Metoprolol Withdrawal (Page 3)
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i've been taking metoprolol for several years as partial treatment for high blood pressure. through diet and exercise, i've lowered my BP to the point my doctor says drop the metoprolol.

i did, 3 days ago, and i'm soooo tired, dizzy, irritable, and my vision is blurred.

is this withdrawal? how long will it last?

i remember starting this medication was terrible to get used to. it appears that stopping it is just as bad.

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Juliya and TxCandy1...that is good you all haven't had covid. I had a bad reaction to thee covid vaccine so I can't get anymore. I just don't know anymore what is going on. I wish it was just withdrawal symptoms. And reading all these posts again makes me feel like it could be. I've been off of it for 4 months. But I also feel there is more to it and covid could be a definite answer ??

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Re: tinker (# 2511)

I was really sick in January 2020 before Covid hit the US in March but obviously have no clue what it was. I was negative for flu but it could have just been viral. I haven’t had covid ( that I’m aware of) and was fully vaccinated in feb 2021.

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Re: tinker (# 2511)

I have not had covid and have been fully vaccinated since January 2021.

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Re: Juliya (# 2509)

Thank you for the information. By chance did any of you have covid? I have been concerned about this for the past few months with my initial symptoms and continued symptoms. Not sure if this is still metoprolol withdrawal. I've been off it 4 months now. My Cardiologist agrees I may have had it and this is long covid symptoms with the inappropriate sinus tachycardia and POTS like symptoms along with the inability to eat many foods because it worsens my ectopic beats. He said that covid is causing a general hypersensitivity. And I have been in contact with so many others with my same symptoms after covid..

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Re: RV (# 2506)

Have the doctors said what it could be?

I’m thankfully doing much better overall. I have further reduced my Corlanor to only one time a day at the smallest dose of 2.5mg and I’m hoping to wean off that this fall. HR overall is soooo much better: no more huge jumps when I stand and walk around. I still get some funky feelings sometimes at night but nothing what it used to be.

We recently went to an amusement park and I spent 13 hours there and all was good. We had a great time.

While I wouldn’t say I’m 100% back to normal I definitely feel many times better than when this whole thing started and I’ll take it.

I’m hoping we can all get back to our normal selves soon

Juliya, did they get your MCAS under control? Are you feeling any better?

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Re: Tinker (# 2508)

My GI Specialist ran a plasma and urine histamine levels, urine leukotriene and prostaglandins levels. Also the diagnostic factor is plasma tryptase levels. You want to do tryptase levels when not in a flare for a baseline level. Then have another plasma tryptase drawn while in a flare. As long as it’s elevated by two points from baseline, you have your MCAS diagnosis.

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Re: Juliya (# 2507)

I think I recall reading that you were diagnosed with MCAS. What testing did you have to confirm this? Im reacting to all sorts of food with increased palpitations now and am trying a low histamine diet which is so difficult.

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Re: RV (# 2506)

I think we are all in that trend RV. Just trying to survive day by day, minute by minute. ??

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Re: TxCandy1 (# 2504)

Honestly i don’t know whats happening. How are you guys doing ? My breathing is still bad and have gotten weaker

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Re: TxCandy1 (# 2504)

Glad you are doing better. It seems like the process takes so long. Much longer than I had hoped. I'm 13 weeks off (10 if I want to count the few days I had to take it again for bad withdrawal symptoms). Having a mix of good days and bad days. They seem pretty equal right now. Still have some high heart rate days and notice if I exert myself too much then the next 3-4 days are bad. I'm having frequent palpitations (pac's) that are mostly worse at night. I'm wondering if anxiety is playing a part in this. I haven't taken any other meds out of fear. I feel more sensative to everything even foods and sugar will definitely give me palpitations now. I even feel more sensitive to my own emotions if that makes sense! I needed the metoprolol when I started it but it has definitely ruined my life right now :(

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Re: Tinker (# 2503)

Hi! Welcome. So sorry you are dealing with all this nonsense too. I have been off metoprolol for 408 days and I can say it’s so much better than the beginning. I do think I still deal with side effects from it and my body is super sensitive to everything but it’s getting better. My IST seems to be getting better as well and I all only on one dose of 2.5mg of Corlanor once a day. If cardizem is a channel blocker, I took 1/4 pill in December as a one off pill when I randomly dealt with PVCs and it helped. I didn’t have any side effects from a one off pill like I did beta blocker so you might be ok trying it. Are you doing any better?

RV- what’s going on? Are
You still feeling bad? Any diagnosis?

JULIYA- how are you doing girl? Any better ?

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Hi all. First time posting here but I have been lurking and reading these posts for the past 3 months. I'm 45 year old female with a 28 year history of ectopic heart beats of which I have not taken meds for and learned to tolerate them. I have a very stressful job as a nurse practitioner in the hospital on top of having to go back to school, dealing with covid patients, trying to homeschool my son....I wasn't taking very good care of my own health. In December I ended up in ER with tachycardia and a whole lot of pvc's which they gave me IV metoprolol and then sent me home with the pills. I began to notice worsening of my pvc's within an hour of taking the pill but I was also withdrawing from about 800 mg caffeine intake daily. I took M for one week and stopped because I thought it was worsening my symptoms. The palpitations slowly decreased over a few weeks however I then had more episodes of tachycardia with heart rates in the 160s including while in my Cardiologist office!!! He seemed to think it was panic attacks and told me to go back on the metoprolol. So I did and it did work great for breaking the adrenaline cycle I was in. However it again worsened my pvc's to a debilitating level (30 and hour) and my heart constantly felt more electrically unstable so I had to stop it. My Cardiologist says I must be just sensative to it but propranolol did the same thing! On March 9th I quit after only taking for a total of 3 months. The first few days I had awful symptoms of constant pvc's and anxiety slowly which lessened each day. However day 16 came the rebound tachycardia and my heart rate remained 130's while doing anything other than lay down and this lasted for 2 weeks straight. I was essentially bedbound for about 6 weeks. Debilitating anxiety hit at week 6. Im now on week 10 off this stuff and heart rate is better although still have days where it jumps up around 120. I feel like i have POTS at this point! I continue to have the pvc's with some days worse than others. And although I've dealt with that for so many years it has never been this daily constant thing. Anxiety is so there although the adrenaline rushes have stopped. I have been give xanax and zoloft for the panic attacks but too afraid to take it at this point and Cardizem to try for the pvc's but haven't taken that either. Between the initial episode, debilitating med side effects and withdrawal....I now have ptsd and seeing a counselor and trying CBT. I had to go part time at the job I love, haven't worked in over 2 months.
This board has honestly helped me through alot of this as I knew kind of what to expect. However I honestly did not think it woud be this bad ??

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Re: TxCandy1 (# 2501)

Hey ,

Not doing good! Blood pressure and heart rate is now under control!

Have muscle twitches , cannot take a deep breath and loss in muscle tone . Crazy neurological symptoms. Saw a neuro in singapore did an emg which was clean and aldolase plus creatinine kinase test which was okay as well! Don’t know whats happening

How are you guys doing?

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Re: RV (# 2499)

How are you doing? Any updates?

Juliya- any updates?

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Re: RV (# 2499)

How’s everyone doing? I’ve been fully off metoprolol a full year! Crazy! So glad it’s behind me and I’m feeling better. Still have some nights where I feel funky and adrenaline rushes but it’s far and few in between.

The Corlanor is working at lowering my HR with little to no side effects and I’m grateful for it. I hope it can reset my sinus node for good.

RV- any news or updates?

Juliya- any news? How have you been feeling?

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Re: Juliya (# 2498)

Took this long to figure out what was wrong with you?

I am seeing a neuro day after tomorrow in singapore scared that it might be ALS!

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Re: TxCandy1 (# 2497)

Yup. Mine is caused by a severe increase in histamine. My weight loss, muscle spasms, every thing is connected to MCAS. For me anyway. There are mast cells all over the body. So my adrenaline surges are from histamine overloading my brain and causing inflammation. I’m on a regimen of anti histamines

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Re: Juliya (# 2495)

Are you still getting the adrenaline dumps? Jitters, shakes etc?

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Re: TxCandy1 (# 2487)

Still in singapore cases in india have gone to 250k per day dont know how will i reach home! My blood pressure is now good 120/80 or lower but i am dealing with other neuromuscular thing right now

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Re: TxCandy1 (# 2494)

It’s a kind of histamine intolerance. My body suddenly developed all of these new allergies. Even to foods. Like I can’t eat green peppers or onions any longer. It’s the craziest thing.

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