Metoprolol Withdrawal (Page 2)
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i've been taking metoprolol for several years as partial treatment for high blood pressure. through diet and exercise, i've lowered my BP to the point my doctor says drop the metoprolol. i did, 3 days ago, and i'm soooo tired, dizzy, irritable, and my vision is blurred. is this withdrawal? how long will it last? i remember starting this medication was terrible to get used to. it appears that stopping it is just as bad.

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Re: TxCandy1 (# 2533)

Thank you so much for responding, it’s been a crazy rollercoaster ride. I’ve been an emotional wreck all day today. I do get tachycardia every now and then. Less than I was in the beginning. I had it this morning when I got up to use the bathroom. I thought I was gonna lose it. I got up and instantly felt muscle weakness throughout my entire body, out of breath and tachycardia plus my daily dizziness and blurred vision.

Do you think that MS lesions would show up on a CT scan?? I would be so relieved if I knew that it wasn’t MS. Obviously my symptoms are still extremely stressful and horrifying but, it would be a relief if I knew for sure it wasn’t MS or something just as serious.

I just started reading through this thread but I’m only on page 14 so, I’m not sure when you first came in. I’d be interested in knowing how long you’ve been off of metoprolol and what your symptoms have been like since stopping.

I haven’t been vaccinated, I’m too afraid of the way my body will react. I’ve had really odd reactions to things over the last couple of years that I’ve never had before. I don’t even take Tylenol anymore. It’s frustrating and scary.

I’m so sorry that you are experiencing these uncomfortable symptoms as well. I hope that some day the human race will become a little less greedy and more loving towards our fellow people. I don’t get why they feel it’s okay to poison us. I mean, I know that what I initially went through with afib and my heart rate up in the 170s was scary but I don’t think I needed to stay on the metoprolol for such a long period of time.

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Re: Jacqjean81 (# 2532)

Hey! Welcome to this madhouse. I’m so sorry you’re going through this. It’s absolutely awful. Are you having any tachycardia?

I had a HELL of a time coming off of metoprolol. Mean if you read back quite a while, you can see everything that I was experiencing. I am not 100% better but way better than that time. I like you thought I was dying.

If you had MS, lesion probably would have showed up on your brain scan.

So far I have what that think is inappropriate sinus tachycardia. Where I have higher HR sometimes for no good reason. I feel like all of this started after metoprolol withdraw. Or if I had it before, ignorance was bliss and I didn’t know or care.

I still have the dizzy sensations here and there but have been cleared by ENT and had brain MRI and that was clear.

Someday I feel good and some days I feel like absolute s***.

Today I randomly broke out it hives all over my body and I had to go get a steroid shot. I’m so sick and tired of this not knowing if it’s going to be a great day or not so much. Some days my HR is fantastic and others days it’s 115 just doing everyday things around the house.

This is all so frustrating and I hope we can all find answers and just get 100% better

Have you been Covid vaccinated? If so, any reaction to that?

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Re: Juliya (# 2482)

So, this is my first time on this site for metoprolol withdrawal. I was on a different one previously but, I didn’t get many responses or feedback. I was on metoprolol 50mg from 2/1/2020 until I was reduced to half back in June 2021 because I was starting to feel dizzy, weak and blurred vision which originally I thought was from being anemic. Eventually, at the end of July, I was taken off of it completely which, I’m still not sure if I was taken off too fast. This Thursday will marks 14 weeks since being off of it. The first 2-3 months, I would wake up in the middle of the night with my heart racing, extreme blurred vision and my entire body shaking. During the days I would feel anxious at times, blurry vision, occasional headaches & dizziness. Now, for the last 2 weeks the dizziness has gotten worse & I'm also experiencing, feeling off balance, blurred vision still, tinnitus, ear pain/pressure, occasional heart palpitations, body weakness (like my muscles feel weak), short of breath, tingling in my feet, vertigo, nausea, head pounding when I stand or turn my head too fast and probably more that I’m just not remembering. Before starting metoprolol, I did have an undiagnosed autoimmune disease but I NEVER experienced symptoms like these, maybe a couple of them but not as severe. I’m so scared every day. Sometimes I think I’m dying. I’ve had an echocardiogram that came back normal, all of my bloodwork is normal except for recently finding out that I have arsenic at a low level in my blood. I also had a cat scan of the head because I’m too afraid to go into an MRI machine but, that also came back normal. I recently started seeing a therapist for the first time in my life and he’s saying that it all just sounds like anxiety which Is completely frustrating. Today he said something that really scared the crap out of me, that my symptoms sound a lot like MS but, after reading through a lot of what you all wrote, I’m thinking it’s a mixture of the metoprolol withdrawal plus having some blockages in my ears. Oh and one other symptom that I just remembered, is being easily startled & sensitive to too much sound and stimulation at times. Hopefully someone reads this and can offer some sort of feedback because I'm starting to feel like I’m going crazy & I'm tired of living in constant fear.

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Re: TxCandy1 (# 2529)

And Cupcake922
Thanks for the info on the gut issues. I really have no idea anymore. I'm leading toward mast cell activation syndrome. And all of this started after a possibile covid and then worsened after my covid vax. Then made way worse by the metoprolol and then inderal.
I'm looking to see a new Cardiologist but she is an electrophysiologist and a functional medicine physician who also does hormones. I've tested negative for autoimmune diseases but my pcp wants me to see a rheumatologist now. I'm also going to see an NP friend who maybe can figure something out. I just can't believe my dr would tell me to start taking metoprolol again after all the horrible issues I had with it..I'm at a loss ??

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Re: Cupcake922 (# 2528)

I’m wondering if my issues are stemming from gut issues/vagus nerve too. I already suffer from a lot of stomach issues. This is all just a mess.

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Re: Tinker (# 2527)

Ugh this sucks! I’m
Super annoyed with my EP too. I feel like they just write it off as anxiety because we are young.

I’ve been having weird dizzy sensations this week and it’s freaking me out. I don’t even know who to go to at this point. I see a hormone specialist next week. Hopefully she will listen to me and maybe help me get to the bottom of all this crazy.

IM SO SICK OF IT

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Re: Tinker (# 2527)

Have you been evaluated for SIBO?
I’ve been following this chain for the past 6 months as I’ve been having similar symptoms as many others on here. My initial symptoms started as tachycardia after I had a virus back in December. Doctors couldn’t figure out a cause since all my cardiac tests came back normal, so they put me on a small dose of metoprolol. I felt like I had every side effect under the sun and tapered off after 2 months. Still having issues 6 months later. It wasn’t till my last ER visit that the doctor referred me to a GI specialist. There is a strong connection between the gut and nervous system and cardiovascular systems. I am now being treated for SIBO and hoping this helps. Just wanted to share in case it was an avenue you haven’t pursued yet.
Metoprolol can decrease the activity of DAO which is an enzyme that breaks down histamine. SIBO also decreases its activity and could explain any new sensitivities to food or medication.

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Re: TxCandy1 (# 2523)

Oh my gosh. So I wanted to get on here and tell the experience of my most recent follow up with my Cardiologist! I saw him a few days ago and he literally tells me now that all my symptoms over the past 10 months is just anxiety. My adverse effects from the metoprolol and inderal was just because I'm sensative to it and have a hypersensitive heart. And that he no longer wants me to try Cardizem to see if that helps but instead START taking the metoprolol again for my symptoms of ectopic heart beats ?????. Are you kidding me??? I told him my heart felt more electrically unstable taking that and it war intolerable. I went through horrible withdrawals. He says it's because I took it every day and if I only take it as needed then it is fine. Why would I take a medicine that extremely worsens the symptoms I'm trying to get rid of by taking it?? Ive been at such a complete loss for words. This doctor has been great for 11 years and now I feel just so sad that I don't ever want to go back ??

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Re: TxCandy1 (# 2525)

Oh no. I'm so sorry. I have learned to not even acknowledge when I'm having an OK day as far as symptoms go because if I do...then it seems to backfire!! I hope it gets under control!!!

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Re: Tinker (# 2524)

Well I totally jinxed myself and had one of the worst episodes I’ve had in a long time. Every time I drifted to sleep my HR would shoot up to 130. I had crazy sensations, adrenaline, and so weird feeling. I was up all night with this and so back on corlanor I go. This really beeping sucks

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Re: TxCandy1 (# 2523)

Well I've had pvc and pac's for 28 years and always have been able to tolerate them. The sudden onset of them all day long in December he attributed to stress and anxiety or " maybe worsened over the years". I disagree with the latter because it was a sudden onset in one day along with the tachycardia that I never had before. When I talk to him about the persistent pac's he isn't concerned about them because they aren't dangerous. I'm not having enough for an electrophysiologist to do anything. And the only thing is symptom control with medications....that I'm terrified to take after the nightmare with beta blockers. I did take a lick of the Cardizem yesterday lol because I was fed up, just to see if I had any type of allergic reaction. I feel like i have ptsd from the metoprolol nightmare!!! And something happened in December to cause all of this and I just want answers. And the metoprolol definitely worsened things and I haven't been the same since. I'm just at a loss.
Maybe you could have had covid back then and didn't know. That's the situation I am in. Many people are having long covid symptoms with the inappropriate sinus tachycardia and POTS. Hopefully you will do OK without the corlandar and your heart rate stays good!!

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Re: Tinker (# 2522)

Oh gosh! How do you deal with ectopic all day long?? What has your cardio said about it?

Good call for rheumatologist just in case. That might provide some answers.

I’m telling you beta blocker jacked me up good! I never had all this crazy and crazy sensations until I took that damn pill. I’ve been off it for over a year and still don’t think I’m totally healed from it.

I’m kinda wondering if I had COVID in January 2020 before it “hit the US” . I was the sickest I had ever been. Was in bed for a better part of a week and tested negative for flu and strep. Obviously there was no COVID test. Then in March 2020 we went to Ireland right before it got COVID crazy in us and everything shut down and well later after being home is when this all started for me and sent me to the ER. I wonder like you if that’s what has caused all the crazy and sensitivities to beta blocker but I’ll never know. Sigh

I’ve been off cornalor for a week and for the most part I feel normal but I do see that my HR on some days can go a little higher. I don’t feel it but I can see it on my watch. So the question is, do I want to be on meds, or just deal with the possible day that are higher due to potential IST. We shall see what my EP says tomorrow. I sent in my loop recorder reading earlier today so he could look at them and be ready for tomorrow’s call. I really really just don’t want to be on medication.

I was given the calcium channel blocker as a pill in pocket before corlanor and I will say, I would take 1/4 of the pill and it would settle things down for the moment. I never had any side effects using it like that. I didn’t use it often but for days where I felt
Bad, the 1/4 pill was fine and no bad effects. It’s not like the beta blocker

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Re: TxCandy1 (# 2521)

Hi TxCandy1
Hope all goes well with stopping your medication. I still have the daily ectopic heart beats. Some days only a few but many days it's all day long. I'm in the process of getting a referral to see a rheumatologist now to see if I acquired an autoimmune or inflammatory disease from covid or the vax. It's still strange to me that metoprolol worsened my symptoms and ive been off since March. My Cardiologist says I was hypersensitive to it because I likely had covid. Well I'm also super sensative to many things now. I have the Cardizem to try but still haven't because I'm scared to have more side effects if it's just for symptom control. This all has been an awful nightmare.

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Re: RV (# 2520)

How’s everyone doing?

RV?

JULIYA?

TINKER?

I’ve been on corlanor for 7 months and decided to wean off this week to see where my tachycardia is. So far so good ( hopefully I don’t jinx it).

How’s everyone doing/managing? Still have the same symptoms or have they gone down a bit?

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Re: Juliya (# 2518)

Also, i think i misinterpreted fev1/fvc as per demographics should have been 82.1% but for me it was 97% which is 118% of predicted.

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Re: Juliya (# 2518)

I heard it should be between 70-80% he has given me a spray which i havent used . Do you think i should ? i am a wreck. How are you doing? I dont know why but i still think i might have hyper ardegenic POTS. Also, i have a history of allergies my eosinophils used to be double than what it should be, how are you doing?

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Re: RV (# 2517)

Oh wow!!!!! Fev1/Fvc should be less than 70%. 118% is kind of high! Are you taking anti histamines? If it’s allergies it should help!

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Re: Juliya (# 2507)

True story! I got a second EMG done which was negative and a pulmonary function test fvc 81% , fev 93% and fev1/fvc was 118% which may be points towards restrictive disease and i am scared. Although, the pulmo said it is allergies i am clueless and still in ALS rabbit hole.

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Re: TxCandy1 (# 2515)

OK. I'm almost 5 months off the med. Still having bad days and not so bad days. My only symptom now is the frequent ectopic heart beats which are worse for several days after I exercise and if I eat anything that I'm evidently sensative to now?????. My Cardiologist tells me that I could have had covid and that's why I had so many side effects from the metoprolol, because covid causes a general hypersensitivity to many things ?????. But I definitely didn't have them this frequent before taking the metoprolol and they were way worse on it. It's ruining my quality of life really!! I have the Cardizem to try but my resting heart rate is in the 60's so I'm afraid to try that just for symptom control because I'm afraid of more awful effects. My doc says it can drop my heart rate as well but won't know until I take it and see. Well that's not very comforting lol. How are you all doing??

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Re: Juliya (# 2512)

How is everyone feeling/doing?

Juliya?

RV?

Tinker?

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