Metronidazole Lasting Side Effects (Page 46) (Top voted first)
UpdatedI have been taking this medication for 7 days and off of it since a week and still have severe side effects, abdominal cramps, severe headaches, dizziness, unsteadiness... How long is it expected to last? It was prescribed with Ciprofloxacin to me and I take Entrophen on a regular basis...
Anna-14 months feels like an eternity when going through this. All one can do is lie there still as breathing hurts. I used ice packs on my head all day and night. I remember that well. I had many bags of frozen veggies go bad from using them on my head for my head pain. The fear you have for pain meds is a good fear. I had it as well for a long time. But as I wrote, when they gave me that one dose of med. in my IV in the hospital-I slept and ate for the first time in a long time. Do you sleep? Eat much? We all tell each other to eat well, drink well, like we do not know this. We all know right from wrong but when the body actually cannot eat or drink and I do not understand how to explain that to someone but remember how it felt--then it is easy to say and not to do. I had such pain and the tests on my stomach showed inflammation and slow emptying stomach. Because of how severe this pain is it is NOT POSSIBLE for any of us to go through any day and not say how much it hurts. My husband thinks that if he does not listen or give me compassion that it will force me to try to get better faster so he ignores my condition. I gave up on him a long time ago. It did nothing but make me worse because I was dealing with this on my own. I am here because I have to be. He was supportive in the beginning because I was healthy before this. There is no explanation for his behavior. Those people like him are out there and right here. I am glad your fiancee supports you. Tell him to not give up and to keep up the support as you need someone to share this with or it makes it worse....take it from me. To not be able to share how much pain you are in does NOT make it better. You do what is right for you. Some of us can take supplements and others not as many as they feel sick from them no matter how long we try. Foods and liquids--we all know the word organic and antibiotic free by now. We all do this. You are early on even though you feel like you have been in this forever. I do know many that have recovered after 14 months and after a few years. So do not give up but do what YOU have to do that works. You are doing great so far dealing with this hell...
Hi malinda,
Thanks you so much for your words, it really really means alot. Talking to someone Who knows what kind off hell this is. I started to cry what you wrote. But thats so sad that you haven't had that support around you. Many friends have taken a Step back since i got Hurt. And that hurts alot. I believe.. Maybe they were not as good friends as i thought. One friend have been there for me, and my parents and my fiance. But even if they are There, i feel so alone going through this. Even if they are there and try to support and understand... Well..they cant understand fully. Only we Who go through this can understand each other. Its a horrible way to live. Can i ask you. Did your head pressure and pain get better, or is the head pressure like it was since beginning? About pain killers, you havent had any side effects? Did you have or had dizziness and off balance? This is horrible for me. I cant go any where because off it. Today i tried to go shopping. I almost fainted several Times and had such a nausea. I have this fainting and even seizures, this has gotten worse for me last months. Im very worried about that. and my body can not regulate my heart rate and blood pressure any more, mostly when i stand up. Can i ask you what you have and had since The beginning since you got Hurt, or is it to painful to talk about all this symptoms and damage? Now i have a hard time eating Again. I guess its because what you wrote, my stomach can not regulate my stomach movement. The Weird thing is, after flagyl and six months after that i could eat more. But i lost alot off weight. But since this with my heart happen, when i was rushed to The hospital and was given medications. This time im even worse then The last time. I have lost alot off weight since september. Its starting to worry me. Because im loosing more and more. Dont now what to do anymore. I tried probiotics, but stoped with that a few days ago. But i cant feel any difference with them or with out them. Are your stomach better today? I eat healthy and organic. I have tried so many supplements, but i cant take them right now. Yes my fiance has been a rock. But i feel bad for him, seeing me suffer like this. He is very worried about me. But he says everyday that he Will be there for me forever. Thanks malinda. Many seem too recover the first year. But you have talked to People Who got better after years then? What did they do to get better? For me, im really afraid im damaged for life actually, because its not going The right way for me. Can i ask you how old you are? hugs.
Update: I saw a neurologist on Friday this week. I do like the man and think he works rationally with people. He said the ataxia could definitely be related to flagyl but didn't want to totally commit to it.. I also noticed that there is a sign on his office door that says drug reps have to call for an appointment... seemingly that could suggest that he's not into drugs so much..
But what he did was check my feet and legs, muscles, etc.. and said I have peripheral neuropathy in addition to some issues with my cerebellum and wrote RX for me to get some physical therapy and come back in 3 months.
Meanwhile my bone density evaluation shows that I have progressed or regressed into osteoporosis. Reading up on the meds for that I found that they create a lot of the same symptoms that I currently have with my gut, etc...so doing my homework.. It seems I have to get some regular walking exercise... going to walk every day either outside or at the rec center... and maybe some weight lifting.. and continue with my tai chi and have to drink green tea... eat prunes and kale and spinach. Guess i'll grow more of that this next year.
Will update you when I am finished with the physical therapy.
Hey, BJH. Good to hear your neurologist is taking this seriously--when I finally saw a neurologist and showed him my stack of research papers, he conceded that the metronidazole was at least a possibility.
Sorry to hear about your peripheral neuropathy. I didn't have that but ironically, I did end up getting a referral for PT from my neurologist due to lingering neck pain, also from the effing drug.
I'm glad you got the referral... hope that it helps... how long have you been having neck pain? I'm still working with the tai chi in private sessions and based on the osteo diagnosis have done my home work and will NOT be taking the drugs for that but am starting a walking program and will do some weight training and eat the right foods... NOT dairy so much as green leafy veggies will be added to my diet starting this morning with spinach in my breakfast... the body needs calcium, magnesium and K2 to make bone...so I'm on it. I'll chat later about what the PT is doing if anything helpful.
HI Bjh!
Ok, so you also have neuropathy to? Like me? Do you have that tingling, pain, and numbness then?
osteoporosis? I tried to read about that. Is it when bones reduces? Or am i wrong? Because i have seen on me now, that my muscles starts to go away, to a point, that im worried. And my joint pain is getting worse every day. couldnt sleep at all last night because off the pain. Every joint in my body make sounds, like popping sounds.
Thats good that you train tai chi and take walks. How can you manage to walk? I have a really hard time even to stand because off the off balance and diziness. I force my self to try, but its hard. I used to love to go for walks for hours.
Well, I think you are going to need to figure this out.. lots of research, etc.. Hoping the PT will help.. I am only dizzy when I try to walk looking up at the landscape... and I'm going to try the inside track at the rec center because that should have less visual stimulus. Tai Chi, private sessions working ONLY on my balance is helping. I can actually walk outside now without having to look at the ground all the time.. I do use a cane for balance.
I would ask how long you have had the joint pain? The osteo is new diagnosis... and makes sense I think that I'd start having more issues with my hip....So I'm off on a regime of whatever exercise I can get and getting my gut to work properly so it can actually digest my food...and then eating green leafy veggies such as spinach and kale, 3 prunes a day, and mild exercise.. the tai chi person said that merely standing balanced on your feet and bouncing up and down without letting your feet leave the floor is a good beginning.. Any kind of movement that carries your own weight helps to build bone....
So you can start with whatever you can do and see what happens next.. did you see a neurologist yet? What did he say? What actions are you taking at this point?
the Neuropathy is not pain at this point.... so getting the PT and moving may help... we'll see.
If you don't move your muscles they will deteriorate for sure.. and if you don't want to lose both bone and muscle you must force yourself to do some kind of movement even if it hurts... just start with what you can do, record it and then repeat the next day. Keep it up until you can add a few steps or something, anything extra. Do you have some dumb bells or can you get some and do that or weights that you can put on your wrists or ankles? If so you could start by doing that in your chair.
I think maybe you've had this long enough to figure out what bothers you most... I figured out that when I walked I was walking with my feet far apart to keep my balance even though I'd not thought about doing it. And then I noticed that I could drive without being dizzy but it happens when I move... and then I noticed that when I sit and something or someone moves across in front of my vision up close I feel really dizzy.. So I've had to instruct the tai chi fellow to NOT move his hands across my field of vision.... and I also noticed that he asked me to do some movements and count and breathe at the same time. I finally told him I could NOT count and move and breathe at the same time so he does the counting. Some of my homework I do without counting but put a timer on instead. I'm accustomed to a life of multitasking but found myself unable to do that so much any more if it involves my body in motion.
I had a group of people over for breakfast last week and I was making eggs but there were too many people standing in my kitchen talking loudly.. I had to push them out of the kitchen.. didn't push them down to the family room as I should have done.. and I couldn't figure out how many eggs to break even with counting people and figuring two per person. I finally had one person help figure it out and count the ones I'd already broken.... stressful...
I don't have the solutions for you Anne but I think with a lot of research you can find a way to get better.. I'm doing everything I can.. gotta stop and go stretch on the floor.
I had PT last year, between March 2016 to August 2016. Spinal manipulation once a week for a little over four months--the PT therapist was very nice. It greatly helped; the pressure at the back of my head went away and the neck pain was greatly reduced. I still have the neck pain but it's much improved.
PT is funny like that. It usually helps but doesn't fully cure. I hope it helps you--it's worth the time and energy.
Excuse my language but holy s***.. if you read the side effects of both those drugs they look like bookends.. Recently I had a UTI and the dr wanted to give me Cipro... I read up on it and refused because it causes the same symptoms I'm already experiencing!!! The question is why you were treated with both drugs.... but after the fact the main issue is how to get over it!!! And no, I don't know the answer to that question... I was diagnosed about 3 weeks ago with Ataxia and the doc finally admitted it was Flagyl that caused it.. NOW this past week I finally saw a neurologist who said that I have neuropathy (mostly numbness that I wasn't really aware of...but when they checked my reflexes there was little motion at all...which i suppose is the numbness...) and I'm to see a Physical Therapist this coming week to see what we can do. I'll send up dates as I can. I'm not sure who all can see the updates??
Add to that the fact that now I have osteoporosis and they want to treat it with drugs that cause the same side effects I'm already having in my gut. This is going to be one knock down drag out fight I think... I'm going totally natural instead!!!
If you are dizzy.. PLEASE use a cane to walk....
I've often had a lot of trouble with my neck, much longer than this issue.. Last year working with a chiropractor we discussed my using a neck collar at night and he said lots of his patients find that helps relieve pain in the neck and stiffness...which seems counter productive but I noticed when I sleep with out it I get up with a painful stiff neck but if I sleep with it I don't...
Go figure!!!
Hmm.. that's interesting, BJH. Right now, my neck is doing okay but it's very sensitive. If I sleep on it wrong, it can be irritated for days. I will keep the collar in mind if it starts flaring up again. Thanks.
get one now and start using it for a few nights and see if it helps you feel better rather than waiting to see if it gets worse again.. Get ahead of the pain rather than behind it.
Hi bjh
Well that thing you mentioned about The amount off eggs you should take, to make breakfast to everyone. And you couldnt figure it out. Im like that to. I feel i cant think anymore. And i have a hard time with my memory since i took flagyl. Many Times i stumble on words too.
I think i have that too with my bones. I try to walk every day, but i cant go long. Because off The dizziness and off balance. And when i do walk, i get so much pain in my legs and hip, back and so on. But i Will try harder. I have start training when im siting down. My legs and my arms. I cant do so much, but its a start
The Hard thing for me is my neuropathy also, i have it in my whole body, including face and head
Well The neurologist was not good at all. The only thing she did was "look at The right, look at The left " and then she said " up with your leg and down with your leg ", and then she told me she could not help me. I got angry and sad. I asked her if this was not her job, because Who Will i turn to now to get help. Then she said that i have to go to every doctor that treats every symptom.
Its just sick....I have gotten so Hurt from flagyl. It has damaged my brain and central nervous system, but The doctors and neurologist over here Will not help me or belive me. I did a test in january 2016 after all this, that showed small fiber neuropathy. I guess i have it in the whole body
I have had The joint pain since i took flagyl and The joints crack and do popping sounds every where around The body
Well thats good that your neuropathy do not Hurt och that you dont feel pain. For me its extreme pain, numbness, tingling and feels like its burning or cold.
But thats good, you seem to have progress with your dizziness and off balance. That you have that only when you walk is good, i think it Will get better with time. I have it even when laying down. But much worse when walking. I have tried to get help, so i cant know how i can do to make it better. But The doctors dont take it seriously. My cardiologist has sent a referal to a neurologist Again. So i hope they Will help me, but i guess they Will just answer that they can not do anything for me. But i going to fight to get help. And i try to do some small light exercises att home. Even with my off balance
I hope 2017 is going to be a better year for us. When we can start to heal
Request a referral to another neurologist... now... just because you got one that didn't even want to figure it out is not to suppose that they are all like that.. Where do you live?
BJH
I have been to two neurologist, no one off them took me seriously. They are not aware off flagyl toxicity, even if i have try to show them papers. I live in sweden .
Universal health care? Do you have to have referrals? If not then get some referrals from friends, ask who has had what issues and how they were treated.... Meanwhile.. When did you start having the pain? Was it before or after you took the med or have you had it for a while?
I did get an ER doctor to admit that flagyl caused dizziness and metallic taste in the mouth. But, she wouldn't bite on the darkened stools, nausea, brain fog and chills. She did howeve admit that probiotics are a must if taking any sort of anti-biotic. I checked my notes from last year and I had tinnitus in my ears while I was taking Flagyl and cypro. While a few antibiotics are listed to cause tinnitus, these two are not. According to my log it took almost two months for this to clear up.
Wow... that is one side effect I didn't get.. I hope you didn't have a lot of others.. and I'm astounded that the doc rxed both of those drugs at the same time..... are you cured from the reason you were given the drug? Do you still have tinnitus? I didn't take cipro...if I had I think I'd have succumbed totally... both those drugs have similar side effects... dr wanted to give me cipro for a UTI and I read the side effects and refused!!! So, now I've got osteoporosis, I believe from too many years of having my gut NOT working right and taking proton pump inhibitors for GERD etc... and I have been suffering for at least 2 yrs with a gut that barely moved.... which means I didn't get calcium from my food... got an appt next week, I can hardly wait until she rx's fosamax for that..... side effects? Same stuff I'm currently having, constipation, diarrhea, gas, bloating, etc... think that the drug is going to make that better or significantly worse? I'm really distressed that so many people are being damaged by these drugs.. what on earth can we do?
Flagyl can cause tinnitus. It's not on the label but I've talked to a lot of patients who have gone through it with this drug. And Cipro...everything can go wrong with cipro. Both these drugs are some of the nastiest on the market.
Yes I experienced head aches for 2 weeks after taking Flagyl and still have stomach cramps and am taking probiotics. I feel like I may get better and then it all comes back.
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