Metronidazole Lasting Side Effects (Page 47) (Top voted first)

I have been taking this medication for 7 days and off of it since a week and still have severe side effects, abdominal cramps, severe headaches, dizziness, unsteadiness... How long is it expected to last? It was prescribed with Ciprofloxacin to me and I take Entrophen on a regular basis...

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You may need to take more probiotics than you think and also take some Prebiotics. See your health food store. Do you have any other gut symptoms?

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Judy, that's how Flagyl works. Two steps forward, one step back. It does typically improve over time but it might take awhile. Amd I agree with BJH--more probiotics might help. You ever drink kefir? It's a drinkable yogurt with lots of probiotics. It's what I used and it did help.

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I see that you posted this message in 2011. I hope you are still out there and will tell us what has happened since?

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Bjh
I never had any muscle pain or joint pain before. I started too have that when i took flagyl. And The pain is not getting better. All around in the body, in every weird spot. And i never had neuropathy before, The flagyl caused it. So now i have tinggling, numbness and pain from head to toe
I dont know what to do to get help. But i Will not give up. Its not easy to fight for my right to treatments and have help, when i can hardly function as a human. But i Will keep trying.

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Ok, I'm going to work on solutions.. research on neuropathy..

health.facty.com/conditions/10-symptoms-of-neuropathy

Next You need to research solutions. I'm found a couple of sites that have to do with supplements to take..

Now here are my thoughts on this..

The stomach is like your mother board...your brain is a central processing unit. Effectively you have 2 brains.. the one in your skull and your STOMACH - your MOTHER BOARD.

When you take Flagyl you are breaking the connection between these two parts of your Computer system. The stomach communicates with the brain to tell it that you are hungry, to tell it to communicate with your glands, etc so they produce what you need... and your brain communicates with your stomach to tell it to send nutrients etc to the body.

So with Flagyl you have a disconnect. So the next question is how to reconnect this?... perhaps physical therapy...perhaps trying to get the motherboard to function with nutrition? If you read all the stuff about neuropathy it talks about stomach issues. I'd say, take a few really good tips from that.

Evaluate how your stomach is working... what symptoms do you have?... and then look at what YOU can do about fixing those.

I was having major issues with my gut before the flagyl and after... So, I talked to my nutritionist friend, who asked me some questions...

1. do you have a gall bladder? - No
2 do you take antacids or proton pump inhibitors? - I have in the past.

She then said, take Ox Bile for the lack of gall bladder.. yes, the liver still produces bile but that bladder was a storage unit so that when you eat it dumped a lot of bile into your stomach. And if you have taken antacids then you have very little stomach acid, which is needed to digest your food... so she had me take HCL with pepsin...

Within 24 hrs I started having regular bowel movements that were perfectly normal. I also discovered by observing that some of the diarrhea I was having related to eating those little oranges called Cuties... I stopped and no more diarrhea!!

So, now I know that my motherboard is working.

NEXT STEP is physical therapy and Tai Chi... these should help get the motherboard to reconnect with the CPU... I'll keep you informed..but with the Tai Chi alone I've noticed less of a problem with balance... The tai chi I've been doing is private lessons that focus on stretching my body and getting lots of the pain out of it.. I can walk better now although I'm not 100%.

I start PT on Wed. I'll let you know.

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Anna-sorry I have not checked in...I hope you are well. Things were busy here and when the holidays are here, with being on my feet more I crash more as well and it takes days to weeks at times to feel well enough to get on the computer again. As for all the things I did to try to improve, the list is so long as I have been dealing with this since 2009. The only thing that saved me in the beginning was drugs. I hate to admit that as I tried to remain organic as that was how I lived my life before this happened as many of us did...that makes me wonder at times. Supplements were getting too much for me as well. I only take Milk Thistle, Ionic magnesium, and Chelated Iron now--iron because I do not want a transfusion from getting severe anemia. I have already been down that road. The milk thistle is simple to many but I know it works on the liver for sure. Long story, but it even saved my dogs life so I keep with it. I cannot say for sure if these things make things better more than perhaps stop some things from getting worse. If not for Klonopin after four months of no sleep which people say is not possible--well if you are floxed I bet we all beg to differ---I was in such bad shape that the Klonopin was a temporary way to finally get three hours of sleep here and there for a month. I made a difference for sure. I do not use it anymore but for sure needed it after trying to be so proper with how I was treating myself. I wanted to live organic like I had been and wish it worked. The one dose of Dilaudid in my IV in the hospital also let me sleep in 2009. that was before the Klonopin. There is no way I am even close to ashamed of using these drugs. I was in so much pain I could care less at that point. I just needed it to stop. None of it was permanent but even the temporary relief made a huge difference. I think people will preach and preach when they are the ones that get better but it may not be that they get better from what they are doing more than just people that would have improved. There is just no way to tell. So many or us do everything right after being floxed and do not heal and others do not do these things and get better. There is no doubt-the best thing to do it treat the body the best we can but if that was the answer, than I should not have been floxed in the first place. My friends were shocked this happened to me out of so many of us. I was the one that my friends made fun of for being so exact with watching everything I put in my mouth and making sure it was good for me. I just felt so healthy living that way and life was so good. I had so much energy and loved the way I looked and felt, and enjoyed my work and enjoyed clothes shopping as many of us do. That all changed with this. I have bins of shoes and clothes in my attic that are from work. SO hard to give them away. My daughter takes a lot. IF you are suffering so bad, and you have heart issues and seizures, it is tough for you to know what to do to get out of pain. It sounds like you are in that spot that I was in....desperate for a break at least. A break from the pain and the lack of sleep. What is the thought with marijuana there? Do you feel if you get some what of break for a few days you might be able to regroup a slight bit? I know that sounds nuts, but that is how I felt. That or I was done. I am not as bad as the first year. No where near like that...that was the worst by far. I am also not good either. But I can do things around the house--maybe not in the morning but I can do things. It takes me a few hours in the morning to move and I usually only sleep 3=4 hours a night. If I sleep more than that...I pay the price in pain. Too much sleep equals more pain and no sleep equals too much sleep the next night. A crazy cycle. Have you tried Valerian tea or herbal supplement for rest or that plus melatonin? These are helpful to some people. I am sorry you are going through so much. I wish this would ease up for you. Do you have a date picked out for a wedding? That must be tough to plan right now. I wish I had answers for you. You will hear so much from so many. The best I know is instead of piling to many things on so fast, a few supplements here and there are better as my stomach could not handle what the drs. wanted me to have all at once. I could not digest it and it made me sick even though they were good for me. I am sorry to go on and on....I did not sleep good during the night --insomnia night. I gave up and have been up all night. I tend to ramble at times when I get no sleep. Talk to your fiance - I am sure you already do. As long as he understands that you are speaking from a place of non-stop pain that you need a break from so much, then perhaps he could help you research a dr. that could advise you what to take when in so much pain but have heart issues. I had crazy blood pressure the first year as well but did not stop me from needing relief after a while. But that is me.... Again-this is a lot of rambling--so sorry. I do not know what I even answered this time. I hope you have some relief in pain today.

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Ok, let's start with the stomach.. my nutritionist says that much of the problem has to do with the disconnect between the stomach and the brain... and part of that connection seems to be related to the vagus nerve....read up on it... find out what it does and then how to help it reconnect...

I'm going to need a social secretary soon.. just saw the PT who said I also have difficulty with balance because of the crystals in my inner ear.. and she has some good exercises that will help pretty quickly.. so I'm to have at least 20 PT sessions before they evaluate and see what else needs to be done...
more later.

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HI Bjh

Thanks
Well i agree the brain and the gut connection is very important. Like they say, the second brain. I think i have destroyed mine. But in my case, i think its because of maybe autonomic neuropathy. Thats why my stomach act like this. But im trying everything to heal it. Drinking bone broth and taking colostrum. I think i have a leaky gut also.

About the neuropathy. i think i have to much nerve damage. I have tried many supplements for the neuropathy. But i havent notice a difference. But maybe its because i always have to stop with the supplements, because off my stomach.

But thats good that you see some progress in your off balance. really good. continue to take thai chi lessons, if it helps you. Tell me how everything goes. keep me updated.

lol.....a secretary would be nice to have . Im writing alot with people out there now, who have gotten hurt from flagyl or fluroqinolones.

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Anna- Please do not get discouraged or think you are doing something wrong than others when you are trying so so hard. I did the bone broth and candida diet and so much more as I said for my gastro. system. I swear I was fine in the first place. Sometimes THAT makes me wonder if that was why I was hit so hard. I ate organic and healthy for so long I lost track of how many years it was...I read so often of people like myself getting such severe side effects at times which seems so opposite of what should happen. Anyway, there are times that you can do exactly what others do and recovery comes different, or slower, or whatever may be...I am always happy to hear when anyone recovers or starts to feel better. That is best news ever. Yet, that does not mean that the next person is exactly the same. This is frustrating for all of us. I made my own bone broth for a long time. I, also, had all my supplements compounded for myself through a dr. I was seeing as I did not think the over the counter things would work as well. Keep using the bone broth as it is absolutely healthy. I just do not want you to get discouraged and give up because you are not responding. the side effects of Fluoroquinolones seem to be exactly the same with flagyl. As I mentioned-hang in there--this is hell on earth. It hurts a lot every place on the body hurts which is the crazy part. The brain screams. The nausea I had in the beginning was unreal. How I was always the worst every night around the same time. Right around 7-8pm the pain in my stomach bent me in half in pain and I would roll around on the couch and cry and go on my knees and down and just could not stop the pain and then it would go away and come back to that severity the next night. It was nuts. I was given nausea meds finally. I cannot remember if they helped or not. Sorry-so much was going on at that time. I know they did not work at first but might have later. I remember taking ginger and mint and all those old remedies first. I do not have an answer why it was that way more than many others had the same thing. I forget how long you have been dealing with this. It took a while before the most horrible of symptoms calmed down a bit but some did....yes, I am not better, but not as bad as the first year as I mentioned. Yes, the gut and brain are connected, my dr. said this as well, which is why I tried the bonebroth and other things. I hope your nausea subsides soon. I could not eat for a while. My stomach would just tighten right up in pain when I did eat something no matter what it was.. nutrition was not on my side and some say you have to force yourself. Some can but I actually understand those people who could not even force themselves to eat something as the body actually could not handle it and the pain would be worse no matter the food. I have five huge, overflowing folders of my information, research, records. and so on through the years. I am no where near someone that is an expert on this, just someone like many that are going through this and do not understand why when I was so healthy. Now I am unhealthy and no by choice. Promise, I am not putting down anyone's suggestions, everything is something to read and research, I do not want you to feel like I did wondering why do I not get better when some do. I have read some get better in days/weeks/months/ and some even many years later--wish someone knew why. At least there is more information now on this than years ago. There is a group that goes to Washington DC here every year to advocate for the research. These are such great people. Hang in there --I want you to get better so much.

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Hi malinda!

Its okay, I understand that the holidays took a lot from you. It did that for me too, even if I was at home. I couldn't go any where, I just remained at home with my fiance. We tried to do the best off it. But it was hard not to celebrate the christmas with parents and my brother and his family. I wanted to go there, but I couldn't. But I hope that you had a good christmas after all? About the insomnia, its terrible. So we both know and understand each other. For me its like my brain cant relax. The weird thing is with me and the pain and the severe neuropathy all over the body. Its getting better when im laying down. Usually. Not always, some night its horrible. Today I laid in bed a little longer, and all off my joints in the body was popping and I wonder if my bones and joints are starting to crack soon. The sound is horrible. Did you have that too?

The problem with the insomnia, if I take sleeping pills, I feel so much worse the day after. I haven't taken any yet. I just hope that my sleeping is starting to get better soon. I just wished that I could sleep at least 4 hours. Or something like that. But I wake up, with muscle twitches and tremors in my whole body. Or extreme nightmares. I have never dream things like this. Horrible! You sound like me, me stomach can not take every supplement people suggest. And yes...I'm talking to a lot off other people out there who have been hurt, from flagyl or fluroqinolones. And so many say, take this , take that.....So much supplements. I wished I could take them all, but I cant. My stomach react to everything, even magnesium. But now im trying again with the magnesium, to see if it has some effect. Do you feel that the magnesium is helping you? By the way, where in your body do you feel all your pain? Is it pain? Or do you also have tingling, numbness and so on? Today I have had tingling and numbness in my whole head, and this awful head pressure, feels like the head is about to explode.

My fiance and I talk a lot. He has been a rock for me. He believes in me, and supports me. I cry alot , and he is there for me always. He says every day, that this is going to get better. But to be honest, I did believe that before. But not anymore. It has effected also my heart. And my body cant control my heart rate. I guess I have pots now. Because when im laying down, my body cant control my bp and heart rate, but when I stand up, my heart rate is going crazy and my bp too. Sometimes I have extremely high, sometimes very low. So I guess its pots. Because off autonomic neuropathy. I get so much chest pains when im standing.
No, here in sweden its not legal with marijuana. So thats not an option.

No, we have not decided a wedding day. We were planning a little before this happened, but every plan about a wedding is not there anymore. Not that we dont want to get married, but now, its just too much to even think about that. But I love my fiance so much. Like I said, if I havent had him or my parents, I dont know how I would make it this far. I have a hard time go to the store, my father has do drive my every where. And my mother has to do alot off shopping for me. Before I used to love going for shopping for hours. Now its not that funny anymore. Every light in the store is to much for me, im extremely light sensitive, and blurry vision. And im sound sensitive. And when I try to shop, its like my brain get overwhelmed by it. I feel overloaded. Never thought that a person can feel like this. I try to meditate, but even that is hard.

Yes, im drinking tea that is a tea called "Bed time tea". Its a lot off herbs, thats good for relaxing. I have tried melatonin, but I felt just horrible on that. Its like my body cant take anything anymore. I seem to react to everything. So strange! Many have said that melatonin can be good to take for sleep, but for me, it just made everything worse. I want to take q10 and ala, I tried that to, but I reacted to that to. The only thing that I can take right now is d vitamin, colostrum for my stomach, and d ribose for my fatigue. Im trying to take magnesium again, but I dont know if its going to work this time. The last time I got rashes all over my face.

Like you said malinda. I guess some people heal. No one can know, who is going to get better and who is not. Thats the hard part, not knowing. And some people get better with time, even if they have not taken any supplement. So I guess time is the main thing.

About your blood pressure, you said that it did go very high the first year, did it got better after that time? Is it normal today? I mean, my blood pressure when its low, it can be 80/40, with a heart rate off 48. Really low for me. And sometimes my heart rate is 180, and my blood pressure extremely high, the worst was 200/180. Thats not good at all. But its only when im standing that I have that high, not when laying down.

You have had this since 2009. You must be so strong. Have you heard about people recovered after a very long time? Or do the most people heal the first year? I have read alot, and some seem to recover most the first or the second year. But I wonder if some people have start to improve after a lot off years. I guess you have talked to alot off people out there, since you got hurt. It seems that recovery stories is not out there so much. I have read so much pain in people, and people not recovering. And the people who seem to get better, are the ones that see improvements pretty quickly.

I wished I could turn back time....I think all off us feel the same way. I think "What if I had read about flagyl before I took it", "What if I never had gone to that doctor or to another one, maybe that doctor would have gave me something else, that would not have hurt me" ...So many thoughts. But nothing can turn back time now. Nothing.

Hugs to you malinda!

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Anna, I agree with you. Don't get me wrong--I absolutely believe there is a big connection between the gut and the brain, and when the gut is unhappy, everything can be off. Even the blood brain barrier, which protects the brain from harmful substances, is less effective when your gut flora is depleted. So...there is a connection.

However, I do believe that the majority of the problems with metronidazole toxicity is neurological. And this isn't a guessing game--when doctors implement appropriate care (which is rare, but when they do) they can detect brain lesions on an MRI. Case studies, the FDA ADR report, and systematic reviews all confirm this--encephalopathy (aka, brain dysfunction).

These lesions are almost always found on the cerebellum, but can also be present on the basal ganglia, midbrain, antererior commissure, and even the brain stem. After discontinuation of the med, the lesions typically disappear, but there is poor correlation between the resolution of symptoms and whether or not these lesions go away. That means there is probably still some histologic damage that brain scans cannot detect.

A perfect example of this problem with limited medical technology is CTE--chronic traumatic encephalopathy. Watch the movie "Concussion" and it really shows it. Basically, on a regular scan, the brains of these athletes look fine, but when they die and their brains are put under a microscope, the damage is everywhere.

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Ok, your first brain is your stomach.. it formed before your head....research the vagus nerve... if it is not functioning well then there is little that works and taking suppliments, etc won't do nearly as much good as activating or reactivating that nerve.... do some research and see what you can find about how to reactivate it and get your stomach to communicate with your brain...

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Erin
Well i do belive this is from flagyl that has gone through my blood brain barrier. And did damage to my brain, definitly. I can even feel The damage. Never thought a person can feel The damage in the brain, but belive me, i can feel it. And its not only damage to my brain, its damage to my nerves around The body. I have tinggling, numbness and pain every where in the body. I can also feel tingling and pain inside my organs and inside The body, its horrible.
My muscles isnt there any more and The joint and muscle pain is horrible. So alot off damage
And i think The gut and The brain is very important. But in my case, i think my neuropathy is why i have so much pain in the stomach. Im certain that i have either dysautonomia or autonomic neuropathy. So thats why i have so much stomach pain, because i can eat The same food several days, and some days i have pain and some days its not extreme pain . But i also belive that my stomach dont feel right because off The destroyed good bacteria.
Thanks Erin, i will look at that movie concussion. And i belive we have brain damage that no mri or ct scan Will show. Its like you mentioned, they can only see that under The microscope
But its so weird. Many have The same damage and symptoms and side effects. But some get better and some get worse. Can The brain heal better for some People and for some not? And why? I just wished they had answers för this.

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Thanks bjh
I have read alot about vagus nerve. And i have read that you can stimulate it. I think The vagus nerve definitly has something to do with this to. Like i said, i guess i have autonomic neuropathy. And The vagus nerve has alot to do with heart rate, bloodpressure, swallowing (i have problems with my swallowing too now), and The gut, and also The breathing (have a hard time to breath, like i cant take in the air in my lungs) . But if it has alot off damage, i dont know if it can be healed, like The nerve damage around in the body. But im trying to do everything that i can to try to heal. im Reading about healing The brain, healing neuropathy, healing vagusnerve, healing The gut. I just wished i had The answers why im just getting worse over time. Maybe i have too much damage. But im trying to do what i can.
I wished they had a cure for all this. Or...that they would never prescribe things like this, that can do so much damage and harm.

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I definitely believe that eating right, getting the stomach in order, can really help. I drank kefir like crazy when I was the sickest, and it really helped my gut--I still had other problems but after awhile, my stomach wasn't one of them. My appetite was severely lacking for months after my stomach pain/nausea/constipation cleared up, but it slowly returned on its own as well.

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Malinda
Thanks thats so sweet off you. But i do wonder many Times. Why do some People heal, but why wont i?, i must be doing something wrong. But in my heart, i know im doing everything that i can. I eat organic, healthy, no sugar ( Yes i eat fruits, but that i really need to eat), no gluten, tried so many supplements that i have forgotten how many. And i dont want too think about how much i have spent for all off that.
About The bone broth, maybe that is not going to work. But i take it mostly for my joints and muscles, and some for my stomach. And some is when i do have alot off stomach pain, then i know i get alot off healthy minerals and vitamins from it. So im going to eat that for a long time. maybe its not going to make any difference, but at least, i dont think its going to make me worse, or i hope not. I was thinking about candida diet to. First i thought that maybe i have to much bad bacteria in my stomach. But i dont belive that any more. I think its nerve damage.
Malinda, do you still eat organic food today?
I have read alot off People that can not eat anything else but organic food, because then they react badly
See what you are writing about your nausea and The stomach pain, it makes me so sad, that so many go through this. I dont have nausea all day, but i have it alot. Either i feel extreme nausea or like my stomach are full, only on a few bites, or i dont have no appetite at all. And i can say, im one of The People that force my self to eat, because i have lost so much weight, and I still loose more and more. Im afraid im not going to have anything left on my body soon. But i was a heavy woman before this. But some days, even if i force my self to eat, some days i cant eat that much that my body needs. Before all this i could long for food. Thinking off what to make for dinner, feel hunger and be happy about food. Now its like something in my brain have died, before that says " mmm... Im hungry, i want food " now its more " do i need to eat... Noooo". But like i said, i force my self to eat, because i know that my body needs that.
Another thing. Sometimes i dont feel any thirst att all, and sometimes im so Thirsty even if i have been drinking so much water. So strange
I have been dealing with this since november 2015. It took flagyl 400mg three Times a day. I feel nausea even writing about it. many say its not a long time. but every minute is to long
Thanks malinda. Im hoping you to heal to. You deserve to get better and have no more pain and suffering. no one deserve to suffer like this.

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Erin
Kefir is very good for The stomach. I have tried probiotics in so many forms. But for me, it seems that it do not change so much. Right now im eating fermented foods. My stomach seem to handle that pretty Well.
Thats so good that your stomach got better. I think healing it, is also very important in all this. but i had trouble with my stomach even before this.

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Are you constipated or having diarrhea? Do you have a gall bladder?
Start with the very basics that your stomach needs.. I made no real progress on anything else until I got this one figured out.

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bjh
Well i have both. No, no gallbladder, it was taken out for over 15 years ago.

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Ok, so, look at health food stores, get some ox bile and take it. Since you have constipation you also need HCL with pepsin.. Start with these.. you should feel better within 2 days and everything should start moving nicely and easily... then talk to me.

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