Prolia Issues And Side Effects (Page 2)
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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered horrible side effects such as terrible constipation, leg and foot cramps, skin rashes, stomach pain,etc. I also found out that Prolia works by stopping the body's own bone production, causing old bone to become denser. This results in probable fractures due to old brittle bones, Prolia also causes low calcium levels in the blood, a weird side effect seeing it is supposed?to strengthen boned!

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Re: JenjiOz (# 102)

Polyester is very good because it does not breathe so should keep you nice and warm but what a shame to have to buy all new clothes just because of Prolia. Be well~

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Re: Poodle (# 96)

One is on Prolia Side Effects Ongoing, post No. 180 by Daisy about a growth growing in one of her eye sockets where Prolia was depositing more bone that was not supposed to be there. I just saw it today as I am looking for a certain poster about her medical condition that I did finally find under Prolia side effects. Be well~

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Re: JenjiOz (# 101)

For all the good it did me, I reported everything to Amgen except the hair and nails. Prolia has only spread farther and farther around the globe. Be well~

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Re: Sodapop (# 52)

Tell your Dr. to read the side effects. They are well written and diarrhea and constipation are both on the list. So much for medical knowledge. huh? Be well~

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Re: JenjiOz (# 101)

You might want to try this with a small piece of your costume jewelry to see if it works. In the past, I've brushed on clear nail polish on the back of a piece of costume jewelry and it has helped prevent discoloration and skin irritation.

Sending you hugs from Texas. Hope you're feeling better.

Nikki

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Re: JenjiOz (# 102)

My experience was similiar. I never could wear wool next to my skin, but with Prolia, I couldn't tolerate cashmere. Finally now, 15 months post injection, I can wear cashmere again.

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Re: Poodle (# 100)

P.S. Another "allergy", if you can call it that, is sunlight. Even with a hat, long sleeves and sunscreen, being in the sun makes me incredibly itchy, and has for most of the past year, beginning 3 months after my first shot of Prolia. This is annoying with winter on its way here. I normally spend a lot of the day, when it is cold, sitting in a sheltered "sun trap" on my verandah. So my heating bills are about to rise. The other thing, which I have discovered in the last couple of days, is that I can no longer have wool touching my skin, not even a little bit of collar. Obviously, I don't wear wool next to my skin, but a collar??? So now I'm in heavy cotton and polyester with no problem. Winter is coming (at least in this hemisphere) and most of my outer clothes are useless. Sort of trivial but I am furious anyway, partly for myself but mainly for everyone.

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Re: Poodle (# 100)

You must have a very thick file of medical and dental bills due to Prolia-related issues. I wonder if it would be worthwhile sending copies to Amgen just to see what would happen? I doubt that it could hurt. Food allergies on top of everything else - that's just cruel! Fortunately, I don't seem to have food allergies except for a longstanding allergy to MSG in large quantities. My IgE levels were 13 times normal at the last test. This manifests in a huge increase in my usual perennial rhinitis (some days I sneeze about 100 times); an unexpected allergic reaction to a very common local anaesthetic; and a recent inability to wear most of my favourite jewelry. I had minor surgery without any anaesthetic several months ago (a general anaesthetic wasn't justified), after I had a massive skin reaction, with lethargy, to a routine local anaesthetic a few months before that. It was the same one that I've had often for dental work over the course of many years. Now I'm afraid of unusual reactions to anything else I might have to take. Like most of us, I have a collection of various kinds of costume jewellery - now I can't wear most of it because it irritates my skin badly, causing itching, and sometimes red or purple blotches on the surrounding skin. I have worn some of those things for decades. Same goes for metal on clothing - zips, metal buttons and studs on jeans. I can't even hook my reading glasses or sunglasses into the top of a t-shirt or dress when I'm not using them. I know that nickel allergy is common; I seem to have acquired it. So, it seems, nothing serious, but certainly extremely irritating. Now that my massive lethargy and the worst of the various skin conditions are subsiding, I feel that I have got off very lightly indeed.

Thanks for your concern and all your hard work on our behalf.

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Re: jenjioz (# 98)

You mention recent allergies -- are you referring to food by chance? There is clear evidence that Prolia brings out the worst in our DNA that we never knew we had until Prolia turns up. In my case it is gluten. Years past the one and only shot it still comes back for some unknown reason that it is still causing with my DNA. I can go 6-9 months eating all the gluten I want and then there comes a day when I can have none, not even a sniff. It was one of the worst side effects I had from Prolia other than a cataract, infections, losing 2 two teeth - it ate the roots off of two back ones and the only thing that saved the rest of my mouth was it ran into a titanium implant and even Prolia cannot get past titanium. My dentist bill for the two crowns for the implants was almost $3,700 yesterday.. I truly believe Amgen should be paying that bill but not until enough of us get it and report it so we can have a class action suit. We all need to figure out what we all have in common with bad side effects from Prolia other than the broken femur and then we will have a class action suit against Amgen. Many they admit to but many others they do not. It's a certainty that our Doctors are not telling us about the bad side effects and we have to research them on the net. Be well~

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Re: Nikki (# 89)

Thanks again. I am now taking it in liquid form, adding it to my water.

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Re: Poodle (# 96)

Thank you, Poodle. It is truly alarming to read more fully about Prolia and its hideous effects on its victims from the outset. It is illuminating to see the general consistency over time. I am only as far as page 42 and I need to take a break! What difficult and depressing reading. So much pain and suffering, including your own, which seems to have been particularly dreadful.

My gloominess has been increased by seeing advertisements for Alzheimer's testing on almost every page.

Nevertheless, your explanations of the concept of 'half-life' brought to mind Zeno's Dichotomy Paradox. I know my own issues are gradually decreasing in a 'two steps forward and one step back' way, and have never been of the same magnitude of many, for which I am somewhat grateful, knowing what the possibilities are.

Now I'm waiting it out, but without any certainty about whether any of my recent allergies will subside.

Thanks for all your wise words.

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Re: Nikki (# 92)

Search Dr. Loren Fishman a Physiatrist in New York City. He is conducting a study on Yoga and Osteoporosis. His initial study shows excellent results, so he has expanded it. If you live in or near NYC, you could have a consult. Another option is to find out if there is one of his trained instructors near you (they are scattered around the country); or, obtain the book and/or the DVD from his office. If you are unsuccessful, please post that, perhaps I can help.

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Re: JenjiOz (# 93)

It is in the back pages on this site. There are two main discussion threads: "Prolia Side Effects" and "Prolia Side Effects Duration" here on rxchat.com. I believe your best searching in the back pages would be simply: "Prolia Side Effects" here in medschat. What you see are just current issues. They go back many, many, many years here and then the discussions continue on from there, so go back to when Prolia was first released and start reading posts. I would estimate maybe 3 years ago or so. You will find it and there is a lot of very useful info in the back pages. Be well~

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Re: Laura (# 84)

I have done the same, l will have to come up with something soon as my hip's are getting especially worse

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JenjiOz (# 92) --

I am so very sorry that this has happened to you.

Be well.

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Re: Poodle (# 66)

Hi Poodle. I'm very interested in what you said about bone deposits in facial bones. For most of the past year I have experienced itchiness, seemingly in the bone, around my eye sockets, between the eyes and on the browbone. A hollows have developed beside the inner corners of my eyes. When I was exploring the deeper hollow with my fingertip I discovered a tiny growth. This turned out to be a basal cell carcinoma, which was removed. The small wound was very slow to heal and the itching persisted long after it healed.
Do you know any more about this strange phenomenon? Your mention of it is the only info I have seen. I wouldn't even know what kind of doctor to consult. I'll keeping hunting for further reading.
Thanks, Jenny

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Re: sal (# 87)

Can you recommend a DVD of Yoga to help with the osteoporosis? I need to look into the alkaline diet as well.

I have started Thrive Life. The food is purer and more nutritionally dense than the organic you can buy at the store. This is freeze dried food that is freeze dried from 2-4 hours after it's harvested. Their blueberries have 40% more calcium than store bought. Hopefully, the walking, yoga, and eating better quality food will help my bones.

Hugs to all!

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Re: Lizzie (# 90)

Thanks Lizzie. I'm being hyper-vigilant this time! So far a couple of minor and brief sensations of indigestion; half an hour of headache and blurred vision a couple of hours after taking a weekly tablet. If that's the full extent of it I'll live with it.
The pills now have a coating which is intended to prevent the oesophageal effects. We'll see.

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Re: jenjioz (# 88)

Please monitor any esophagus problems that might arise with Actonel. Hopefully you will not experience any complications!

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Re: Poodle (# 72)

Poodle and Sharon,

I'm taking Slow-Mag (magnesium chloride) 2 tablets, 1 time a day along with potassium and these seem to be helping the cramps in my calves and toes. If I don't take them for a few days, I'm quickly reminded.

Hugs,
Nikki

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