Prolia Issues And Side Effects (Page 5)

I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered horrible side effects such as terrible constipation, leg and foot cramps, skin rashes, stomach pain,etc.

I also found out that Prolia works by stopping the body's own bone production, causing old bone to become denser. This results in probable fractures due to old brittle bones, Prolia also causes low calcium levels in the blood, a weird side effect seeing it is supposed?to strengthen boned!

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Re: Poodle (# 77)

Yes boot the b&%$#d out....its hard enough to try and make a huge decision about these terrible drugs let alone listening to #%$#&% like that.

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Re: Poodle (# 76)

Thank you Poodle, you have done the right thing. l am sure all on this site will appreciate you for doing the right thing.

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Re: Poodle (# 75)

Well said Poodle... You need to walk in our shoes before you have any idea what you are taking about

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Re: Poodle (# 74)

Absolute disgrace from what l have read about this drug the last few years. I refused it 2-4yrs ago yet 2 yrs after another bad Bone Density this is yet again all l have been offered unfortunately...again l have to decline.

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Re: jenjioz (# 63)

NO DARLING YOU ARE CERTAINLY RIGHT... DON'T LISTEN TO THESE *****S WITH NO IDEA.

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Re: Poodle (# 74)

Doesn't surprise anybody they are there to PUSH their drugs... Unfortunately

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Re: Laura (# 82)

There are other options, an alkaline diet, Yoga, especially Yoga for Osteoporosis, my go to exercise is called TTAPP. This one I have been doing for years. It was a long period of inactivity following surgery, plus a poor diet because the drugs caused me nausea that caused me Osteo. Check out Yoga for Osteoporosis by Dr. Fishman, Save Our Bones, the Better Bones Blog, and TTAPP.

Be well.

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Re: Laura (# 82)

Hi Laura, There are other options available. The big issue for me regarding Prolia was that I naively accepted a six-monthly inj. which delivers what it promised in terms of bone density but also delivered many unwanted and lingering side-effects. While my fracture has healed, and my bones in general are recovering, the various 'adverse events' (to use the Australian TGA jargon) are gradually tapering off, but I have no idea if they will ever totally disappear. These side-effects are supposedly minimal, unusual or rare BUT the number of people affected, often severely, is clearly high. As for percentages of people affected, that is less clear. I am skeptical about the official statistics. We, on this site, are definitely part of the statistics. After a great deal of agonizing, and influenced by a body of research that shows that stopping Prolia causes a regression to a worse than ever state of bone density, I realized that stopping treatment was not an option for me. So now I am taking Actonel, so far without any negative fallout. The acknowledged side-effects are much fewer, and seemingly less common. The reason I was prepared to take this on is that it is a weekly tablet, meaning that I can stop it if I feel there is a need. This is a very different proposition to a six-monthly inj. which cannot be undone. I know that I am still exposing myself to risk but I am also very glad to have regained a fair semblance of a normal life now that I am physically more capable and active due to both these treatments. My skin begs to differ, a hangover from Prolia. I was pretty shocked to experience the unwanted effects of Prolia because I have never previously been susceptible to side effects in a major way. Naive, I suppose. This time I'm crossing my fingers for the triumph of optimism over experience. Explore the possibilities but with research and caution, unlike me initially. Bonne chance!

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Re: Poodle (# 72)

Poodle and Sharon,

I'm taking Slow-Mag (magnesium chloride) 2 tablets, 1 time a day along with potassium and these seem to be helping the cramps in my calves and toes. If I don't take them for a few days, I'm quickly reminded.

Hugs,
Nikki

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Re: jenjioz (# 88)

Please monitor any esophagus problems that might arise with Actonel. Hopefully you will not experience any complications!

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Re: Lizzie (# 90)

Thanks Lizzie. I'm being hyper-vigilant this time! So far a couple of minor and brief sensations of indigestion; half an hour of headache and blurred vision a couple of hours after taking a weekly tablet. If that's the full extent of it I'll live with it.
The pills now have a coating which is intended to prevent the oesophageal effects. We'll see.

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Re: sal (# 87)

Can you recommend a DVD of Yoga to help with the osteoporosis? I need to look into the alkaline diet as well.

I have started Thrive Life. The food is purer and more nutritionally dense than the organic you can buy at the store. This is freeze dried food that is freeze dried from 2-4 hours after it's harvested. Their blueberries have 40% more calcium than store bought. Hopefully, the walking, yoga, and eating better quality food will help my bones.

Hugs to all!

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Re: Poodle (# 66)

Hi Poodle. I'm very interested in what you said about bone deposits in facial bones. For most of the past year I have experienced itchiness, seemingly in the bone, around my eye sockets, between the eyes and on the browbone. A hollows have developed beside the inner corners of my eyes. When I was exploring the deeper hollow with my fingertip I discovered a tiny growth. This turned out to be a basal cell carcinoma, which was removed. The small wound was very slow to heal and the itching persisted long after it healed.
Do you know any more about this strange phenomenon? Your mention of it is the only info I have seen. I wouldn't even know what kind of doctor to consult. I'll keeping hunting for further reading.
Thanks, Jenny

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JenjiOz (# 92) --

I am so very sorry that this has happened to you.

Be well.

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Re: Laura (# 84)

I have done the same, l will have to come up with something soon as my hip's are getting especially worse

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Re: JenjiOz (# 93)

It is in the back pages on this site. There are two main discussion threads: "Prolia Side Effects" and "Prolia Side Effects Duration" here on rxchat.com. I believe your best searching in the back pages would be simply: "Prolia Side Effects" here in medschat. What you see are just current issues. They go back many, many, many years here and then the discussions continue on from there, so go back to when Prolia was first released and start reading posts. I would estimate maybe 3 years ago or so. You will find it and there is a lot of very useful info in the back pages. Be well~

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Re: Nikki (# 92)

Search Dr. Loren Fishman a Physiatrist in New York City. He is conducting a study on Yoga and Osteoporosis. His initial study shows excellent results, so he has expanded it. If you live in or near NYC, you could have a consult. Another option is to find out if there is one of his trained instructors near you (they are scattered around the country); or, obtain the book and/or the DVD from his office. If you are unsuccessful, please post that, perhaps I can help.

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Re: Poodle (# 96)

Thank you, Poodle. It is truly alarming to read more fully about Prolia and its hideous effects on its victims from the outset. It is illuminating to see the general consistency over time. I am only as far as page 42 and I need to take a break! What difficult and depressing reading. So much pain and suffering, including your own, which seems to have been particularly dreadful.

My gloominess has been increased by seeing advertisements for Alzheimer's testing on almost every page.

Nevertheless, your explanations of the concept of 'half-life' brought to mind Zeno's Dichotomy Paradox. I know my own issues are gradually decreasing in a 'two steps forward and one step back' way, and have never been of the same magnitude of many, for which I am somewhat grateful, knowing what the possibilities are.

Now I'm waiting it out, but without any certainty about whether any of my recent allergies will subside.

Thanks for all your wise words.

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Re: Nikki (# 89)

Thanks again. I am now taking it in liquid form, adding it to my water.

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Re: jenjioz (# 98)

You mention recent allergies -- are you referring to food by chance? There is clear evidence that Prolia brings out the worst in our DNA that we never knew we had until Prolia turns up. In my case it is gluten. Years past the one and only shot it still comes back for some unknown reason that it is still causing with my DNA. I can go 6-9 months eating all the gluten I want and then there comes a day when I can have none, not even a sniff. It was one of the worst side effects I had from Prolia other than a cataract, infections, losing 2 two teeth - it ate the roots off of two back ones and the only thing that saved the rest of my mouth was it ran into a titanium implant and even Prolia cannot get past titanium. My dentist bill for the two crowns for the implants was almost $3,700 yesterday.. I truly believe Amgen should be paying that bill but not until enough of us get it and report it so we can have a class action suit. We all need to figure out what we all have in common with bad side effects from Prolia other than the broken femur and then we will have a class action suit against Amgen. Many they admit to but many others they do not. It's a certainty that our Doctors are not telling us about the bad side effects and we have to research them on the net. Be well~

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