Prolia Side Effects (Page 118) (Top voted first)
UpdatedI would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.
I was told there were no side effects from Prolia except redness at the injection site. Wrong.
Judy~i'm sure they have had to revise it because the FDA in the US is busy putting new warning labels on the boxes as if our MD's look at the boxes.
Sorry, I had to find your stress comment funny. Of course Prolia is causing you stress. Your body is falling apart around you and you are supposed to remain calm, cool and collected. I think NOT! I's downright amazing we survive this at all as I know it has killed between 4-5,000 of us and that's an old count. Pood
Judy~apparently you have not read some of my prior posts regarding Prolia. The only way to help the muscle 'discomfort' is by using minimum 500mg Magnesium every night at bedtime. That puts an end to that and if they then move to you feet, take a pure salt tablet for 5-7 days. Sometimes it can be difficult to find, so I take a large amount of salt in the palm of my hand and eat it very quickly and then some water to get the taste out of my mouth.
Diana~do we have two Dianas on this site? Anyway, look at Kitty's last post where she called Amgen and they asked her if she had stomach problems from Prolia. Why would Amgen be searching for more damning evidence of their product other than they know it's not what it was supposed to be and are busy cooking up the next one for us? I'm very happy with my Calcitonin. Thank you Dr.!!!!
Pood, I started taking magnesium ,50 mg twice daily with meals, and after 2 days I've had terrible diarrhea so not too anxious to continue. Does wonders for my painful anal fissures!
Magnesium Glycinate is tolerable for guts...any other kind gives me bad diareah too or however it's spelled
Judy, why were you doing 50's when I told you the number. It has to be straight Magnesium or you do get the diarrhea. That is what Milk of Magnesia is made from. Look at Diana O's post, She found the right kind. Yes we did have two Diana's here so she had to change hers to Diana O. She's been a Prolia survivor for as long as I have. I was reading Amgen website today and also the FDA. I found both of them to be lacking info but it definitely did mention esophagus and stomach issues for the person that was wondering. How many of us had our calcium levels taken before our Prolia injection and how many of us had dental clearance. I know I sure did not.
Diana~I found stomach and esophagus on the FDA;s website in the USA so it is definitely Prolia related as other people have relayed their info to the FDA or Amgen, who has to tell them. You certainly are not alone. Be well~Pood
Diana is definitely not alone. My esophagus and stomach, heartburn so much worse after taking these bone density medicines and Prolia just pushed me over the edge. I'm so happy I found this site, to know it is not in my head and all my suffering is real.
Pood, the reason I started low was the fact that I have been spooked with so many reactions to things that I have been prescribed so I thought possibly I would work up to a higher dose. Are you referring to magnesium glycinate which Diane mentioned and if so is it available in drug stores? I'm also in terrible pain in my shoulder and upper right arm. Don't know if this is a result of Prolia or the fact that I saw a chiropractor about a muscle problem on my left side and now with his questionable treatment I am even worse than I was before I saw him. He told me it was a pinched nerve in my neck.i stopped seein him! I go to see a very reputable physiotherapist tomorrow and am hoping for some kind of miracle! Have not slept for 3 days now as it hurts so much. In other words, IM A MESS? I'll scout around for the magnesium once the freezing rain stops and I don't slide off the road and end up with pain in some other part of my weary body!
Yes, terrible neck and shoulder pain is another side effect. Trust me. My dad was miserable with that. bilsters, all kinds of things. Please read my old posts from Oct 2014
I'll be. Angry. Very angry!!!!!! Cost me a bundle of money. Wow. Thanks for info. Another thing that is gone is the nerve p as in in my neck that I had radio frequency ablation for relief. But still had pain. Now is gone. I will get om AmGen website and report.
C Louise: It has been awhile since you posted. Wondering if you contacted an attorney? Did you speak with the law firm that represents Amgen? Statues of limitation are different in every state. Where I am at One year for the doctor and two years to bring a case against the company.
Kitty: No. i never contacted an attorney. My mom has just about "dis-owned me" because I didn't think my dad should have gotten a Prolia shot before he ever got it. I took my computer to her and my brother (his wife is the office manager where my dad's doctor was, the one who prescribed Prolia for my dad) and both my mom and brother were mad at me for showing them what the side effects could be and besides that, my dad had kidney failure, was allergic to latex and had a leak in his small intestine (had surgery on it) all 3 reasons to consider NOT having the injection. I couldn't win then and it has only gotten worse and my mom told me to not even bring it up ever again. The family doctor was wrong to even suggest Prolia for my dad in the first place and he NEVER told them what could happen. He said side effects were rare. Oh how i wish he'd get a couple doses of this killer drug! so in answer to your question, "No" I never contacted an attorney. I would have gotten no support from my mom or brother. It will always bother me as to what happened with my dad when he got that drug.
None of my drs believed me that the prolia was causing me constant sinus problems. I was so sick for years. Now that I'm off the prolia I still hv a chest rash and a rash on my wrist.
I have contacted several. They are not doing Prolia. Also some will only take mass class action suits. One large, but successful firm wants 1,000 clients for a class action!!!!!!! I'm not sure if Prolia hasn't been on the market long enough for good documentation - - I wish I had an attorney friend who was proficient in class action to give me the low down on these suits. I'm still researching when possible. Mostly the contacts I've made have been abrupt in their turn down.
Dianne, those lawyers all all probably in cahoots with the drug company!!
Just came from my physiotherapist for help with my muscle pain and she was quite aware of others who have experienced side effects from Prolia. Her husband is a doctor and refuses to prescribe it. Instead he recommends diet and exercise.
So sorry for your loss. I remember being touched by your postings. Did you report to FDA and Amgen?
Interesting reading:
Cafepharma Amgen board
Prolia patent expires 2020
I stopped oral supplements and started drinking almond or coconut milk with 50%of the dailh calcium and,ate other foods high in cal c ium (not dairy origin). My calcium went from 8 to 10 in 2yrs.
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