Prolia Side Effects (Page 155)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Nikki (# 3074)

It's on the FDA in America or TGA in Australia. Class action is not possible now. Amgen has updated their side effects to spontaneous vertebrae fractures.....you have to rely on Drs knowing this but they don't...they just listen to the drug reps.

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I had after about 6 weeks in...got really bad headaches...then ear aches then vertigo..had burning mouth syndrome..hip pain... Prolia turns off your immune system . It doesn't make new bone. It stops the normal process of bone turnover...keeping old dead bone cells in your spine and if you stop without a delay drug you are at high risk of spontaneous vertebrae fractures...

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Re: Kazz (# 3081)

I agree that most doctors don't know or even believe the side effects we're all going through from this drug. The PA in my rheumatologist's office wanted to know if I wanted to try a new drug on the market. I told her no way. I'm still suffering from Prolia and I'm very sensitive to drugs anyway.

Thanks so much for letting me know about the company updating the side effect list. Last week I filled out the form for the FDA. I hope it will help.

Take care!
Nikki

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Prolia is a form of Chemotherapy! Amgen the drug never tells you that it is used for Bone Cancer patients! It was a horrible drug for me. Still suffer from many of the side effects and my doctor says I will never be the same, the effects of Prolia, aka Chemo, are permanent! I have reported it a number of times to the FDA to no avail. I do try to inform others of the deadly effects of this drug. HORRIBLE

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Re: Kazz (# 3082)

Thank you for this information, Kazz. I'm adding it to the list to let my rheumatologist know. I'll write it out and date it so I know when I told them.

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I just started on prolia, and only read negative things about the drug. Is there anyone has had a positive outcome? The clinical trials show positive results and my GP said she has 300 patients on it with no side effects. There must be some who respond well.

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Re: kerry (# 3086)

Hi kerry,
I haven't read of very many people who haven't had any side effects. I wish I had never taken the drug. Hope you are one of the few who suffer no ill effects.

Nikki

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Re: kerry (# 3086)

At least you know the possibilities. Perhaps you will be lucky and escape serious side-effects. Lots of people do. Mine took months to develop, causing me and my doctor much confusion. My first side-effects were not unusual and were transitory.. Then a myriad of other, more worrying things took over progressively. If you have read plenty of posts here you will have some idea of what to look out for.
I was clueless enough to agree to a second injection. Things escalated after that. It took me at least 18 months before I felt mostly recovered.
I will never again take any medication with long-term efficacy. Now I take Actonel weekly without major drama.
If you experience weird phenomena,write down your symptoms.
Perhaps you'll be more fortunate than those of us here.
Good luck!

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Re: kerry (# 3086)

My GP also said he had over 100 patients who took the shot and no side effects. However, when I reported my negative reactions and side effects ( multiple), he said it Prolia was not the cause. So, I am probably included in the group that he references with no side effects.

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Re: Kazz (# 3082)

Re: immune system and Prolia. Does anyone know about how a Prolia interacts with the CO
VID-19 shot?

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Re: Lizzie (# 3089)

I would not believe you doctor totally as when it relates to Prolia they have no clue. Now with Covid 19 vaccine you should talk to an immunologist or allergist as I was told if I get it then I should be in a controlled setting where healthcare providers know what to. I has my first and only Prolia injection March 2019 and still experience symptoms granted not as severe. I am deathly afraid of any new meds let alone injections. Again these are my experiences and I can tell you I am much more on the ball and do not take any doctor’s recommendations on face value. I do my homework and challenge them even though at times they are not pleased. Hope this helps with your decision making but you just have to be comfortable with what ever you decide.

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Re: Verwon (# 1)

I wanted to let the people who are having bone issues, after the Prolia shot some information. My dear sister-in-law gave me some vitamins after the ring finger on my left hand was drooping down into the palm of my hand and I could not move it up straight. I was in so much pain with both hands for weeks before and they had both swelled up like a baseball. I had the shots for 2 1/2 years or more and I stopped them because there were no changes in my bone scan and I was having multiple problems and I still am. The vitamin that has helped me is Arthrozene. My sister-in-law purchased this on line. I have no idea if it will help all but it is worth a try. Karen Wadman

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Re: Lizzie (# 3090)

A very good question. I hope all of us here will post about how they have responded to the Covid vaccine, and which variety they received. I believe that each person who is given it is kept under observation for 30 minutes. I feel optimistic after having no bad reactions to flu vaccines since taking Prolia. The reactions I DID have were to quite ordinary things I'd had before.

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As I have stated many times, the drug Prolia has been an ongoing nightmare for me. I have had almost all of the horrible side effects of Prolia. I took 7 shots, before I researched Prolia and the side effects. I then realize why I had been so sick. Muscle, joint pains, rashes, lost of hair, vertigo leading to falls, and permanent damage to my whole body. My oncologist did not forward my records to my family doctor, he said he would have called me and stopped the shots. He said he would never give this drug to anyone for osteopenia. It is being used for Bone Cancer patients, it is a form of CHEMO! Horrible drug for me personally, I hope this post helps other to not have to go through what I have been through and am still going through!

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Re: JenjiOz (# 3093)

Hi Jenji ~ The Covid question is a good one to ask. Am scheduled to get mine March 2, 2021.
Does anyone on this forum have input on a 2 shot Prolia ravaged body, and a Covid shot? We truly all need to know this in this pandemic. Lets help each other, as only we know the truth of Prolia use.

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Re: Darcy (# 3095)

Hi Darcy, I really hope your Covid shot does what its intended to do and nothing more! I would like to believe that it will be that way for all of us.

I'm not normally hesitant about vaccinations. I have had so many for every possible disease, as have my kids. If I have a sore arm and feel a bit ill for a couple of days after I'll be happy. One way or another, I'll report back. It would be great if we all do!

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After fighting against Prolia since 2014 when I developed a bone tumor over my eye, I am not about to try it again. No one has been the anti-prolia advocate to the level I have taken my cause. But after tripping over throw run in my house and fracturing my right and left shoulders and right elbow and wrist...I am going to try it again. I am 76. Since my mid 50s I have been on Fosomax (bad esophagus damage) and Boniva IV. After 3.5 years on Boniva I went off it and fractured my spine in 5 places with months of no Boniva. I was merely leaning into my car when my spine snapped. Anyhow...I will keep you posted on my results. My rheumy had suggested a new med called Evenity. Side effect...strokes and cardiac problems. Strokes run in my family and it's new drug...I believe it unwise to take any med that hasn't been on the market for at least 5 years. Let's see what happens as I revisit Prolia. Fingers crossed.

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Re: Daisy (# 3097)

I believe Eventy is just Prolia reinvented by Amgen. They do that when a drug reaches the level where can be become generic and others copy it. Do be careful Daisy -am glad you are looking at all options, but you know which drugs have given you grief before . . . . After my Prolia hell, I started doing some light back exercises, upped my calcium, started taking vitamin K-2. And, of course, tons of leafy greens, cruciferous veggies ??.

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I promise to keep posting my results...negative and positive with Prolia. Back in 2014 I had an immediate reaction and stopped Prolia. I developed a tender, pea-sized lump in my eye socket. It was like an extension of my existing bone and not a separate growth. After the second shot it grew to the size of bean. Very tender and headaches.(non operable) I had been on Boniva IV for 3.5 years ending in 2012 when the dexa scan showed a 12% increase bone density. It was a hard decision to make but Mayo Clinic etc said "It might be from the Prolia" As did other eye socket experts. In April 2013 I fractured my spine in five places—I had been off bone meds from 2012 till now ... 2021.

On January 20, 2021 I fell in my house (tripped over a throw rug) and fractured my shoulder, elbow, and wrist. My most recent dexa showed a 33% risk of major fracture prior to my tussle with the throw rug. I am 76 years old and after much soul searching and research, I decided that living alone with no one to help me I was better off trying Prolia again. My rheumy is into research. She suggested a new drug for one year before going on Prolia. (Sounded to me like I was to become a test case for Evenity.) I declined the Eventity and went straight for Prolia. I will get the first infusion within the next month. I will let you all know how I make out the second time around. This feels like forgiving a cheating mate...:) a second chance. Oh well...I never seem to learn. :)

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Re: Daisy (# 3099)

What a dilemma! I can't imagine the circumstances that could cause me to accept Prolia ever again after my hellish year taking it, and then the lengthy recovery period. At least you have the advantage of being very well-informed this time round.
Is there any option to receive Prolia or similar in another format, e.g. weekly or monthly, rather than a long-lasting infusion? Something that can ceased quickly if the side-effects become intolerable? I don't think I'll ever consent again to a long-lasting injection, apart from essential vaccines.
I also experienced changes to my eye sockets, a degree of sinking of the inner corners, more to one eye than the other. It happened quickly, within the first few months. You are one of very few people who has mentioned this here.
Í hope your treatment is effective and without any major downsides. Osteoporosis is dreadful enough in itself!
Best wishes, Jenny

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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