Long Term Side Effects Of Harvoni (Page 14)

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased, depression and lack of motivation. My eyes changed drastically. My thoughts are not focused, I am nervous all the time, can focus or sleep. I had a 2 month migraine. Ringing in the ears is intense. I also was on pigalated interferon and ribivirn, I was pulled off mid treatment because I got so sick. After that treatment, I also had long term side effects. There isn't any back support for post harvoni people, nor are their anyone specializing in the after effect of long term HCV infection, it is NOT just a liver disease, it effects the nervous system and all else. I am at a loss for support with the doctors in my area, none seem to want to do any research and they don't have enough people in individual offices to report they have patients with long term problems. In our groups there are many with long term side effects. The doctor's try to pin it all on other stuff without really knowing. They just aren't listening. I know my body, I know the changes I have experienced. I am just really disappointed that there is not knowledgeable people out there for post HCV and post treatment hcv survivors. I need a support team that listens, they don't. I have extreme frustration to the lack of support after treatment.

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Re: Marie (# 14)

Hello All, it’s March of 2023 now! Still to this day have tinnitus, though a neurologist requested a MRI and requested me to take a supplement called “Vinpocetine”10 mg to support Brain Blood flow ! It is in the Brain! I still get constant steady low ringing & sciatica is new for the past 2 years now, nervous system acting up again! I’m going for Physical Therapy now! And I am awaiting for approval from my insurance for a MRI . Since the
X-Ray diagnostic test stated on the Report that an MRI is needed in order to get a clearer image! Boy Oh Boy!

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I know this is old but my uncle had treatment and I'm sure it cause him to become schizophrenic you have been diagnosed and he has to take medicine it just happened I don't know where he went nuts did you ever figure out anything on this cuz I would much like to get this investigated .

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Hi, I was treated with Harvoni in 2016 and still have severe side effects (brain for, memory issues, fatigue, photophobia, muscle pains). I was healthy prior to treatment (aside from HCV that really wasn't bothering me at all and only found out about it when I was tested). Was anyone who may have had similar issues diagnosed and can you tell me what the diagnosis is? Also if anyone has similar issues, or if anyone can suggest where to look for help, I would greatly appreciate it. Thank you all!

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