Metronidazole Lasting Side Effects (Page 4)

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I have been taking this medication for 7 days and off of it since a week and still have severe side effects, abdominal cramps, severe headaches, dizziness, unsteadiness... How long is it expected to last? It was prescribed with Ciprofloxacin to me and I take Entrophen on a regular basis...

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61

That is great news, Dawn! I'm glad to hear that he is more like his old self. I'm praying that he continues to make a full recovery.

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62

Hi Erin,
Were you talking to me when you said you sent me your private email? I didn't receive it and I don't know how to do the same for you. I'm not sure where you went on this site to do this. :) L.

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63

Scroll back to post #41 - you'll see what I'm talking about.

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64

I find that my worst days (although I am dizzy every moment of every day) are when I haven't slept enough. My best days are on weekends, when I sleep about 9 hours at night and take 1-2 hour naps. My neurologist said that the extra sleep basically enables the brain to cope better. It is interesting that we have both experienced this symptom. I shudder to think how bad I would still be feeling without the Valium. This dizziness was absolutely intolerable without it. I'm discouraged that I'm not seeing any improvement whatsoever. I last took Flagyl in early May :(

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65

Dawn, that is wonderful news, lets hope it continues and lasts, thanks for trying the number... they still haven't got back to me... I won 't hold my breath

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66

Erin, thank you for your response. I just gave my permission for my email to be passed along to you. I'm not sure when they will get to it but hopefully soon. :) I'm starting a laser light treatment next week. It's expensive but it works at the cellular level in helping the body to heal it'self and the tissues to regenerate. It will be a minimum of 15 sessions at 3 sessions a week. Also will be buying supplements that will help the nervous system. Better quality than what I have been taking. We'll talk more about it as I go through them. It may take several treatments before I notice a difference. (probably abt. 2 and a half weeks.) This might be something that would help you. I will ask the lady who does it when I go for my first treatment. I know it's hard, but hold on to hope. She's had success with others who were worse than myself. :) Hugs

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67

Wow - what is laser light therapy? I am intrigued. What natural supplements have you been taking? I've been taking glutamine and glutathione (helpful for eliminating toxins). Can't tell any difference, but they're probably not hurting either.

Hang in there!!!!!!!!! We are in this together. We know what this medicine did to us. Stay focused and relentless in your pursuit of healing and answers.

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68

I shall be interest to hear about the treatment especially the cost and what else they suggest... are you near Toronto

Do you know if the treatments are covered at all

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69

This morning all my symptoms are back in force, I had to fight to wake up, foggy head, dizzy tingling in arms and fingers, so much for feeling better

At last I spoke to someone in England the number is 1-800-667-4708, ( remember time difference for To. is 5 hours )they took down all my details and were very nice...I gave them this web site for reference as she seemed unaware of any of what we are suffering

Will I hear any more....won't hold my breath

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70

OMG, I just had a phone call from the AAP the Metronidazole drug manufacturing company in England, to start with I had great difficulty understanding him...he asked me if I was sure their company manufactured the drug..." it says so on the invoice", next what did the drug look like ???? was it expired. At this point after having to ask him to repeat things at least 5 times I asked to speak to the person I talked to yesterday,.. they were not there !!

I feel not a bad as yesterday but still not ok...

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71

I have a lot of information to share, so bear with the long response. I got the results of my Audio Evoked and Visual Evoked Potential tests. They were both within the normal range. My neuro says these basically measure the function of the brain stem, so it's a good thing that they are within normal limits. Apparently, damage to the brain stem is almost always permanent in some respects.

He said he now suspects – based on my continued difficulties with visual tracking and visual stimulation – that the flagyl caused damage to my inner ear and vestibular system - OTOTOXICITY. We thought we’d ruled that out (another doctor did an inner ear test on me), but as I read more on ototoxicity, this seems to be EXACTLY what I have (and what others on here have described as their symptoms):

From Wiki: "When the vestibule and/or semi-circular canals are affected by ototoxicity, the eye can also be affected. Nystagmus and oscillopsia are two conditions that overlap the vestibular and ocular systems. These symptoms cause the patient to have difficulties with seeing and processing images. The body subconsciously tries to compensate for the imbalance signals being sent to the brain by trying to obtain visual cues to support the information it is receiving. This results in that dizziness and “woozy†feeling patients use to describe conditions such as oscillopsia and vertigo."

My next steps are to see an oto-neurologist - a specialist within the field of neurology. I'll share more on that after my visit.

The prognosis:

Neuro said that most patients experience the most improvement within 3 months if they are going to improve, 6 months it will begin tapering off, and within a year, any damage left is likely permanent. I’m closing in on 5 months with no improvement.

I'm scared, like I know we all are.

I hope this was not too long of a response, but I hope it will provide valuable information for those who have not had these tests but have experienced symptoms similar to those I have suffered. Today is a particularly bad day. I didn't get enough sleep, which always sends me reeling with dizziness.

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72

Thank for such a lengthy and so informative posting, after reading it, it hit me the night before it came back I had not slept properly this seems to be the trigger.

The lady I had spoken to yesterday called back (wow 2 calls from AAP in England in 1 day) I have given her this web page and she is passing it on.

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73

You're welcome.

You may want to see an ENT and ask to be treated with Valium. If they hadn't figure out to put me on that in June, I honestly think I'd be in an institution. The only thing that made me feel any better before the Valium was moving forward (either walking or in a car), so I'd pace around the house like a mad person or make my husband drive me around for as long as we could stand it. I wasn't happy about getting on another drug after I'd been poisoned by one, but this is keeping one foot on the ground for me while the other is dangling off the ledge... Kidding, kind of.

What are your visual problems like? I have tremendous difficulty tracking moving objects and lights, i.e. scrolling through a google search, a panoramic shot on TV, driving through a turnabout or U-turn. Also, lights at night on cars look like exploding firecrackers to me.

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74

What is Burning Mouth Syndrome and what is the treatment?

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75

I don't know the answer to your question. Did you get this from taking Metronizadole?

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76

Pat, I'm not near Toronto. As for supplements I have been taking R-Alpha Lopoic Acid 600mg per day and N-Acetyl-L-Carnitine 750mg per day/ Vitamin B12(Methylcobalamin) B1 and B6 as well as Fish Oil and Vitamin E....The R-Alpha Lopoic Acid is suppose to be good for PN and N-Acetyl-L-Carnitine as well. I did some research online and found this out.

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77

Erin, it's awful what you are going through. I will send you a personal email soon.

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78

Thanks for your helpful tips on supplements. I'm all for going the natural route if you possibly can. I am definitely going to include these in my regimen. If I can manage to recover from this, I swear, I'm going to have to be tied down to have a pill shoved down my throat.

My sister in law is a pharmacist, and she knew all about ototoxicity. WHY don't the doctors prescribing these poisons to us know about them? My mom has discussed with her doctors what has happened to me, and she said they didn't even know what neurotoxocity was. Unbelievable!!!!

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79

I have printed this of and am going to try them
Thanks

Today thank goodness I am feeling better, but it seems to be a day by day scenario

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80

I saw an inner ear specialist today. He doesn't think it is ototoxicity. My neurologist was leaning in that direction, but he said that the Valium would actually make you feel worse if you had ototoxicity. But he also said that Cipro and Flagyl hadn't been linked to ototoxicity, but I've read a TON of information about how all the "floxin" antibiotics can - in fact - cause ototoxicity. He recommended POSTUROGRAPHY TESTING. Has anyone had that done?

I don't think anyone I'm seeing knows what's wrong with me or how to treat me. I just started screaming in the car ride back to work :(

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