Prolia Issues And Side Effects (Page 3)
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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered horrible side effects such as terrible constipation, leg and foot cramps, skin rashes, stomach pain,etc.

I also found out that Prolia works by stopping the body's own bone production, causing old bone to become denser. This results in probable fractures due to old brittle bones, Prolia also causes low calcium levels in the blood, a weird side effect seeing it is supposed?to strengthen boned!

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88

Re: Laura (# 82) Expand Referenced Message

Hi Laura, There are other options available. The big issue for me regarding Prolia was that I naively accepted a six-monthly inj. which delivers what it promised in terms of bone density but also delivered many unwanted and lingering side-effects. While my fracture has healed, and my bones in general are recovering, the various 'adverse events' (to use the Australian TGA jargon) are gradually tapering off, but I have no idea if they will ever totally disappear. These side-effects are supposedly minimal, unusual or rare BUT the number of people affected, often severely, is clearly high. As for percentages of people affected, that is less clear. I am skeptical about the official statistics. We, on this site, are definitely part of the statistics. After a great deal of agonizing, and influenced by a body of research that shows that stopping Prolia causes a regression to a worse than ever state of bone density, I realized that stopping treatment was not an option for me. So now I am taking Actonel, so far without any negative fallout. The acknowledged side-effects are much fewer, and seemingly less common. The reason I was prepared to take this on is that it is a weekly tablet, meaning that I can stop it if I feel there is a need. This is a very different proposition to a six-monthly inj. which cannot be undone. I know that I am still exposing myself to risk but I am also very glad to have regained a fair semblance of a normal life now that I am physically more capable and active due to both these treatments. My skin begs to differ, a hangover from Prolia. I was pretty shocked to experience the unwanted effects of Prolia because I have never previously been susceptible to side effects in a major way. Naive, I suppose. This time I'm crossing my fingers for the triumph of optimism over experience. Explore the possibilities but with research and caution, unlike me initially. Bonne chance!

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87

Re: Laura (# 82) Expand Referenced Message

There are other options, an alkaline diet, Yoga, especially Yoga for Osteoporosis, my go to exercise is called TTAPP. This one I have been doing for years. It was a long period of inactivity following surgery, plus a poor diet because the drugs caused me nausea that caused me Osteo. Check out Yoga for Osteoporosis by Dr. Fishman, Save Our Bones, the Better Bones Blog, and TTAPP.

Be well.

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86

Re: Poodle (# 74) Expand Referenced Message

Doesn't surprise anybody they are there to PUSH their drugs... Unfortunately

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85

Re: jenjioz (# 63) Expand Referenced Message

NO DARLING YOU ARE CERTAINLY RIGHT... DON'T LISTEN TO THESE *****S WITH NO IDEA.

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84

Re: Poodle (# 74) Expand Referenced Message

Absolute disgrace from what l have read about this drug the last few years. I refused it 2-4yrs ago yet 2 yrs after another bad Bone Density this is yet again all l have been offered unfortunately...again l have to decline.

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83

Re: Poodle (# 75) Expand Referenced Message

Well said Poodle... You need to walk in our shoes before you have any idea what you are taking about

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82

Re: Poodle (# 76) Expand Referenced Message

Thank you Poodle, you have done the right thing. l am sure all on this site will appreciate you for doing the right thing.

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81

Re: Poodle (# 77) Expand Referenced Message

Yes boot the b&%$#d out....its hard enough to try and make a huge decision about these terrible drugs let alone listening to #%$#&% like that.

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80

Thank you for helping others sceptical about starting this rubbish

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79

Re: Poodle (# 77) Expand Referenced Message

Thank you, Poodle. I didn't see it.

Hugs,
Nikki

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78

Nikki (# 69) --

There is an option we have here to keep bad actors out. It's on the thread at the far right labeled REPORT. I used it and suggest the rest of you do too. The Moderators will ask why and we have to tell them. He has not written anything utterly suspect to cause a Moderator to go thru his posts.

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77

Lizzie (# 67) --

It's okay. I just reported him to the moderator. He, with his posts, will soon be out of here. That is why we have the 'REPORT' option on the threads. It's supposed to keep the bad actors out and he certainly is one.

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76

Mason (# 64) --

Well since you are unattractive, that's the reason you are here? You are only an internet troll that needs to be deleted by the moderators.

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75

Re: Sal (# 57) Expand Referenced Message

I think a lot of it is the problem reported to the FDA. I had one a week ago and called them and they immediately sent out paperwork and requested photos and that I keep one tablet of the drug on hand for them to examine. This they cannot do with Prolia because it's already injected into us. I don't think they paid much, if any, attention of my problems with Prolia which were many.

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74

Re: Sue (# 59) Expand Referenced Message
Short answer 'yes' because Prolia diminishes our T-cells and T-cell helpers which keep our immune system in tip top shape. Without them to protect us, we are up for everything including cancer because it too is always in our bodies but a healthy immune system kills it before it can cause harm and grow. The same for all infections and viruses. Anyone on Prolia needs to be extra vigilant until the body is back to 'normal' again which seems to vary from person to person. Be well~Pood

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73

Laura (# 70) --Mason is simply a troll that got in here by mistake. Hopefully, the moderator will find his posts and remove them. Pood

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Re: Sharon (# 48) Expand Referenced Message
Muscle spasms with Prolia are very common. The best defense for this is to take a Magnesium supplement if you can tolerate it. One tablet at bedtime. Certain brands of Magnesium can cause diarrhea. Muscles are the only place the human body can have deposits of calcium and Prolia LOVES calcium so straight to our muscles it goes. As it eats the calcium it causes us a lot of pain. Hope this helps you. Do not take liquid filled capsules of it. It has to be in a 'hard tablet form' variety. Be well~Pood

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71

Mason (# 64) --

Are you a doctor Mason ? By the way you are defending this drug while myself & other people are trying to help each other...l will say no more

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70

Re: Mason (# 62) Expand Referenced Message

You sir, are a troll! The other words I have for you I can't type in this forum. My health issues are not vanity. They are serious and continue to be. I already had a laundry list of health conditions I was dealing with before the Prolia, as many here were as well.

Your kind are not needed or wanted in this forum.

Nikki

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69

Re: Mason (# 62) Expand Referenced Message

Mason, a natural event for a man. Not so natural for a woman. Most women will thin, but not until old age. Young women are thinning due to this drug. Yup, a vanity issue, but also an UNNATURAL event for 40 and 50 year old women. Again. Not natural unless you are male! Possibly, you did not know this?

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