Long Term Side Effects Of Harvoni (Page 14)
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I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased, depression and lack of motivation. My eyes changed drastically. My thoughts are not focused, I am nervous all the time, can focus or sleep. I had a 2 month migraine. Ringing in the ears is intense. I also was on pigalated interferon and ribivirn, I was pulled off mid treatment because I got so sick. After that treatment, I also had long term side effects. There isn't any back support for post harvoni people, nor are their anyone specializing in the after effect of long term HCV infection, it is NOT just a liver disease, it effects the nervous system and all else. I am at a loss for support with the doctors in my area, none seem to want to do any research and they don't have enough people in individual offices to report they have patients with long term problems. In our groups there are many with long term side effects. The doctor's try to pin it all on other stuff without really knowing. They just aren't listening. I know my body, I know the changes I have experienced. I am just really disappointed that there is not knowledgeable people out there for post HCV and post treatment hcv survivors. I need a support team that listens, they don't. I have extreme frustration to the lack of support after treatment.

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I am in the same boat. Post harvoni 8 weeks after 12 week treatment. My pain in lower back is unbearable, also my hips, wrists, fingers, ankles, feet are all in so much pain. Does anyone have any home remedies for these issues? I also got a positive test for RA after treatment and probably need further testing to see if I actually have RA. I am wondering how long will the pain caused by my harvoni treatment will last.
luna

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Hi I am almost two years post treatment now and I so agree with you. I gave up seeing any doctors since they have no answers that make any sense at all. Many are told they are imagining it. Anyone can search the internet to find hundreds and hundreds of people's posts about long term post side effects. We are forever changed. Something I have just learned to live with. And I am in pain. But I move on because we have no choice. I just want the medical community to at least admit we have been damaged.

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@prrdrr,

Sorry to hear about your experience with Harvoni and other treatment options. I feel the same way about how many of these doctors are so close-minded it's almost unbearable to have an open ended discussion with them. They all seem to go by the classroom textbook and if it's not in that book they refuse to listen. At any rate, I know there are great support groups here on MedsChat involving post Harvoni patients who may have more insight to offer. I went ahead and linked to the few discussion threads I'm presently aware of that you may wish to participate in:

Harvoni Side Effects

Harvoni Withdrawal Symptoms

Post Harvoni Reduced Immunity

Side Effects and Lack of Transparency Harvoni

Post Harvoni 2 Months Still Feeling Intermittent Symptoms

I hope this helps and wish you good health!

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