Harvoni Withdrawal Symptoms (Page 2) (Top voted first)

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anyone having problems after stopping harvoni?

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9

Took harvoni for 5 days , on the 5th day had to go to ER with my blood pressure 213/ 110 , took awhile for it to come down . Stopped taking the tab immediately but still feel unwell a couple of days on . Doctor says he hasn't heard of this before . No more for me !!

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10

I was diagnosed with Hepatitis C back in 2008. August 4th of 2016 started my one a day regimen for my 90 day treatment. The only thing that happened to me was in the first two days I got the diarrhea, little nauseated but no throwing up.....yeah I seem to have the insomnia and late at night. Sometimes it's hard in the morning to keep myself awake but I'm also taking Gabapentin for my pain in my hand, which is unrelated. I'm getting ready to go back for my first results on my blood work at the end of my 30 days on harvoni with of course at that point 2 more months to go. I'm more curious than anything. Will the white color come back in my eyes? Not that it's yellow but it's not bright white like it used to be. I am 54 years old. I do feel that already it has affected me in a good way. I feel very positive. I'm not depressed anymore than usual as that my husband passed away only six months ago, so I don't know if I'm more depressed over that or if it's depression setting in from harvoni, but since I was depressed before harvoni I'm thinking that that's what this is about. Otherwise I have a positive outlook. I don't exercise that much due to the fact I just really never have gotten into it, but I walk a lot mostly because I have six grandchildren. I'll keep checking back in. I don't really have a question except for I'm just curious about whether or not my eyes will become more bright white again naturally because my liver isn't being affected by the hep c, after the harvoni.

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22

When took Harvoni, I had diaharria, nausea ,anxeity, depression, headache,blurred vision

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25

I felt sick and pain in shoulders for the first 2 wks. of dosing now I am done with 12wk with good news but after 2 days i felt just like an opiate withdrawal right now I feel awful any one have pointers for me?

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31

for me Harvoni was NOT a good choice, b4 harvoni I felt great, Now I feel like I have no life at all but physical pain.
I would rather have Hep C back, if I had it to do over I would have never taken harvoni, now I fear the rest of my life will be nothing but pain and suffering and unable to work

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34

Harvoni changes our DNA, leaving us with depression and body aches at a maximum. I still have head aches, fatigue, brain fog, ears ringing, severe leg cramps, hips and wrists feel arthritic.
They are not listing all the side effects or long term side effects.
No one is being informed about any of these side effects

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50

YES I am still debilitated 2 years post treatment. Check in with the long term side effects and you will see how many of us are now disabled after Harvoni

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8

How can i get help attaining this drug?

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11

I was on high blood pressure meds going into treatment, I started taking organic beet juice pulp tablets and now no longer take my BP meds...it is not cheap but they work.
also celery seed a teaspoon a day is really good to help with BP and stevia extract used as a sweetener

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23

I was on Harvoni for 8 weeks (Oct. to Decrmber, 2016). During treatment I experienced euphoria, clumsiness and joint aches. A few days after my last tablet I experienced withdrawal symptoms big time: nausea, sweating, fatigue, weakness. Psychologically I felt different for a while as well.

In time, I believe these symptoms will be incorporated into the manufacturer's reported side effects. Still a new drug so the community boards of consistent side effects are where I am drawing support.

It's now three months post treatment for me and I've been declared cured.

I am very pleased.

I do not recommend Harvoni for patients who care for small children due to the clumsiness and euphoric side effects (during my treatment, I dropped and broke dishes and dropped a carton of milk as though it were funny and could care less. That is not my normal attitude). So I fear that patients on Harvoni could accidentally drop babies/children which I find frightening.

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27

I was on harvoni for 8 weeks and since I stopped taking it I've been having constipation and frequent bouts of hiccups and heartburn none of which I had before or during the harvoni. Are these side effects from the harvoni and how do I make them stop? Also no matter how I make the hiccups stop I can't make myself burp. Please help it's driving me nuts! For the past 2 weeks I've been off the harvoni I've been having the hiccups 6-8 times a day! No matter what I eat! Is this normal? And if it is how long does it last?

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28

SAME HERE I AM ABOUT 1\4 THE STRENGHT I HAD VERY FATIGUE HAVE NO PEP AT ALL IF SO IT DOESN'T LAST MORE THAN A COUPLE OF MINUTES , VERY WORRIED I RUINED MY HEALTH I WAS ABLE TO DO SO MUCH MORE WHEN I HAD HEPC THAN I DO NOW HOPE IN TIME IT GETS BETTER I HAVE MUCH TO DO PHYSICALLY I'VE BEEN OFF SINCE 2-2-2017 WAS MY LAST PILL

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29

I m 66 an ex speeder got it in the 70s I am diabetic and I have asthma,low thyroid,a clipped anurism in my brain agoraphobia, panic attacks paranoia etc I take synthroid janumet, blood pressure meds an cholesterol meds clonazepan mirtazepine and Zoloft and I quit speed ,,30, years ago and I am still paying for it too us all may God have mercy on us as we have paid the price. Please reply to this

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32

Stopped the 12 wk course in April, this year and still feeling mind fogged and didn't even realize that was on of the many side effects of this supposedly miraculous drug. Weight gain off the charts even though I exercise and eat salads like a rabbit. No energy, can't sleep, still blurting things out thoughtlessly, did you know about that side effect?

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33

I have 2 months left .. feeling very depressed and nauseous... Very depressed..

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35

I've been off for 3 days & can't sleep. Have muscle aches

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36

Re: MURIFIC (# 28) Expand Referenced Message

I had more energy with the hep c... Health wise I can feel and see the difference. I drink wheat grass for energy. Took my last pill 5 days ago after a 12 week program...

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37

I was treated with harvoni for hep C 4 by the end of 2015. My fibroscan was F2-F3 and F0-F1. After almost 2 years of treatment my fibroscan now is F0 (4.5).

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38

I took harvoni 2 years ago when I first started taking it I didn't feel that good but I didn't feel that bad either until the very last part of the treatment when I started tingling all over and feeling very bad very very bad it was so bad I did not want to take any more of the medicine I ended up coming clean of the hep C which was good but I've been experiencing things which I'm not sure if I can contribute to taking that medicine or not but it's worth putting out there. For one thing I don't feel good a lot I experience bad headaches and I can't think straight sometimes I can't even finish a sentence without having to sit there and try to remember what I was going to say. I've also been getting heart palpitations sometimes my heart will beat really fast and then all of a sudden stopped and I feel like my heart is not going to start pumping again and then it does that never happened to me before taking harvoni. And last but not least I cannot seem to gain weight I eat and I eat and I eat and I cannot gain weight I used to run between 135 and 140 when I was eating really good and now no matter what I eat whether it's cheese burgers french fries milkshakes and cookie dough I stay thin a sickly thin!!! Sometimes I wonder if that's what somebody with cancer feels like. Hope what I said help somebody else too.

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39

I too took 12 weeks Harvoni and wish I had not. I would rather have Hep C back. I am 2 1/2 years post treatment and suffer daily constant pain and symptoms I never had before treatment. If only I could go back. Anyone having side effects, please report them to the FDA. Nobody is talking about all our horrors except us but at some point they will pay for our suffering.....karma.... I have a list of side effects from an FDA report if anyone wants to see them. {edited for privacy}

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