Hepatitis Forums (Page 6)
Recently active Hepatitis forums and community discussion threads. Post your question or story about Hepatitis and connect with others who have experience with the same medications. No registration is required and your identity remains anonymous.I started Harvoni a little over 2 weeks ago. The only side effect I've noticed is fatigue. Fatigue and feeling confused at times and under motivated. The Harvoni is costing me $5/28 days.. good insurance and some help from Gilead. I have cirrhosis and had a walnut sized cancer removed from my liver. Fortunately no metastasis was found! Recovery from the surgery took 5 weeks. Indeed the surgery allowed some liver regeneration so I've got more liver than Is started with. The fatigue is troubling, I get tired during the day but energized during the evening and don't want to get up in the morning. If you have liver damage you shouldn't be paying $1000/pill. If you have HepC1a and don't have liver damage and can't get a break on the Harvoni cost, shame on the industry...
I finished 12 weeks of harvoni on April 12, my blood work came back undetected, been almost 3 months and still feeling fatigue, muscle and joint pain, unable to resume daily activities. Also was diagnosed with fybromyalgia in January, not sure which one is affecting me. Also lost 20 lbs during the treatment, which I am extremely under weight (5'9 - 115 lbs) my question is how long does it take to recover from treatment. ## Hello, Nickey! How are you feeling? I'm sorry you're so miserable. Those can also be symptoms of fibromyalgia, it is doubtful that they would linger for several months, after stopping the medication. Have you consulted your doctor? They should be able to help you get to the root of the problem. Are you on any medications for your fibro? ## I've been go...
On week 4 of sovaldi & Riba with genotype 3A. Have 20 more weeks, my moods are so labile....irritable, then crying, then anxious then fine.....all over the place. Kinda rough right now.... could be worse I guess but....anyone else? ## Hello, MJ! How are you? I've not taken these medications, but I can tell you that these types of symptoms are listed by the FDA among the possible side effects that someone could experience. Others may include chills, fever, skin pallor, weakness and decreased appetite. Has anyone else been on these? ## Yes! I am experiencing the same issues. 8 believe it is related to my also having insomnia but maybe that is not right? I'm only on the end of week 2 so I'm praying this doesn't continue. I'm temporal lobe epileptic also.
Is there a way to get Sovaldi without being subjected to a U/A? Patient had PTSD and has taken cannabis sativa for 35 years. ## @Geshela, It seems to me like your best bet would be to check with several different doctor's offices in your area and ask them what their protocols and/or patient requirements are when it comes to prescribing a medication like Sovaldi. My guess is that every doctor will have to their own set of rules and morals that they adhere to, while others may be more flexible or lenient with their patients, depending on the circumstances. And if you don't live in a State that allows the consumption of medical cannabis, this might feel like a big road block, but I will say that in some cases I have been surprised by the leniency of certain doctors and what they...
Hello, if I had to pay for the drug Harvoni out of pocket what would that look like? ## Harvoni is $1,125 per pill, or $94,500 for a 12-week course of treatment. I just got mine Thursday 28 pills was $28,000! Thank God I have insurance. I've heard the makers of harvoni their name is Gilead that they help with cost somehow.
I started Sovaldi 9th Dec 2014 with viral load of 425000/= GT3b, got my 1st PCR on 15th Jan 2015 which was negative. Plateletts 172000 Hb also normal. Thanks to Allah. I m still taking Sovaldi+Riba and will complete 6 months:: Does anyone have the same results with sovaldi?? ## If it is negative.. y u Will go for 6 months treatment... I am hopeful too that after completing 28 sovaldi tablets... I will be negative inshaAllah.. my viral load was 3 8000 in feb
I did well all the way thru my treatement until now when I'm just done. I'm having clear bright colorful dreams while I'm wide awake, I'm seeing sparkles of bright vibrant colors when I close my eyes and my thoughts are actual images I can see in my mind, I can literally see what I'm thinking. I have this constant smell that won't go away, my ears are ringing, my head feels like it's about to explode, I'm cramping in my abdomen, legs and back, my stomach is hurting so bad. Called my doctor, said to get to hospital, WTF is going on, am I dying ? ## If you just finished treatment. Your not going through withdrawals. Your Dr. said to get to the hospital, get to the hospital! I am not a nurse, but with the smells and the visions you may be suffering some sort...
I have seen several posts praising this topical steroid for treatment of incivek rash. It did work great, but now I fear that people in treatment and perhaps their doctors are not being certain that this super steroidal foam could be contra-indicated for the same reasons as prednisone. Prednisone relies on the CYP3-A enzyme for clearance, the same enzyme suppressed by incivek. I am sure that even though clobetasol is topical, when applied on rashy areas it gets into the blood. Question then is does it also involve CYP3-A enzyme for clearance. ## I accidently used Clobetasol Propionate Cream 0.05 in place of my vaginal retrace creme. What will be the reaction?
On 38th day of Harvoni. Only side effect was slightly increased BP. Simply changed timing if BP med. 1st Blood test after 28 days detected NO Virus! SGOT, SGPT normal for 1st time in 30 years. At start Viral Load 11 million. Fibrosis F3. Have played tennis almost everyday since start of meds. 62 year old Male. Woo Hoo?? ## Awesome! I am very glad that it worked so well for you! Congratulations! Many people have been reporting good results with Harvoni, which is awesome. The increase blood pressure can be a side effect of it, as listed by the FDA, along with nausea, headache, diarrhea, fatigue and insomnia. Has anyone else taken this medication? ## Thanks! At 42 days now Half way point! All is good!
How many people have been on this medication? I'm afraid it's too new and they don't fully understand all the side effects. ## Hello, Shelley! How are you? This medication actually has one of the highest cure rates and its most common side effects include nausea, fatigue, headache and irritability. And yes, there is always a risk of that, but that is true of any medication on the market, not just this one. Is there anything else I can help with? ## I had hcv for 15 years and it only took half a pill for 8 weeks to clear virus. Solvaldi actually stopped my chronic vomiting and nausea the first night I took it. I was supposed to take ribovarin in morning and at night and six hundred milligram at night but could not tolerate all that. I reduced to 300mg of solvaldi only at nigh...
How does amoxicillin interact with harvoni? ## Hello, Sister! How are you? I didn't find any interactions or problems listed between these two medications, but it's always best to double check such information to be sure. Amoxicillin is classified by the FDA as an antibiotic, it is used to treat or prevent bacterial infections. Its typical side effects may possibly include nausea, dizziness, headache, non-allergic skin rash and diarrhea. Harvoni is used to treat Hepatitis C. Its typical side effects may possibly include nausea, fatigue, headache, diarrhea and insomnia. Is there anything else I can help with?
msj are they diazpam ## I was discharhing two weeks ago but now I am getting a pressure in my lower adbomen and is starting to be painful especially when I need to urinate. I am living in Rio since September and we can purchase medications over the counter but unsure what medication would be best. ## I met an Inmate. He and I are now living together. I recently found out he has some type of hepatitis. I know I have contracted the disease. But am uncertain as to the symptoms. I am always tired. My back hurts. I have headaches all the time. My fingers ache as well as other parts of my joints. He has the same aches and pains but he says it is due to his work. Finally, he is always itching his legs. Sometimes voyage point to where he cuts skin. Should I be worried and what can I do to get h...
my son around 25 years of age was diagnosed positive for hepatitis b in the month of October '14. After considerable rest & mild medications of razo-d & uniliv & diet control last LFT details were as follows: Bil rubin Total; 2.1 Bil rubin direct 0.4 Bil rubin indirect 1.7 SGOT (AST) 20 SGPT (ALT) 57 Gamma Glutamyl Transferase 82 Under these results doctor withdrew all medicines & also suggested no need for any further tests so far. Now occasionally my son feels a random occasional pain of short duration on the right side of the abdomen perhaps above the liver point. I would like to know the cause of this pain & also suggest which medicine UDILIV (with strength) or RAZO-D would be better, safer, more accurate & faster for treating this pain. Also I would like...
Updatedmy prescription was three month treatment with Sovaldi+ribavirin+ peginterferon alfa for 3 month but due to some financial problem I took treatment for one month only and I stopped can some one told me the expected effect for that regarding to the coplication that may be happen and also my chance of curing from Hep C, if I start over the treatment later thanks
Updated in Sovaldican you take lithium while taking sovaldi and ribavirin ## Hello, Polly! How are you? I didn't find any interactions or problems listed between these medications, but it's best to double check this information to be sure. Lithium is most commonly used to treat the manic episodes of manic depression. Its typical side effects may include poor memory, dry skin, dizziness and nausea. The Sovaldi and Ribavirin may cause side effects, such as nausea, dizziness, headache, headache and fatigue. Is there anything else I can help with? ## yes. I normally do not have a manic episode unless I stop taking lithium. This time as soon as I started taking hep c tx. I started w the same symptoms of mania. That is scary stuff
I'm looking for advice on how to keep my platelet's stable or increase them, does anyone have any helpful information? please!! ## my platelet count is at 79 and I'm trying to increase it or keep it stable so I can start the Hep C Sovaldi and ribavirin treatment does anyone have any words of wisdom for me please ## Hi Dee, According to an article by Livestrong.com, there are actually many nutrient dense foods which can naturally increase the levels of your platelet (thrombocyte) count; namely leafy green vegetables such as kale and parsley. More specifically, some important nutrients that are often touted for their use in achieving a higher platelet count consist of Folate (vitamin B-9), B12, Calcium, Potassium, and Zinc. So perhaps a quality whole-food multivitamin and mine...
was diagnosed with Hep C 2 years ago, have no symptoms of a damaged liver, however viral level is 3,750,252. I was told about solvaldi and of course think it's too new of a drug to start treatment, but then I take a chance of getting liver cancer in the future. I have talked about this to my Dr. he thinks I should start treatment. I am genotype 2. I am not a drinker, thank God. Liver is healthy at this point. the thought of the virus living in my liver makes me sick... should I wait or start treatment only I can make that decision.. I know... ## Hello, Jeannie! How are you? I am sorry about your diagnosis. Another thing to keep in mind is that treatment may delay the possible progression and liver damage. While your liver may be healthy now, there's no guarantee how long it will...
Has anyone heard anything regarding incivek treatment actually accelerating the onset of cirrhosis. I went through the treatment as long as I could until the side effects became unbearable. Months later my health turned for the worse and now I am diagnosed with cirrhosis. I wonder how many other people have experienced this. Maybe should be disclosed as a possible side effect. ## Hello, Stan! How are you? No, I'm not finding any reports of Incivek causing this. Did they definitively tie it to the use of the medication? Or is this just your own theory? ## It is my own theory. I am hoping that more people have experienced a similar sequence of events and a community can emerge.
I am into week 12 of Victrelis Triple... I should find out next week if I have reached 0-viral load. I am seriously asking myself if I want to or can continue for another 36 weeks. Tiredness, achiness... thoughts? With the new drugs (Zovaldi+) at 100% cure, less side-effects and shorter treatment. I am unsure if I am willing to sacrifice another year of my life. ## Hello, Bluehowz! How are you doing? What I think you should do is set up an appointment with your doctor, discuss your concerns and the side effects you've been experiencing, ask them about the other treatment options and the possible side effects, then you can make a fully informed decision on the matter and do what's best for you. Is there anything else I can help with?
I am Kenneth, Former Marine Recon,last duty station Panama canal, After 1 month of duty my fellow Marines were out for a beer and discussing our assignment duty of search and siezure of narcotics at the height of the Nixon Administration "war on drugs"??? One of the guys mentioned to me that he thought it a little strange between the 10th and 15th ship we got a call from Washington to stand down. We put two and two together a moron could of and filed a complaint with our CO, Our reward we got vaccinated with tainted hepatitis serum the whole platoon hospitalized. Don't let them kid you observation of MD's prescribing practices has nothing to do with the public safety, its about the Illegal distribution of illegal drugs, Forcing our youth and those who cannot find addiquite
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