Is There A Representative For All Chronic Pain Patients

Is there a rep. for the ppl. who were controlled on 3 OxyContin OC a day, who now suffer and have proved the new OPs DON'T WORK? NO MATTER WHAT PURDUE OR FDA SAY? We need a rep. for us chronic pain patients, who were controlled and NOW SUFFER & CAN'T DO MORE THAN LAY IN BED CRYING.

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REPORT

Unfortnately, other than reporting your complaints to the FDA, there isn't much else you can do. I'm sorry you are having such a frustrating experience with it.

Have you tried to talk to your doctor about using any alternative medications, such as Fentanyl, or the time released Morphine?


https:/­/­rxchat.com/­wiki/­Fentanyl/­

https:/­/­rxchat.com/­wiki/­Morphine/­

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I've been on fentanyl for 15 yrs until they changed patch, it didn't help that's why my dr.put me on OxyContin and that lasted 5 mo. Till they changed to OP, then they stopped working.So my dr put me on Opana,fentanyl taffys& dauladid but my Medicaid says their test were only on ppl.w chronic pain w cancer! CHRINIC PAIN IS CHRONIC PAIN.my Dr. Who I've been with 17 yrs tried but all they do is fall on the only test were done on cancer patients.I almost lost my Rt. leg fr. Knee Down7 fractures, muscles can't be replaced, now in front of my drivers leg ontop of disc surg.and injections failed to work .3/4 of my body is in chronic pain.the Co. Seem to mess up all the good MEDS and I have to start over then I start all over.I can't take this suffering circle .Do you understand what I'm going through? Now Opana can't be found & I heard they're changing that now.I wish I could get the old fentynol patch , I d be a more productive mom an daughter of 90 yr old mom who is very ill.i can't lay in bed in pain & my Dr. Is frustrated too !!!

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This is just something else the government messed up for people who actually need it, their more concerned about drug abusers than the people who need the meds. This is another Obama liberal bleeding heart BS for drug addicts. Who cares? Let them all OD and die, worry more about the innocent who are suffering and wanting to have a day were dying isn't an option to suffering daily...

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the new oxycotin works even better. Do not understand how you do not think this. It is made out of a plastic type so addicts can not use it intravenously. If they do they will die.

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F.....off. How can you tell an addict to go die when you know what being an addict feels like.

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Help. My current caring PCP left practice and now I need a new doctor or pain care provider in New Hampshire.

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MY DOCTOR WAS ABLE TO GET ME OUT OF A WHEELCHAIR AND I COULD AT LEAST LEAD SOME WHAT OF A LIFE, NOW I CAN NOT EVEN GET A DOCTOR THAT WILL PERSCRIBE WHAT I HAVE BEEN ON AND I AM BACK IN MY WHEELCHAIR!!! GOOD LUCK TO YOU! I LIVE IN HAMILTON, OHIO AND I HAD ONE DOCTOR THAT WOULD "NOT EVEN TALK TO ME" THEN SENT A LETTER TO MY PRIMARY CARE DOCTOR TELLING THEM I NEED REHAB!!! I DON'T NEED REHAB, I NEED MY MEDICINE BACK, THAT'S ALL!!! IF ANYONE KNOWS SOME ONE THAT WOULD GIVE ME BACK THE MED.'S I WAS ONCE ON IN OR AROUND HAMILTON, OHIO PLEASE LET ME KNOW!!! THE DOCTORS ARE SO AFRAID TO PRESCRIBE WHAT YOU REALLY NEED, "WONT" DUE TO ALL THESE GOVERNMENT LAW'S!! THEY ARE NOT GOING TO STOP THE ABUSERS! THEY ARE JUST MAKING THE PEOPLE THAT "NEED" THEIR MEDICINE BE ABLE TO GET IT, BUT WE CAN'T!!!

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Re: Mark (# 3)

Your frustration, such a weak description of how most of us feel about this continued govt sanction of domination. Certainly I don't want to see addicts suffer or die from their addiction. We're all equal in God's eyes. We're being pitted against each other in another way. The addict isn't to blame for the fictitious opiod epidemic.
We need Doctors, Nurses, pH and Occupational Therapists loudly advocating for and with their patients. Chronic pain patients must contact their local, State and Federal Representatives as well as the FDA and the DEA.

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Re: Verwon (# 1)

Morphine is a total joke and fentanyl is sooo addicting! Ocycontin really helped me when I needed it!

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Re: Verwon (# 1)

Fentanyl is the # 1 drug under attack. Even if you find a doctor to prescribe it for you it won’t be long until you are in the same situation.

I have noticed 2 of my generic prescriptions no longer work as well as they did previously. My insurance won’t allow my doctor to write “ dispense as written” as they did in the past. Also different generics of the same medication have different results. Only thing in common is that each one becomes weaker. Calling FDA won’t help unless a particular batch is found to have been tampered with or formulated incorrectly.

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I’m right there with you! I only get up to do something the three times a month to go to the doctor. This Government has destabilized my health and some well known attorney needs to step up and help chronic pain patients across the US. Why do Govonors, Senators and the House of Representatives get to make decisions about my pain care? Where is their license to practice medicine??

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Where do I start? How do I lobby to keep government out of this issue and leave it to medical professionals

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Christine is correct, it works a little, helps keep you level. But as a painkiller it's useless. But it is still very vishesh. Not to mention it's way overpriced thanks to the anti abuse formulations. I understand the hard shell, I don't agree with the total reformulation to stop drug liking. I don't abuse this med. I don't use a needle. There many of us that do not or will not. But because there are those who choose this lifestyle we pay the price in many ways. Now they are poisoning our meds to make us sick, make them ineffective. This was done in the ninetys, same thing. It's a violation of our human rights to prevent being treated so we can live without pain. I never thought I would see the day our government would stoop to this level. It's time to use our legal human rights. Unite. Start by petitioning for our doctor, patient privacy rights. It's the only way to begin to turn this around and the time is now!! Stop doctor, patient, pharmacist, harassment!!

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Re: HOUSE (# 9)

What manufacturer do u get your Oxicontin from? So far the Oxicontin I get does nothing to help me?

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Re: Mark (# 3)

Obama had nothing to do w/the FDA guidelines. Check your facts before you spew misinformation..

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Re: Anjali (# 15)

The changes started when Obama was in office fact. so Chronic Pain Patients associate their suffering with Obama being in office. I had level 3 neck surgery worse pain after surgery than before and surgeon refused to treat the severe pain several years ago because of changes that us consumers patients were not made aware of.

My family doc called surgeon asked why he was not treating my pain non-treatment hinders healing.Also the hardware put in my neck was a experimental fusion unbeknownst to me it looks like 2 lightening bolts both sides of my neck . Thank God my doctor cared,ER turned me away,Surgeon,nurses,doctors in my doctors practice . 7 days of sleep deprivation from pain from day of surgery I was a mess. Nobody cared because nobody but my GP would go against the surgeon.

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Hello, the extremely sad fact is that because of the abuse of the "old" oxcycontin by those who only used it to get high, the newer more "abuse deterrent" oxy is all that is available...

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We are selling our house of 40 yrs on Long Island NY and downsizing to Palm beach county Florida. One of my daughters and 3 of my grandsons and 2 granddaughters live in Wellington. I have to find new doctors.

I am nervous about starting over. Gotta get my medical records etc. Hope they keep prescribing the oxycodone and Oxycontin and hope I can fill them. I have OA all over joints now. Just had 1 knee replacement and need other knee and shoulder done besides lower back. When I get settled I want to lobby for our right to get meds we need to function. I am an occupational therapist and cannot return to my profession but have seen first hand what goes on and how scared doctors hospitals nursing homes are more concerned about addiction than quality of life.

Sue

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Re: Sue (# 18)

I AGREE 100% THEY ARE MAKING THE PEOPLE THAT "REALLY HAVE PAIN PROBLEMS JUST DO WITH OUT OR NOT ENOUGH, IT'S JUST NUT'S!!! I WOULD BET YOU THAT IS ONE OF THEM WERE IN THE AMOUNT OF PAIN, THEY WOULD GET WHAT THEY NEEDED!!!!

5

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Re: Sue (# 18)

I hope that you can find a physician who will treat your needs. The alphabet agencies are currently taking comments and concerns regarding how the increasingly stringent restrictions on specific perscriptions are affecting chronic pain patients. I believe the deadlines are within the next couple of weeks. Anyone who has been or is in the medical profession, like yourself, adds increased legitimacy as an advocate. It's such a shame that the government is wasting so much time and tax funding to deceive the Country and harm law abiding citizens who are afflicted with chronic pain causing medical problems.

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Re: Mark (# 3)

You know what else is ridiculous? It's when you become addicted to opiates due to chronic pain, and then they take all your opiates away. What do you do? You go to street drugs. Now, all the street drugs are pretty much laced with fentanyl or are just fentanyl itself, which is dangerous as hell and killing people left and right. Why? Because a few addicts are going to take away all the opiates from people who need them. It is absolutely ridiculous. If a person is in chronic pain, what's worse: not having a life because you're in chronic pain, or being addicted to Oxycontin or whatever drug it is? If you ask me, I think I'll take the latter. Having chronic pain in my back is like an "S." I am uncomfortable continuously, all the time. And because I am an addict, I have been to treatment for opiates, and now they put me on buprenorphine. You know what it does? Nothing for the pain. It's bad for my teeth; it is absolutely ridiculous that they are allowing chronic pain patients to just suffer, suffer, suffer.

So, instead of suffering, what are we supposed to do? We go to street drugs because they're cheaper, and our doctors have their hands cuffed because of the FDA's bulls***. Meanwhile, fentanyl is coming over the borders like bales of hay. What is the FDA doing about that? Nothing. "Oh, we're going to put out Narcan to save people. Oh, wonderful!" But in the meantime, everybody that's suffering and in chronic pain has to suffer. It doesn't make any sense at all. If you're in chronic pain, what is the difference? Who cares if you are addicted to your chronic pain medication? I don't understand. These are the doctors; these are the ones that prescribed it. Initially, all these drugs helped: the Fentanyl patches, the Dilaudid, the Oxycontin – the regular Oxycontin – helped. But because they started prescribing it to everybody with any kind of ache, now people with severe aches can't get it, and they end up with what? Oxycontin OPs, which are junk! Somebody has to do something because our country is so freaking backward, and our kids are dying. I would rather have my kid addicted to Oxycontin than have him go out and risk his life getting fentanyl on the street. You know what? This country needs a makeover, bottom line.

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Re: Christine (# 2)

I was on the phone 7.5 mcg fentanyl patch.they cut me to 6.2 mcg. 1 is a 5.0 patch and the other is a 1.2 patch ...I think their goal is to take me to 5.0 but they gave me Norco for breakaway... The paths are still available and many companies make them.. whoever told you they are not available lied to you

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Re: Anjali (# 15)

It’s when medicaid kicked in you guys we don’t pick our leaders so it doesn’t matter . The Rothschilds who own our banking system are who run the show. Yes it got worse with medicaid 100% because the plan was to bombard the system and have retired disabled and elderly folks bumped off . All the generics are changing for the worse under Obama and trump but it’s all an agenda it doesn’t matter who’s in office sadly we really don’t decide our leaders. It’s all an illusion but yes things went south big time since medicaid and now it’s gotten way worse

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Re: Etech (# 63)

I keep saying the issue is they’ve changed the design of opiates, they eventually cause adverse reactions and more pain, yet when you take another pill the pain goes away so you never catch that it’s the pill causing more pain. Stay away from Purdue pharma’s new name Rhodes Pharma. The design in generic opiates have completely changed!!! Maybe not everyone has caught it but that’s why unless your dying of cancer forget it. Look at the huge increase of reported adverse reactions since 2014! To now!

And that’s all cvs gave me was the worst one and of course they do it to ya when you have other meds on your list so you don’t know which meds are doing which! Now it’s happening with Dava pharma’s Xanax. I swear and on top of that I live in rental assistance next. To a bombardment of 4-5G mobile towers, digital meters, and a bombardment of high levels of WiFi! And the meds work like an antenna to this technology it’s insane but this is gonna have people getting a variety of a new set of problems! Heart attacks and blood pressure etc it’s really bad my dog just died and my neighbor just got carried out for a heart attack and I’m in not position financially to move. And my dr is retiring so I’m losing my meds as I’m still having adverse reactions and weaning off.

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I wish that this website would collect all of the suffering people and collect all of these posts and submit or present them to all these opponents that don't have a clue what they are fighting. Most of the pain sufferers know what the real problem is and ignore this propaganda we are fed by the either the CDC, Feds, DEA and so forth. Don't be led that most of the OD's are prescribed medicine. That is just BS to divert the real problem we have called illegal drugs and drug lords who they can't touch with any effectiveness. So blame it on the prescribed pills. PLEASE DON'T BUY THIS CRAP!

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In response to Christine's post from Fri, Mar 09 '12, 9:04 PM:

This chat is a little outdated but I just received an email from MedsChat about providing feedback to Christina's chat. Also they indicated that I have not been active for a good while and I guess they wanted to hear from me.

Hello Cristina, I know how you feel because without good pain meds, that is exactly what I do is lie in bed. I have many physical pain issues that have turned into psychological issues as well. Getting a doctor who will prescribe decent pain meds is a pain issue in itself because many doctors will not write and you have just wasted your time and money trying and who knows how many more times you will have to do this until you find a good doctor. I will tell you that I went through hell trying to get one after I had a good doctor but what happened was a delema. I lost that good doc because I was pulled over by an over zealous big in stature state trooper woman who wanted to make a name for herself. She pulled me over for a DWI after following me for at the VERY LEAST 5 miles and a mile off of the exit to try to make her quit following me. The video ONLY showed my field test (monkey see monkey do) where my lawyer and mother observed it and was convinced I was not impaired. The video did not show the 5 miles she followed me as she would AND should have pulled me over much sooner if I was so called impaired and driving so terrible. The main problem was I had just left the doctor's office with my meds but had not taken them during driving. I ended up having to plea to a reckless driving and a psychological evaluation where I had to enroll in an alcohol and drug course. This course discouraged the use of narcotics so I had to get a form signed by my doctor stating that I could use them during the course. Of course that put the doctor in a compromising position when he was then before prescribing 180 mg. of morphine and had to reduce me to Nucynta that isn't worth a ****. And my narcotic meds were NOT confiscated when the cop pulled me over. Even the local cop said I was not "loaded" when I asked him something as he was sitting behind the desk after the trooper arrested me.. Anyway, I had to take a plea to reckless driving. But the DWI arrest remains on your arrest record and when cops run your plates they see that and harass you. After that it took me about 3 years to find another doc that would write good meds.

Now I am hesitant to go back to the new doc that writes because of a weird thing that happened during a simple procedure that he has performed many times already. This particular time it was the same type of simple procedure where they put me out with anesthesia and inj. me with a nerve blocker as many times before.The difference this time was when I woke up in the recovery room it was like I had pneumonia symptoms.with so much fluid in my lungs that I could hardly breath. All the nurses told me to cough but that did not do any good and then discharged me.. I didn't go to the hospital because I have COPD and Asthma meds at home and don't think the hospital would have done much better. So usually, my anesthetics wear off before I am discharged from the procedure but this time it felt like it lasted hours and felt woozy even after I got home. Come to find out later on that day, I had 102 degree fever. This seemed suspicious when I felt very fine and healthy before the procedure that only took from a half to 1 hour...then right after that, feeling like I had pneumonia? So I don't know if I want to go back. What do you think? Do you think I am overreacting? Would you go back to him?

So to get to the issue of having a leader for a pain campaign, I totally agree with you on that issue. I have to say that previously, maybe between a year and year and a half there was a petition that was being passed around and if I remember correctly, I got help from this website. I remember a congress woman that had to lie down every half hour because of her back pain. I don't remember her name but I will try to find out for you. I'm not sure it was her petition or it may have been one of her proponents but maybe we can google it and find out. Or if maybe if MEDSCHAT has it in their archives, we could ask them if they might be able to find it and if they did, we would appreciate it very much if they would mention it on their site to us.

Well Christina, you are right that we need a rep to speak for the people who really need good meds for our pain. These people who are trying to ban them have got no idea how much suffering we are having and it is all in their hands and it does not matter to them because they are not in our situation. All they see is the big OD WHICH WILL HAPPEN NO MATTER WHAT. I just don't believe that the doctors or prescription narcotics are the leading problem of overdoses. THIS IS PROPAGANDA. We all know that mostly all of the OD's come from STREET DRUGS. Why are the doctors and pharmacies being accused? BECAUSE THE DEA CANNOT STOP THE STREET DRUG FLOW. So the only thing they can control is the FDA, doctors and pharmacies so why not blame them for this is their PATSY. C'mon people, smell the coffee. As long as there is a market demand for illegal drugs, there will always be that Pablo Escabar, Griselda Blanco or El Chapo to fill their shoes when they are gone. Prohibition proved that the war on alcohol was lost a long time ago and drugs are no different. If drugs were an issue back then, do you think prohibition would still be around? Even now, many states are considering legalizing marijuana and in Colorado it is a state statute that allows people to smoke it as a pleasure. So Christine, even though there have been petitions but these must keep going so it does not die out and the wrong people will prevail. Also, I wish you well feelings and hope you can find your meds that will give you relief...Good luck.

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Re: methadonehater (# 60)

You all need to really get on the kratom train and end all these bad opiates once and for all. Benzodiazepines are also hit and same with Adderall. They don’t want us better they want us suicidal or in too much pain. Brace yourself pharma is just one agenda! Next 5G mobile towers at every corner. Bad water. Unclean air. Cutting corners on organic foods. You really want to start getting as 'medsless' as possible or when s*** hits the roof we’re all as good as dead. I told my dr so many things and he’s retiring so is his nurse. I was hoping to hear in tripping but I’m not pharma is part of agenda 21.

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Re: PAM (# 7)

How are you doing now Pam? What have you been doing? Meds ect., In or out of the chair?

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Big brother is hurting everyone who is in chronic pain. People who have been taking pain medication for years should not have the rug pulled out from under them. This is a short-sighted and stupid way of dealing with chronic pain suffers.

That's all there is to it.

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Pain medication behavior varies from state to state. I'm in Connecticut and so far, I have been able to stay with my primary care doctor for my intractable pain post (2) spinal fusions, (cerebrospinal dura tear during surgery) > foot drop, arachnoiditis, scoliosis, and L-2 is still protruding plus "other issues" connected to foot drop. My injury is work related and the claim adjuster is approving my medication due to the malpractice, plus me, NOT wanting to be cut open ever again!
My primary care doctor took over once the neurosurgeon got banned from CVS. Went to WALGREENS and so far, I am still getting everything approved and filled. The pharmacist was a pain in the butt a couple times, but I fixed that by reporting her to corporate. CT. also has to pay for medical marijuana, as long as you qualify and it is connected to your injury. It falls under "compassionate care laws". Florida and other "Red states" are terrible on both of these issues.
Blaming Obama is just stupid. The House & Senate were a Republican majority, during his time in office. Why isn't your orange criminal reversing it, since it seems to be all he does when it comes to anything and everything Obama?
#DontPunishPain actually is getting the CDC to "lighten up" the strict guidelines, now that people are committing suicide, NOT because of OD'ing but because their pain is not being managed. #CPP voices mattered~

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