Is There A Representative For All Chronic Pain Patients (Page 2)
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Updated
Is there a rep. for the ppl. who were controlled on 3 OxyContin OC a day, who now suffer and have proved the new OPs DON'T WORK? NO MATTER WHAT PURDUE OR FDA SAY? We need a rep. for us chronic pain patients, who were controlled and NOW SUFFER & CAN'T DO MORE THAN LAY IN BED CRYING.
Re: Barbara (# 8)
Things seem to be getting worse. I have been in pain management for twenty years. The doctor I had been seeing for three years is the worst doctor I have ever been treated by. She has been force tapering me off the meds I have taken for years for my chronic pain. I finally had enough and went back to see my last pain doctor, he agreed to take me back as a patient. I was shocked and scared when he told me that he has had to switch most of his patients over to Suboxone for pain. He has assured me that it will control my pain. He said he has had no choice to do this so he can treat his patients because the DEA and government are shutting down pain doctors.
My other doctor was just going to take me off my meds and let me suffer, my blood pressure has been extremely high because of my pain. I shouldn't have to go on blood pressure meds when the only time my blood pressure is high is when my pain isn't treated properly. I plan on filling a complaint against the other doctor any other doctors, PA's and NPA, that have treated me. I have never in three years of going there have had a physical exam and I have to ask to have my blood pressure taken. She got mad because I told her I was done with the injections she was doing and they were not helping my pain actually it was making it worse.
Sorry so long of a post. One more important thing, nothing is going to change unless we pain patients stand up for our rights to be treated. Check out a Facebook page called Don't Punish pain. There is a rally in almost every state on January 29th, 2019. I believe they are doing another one in July and they will be protesting at the CDC in June. We were all lied to as far as the numbers of deaths caused by this so called opioid epidemic. It's an illegal Fentanyl and heroin problem.
Re: sandy (# 42)
I’m so very sorry for what you are going through. Physicians are not obligated to prescribe medications. However, if you were my patient I would not leave you alone and without medication, if I had to wean you off or switch you to another safer medication for pain control, that’s what I would do. Here’s the thing, MD NP PA’s can prescribe almost all opiate pain medications so long as they have a reason and can show documentation that you have a legitimate need and reason for taking narcotic pain medication on a long term basis and that your doctor has tried and exhausted all other available options. Whenever I keep someone on long-term opiate therapy I always have documents stating why and a plan to continue or not, but no physician should leave their patients with out medications no matter what the situation. I really hope this helps and FYI we are also doing study’s on replacing dangerous high potency narcotic medication ( Dilaudid, Fentanyl, OxyContin) with a just as potent pain medication called Buprenorphine. I will keep everyone updated on our findings.
Re: Verwon (# 1)
There is another alternative. You can have a pain pump implanted which ur PM Dr can tailor to ur needs. Then there is no need to worry about ever having ur meds reduced or denied. U should inquiry about it on ur next visit to ur Dr. Good Luck
Re: Vintage Lady (# 40)
Exactly what happened to me. Soma was supposedly the worst, started having a problem filling Norco (joke), Diazepam (Valium) and Soma, even though I was only prescribed 30 Soma a month, one at bedtime. They told me the same thing and were not nice about it, treated me like I was a criminal! Never had to experience this kind of discourtesy in a store, ever!!
Re: Mark (# 3)
Drug addicts are sick people too. If Mental Illness stepped in and helped the Petition for a change between, addiction being one completely different category from patients who have Chronic Pain, I believe there would be a faster conclusion. My nephew committed suicide last spring at the age of 33 which seems to be the age for suicide. He was diagnosed for deep depression of many years which is a sickness. Doctors should be able to fill out prescriptions for any patient that is in need for help. By the by, there is no law that stipulates that doctors are not to subscribe narcotics. Any MD with a DEA license can still write a prescription for his patient. The doctors who choose not to are afraid they will be randomly audited by the Medical Licensure Department of their State and they are guilty of being caught for non-compliance on other issues which allows the State Auditors to look into other areas of their practice. In CT the fine for over prescribing is maybe $1,000.00 and maybe placed on probation. Can you imagine? Call your Dept. of Health, Licensing, and ask them what their criteria is for penalties against a physician or just look it up on your State's website.
Re: sandy (# 36)
I just got the small bottle of CBD tincture I started it Friday. I feel better mentally for sure. Pain is pretty bad. But a person I talked to one person said it took a little while. My problem is I am not always the lucky one. Try it 7 on your side did an investigation said they had nothing bad to say.
there are no know side effects. I tried it and I take a multitude of medication. Only precaution it says if doctor told you no grapefruit I used Lazarus Naturals in the State of Washington I googled it ask if they have a tasteless one I will be asking. This makes me feel better mentally pray pain relief comes soon.
Re: sandy (# 36)
I got mine Friday, I am not sure how long it will take. I know it tastes different. YIKES!! But I sucked it up and sucked on cinnamon candy after I take it. I feel different with a better frame of mind. My pain is pretty horrific so we will see. I got the CBD Tincture at Lazarus Naturals. Please pray it works I HAVE NO DOCTOR AT ALL NOW. I have nothing for withdrawals. I am 66 and been on major medication for ten years.
Isn't he obligated to give me medicine if I am discharged by him? Seems he cannot hang me out to dry?
Re: Sue (# 27)
Type into google, who is my representative, and it will tell you all their information, websites, which then has ways to contact them, email, or phone numbers. The best approach is to call the person they have answering the phone, b/c they take notes and then pass them on to your representative or Senator- I've done it here in Arkansas...
Re: Vicki (# 11)
Don't forget the pharmacists... they wouldn't fill 3 of my meds together, that I have been taking for 10-20 years, no matter what the doc says. They told me the three together create an 'overdose cocktail'. I didn't take them together and one was just one at night. And I had never had a problem with even a scare of an overdose, because I took them as prescribed. Wish I could give every pharmacist, big drug co CEO, politicians a migraine that lasts sometimes almost a week. But then, they can get anything they want... They just don't care on their little power trips.
Hi Gang,
I just ordered a bottle of the CBD oil. I paid for overnight shipping. Should be here tomorrow. I was approved in 3 hours for the 40% discount. I could only afford a small bottle. Please pray for me. The doctor who I had demanded while I was at work to close up the office and come by 5. If I did that the one day I can work due to pain. I was pain free 75% with my old doctor. If you live in Virginia near Fredericksburg Va let me know, I may know a doctor for you. The Lazarus Naturals was recommended to me here. Worth a try. I saw a video where it was helping people almost crippled.
Re: Sue (# 18)
Look down below your posts where it says that in Florida you won't be able to get your oxycodone. Check it out before you go. It says they won't prescribe it.
Re: Sandra (# 30)
I tried to find the Current Petition it is not there is there a link?
Sue (#9) --
I would probably take a chance I am in so much pain, I am frightened to even entertain the idea. You cannot even tell if its something that would kill you. pray this Doctor in Maryland will help me. I want to thank house again.
Re: HOUSE (# 32)
I will call them and pray he sees me. The doctor giving me 3 OxyContin 5 MG and took away my Oxymorphone called while I was working for one day only answering phones said I had to come for a mandatory pill count. I explained I was the only person in there. They have me there to help sell homes... She said there would be penalties. I assume it means kicked out. So I am in so much pain. I barely made it to work for them today. He is 70 miles away. I have been stuck with him for 6 months and have not had one pill count. He picks the one day I worked. So pray this doctor is kind and helpful. Thanks again.
Yes, every state also has a State Medical Board, and if you feel any wrong has been done by your Dr. including being given medicine that doesn't work, or he won't help, you can contact them, either by fax, or regular mail. and If a complaint is made against a Dr., he HAS to respond within 10 days. I don't know if that helps your situation or not, just wanted to let you know-
I am so very sorry your having to go through this, I am praying that the FDA and Congress starts listening to us, I have been on these meds as well and after 15yrs of being switched from Oxycodone to Morphine, Methadone, Dilaudid and Fentanyl for pain associated with Crohns Disease and it can be debilitating, I have found that Dilaudid and Fentanyl was the best combination that handles both the pain and severe diarrhea. I have often heard from my patients who suffer from both acute and chronic pain and disease that OxyContin helped them the most, even more than Oxymorphone and Hydromorphone. Just wanted to share this information both as a patient and as a practitioner. Please Note that these types of opiate pain medications are for those who have been taking moderate to large doses of prescribed pain meds who have built up a tolerance and have been adjusted specifically based on their symptoms and absolutely are NOT to be used on an as needed basis or for acute pain.
Re: Sandra (# 30)
Hi Sandra, his name is Richard Brouillette, DO. Number is 301-645-1523... I really hope that you find the help that you need... Let me know how it goes!
Re: Christine (# 2)
They quit making Opana. Guess why? They found a way to break it down and abuse it. The generic is Oxymorphone. I found it because I could not get brand paid for. Even the generic is over a 1,000 for 30 days. Try the generic. I do not get it anymore. My doctor retired and my new awful doctor took it away. I get 15 mg of Percocet a day.. does really not much for me. I am stranded on my couch as I have back neck leg issues. I live in Virginia and would travel for a decent doctor.
Re: HOUSE (# 25)
Hi again. I would be grateful beyond words if you could give his name.
I need a name and address. I can start there and keep movin forward. This new plan gov't came up with will not work. The street dealers r in a good spot they no if chronic pain patients will get it from them. This whole scam of trying to now control medical field. Unbelievable. I am very pissed that people in awful pain have to also deal with it and have awful quality of life but do u have time or why should we have to research these meds and have anxiety cause we might not b able to fill out justified scripts. It's too much bull and lies. I feel we r not free to choose anything. Please try get me a name and address. Sue
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