Prolia Side Effects (Page 132) (Top voted first)

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Oh no, for cancer patients ? This is terrible news.

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Trojan Unicorn, so sorry to hear about all those symptoms. I tune in here to see if some of the stuff I am still suffering two years later are on line with others - and yep. I'm so sorry you are so torn up. This stuff is terrible. Please call AMGEN and report. They are coming out with something else .....sumab for cancer patients, as if they aren't sick enough I had a radiofrequency ablation on the neck nerves, it helped immensely. They kill the nerve - that's about all they could do. Wasn't a bad procedure. The hip has improved, I could not walk for a while after my first injection without a walker. Had dental work done, but one side of my jaw is still sore off and on. I wonder if this stuff ever goes away. And to make matters worse, when we stop the Prolia are bones go back to the same or worse, I'm hearing from people. In my case, I had a tumor on my parathyroid and thyroid. Once those were removed I felt so much better, and my bones should be up to normal in about 5 more months or so. That is not always the case, but sometimes, its worth having thyroid scanned, PTH levels tested. Especially since Prolia seems to mess with our PTH. I had to go to an Accupuncturist to be able to walk again. Yes, and 9,000 worth of dental work. Good luck on your journey. Just know that you can get better, its a maze, takes a lot of research on one's own, unless you get lucky with a doctor who knows about the side effects and how to work with you.

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I would like to share with the group an experience I had yesterday. Perhaps it will be helpful. I had a Lymphatic Drainage massage. This was total body, not just an affected limb. Today, my joints are less swollen. I can wear my rings, and my feet aren't painful and tender. I don't feel like a balloon. For the first time in weeks, I was able to do at least, a gentle exercise.

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Judy, search Dr.Loren Fishman, rotator cuff .
Perhaps you can get some relief, not a cure but relief.

I am so very sorry for your troubles.

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Thanks Sal. I checked him out but as he is in New York and I'm in Toronto,Canada it would be very difficult for me to get treatment from him. There seemed to be no actual directions on exactly what his exercises he recommends unless I missed it. All I could do is email him and see if he knows somewhere in Toronto.

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Judy~May I suggest you see a different bone surgeon. I do not believe there is any place in the shoulder that unable to be fixed. I know my Dr. does whole shoulder replacements. He thinks the has a fantastic day when he gets to do a whole shoulder and a knee in the same morning. This is not a big city Doc but one that truly loves his work. I adore him. He did my first knee for me and it's been a honey and that hospital is so clean one can eat off the floors plus 2 full RN's per patient and the downstairs is rehab and they get the cream of the crop there. I'm going up this Thursday to set a date for the other knee that was supposed to be done a long time ago. Please recheck again with another orthopedic surgeon. Be well~Pood

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Judy please read this study done in the US:

- Curr Rev Musculoskelet Med. 2011 Dec; 4(4): 208–213.
- Published online 2011 Sep 1. doi: 10.1007/s12178-011-9098-3
- PMCID: PMC3261244

"Treatment of irreparable rotator cuff tears"

M. Michael Khair1 and Lawrence V. Gulotta corresponding author

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Poodle,

I need your expertise. Certainly Prolia reduces immunity; but does it activate an OVER active immune system ?

Since Prolia, all my autoimmune conditions are fired up.

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Perhaps my experience will help others
Yesterday, I went to my previous dental practice from when I lived in NYC. I saw the chief of Oral Facial Pain. Right now she is treating me conservatively because my whole body is fired up.

Here is her finding : My shoulder joint and muscles are inflamed and contracted, especially the Scalenes. This apparently is pulling my jaw out of alignment, Thus the pain and tightness.

A course of PT for my shoulder is prescribed. Following that will be a reevaluation. This was an "a ha " moment for me. In addition, I asked about the implants such I had been advised to have. For now that is out of the question. At follow up she will evaluate for other options such as a full night guard and a different partial plate.

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I had my first Prolia injection and experimented short term memory loss about 5 months later. Now I am back to normal. I have read this can be a side effect. Will I have it each time I have my injection?

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Josephine,
I had two shots, the last one 5 and 1/2 months ago. Memory impairment is still an issue , in addition to a multitude of other negative side effects. No more Prolia for me.

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Poodle,

I hope you are doing OK.

Best wishes.

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Sal~there is something in Prolia that makes autoimmune diseases show up even tho we may never have had any knowledge of having them previously. Case in point, my Celiac Disease. Had never had it before Prolia and just in about the last month it has gone back into remission where I hope it stays. That has lasted a few years longer than the Prolia did and I also noticed when I forgot to take a pain pill, the muscle/tendon in my neck that was going into my jaw is still there. It's the side where I got the injection. It's not in the jaw area now but it sure the heck is still in my neck. Apparently, certain things can long outlast the end of Prolia because now there are just a couple of molecules left but they are sufficient to cause a bit of a problem. This is scientifically impossible but it is happening and I would swear to God with my hand on a Bible. I curse the day I had that one and only injection of poison Prolia. I got my implants and they healed quickly and well. I have to go back for an X-ray next Tues and I am expecting good news on that front. They had to do more than my usual amount of donor bone but that does not cost more. I'm wondering if you can have 3 implants that hold the denture that is then drilled into the implant and covered with what they use for no see fillings now that become solid with some type of special light dentists have. Two in the back, one on each side, and one in front. It looks and feels like natural teeth. Have you looked at them? Be well and hang in there -- it can only get better. Pood

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Thanks Poodle. You confirmed what my gut told me, but couldn't find the literature.

The implants are on hold. My body including oral and facial pain are way to flared . In addition, I went back to my old dental practice , the faculty practice at a major dental school. I was encouraged that there are other options, such as a night guard, and the possibility of a new partial. In the past, I never wanted implants because even minor dental work can trigger pain. All of this is on hold until the pain and spasm subsides.

Another issue about implants, at this point in my life, nearly 70, do I need to put $$$$$ into my mouth ?

Thanks again for your info. Continued good health.

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I just turned 70 and wondering about spending that much on implants but just can't stand these dentures so I am going to spend the dollars and get it done. I have one more month to get the implants and four more months after that to get the teeth.

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Since I have only a partial, I am not sure it is worth . Still, I have not entirely ruled it out. I am going to try other options first. Even more than the cost, it is the potential for all that work exacerbating my long standing condition; which had been in remission until Prolia.

Best wishes to you, Linda. Keep posting

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Linda~please read the note I wrote to Sal about implants. I don't remember how many you needed but it was a larger amount. They can do two implants and bridge the other missing teeth to the implants. There are no wires and other things to get in your way as with a traditional bridge. Start searching the net about dental implants and the cost and you will find the correct decision for you. Mine were for 2 and removal of 2 with sedation $4950 + $1145.00 + $450. If you lost your whole upper or lower teeth they do 3 implants and it is beautiful and looks like you have bright shining no cavity teeth. It's in a way that fits you perfectly and anchored in so no debris can get under them. My brother got one recently cheaper at his dentist's office and the dentist replied: "You know I am making no money on this" and my brother was very happy. He is 80 and I am 72 so yes, we do need our teeth if we want to eat more than cream of whatever soup and ice cream. They offered me the bridge because I have 1 that stopped Prolia from continuing on. I was stupid and declined. I would had have to have only one implant instead of two. There are sites on the net all about dental implants and how much they should cost with photos of each option. Read them and make up your mind what you want and they will accommodate you. The $450 was for a special X-ray they have that shows the live nerve in our jaw under the teeth to make sure it is in full placement so they know they can proceed. Get busy! Hugs~

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My dentist waits two years after last shot before he will work on someone. I didn't have to do implants...just bridges, crowns and a root canal.

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Thank you Diana. My implant issue is shelved for now, but what about filling replacements ? I have a couple that need replacing.

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Thank you for the input on the implants. My 4 months is up next month that my dentist requires to wait after pullling all of my upper teeth. I am getting ready to make an appointment to discuss my options and will ask about everything you talked about. I already had one implant and may get by with 7 more. Oh how I wish I had never taken Prolia.

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

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I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

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I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

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Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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