Metronidazole Lasting Side Effects (Page 48)

I have been taking this medication for 7 days and off of it since a week and still have severe side effects, abdominal cramps, severe headaches, dizziness, unsteadiness... How long is it expected to last? It was prescribed with Ciprofloxacin to me and I take Entrophen on a regular basis...

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I am still suffering from severe effects more than 1.5 years later (took 6 days of Flagyl in 2015). I KNOW I have dysfunction with both my central nervous system and autonomic nervous system. This antibiotic NEEDS to be studied more. I haven't seen a neurologist yet but even if I do...how much help they can be when the damage is done?

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Hi needhelp 15
I have that pounding heart in the head. I also can feel it in my throath, chest and even in my stomach. when i lay down i can feel it in the side of my back. I dont know why we can feel The heart pounding like this every where since flagyl, but i have talked to several others that have had it like that.

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Anna! Yes you described my pounding exactly but it comes and goes in other places and is consistent in the head! How long have you been off flagyl and do you still have this symptom? It started while I was on it and hasn't gone away it's been 3.5 weeks since it first happened. Please let me know any other information you have on this symptom because I worry it won't ever go away (but I know it's not from anxiety) because it happens 24/7.

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Ali what symptoms have you had and continue to have? I am sorry you have suffered and are suffering for so long because of this drug.

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Ali, see the neurologist now... they can help with ordering physical therapy which does help.

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Hi needhelp 15
You are in this very early, so maybe its going to get better for you. I took flagyl 1 1/2 years ago. But i have alot of other symptoms /damage from flagyl. But that dosent mean you cant heal.

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The head and heart pounding has been going on for a 1 1/2 years?

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Hi Anna sorry to bother you but you have the pounding symptom everyday 24/7 for a 1 1/2 years?

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Hi needhelp 15
For me its a little better with that pounding, i dont feel it so much in my throath anymore. But to be honest i still feel it my head, my chest and in my stomach, but not 24/7, only in my chest 24/7. The rest, it Comes and goes. I belive its The vagus nerve, it goes through The head,throath, chest and down The stomach. Try not to eat big meals, eat small meals often, thats has helped me a little. The only explanation i have is The vagus nerve about The pounding. Do you have tinggling, numbness and pain?

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Ok, you know how to help the vagus nerve? My nutritionist says:
Sing as loudly as you can. Gargle very loudly. Put your hands together in a tight fist and try to blow into it. Gag yourself but not enough to throw up. And my favorite? Put your face into a pan of very cold water.

Sounds crazy but it seems to stimulate the nerve and help it reconnect with the brain. Actually I spent a lot of time in the begging singing nonsense sounds while driving. That way I didn't have to explain to anyone what I was doing. Then since I have dry eyes (not related to this issue) and have to put heated pads on them and try to squeeze out the oil that gets stuck in the pores at the edges and then wash them with some foamy stuff and they have to be rinsed I use very cold water to wash my face with after all this other rigmarole. I am a lot better.

Not related to the vagus nerve.. I'm in physical therapy and taking private lessons in tai chi which is definitely reducing the dizziness and imbalance issues. Yesterday in the tai chi session we danced and stomped our feet around the room as we worked my joints without pain. It was fun and made me feel happier. But we tried skipping, which I couldn't seem to do and trying made me dizzy. That is an odd one I think. Going to ask the physical therapist and neurologist about that.

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Bjh
Yes im doing all of that for my vagus nerve. I read about that, that singing, gargle and even put The water in cold water is good for The vagus nerve. I wonder if my neightbores like The singing or not haha
Thats good that it seem to make your dizziness better with The thai Chi, continue with that. I saw a new neurologist this week. he was not good either, but at least he said that my arms did not look right at all at my age. So he is going to send me for a emg, for my severe muscle loss. And he was The first neurologist that said my autonomic nervous system is not working right. Thats why my blood pressure and high heart rate is racing extremly high when i stand. So he should see if there are any more tests for The autonomic nervous system. The first tests they could not even read, my autonomic system was to crazy. Im going to do a tilt test on tuesday.
But do you think he admitted that flagyl did this to me? Ohhh no. He said like The rest "Well flagyl is out of your body alone time ago". Hmmm.... They are so ignorant.

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Interesting that my neurologist and my primary doc both said that it was the meds... and after my first round of physical therapy he evaluated me again and said based on what he was seeing it is very obvious that it was the med...

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Bjh
Well all i can say, most of The People that i have talked to, have seen doctors and neurologists like mine. They dont belive. You are very Lucky that you have meet a good neurologist and a good doctor. I wish that i could see them to. Because going from doctor to doctor, and neurologist to neurologist is not funny, when they just think its anxiethy. but i have been diagnosed with small fiber neuropathy now, and still they dont get it.

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Where do you live? I don't suppose any where near Colorado? What kind of insurance do you have?

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Bjh

I live in sweden. Where they say we have good medical care. I can say, no we have not.

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Ok, so this system is not working for you because you can't get a doctor to listen to what is happening to you. I'm really sorry. And I suppose the only solution is to see what all you can do for yourself. At least you are trying. My husband has issues with being out of breath but refuses to talk to a doctor about it.

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BJH, you are the first patient I've spoken to who has a supportive primary care physician and specialists. My doctors absolutely refused to believe the drug could do this, despite all the symptoms I had listed as side effects. It wasn't until I did my own research and found out about metronidazole CNS toxicity that my doctors could no longer dismiss my claims (except my PCP--after I showed her the medical literature, she had me banned from her clinic). However, other doctors have at least admitted that my problems are possibly related to the drug--that's the best I could get from them. Your case is unusual--it shouldn't be, but it is, unfortunately.

By the way, thank you for the information about the vagus nerve and treatment options. I'm actually having a flare up right now (not horrible but bothersome) and I'm trying out the cold water approach to see if it helps at all.

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singing loudly is also good and you can use it as tension relief against the mad you feel at your doctors!!!!

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ANNA - How long did it take for you to get back to somewhat normal because I am having it in my head and chest 24/7? It is very worrisome because when I workout they intensify so much more and I worry my heart is going to give out or my head is going to explode. I do have numbing tingling and pain. It is occasional but like most of the people on this chat I think I am getting better one day and worse the next. My vision is off and i have a slight tilt to my left side making me unbalanced and uncoordinated. May I ask what you were on metronidazole for?

BJH - I completely agree with ERIN and ANNA. All doctors I have been to do not believe this is due to the medication. Even while on it 3 different doctors (including a specialist) said its not serious and if it is the medication it would resolve after a few days. Well here I am almost three weeks out and still not feeling the same. Wish I had listened to my body and just stopped it.

ERIN - thank you for your long post a few posts back about the GABA receptor. I have came across some info for that, have you found anyway to reset that or anything that helps? I am seeing a neurologist tomorrow so any medical articles or information I can present that you or I have found would be appreciated so I do not get dismissed and be told that it's anxiety and the medication would have been out of my system a long time ago.

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BJH--haha! That's good advice! When I was really sick, I listened to a lot of Tori Amos songs, really dark stuff, to let me vent my anger. Unfortunately, when I have a flare-up, I have respiratory issues and singing can intensify them. It's a part of dysarthria, the slurred speech is just one problem. It can also create a "poor coordination between breathing and speaking." But listening to some angry power music has helped! :)

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