Please Help - I'm Falling And Don't See Any Help In My Future (Page 2) (Top voted first)

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I'm a 50 yr old grandma with end stage renal failure! With that being said I also have chronic pain, slipped disc, a bulging disc, neuropathy, severe nerve damage in my neck and down my shoulder, severe hip pain in not just one but both hips now. I have been on pain meds for about 15 yrs....And always feel like I'm being judged every time I walk in the doctor's office! I figured I would change docs and started with a new clinic. The first few months was ok I guess...Then whammmy, he said I'm discharging you at this time because you came back with a positive drug panel for "6 mam" which I have learned is heroin! I have not ever seen nor do I have a desire to see it or do it!!! But now I am without a doc and my meds have run out. I stretched what I had for as long as I could! Now I'm kinda freaking out! I'm in severe pain, I'm a damn basket case (crying at the drop of a hat) just really depressed and lost! I'm always in pain anyway but my medicine made it easier for me to deal with it! I dont know what to do and need help fast!!!!

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28

Have you checked into Kratom? It is a plant that is a painkiller. It is legal in most states but not all. It's easy to find out just by googling your state and Kratom. Most people on it have chronic pain and were either forced off their meds for one reason or another BUT also a lot are people so scared of losing their meds they switched to Kratom on their own to get off the roller coaster ride in the medical community right now. There are a lot of great success stories out there with Kratom for chronic pain. If you haven't already checked it out, at least read up on it. Hope this gives you hope that there is another option. Good luck to you!

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33

The Lost Yankee, Michael H......"You tell me what to do!" As i recommended below, legitimate patients denied pain meds by the medical profession or the government ought to barrage their state and fed political reps with requests for action/relief. There must be people or some group(s) currently involved with doing just that - or who would adopt the issue and run with it. If there isn't, then you folks are well qualified to start the movement...it is to your direct benefit and would be time well spent!

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35

First let me address the the suicide comment. I'M NOT SUICIDAL, I'M IN PAIN!!! And NO I didn't just shop around for doctors, as I was with my last doctor for about 6 yrs!! Yes I finally had another doctor confirm what I had been saying about the false+. I had been put on a new medicine, which the heroin is derived from and he said if it had been him he would have gone for blood work, not just discharged me!! And unless you have chronic pain and severe nerve damage you shouldn't judge me!!

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48

My first reply was to to advisde you to get Suboxone for the withdrawals. I don't know how old this message is but if you are going through withdrawals Suboxone does miracles. then three or four days later stop. Again I am in your prayers and I hope your doctor wakes up to his the torture he out you through. HE IS AN A##hole.

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5

I too have RSD. I also deal with osteoarthritis, fibromyalgia and sjogrens. It's so difficult to express to others what RSD Pain feels like. The closest that I come is to say that I feel like someone peeled my skin off, leaving every nerve exposed. Even wind from a ceiling fan is more than I can take on my feet and legs. Then for good measure it feels like someone hit me with an electric cattle prod. Then there's the fatigue and inability to concentrate or sleep.

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7

Yes they did do a repeat evaluation but will not return my calls so my KIDNEY DOC actually requested the records because i was so distraught over it! i also went back to the previous doc and they did a repeat evaluation on me, and said they could not treat me because i had that last positive drug panel!!! And i called about 10 more pain doctors and they basically said the same...

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11

Now I hear that the FDA guy is calling for a war on opiates because 100 people are dying each day from it. I'd like to know are they dying as a direct cause of opiate or are they dead and also a opioids prescribed user? This will make getting strong medication impossible. I would of said harder but it's next to impossible to get medicine for pain as it is. Now that you have a "positive " hit for heroine it's suppose to be impossible for you or "any" doctor to prescribe you any pain medication. I'm sorry for your pain and the trouble your having I really hope your other doctors who seem willing to help you through this and get things cleaned up so someone can prescribe you some relief.

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12

I feel so bad for you and I wish I could help you. I am sure you went through horrible withdrawals. Did your doctor do a second test? Thee are false negatives and false+. Did he offer to give you medication to get you through the withdrawals? There are always avenues such as reporting them to the licensing authority. Request another test, find out what company does hair testing and what their percentage of error is. Suboxone can help with the withdrawals, but personally I wouldn't stay on it any longer than you have to. You are in my prayers!

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17

yes you should definately seek out a pain doctor and neurolist if you have the insurance...because they are very expensive as my husband has no insurance and cant barely walk his back hurts so bad..

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18

I'm so sorry to hear about all your medical conditions.Unfortunately I have condiitons from my head to my toes, seriously! I am a fall risk from grand mael seizures, manic/bipolar/schitsophrienic, poor eyesight, extreme dental work needed, stomach problems: i do not have bm's sometimes up to 2 weeks or more, so i seen a specialist, and the test shows a large mass (poop)in my large intestintestine and a 1,5cm hernia so i need a colonoscopy i have RA in both knees, degenerative arthritis in my shoulder and my feet hurt so bad to walk on them, my insurance co. gave me a top grade walker/or seat for family to push me around. my life is so limited. I fall constantly, i have to have someone with me at all times. i have insomnia,etc nothing compared to your situation. find a pain management dr in your area, take your records. find one til you find one you get a good vibe from, you know, someone you gel with. gl

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19

I am so sorry to hear about all your problems..yay it really sux being sick! I also have many stomach problems and have 2 have an upper and lower scope done cuz I'm bleeding internally and they don't know why!

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29

suzanne, yes i get treatment for depression, i haave dialysis days days a week,4 blood transfusions because i am bleeding internally.
many years ago i saw an ortho doctor and they have given me injections but it never lasted long ..(pain ctr--gave me injections and the only thing i got from that was more pain) as well as a neurologist....so that pretty says it all--
and yes doctors have changed over the years- because my mom was very sick and all of her doctors were great to her right till the end!!

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36

Yank, God bless you, you're going through way more than most of us could ever handle. If that pain doctor had your medical records, he had to know the kind of pain you've been experiencing, and for him to even consider dropping you is unconscionable no matter what your test results said. It's not unusual for tests to come back with false+ or false negatives. Since you told him that you had never even seen heroin before (quite emphatically, I'm sure), he had the choice of performing the test again to make sure the heroin wasn't a false+ or send you to have blood work done. He didn't need to treat you like he did. I believe I read one of your posts that said the lab had been giving out incorrect test results and the doctor was providing you with a supply of your pain meds. Are you going to stick with that doctor for the time being or have you found someone else (I hope)? My big concern is with the opiate laws changing, it may be harder to find a new pain doctor. It would be helpful if your primary care doctor could give you a list of pain doctors that he could refer you to. It may give you a better chance if you can say your doctor referred you. Also, if you haven't done it already, you may want to let your primary care doctor know what happened with the pain doctor and the lab. It's possible your primary will help you out until you find another pain doctor, that is, if you're still looking. Even with the law changes, I'm sure some states do not specifically require you to see a pain doctor and some primary care doctors will take in a limited number of pain patients. My primary care doctor does, maybe because I've been seeing him for years. Perhaps yours will consider it. Beyond issues with your pain meds, I hope if you happen to have reason to go to see your primary care doctor, you will consider asking him to give you something to help your neuropathy. The drug they normally give is Neurontin (generic is Gabapentin) and also ask him to check your hips to see if you have bursitis and if you do, give you a cortisone inj. into the bursa. He should be able to do all of this right in his office. By the way, this inj. is entirely different than any you may have received in your neck or back. It's really no worse than getting a flu shot, maybe not even that bad. At least that is likely to reduce at least some of your pain. I've had bursitis in both of my hips probably four or five times and the shots knocked out that pain completely each and every time. Before I go, do you mind telling me what state you live in? God bless you, Yank. It truly breaks my heart thinking about what you must be going through. You'll be in my prayers.

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37

I completely agree yankee. This should not be a place for judgement. We come here to ask for help. I wish the administrators would remove comments that are hurtful or shameful. I understand extreme pain and also understand doctors who don't know what they are prescribing or how it will show in a drug panel. I sincerely hope life has gotten better for you. These new laws on pain medicine have been hard for most of us and we certainly don't need other pain patients judging our comments. It would be a lie for any pain patient to say they want their pain to stop at any cost sometimes. That doesn't make us suicidal, most of us don't want to die, but the pain gets so bad we just wish it would go away. God bless and good luck.

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38

Also especially for Robb, I will pray you never know the pain most of us are speaking of and a condition that will never heal. I hope yoga can one day give me a new pancreas. I'll also pray your heart to open up. It isn't proper to speak to people the way you have, judging them without even knowing them. Also it would be wise for others here not to make psychological assessments of others. I have been in desperate pain before and not been suicidal. Coming off pain medication changes your mood it doesn't mean you are going to kill yourself. We are all free to do what we like with our own bodies supposedly. I sign every petition I see and call my senators to help those of us in pain. We are not addicts. Being physically addicted is not the same as mentally. I am 36 years old and live everyday in great pain that exercise isn't going to change. I live the best way I know how and will do what needs to be done to survive. I see a pain specialist who happens to be very kind and understanding even within the new laws. I am glad their are people with real compassion. Hard to find sometimes but they are out there. I wish the very best for everyone who comes here for help.

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39

I would do anything in the world to help you!!! I know what your feeling, I JUST went through the same thing!!! I have different problems, but my Dr. said my urine test came back with NONE of my medicine in it, it had some one else's in it!!! The lab HAD to get them mixed up! I am a 57 year old grandmother, with chronic pancreatitiis, among MANY other problem's. I have now been taken off ALL my med's, I can not even find another pain management doctor to see me!!! I am now in a wheel chair, can not walk, (TOO MUCH PAIN) sleep in a recliner, too many things to even go into at this time! I have ANOTHER surgery for my major nerve damage in my right arm in 10 day's, ALL DUE TO A MIX UP AT THE LAB!!! I have seen this doctor for the past at least 6 year's, he gave me hope, he did help me at least deal with all the pain, now I am ready to give up! If I have to live in this much pain, I just can not do it, it is unbearable!!! NO ONE EVEN CARE'S, OR WILL HELP ME. I am from Ohio, I do not know where you are from but I WISH YOU ALL THE LUCK IN THE WORLD AND MY PRAYERS ARE WITH YOU! I wish I could tell you how to get a hold of me, at least we could talk! I will e-mail again soon, if I can! Theses pain doctors think they are God I guess, they don't realize what they are doing to people's life's! THEY ARE DESTROYING WHAT LITTLE LIFE THEY HAVE LEFT AT ALL!!! The only thing I know about myself is, I can not go on like I am now, it's just not worth it. I 100% believe in God, but I have a feeling, I won't be meeting him!!! God Bless you and your family and my prayers are with you!!!

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40

Pam please do not give up. I am praying for you. I like you can not get a prescription for pain medication and I suffer from RSD an incurable nerve pain from multiple surgeries. My docs hands were tied (so he said) because of the new regulations on pain meds. He said we have the people on heroin to thank for us not being able to get our meds. They put us all in a group the ones dying of heroin od are put with people with valid scripts. It makes no sense I have been to two pain clinics the second one I called to get an appointment the clerk answered the phone and told me "we don't hand out pills here". I had not even said anything and was greeted that way. I live in Michigan and am trying desperately to find someone to help me. If I succeed I will find out if they know of a pain clinic in Ohio to help you. Please keep me posted and I will try to find you and I some help. God Bless you

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41

pam i am so sorry for your situation! it sux with what thwse doctors will/ or should i say wont do, becuse they are afraid of losing there license!
i will pray for you, that you hurry and find a doctor! i dont see why they are not treating you for pain!!!

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42

I can hardly get out of bed let alone do yoga, are you kidding me. I hope one day you will not come to the point that I am at. I was always active until I broke my ankle and after 12 surgeries still am not any better, actually worse because I suffer from RSD because of all the surgeries.

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43

Try "putting the tail between the legs" and go back to your previous clinic. First ask to speak with the manager of the office....then explain why you felt the need to leave and try a new place. Which I'm not quite sure why you didn't do this first if you felt unsatisfactory treatment of yourself ? Then tell them how your results came back...( provided they were always good at the old clinic ) And then ask to return to your previous doctors care. After all, you left there correct ?
I don't mean to sound harsh..... I really really do not, but to me.. this would seem like a common sense approach , maybe not ?
If you dont want to go that route , then request to have a conference about your results with the doctor at the new clinic...yes you can, they are not God,and you may request access to an appointment, (especially with confusing test results). provided you have never had these results on any other test previous ... or request your records with the test results included, and yes, you can most certainly do that too, they belong to you !
Then take those to your last doctor, that for whatever reason you decided to leave. And another question that puzzles me.... if you were getting your meds on a regular basis from the first clinic, why would you try somewhere else ???? I would think by 90 years old you would be past the phase of "stigma" or "what anyone thought of you"
As long as they gave me the medicines I needed to have a functioning life.... stigma me all you want !!!! Again, I don't want to seem judgmental or question your decisions, but i feel that there is more to this story than what was written. Maybe not....but there are at least three immediate common sense approaches you could have taken long before your meds ran out. Please keep me updated on how things are going.... and if I can be of any help.

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