Long Term Side Effects Of Harvoni (Page 13) (Top voted first)

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased, depression and lack of motivation. My eyes changed drastically. My thoughts are not focused, I am nervous all the time, can focus or sleep. I had a 2 month migraine. Ringing in the ears is intense. I also was on pigalated interferon and ribivirn, I was pulled off mid treatment because I got so sick. After that treatment, I also had long term side effects. There isn't any back support for post harvoni people, nor are their anyone specializing in the after effect of long term HCV infection, it is NOT just a liver disease, it effects the nervous system and all else. I am at a loss for support with the doctors in my area, none seem to want to do any research and they don't have enough people in individual offices to report they have patients with long term problems. In our groups there are many with long term side effects. The doctor's try to pin it all on other stuff without really knowing. They just aren't listening. I know my body, I know the changes I have experienced. I am just really disappointed that there is not knowledgeable people out there for post HCV and post treatment hcv survivors. I need a support team that listens, they don't. I have extreme frustration to the lack of support after treatment.

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Re: Cieira (# 217)

Yes. You send your message to them via their website.

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Elizabeth (# 222) --

Yes Elizabeth, I did the online form and then the next day the chat. I will have a call from paralegal on monday.

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Re: Dan (# 219)

Dan, move down the list to I think #209. The link is posted there. Good luck.

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I called them again today and asked why they didnt return my call. I took epclusa, which is the same thing as harvoni except it has another medicine in it. The secretary told me maybe they couldnt use me for a different medicine. I think they need to look at the ingredients. They are the same medicine. Epclusa effects peoples nervous system more. Hopefully the secretary doesnt know what shes talking about. Gilead makes both of them. She said the lady i needed to talk to is out till monday. They need to realize epclusa is just as bad and basically the same medicine. Sofosbuvir 400 mg and Velpatasvir 100 mg. If they dont help me im gonna be so upset. I lost everything because of what this medicine did to my brain!

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Re: Cieira (# 228)

Thanks. I found the link and will try to contact the law group. If I have any success I’ll post an update.

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Re: Enoughalready (# 212)

What kind of pain do you have? My husband has had pain for 3 years now in his stomach.

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Re: Skpp930 (# 230)

call them back and explain, that Epclusa, Sovaldi, and Harvoni all have the same drug in them at 400mg,,,,it is that sobosfovir that is killing us,I think it had side listed when owned by the previous company...it's damaging us,,it had it's own list of side effects never listed after it was bought , I think, from Pharmacet by Gilead...they changed the name of it,,,made a new cocktail ,,,and listed 2 side effects.......head ache,,,nausea.......bulls***

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Re: Dan (# 231)

I received an email today and they asked when I would be available to discuss my case. I told them anytime tomorrow morning...that is Friday. I'll post an update if there is one.

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Re: Cieira (# 233)

I texted them again this morning and tried to explain what's in these medicines. I hope they contact me back. I'm not gonna leave them alone till they help me!

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Everybody that took epclusa, Please call George Fleming if your still having side effects. They are looking at harvoni cases. They said I was the first epclusa patient to call. If you are still sick from this poison call 1-713-621-7944. They need more epclusa patients to call. Please call!!!! This may be our only chance. The female lawyer there is handling these cases, she is very understanding and realizes harvoni and epclusa have the same medication in it! It's been 1 1/2 years for me and my nervous system is still messed up. WE NEED HELP!!!!

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Re: Blondie (# 240)

Good luck. We are all in the same boat. My nervous system is just as bad as it was when I took it. Not to mention the burning all through my insides. I finished Jan. 2017. Lost everything because of this medication!

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Re: Rian (# 142)

Hey, I just caught your post about Harvoni and depression. I am post trmnt since July 15. I have suffered severe depression and it really didn't dawn on me from what. I cried every time I turned around. I really don't feel like I have a lot of post side effects but prob a few are hanging on. This depression is horrible. My PA has finally got me on Wellbutrin with Prozac and I'm not nearly as weepy as before. I do have a Hx of depression but nothing this bad. I'm blaming Harvoni! I wish I had known the side effects of and post of this drug!!! All they wanna hit on is h/a, nausea, and sm little uncomfortable symptoms. These little things turn into BIG deals when a person goes through these body changes! Thank you for the light on this depression. I at least know now where the worst came from. I wish you well.

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The law firm I contacted won’t be representing me based on a positive for Sjogren’s Syndrome (despite my doctor stating in my medical records that one point above the normal range is not a positive result) and a high viral load of the Epstein Barr Virus (isn’t it highly possible that Harvoni reactivated the virus, as it is known to reactivate another virus, Hepatitis B). The symptoms I’m having now started when I was taking Harvoni and it is not clear to me or my doctor’s what is causing these symptoms and so I have been given the diagnosis of Fibromyalgia, osteoarthritis and CFS.

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Me too. And I am over 3 years post Harvoni. My stomach is trashed, my memory is also not what it was. I also was on the old peg/riba and I too got so sick they took me off. I had pain in places where I didn't know you could have pain. I feel worse now than when I just had hep C. I did clear the virus (after 26 weeks) but it seems there is quite a cost.

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Re: Lorie (# 232)

Me too. Post Harvoni I have had nothing but stomach trouble. It has taken so much out of my life. If anone starts a class action suit, please let me know. I am IN.

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Re: Audrey (# 245)

Yep I am over three years post and nothing is the same anymore. Bad stomach daily, pain beyond pain..... Fleming Law is taking Harvoni cases.

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Enoughalready (# 246) --

same here. pain beyond pain and stomach issues, skin cancer

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Hi I had a brother die of cancer of the liver after he took Harvoni. They did not tell him cancer was a risk. Also he was told he had up to 6 months to live. He died 12 days after he was informed of the cancer. I have not been able to get anyone to help me with why they have him the medicine knowing he already had liver problems and people were dying from taking the medicine. He said he would of never took it had he know it had a risk of causing cancer. I really think my brother was used as a gineau pig. I fell like the doctors should of known that he had days left to live. I feel like my brother and family should something for the loss of his life. He would of lived longer if he did not take that medicine. I just wanted to share this with you so you know your not the only one who had awful results from taking Harvoni.

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Hello i took harvoni in early 2015 and over the years I've noticed my muscles seem like they are diminishing despite my constant workout sessions and also my hair is falling out like crazy! I have half of the hair that I used to have. I just turned 40 years old in January something's wrong I know it has to be that I've I didn't even have any liver damage from the hepatitis c I took care of myself all the years that I knew that I had it I drank green smoothies I ate a vegetarian diet I exercise and I wish to God that I never would have took harvoni

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Re: Marie (# 14)

Hello All, it’s March of 2023 now! Still to this day have tinnitus, though a neurologist requested a MRI and requested me to take a supplement called “Vinpocetine”10 mg to support Brain Blood flow ! It is in the Brain! I still get constant steady low ringing & sciatica is new for the past 2 years now, nervous system acting up again! I’m going for Physical Therapy now! And I am awaiting for approval from my insurance for a MRI . Since the
X-Ray diagnostic test stated on the Report that an MRI is needed in order to get a clearer image! Boy Oh Boy!

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