my Primary says it isn't Prolia but even the Prolia people said they are possible side effects. Sigh.

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If you come off of Prolia and your calcium level is high it will come down providing you are not taking any calcium supplements. Mine is almost back to normal after one year and two months. Your doctor will try to keep you on it but beware it is very dangerous to your body.

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I have severe osteo in my left hip. I have for several years tried to do it on my own, diet and exercise. Now the doc says I have no choice and must go on a med. Saw the endocrinologist and she said to take Actonel, My gp said to take Prolia. I am very afraid of the side effects. Recently I had cellulitis on my arm. Have NO idea how I got it. With antibiotics and having caught it in time, it was quickly cleared up. Prolia shows an increase in cellulits cases. I am the eve of decision making and really dont know what to do.

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Dont take prolia, it is a dangerous drug and the risks are too high, the benefit will never outway the risks if you get serious side effects and the benefit is lost once you stop taking the drug. Your doctors will deny it even if you have severe side effects including death. They get kickbacks for rx drugs. I talked with my hematologist and he said definitely no to prolia, not that I would ever take it. He said no to hrt for me but if I need it calcitonin and forteo are the best. He said this osteoporosis isn't an emergency. I have time to think about it and to decide what is best for me and what I feel comfortable with.

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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