Pain Medication Cut Downs (Page 4) (Top voted first)
UpdatedIs it just me or is all the pain management docs trying to cut everyone down or back!!?? When I went to my last visit the doc had the nerve to ask me if I still needed my Oxymorphone 20mg ER (56). I was like YEAH, what do you think?! This is after they closed down for 3 months and I had to switch to Subutex to not get sick. And I got dropped from the 30mg oxymorphone. And by the way the 20'mgs are garbage. Then my doc asked me to get an MRI on my lower back, which I did the month prior. It just goes to show what a dumb ass he is and how they're so not in tune to what is going on! All they want to do is lower and lower your meds. Has anyone else had their doc try and taper them down or try and lower your stuff? By the way, I'm in south FL.
Re: DyingOfPain (# 31)
It must be nationwide! Here in Tennessee too! It's awful! Just like the 2nd amendment protecting people from the government telling them what to do with their guns, to me its the same thing as the dea (the government!) telling doctors what to do!! This is not a legal issue but more a medical one!!! Yes, there are crooks everywhere, but drs should not be afraid or scared to treat their patients! Something has to be done to appeal this law and the DEA’s bulls***! They really need to be on the border!! Any ideas out there???
I live in Toronto, Canada and what’s going on here is like Nazi Germany. Our prime s*** has delved into the medical business. Our government now investigates its own drs. after some dope addict overdosed. This leaves his patients scrambling as he isn’t allowed to write scripts any longer until the investigation is over.
I have osteopenia of the spine as well as ddd and spinal stenosis. I was on 100 Fentanyl and now after being told I was a liar and pulled off the pain meds. I wound up in the hospital 7 times as the pain was critical. I came close to killing myself. The s*** who pulled me off the meds his name is Dr. Arsenio Avila I forgot to mention because I couldn’t travel any longer because of my back he dropped me as a patient. It turns out in June I couldn’t take it anymore and finally went to the hospital who gave me the benefit of the doubt and did a ct scan only to find a broken back. I suffered for four years as this jerk didn’t send me for an X-ray, ct or mri. If I wasn’t on the Fentanyl it would have been much much worse.
I also take a medication for sleep as I have MS and it wiped out the entire sleep center of my brain. I literally couldn’t sleep any longer up to 10-12 days at a time I’d be awake until I’d enter a sleep deprivation psychosis. The govt up here for the last 26 years paid for the drug for me as I can’t afford 25 zopiclone a night.
This year because of all the tweakers my file lit up as a red flag and the govt decided they won’t pay any longer and are threatening my doctor and doctors involved in my care with their licenses if they don’t stop a 26 year old script. I will die from the uncontrollable seizures and if I live through those I will be brain damaged and still won’t be able to sleep. In a psychosis who knows what can happen I can burn down my building who knows what will happen. I have two weeks of meds left then I will die shortly after.
This Canadian government who has a part time drama teacher as a prime minister with a bad taste for socks is going to kill its own citizen. O’ Canada we step on gaurd for thee!
It was nice meeting you all... I’m done and I will be the first of many. Buy your meds and build a stash. Protect yourself! Your government is more screwed up then mine with Donald Dump. Good luck you all today I am making my arrangements as I won’t go through what will happen to me, I will die by my own hand first then go through what’s in store. Not even mentioning the pain meds they dropped me to 6 mg hydro on tin with 2 mg hydro for breakthrough. No more work no more going out. Can’t shop for food anymore you drug addicts didn’t just kill yourselves you did us in too. You were a waste of air to begin with and your doc didn’t put the needle in your arm, you did. Stupid s***! You have made a mess for people in chronic pain and disease, thanks a lot. I have no sympathy or empathy for you or your families who knew what you were doing and did nothing. It wasn’t just their fault the families did nothing either. I have to die because of you degenerates. It’s good you’re dead or I’d do it myself if you wanted to die so badly.
Re: DyingOfPain (# 34)
Please don't think that way, pain on top of hate and the thought of harming yourself or others is not a good sandwich to eat because it will eat you alive. I know, I have felt at the bottom of the pit more times than I would like to count. I have generalized dystonia, at present my left eye is slammed shut, had over 20 storms yesterday, had been waiting over 2 weeks to hear back from my doctor. Was mad, sad, and sick. The pain I experience is excruciating. I have been up since about 2am, my twisting and contouring wakes me up all the time, which does not make for a good day, for me or anyone around me. Finally heard back from my doctor yesterday afternoon, it seems my meds were called in but the pharmacy did not get in touch with me. I feel like if I check with them too often I am looked at as a drug seeker, which I am. I'm sick. Sick as hell. I can't work like I used to do, and have been actually called out by neighbors for letting my dear old mother work in the yard. No one knows what is going through a person's body and or mind unless they have walked in our shoes or in my case more of a shuffle.I have to keep this in mind, there are a lot of people worse off than me. I wish you well.
Re: DyingOfPain (# 34)
I truly believe thats their grand scheme! They want all us "useless eaters" dead, after taxing us to death our entire lives. Heaven forbid we reap any benefits illegals have readily available that exceed ours! They feel if we're in extreme pain and anxiety, we'll just end it; AS MANY LEGIT CHRONIC SUFFERERS DO WHEN ARBITRARILY CUT OFF FROM YEARS OF MEDICATION!
ITS TIME TO FIGHT FOR OUR RIGHTS. WE KNOW THE LAWS AND ABIDE WITHIN. DON'T LET THEM LIE TO YOU!
And don't believe their "hyperalgesia" myth, where they postulate pain meds make it worse! And supposedly, Xanax causes "dementia" with no corroborating evidence by any Drs! I'm smarter than they are, as I know title 21 laws and see through their blatant lies. As Kris, says depopulation agenda 2030 is in full force! Stack n packs going up en masse here in Cali and elsewhere. They want us out of our homes, cars, onto buses and bikes! FACT! They're verifiable killing people with these DEW fires. Paradise was completely obliterated in under 24 hours. Like Napa, Santa Rosa, Redding, LA, OC, all started the same day. NOT FOREST FIRES. TREES DIDN'T BURN! See aplanetruthinfo, stopthecrime.net, neverlosetruth, grindall61, and mental boost for blatant proof. Glass, steel melt at 3000 degrees! Twice that of home/ forest fires where trees, wood fences, plastic play sets, random homes nearby are unscathed! Hundreds of innocent victims were fried alive. We are veritably under attack by our own country and US is complicit.
Bogus "opioid epidemic" like all else, is fabricated to design suffering! If patients have MRI evidence as I; 8 herniated discs, sciatica, osteo arthritis, we need our meds! My injuries are all from other negligent drivers on top of it! What angers me most is being persecuted for injuries not even my fault! And I need my anxiety meds. Blamed for childhood abuse and terror of "we're frying next", plus anxiety of getting meds is again, egregious! Many are on near double my dosages. Nothing makes sense in this reality!
Re: Dying In Canada a true story (# 36)
I can not tell you how sorry I am that doctors are being bullied by your government just the same as ours here in the USA. which has made it much harder to get our medications because doctors are worried about investigations and losing their license not to mention prosecution!
Compassion however runs deep it my veins, even after losing a child to a drunk driver! Don't get me wrong, we need to continie to hold people responsible for their actions but I also know that people are human; the same as I .Be it for the. grace of God,; it could be me or my family or someone I care deeply for!
I have a friend who lost their only child; a son to an overdose!. I know for a fact that they tried to get him help many times. He was a good kid! He was a role model to other young kids trying to kick the habit but in the end the habit won! He had just started back to school when it hapened! There is not a day that goes by that I dont think about the hell that this has brought to my friend and her family! You see I know first hand what it is like to lose a child!
If the government were honest, they would tell the world that the majority of people that are now dying from overdose are dying from cheap heroin laced with fentanyl made in clandestine labs in China! Pain patients I believe are also taking their lives with the medications which they can still get but are not enough! Lets not forget those that have felt desperate enough to put a gun to their head!
You might say I am biased because my medications have not been cut ... but that would be wrong. My medications were cut in half after more than 15 years of use; four months ago. I do not believe I would have made it if it were not for my very rational thinking partner and the few fentanyl patches I had from picking up my medications a day or two before I needed them. You see my doctor knew I would end up with an extra patch every couple of months. He said they should be held for an emergency. One of those emergencies came last year when South Florida was hit by a major hurricane. I live in a low lying area in Ft. Lauderdale and was in a mandatory evacuation area. My partner came and got me and boarded up my home and then we spent the next 36 hours driving or impatiently waiting for a gas station to get more gas to drive 350 miles to get to central Florida where they were hit just as hard! Now with few roads passible and gas so scarce you were lucky to find a few gallons to keep a generator going, we were going nowhere fast! For two weeks those extra patches became my lifeline untll we could make it back home and get another appointment!
It is impossible to pick up a prescription even a day early now but thankfully I still had a few patches left which I rationed and used very sparingly when my doctor cut my fentanyl patch as well as my break thru medications, by 50%.
It had been four months of torture but on Friday October 16th. I saw a new doctor who put me back on my original dose of Fentanyl and now I have to fight the insurance company to get it filled! I am hoping it will be authorized on Monday!
What I want now and know how important is a new medtronic morphine pump! The same one I wore for 7 years till it had no more life in and I needed a new one. My insurance company refused to pay for a new one however based on all the new medications on the market! Listen, it does not matter how many medications are on the market if doctors are afraid to write for them and insurance companies don't want to pay for them, and dont forget the pharmacists who refuse to fill the prescriptions even when you have one! I want the surgery to get a new pump! Based on the reasons I stated above! I may have to wait a bit but my new doctor says it will be approved! I am thankful to my partner for his support and all his help in keeping a level head! When you can no longer think straight you need someone who can!
Lets always remember to place blame where it really belongs and try to remember that addicts are no different from us in God's eyes When I asked my friends son before he died; why he was doing what he was and putting his parents through so much ... he replied to me; "I don't know, I just know I never went to bed or woke up with the dream of being an addict!"
May God help all of us!
Re: Beth (# 30)
I was on Methadone 10 mg 4-5 times daily. Was cut to 2 a day. It wasn’t even worth going to the doctor anymore so I went to the Methadone Clinic. I’m currently on 100mg a day. I’m glad I made this choice. Methadone has truly been a lifesaver.
Re: John (# 3)
OMG there are no laws or regs on prescribing pain meds... only guidelines put out by the CDC. And state medical boards are adopting these "GUIDELINES", AND DOCTORS USING THEM TO STOP RX SCHED 2 ,3,4 DRUGS FOR THEIR PATIENTS. Its bulls***. This is what a pain management specialist told me at a recent appt but I knew this "I read". I live in Oregon.
Re: Lin (# 47)
I'm so sorry to hear what you're going thru, I think it's a bunch of bulls*** the things we are all put thru (pain patients). I also take 1800 mg of Lyrica a day with Ibuprofen. But if that's all you get you need to start doing some serious looking for a doc that will help you if you're in that much pain. The only other option is just like the other person on here said and go to a methadone clinic. I know it's not what you want to do but what other options do you have left?? Good luck & keep us posted.
Re: Shelley in Tennessee (# 32)
Hi go to your state medical board and look up Opiod prescribing Guidelines. There are no laws just FEAR TACTICS used against Doctors and their license to practice if they dont follow guidelines. YES it is futile to argue with a Doctor but if you all do this and know factually that thete are no laws then maybe your armed a little...print it out take it to your appts...maybe argue a little disagree a lot. Good tidings good people.
Re: Roro (# 54)
Yes! You are exactly right!! It didn't start with Trump!! I'm so sorry for the veteran who is having to do without!! Breaks my heart! 1 of my Dr told me this wk about this situation with pain medication and vets!!! She works with vets and says they can't get them either!! My God!! Why in the world are they having to do without??? We've got to figure out a way to ban together petion , bombard the FDA n CDC and let them know we're not going to tolerate being treated worse than a animal!!! At least they can get pain medications !!!!!
Re: PAINMAN (# 40)
Oh i so understand what you are saying. I'm 66 yrs old and have witnessed the change in strength of most opioids. I think someone somewhere is benefiting from this, I remember in the 70s here in Australia things were a lot different. Seems they like playing god, trying to tell you that you're better off not taking anything that is going to ease the pain that they mostly introduced. I've even seen ads on tv trying to sell a stupid looking battery op pen thing that you put on back neck etc, and it takes away all pain - what a joke! Wish i could just go back to old days. Take care.
Re: Erin (# 37)
Why wont they refil ur xanax?? Its not illegal.
Its a schedule 4...i just dont get that. Pharmacist??/creep? I read this...oxymorphone/opana is what oxycodone metabolises into in ur body. I had a dream in my closet there were big ziplocs full of lortab valium , everything. Stacked 3feet high. I was rxed pain meds pre and post op for a year at a time and reduced off slowly in my 20's without becoming anaddict in any way before i was ever chronically rxed that if you take it for a week your hooked is just crao.
On October the 9th I had to regretfully have my four legged fur baby put to sleep. I never have cried that hard in my life, I miss him immensely, he was my comfort in my agony of chronic pain. I took him to the vet because he started “twerking” his whole hind end was horribly weak, he crawled, he couldn’t crouch in his toilet so he propped his but on the edge and it all went to the floor. The pain in his body became so intense that he couldn’t hold down food, im telling this story because the vet only offered Lyrica for his pain, REALLY, so of course I had to end his suffering, not only is the government killing us, but now our beloved pets too aren’t aloud to live a life pain free, im surprised that the vet didn’t write a prescription for psychiatric therapy / cbd ointment, yup, this is the war on the “opioid crisis“ since when have our pets abused?
Re: Beth (# 56)
We could start by writing letters to our Congress men and women we just put into office, and our senators in every state. We can make copies and send one a week till someone besides PR responds. Why the hell would drug dealers spend more money lacing drugs with Fentanyl??? Makes no sense... they're offing there buyers. Is Fentanyl cheap?? Why not lace it with oxycodone? They're killing the demand... Just doesn't sound right to me. Big LIES.
Re: Jen (# 67)
Has anyone tried CBD? If you are in a legal place, it might be worth a test. I am trying it now but only have a 30 day supply on hand @ 2 x a day. Too soon to comment myself.
Re: MJJJ (# 69)
I have not tried CBD'S
Pain dics still are not reccomending it. It is legal in Ore but if you UA hot for it u could void ur Pain Contract??? I am very sensitive to THC not in a good way. But I would like ti try CBD or very low THC very high CBD but the dispenseries are always out of it....so they say . Here the Or medical board is just trying to scare docs into reducing meds and its working with a lot if them...even though there are no laws only CDC guidelines and if course the hoop jumping they put pain patients thru. Games games an more games.
Re: Jen (# 70)
it took me 4 times going to the dispensary until I got the right CBD & THC combination !
just need it to sleep . Google all you can about
CBD & THC ! Good luck
I’m being told by my pain management dr that he has to reduce my total mgs down to 60%. Last december they were reduced to 90 %. He said that he was doing it for my best interest. It just seems to me that pain management only seems to care about opioids and not the true problem, the pain. Every time I go to an appointment I feel my anxiety levels rise due to yet another surprise “we need to reduce your meds for your own good“. What’s going on here?? I’m tired of hearing that the cdc and fdc are forcing drs, really?? From everything I’ve been reading on the subject, they are only making it a recommendation!! That drs are 100% aloud to be drs and treat their patients with the best and most educational treatment plan as they see fit. I’m really really really sick of the lies. How stupid do they think we are? I'm sorry for the rant, it’s just so disheartening and frustrating knowing that there is a perfectly good drug out there that has been used responsibly by many, and now because of the abuse, no more pain relief for the responsible and legitimate chronic pain patients??? So my question is, as of most recent, was there a new recommendation stating that drs must reduce opioids down yet again?
Re: Bigredballoon (# 81)
When the DEA visits our doctors; I do not know what they tell them but I can tell you they are scaring them all s***less!
When your doctor told you that a reduction is for your own good; my thought is that it was in your best interest because if you fail to reduce for whatever reason ... (it is difficult and not all can do it) you will be dropped!
Been there! Pain from a failed surgery left me worse off than I started and I was able to reduce but not as much as my doctor demanded. I looked for a new pain specialist before my doctor dropped me. New pain specialist specialized in pain pumps which is what finally helped the god awful pain in my neck that I was stuck with after the botched surgery more than 15 years ago.
Now I get no relief however for pain from interstitial cystitis .. arthritis ... DDD ... You name it but I am not trying to kill myself because of this horrid pain in my neck!
They are taking away our ability to function when I functioned well for more than 15 years. Oh yes and the pain pump cost my insurance company or Medicare about $50,000 and meant I needed to be cut open every six or seven years to replace it. I care not to share how much it cost me out of my pocket!?!?
There will be people that cannot do the reduction because they are that dependent! It does not mean that they are an addict but it means that they are in a terrible amount of distress from pain that can only be taken care of with some type of pain medication ... orally or through a pump!
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