Harvoni Side Effects
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I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you

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Does anyone else have puffy to tingling feet after taking Harvoni or Epclusa?

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I need to find medical consultant who will work with my case

I am not asking for members to help me find a particular doctor, rather I am asking for members to help me locate medical consultants that in turn will help me find the right doctor for my son.

1. Age 42, male, height- 55, weight-143,3 lbs., non-smoker, living in Texas.

2. As far as symptoms, they are due to medical treatment that was for childhood Hepatitis C, as in all symptoms began during treatment and now remain (excessive exhaustion, severe brain fog, constant lightheadedness, memory issues, photophobia), although Hepatitis C is no more after treatment.

3. Treatment began in 2016. He was treated for 3 months with Harvoni.

We have seen a few doctors for the issue, they have ruled out autoimmune, and MRI showed to be normal (as per doctors), and after they rule certain things out they simply let us go, that is why we are asking for a Professional Consultants who can advise which specialized doctors are because doctors just dropped the case, so Professional Consultants who will take the case and will lead the case with the goal of actually helping us take the case to a certain completion.

THE DIAGNOSIS OF MY SON HAS NOT BEEN ESTABLISHED SINCE 2016!!!

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Re: Becca (# 82)

i started taking harvoni 3 wks later hospitalized w septis 5 days, never ascertained the cause everyone said it couldnt be the harvoni-i think it was-no other logical conclusion

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Re: Von (# 713)

David! I was reading that drug named Lyrica is for nerve pain. Read about it on Internet. Maybe your family Dr. will give you prescribtion for it. Good luck with treatment.

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Re: David (# 1)

I have nuropathy in both legs, feet and hands. I garden for a hobby. My legs tingle, go numb and my feet feel like I'm walking on lava hot gravel. One day I was inn the garden and didn't relize I was standing on a red ant mound. That's how much my legs hurt. For months I'd complained about my vacume cleaner not working. It was working fine it was my nuropathy. I thought there was sand still in the carpet. I was going crazy cleaning the carpet all the time. I wish there was a cure for just the nuropathy. They have drugs for the pain but I'm not taking a general purpose drug ie: anti-depressants for leg pain and I'll be damned I'll not take a narcotic for it eitger... oh well im just stuck.

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Re: Von (# 711)

I took it in 2016 and also got peripheral neuropathy in my feet as a side effect from harvoni. The doctors just gave me gabapentin which does nothing for the nerve pain relief so I know how it feels. I blame the FDA for fast tracking it so the government would get off their back to find a cure for hepatitis c

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My name is Karen. I took Harvoni with interferon because my geno
Is 3b. I only took it for 9 days 2 years ago and I have nuropathy (nerve damage). My nerve damage is so bad I had to give up wearing socks. It keeps me awake at night many nights. I won't take pain killers because they make me vomit. Other medications to relive my pain only make me feel wierd and don't really work for my nuropathty. Nothing works because the medication was not made specifally for nuropathy. There is no cure. I'll will catch up with you all at a latervdate. My legs are freaking out right now. I can't sit still it hurts so bad. I also have it in my hands. I only took the Harvoni for 10 days and I have a world of side effects

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A law firm that is interested in those injured by Harvoni, Sovaldi or Veikrira. Give Fleming Law out of Texas a call or do it online:

fleming-law.com/blog/2017/november/drug-induced-injuries-from-harvoni-sovaldi-and-v

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Re: Jsda (# 707)

Try cramp defense magnesium bought online, it helped with cramps. Keep us posted. Many of us are in terrible shape.

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Re: Jsda (# 707)

Your GI will NEVER admit these symptoms as Harvoni related, the best you can hope for is a very good PCP who will take you seriously. Your symptoms are the same as so many others, like myself, one thing is for sure that may help and has helped me is Cramp Defense magnesium, It is the only brand that helped relieve my muscle cramps that are debilitating. Also be aware of any other side effects you have from harvoni, report them all the Gilead and the FDA. Please keep us posted as you progress, I am 2 years post and my back pain increased 100%, many of us are now unable to work due to the side effects. I hope you don't have the same damage as some of us. Good luck and please keep writing on here.

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I am one month post treatment with Harvoni and have severe muscle pain and numbness on left side particularly calf, thigh, and hip. It’s to the point that it hurts all the time and is effecting sleep. I walk with a limp trying to minimize weight on left leg. I think I’m going to bypass my GI and go see my PCP since every time I say anything about side effects my GI doctor says there are not any.

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Re: Kathleen (# 705)

Yes. Alcohol is what is damaging to your liver and a hindrance to this treatment. Non alcoholic beer won't damage your liver. I don't drink alcohol. Occasionally I'll take some wine, but not much. I was scheduled for 12 weeks for harvoni, but at 7 weeks I started to have SEVERE problems and stopped taking this drug at 7 and 1/2 weeks. I may have missed a couple of doses too. Long story short, my body told me when to stop, and at my last blood draw at 6 months post shows I am clear of the virus. I AM CURED. I am however having a serious problem with neuropathy, and tendinopathy in my shoulders with muscle spasms and cramps in my legs, hands, and feet. I've been going to occupational therapy for the past 6 weeks and not only has it not helped, in many ways it's gotten worse. Harvoni may have cured me, but it may have also caused the problems I am having today. Listen to your body. It will tell you when it's time to stop. Take in lots of water, and in my case, lots and lots of vitamin c. No alcohol, occasional beef, but mostly chicken and fish for protein. Low starch vegetables. Good luck.

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I've been taking harvoni for 3 weeks now. All is well "for the most part", but my veins are very pronounced now. This wasn't the case before. Please don't judge and I don't need negative feedback. Just an answer. Is it ok to drink non alcoholic beer?

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Re: Denny (# 696)

Thank you all for sharing, I read these comments and get so angry.

I called my 3 week treatment swallowing EVIL! I didn’t clear the virus the med made me a walking black box warning. My life and health has deteriorated. I was ready for stroke as my B/P was 188/110 and my mind was reaching non stop. Suicidal thoughts it was awful. I was told it would be like candy. I will repeat when a drug this strong crosses the blood brain barrier you never know what will happen.

I have active RA, neuropathy, on pain meds and in chronic pain. Inflammation all over. Memory problems from lack of blood flow through a side of my brain, thyroid problems on med. never felt one good day since. I never cleared the virus. A mess it’s all about money just follow the money. Cash cow for big pharmaceutical company we were used.

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I also had the joint pain, muscle and nerve pain and weakness toward end and after treatment. I could barely walk or stand up due to pain and weakness. My treatment ended Dec 2016. Since Dec 2016 I have had physical therapy twice a week, went on an anti inflammatory diet and feel almost normal. It has taken over a year. I have periods of severe joint pain from arthritis and inflammation. The Harvoni caused the inflammation. Without my physical therapy, chiropractic and massage along with an anti inflammatory diet I believe I’d be totally disabled. My internist isnt convinced but my other doctors are- that Harvoni is highly inflammatory to our bodies. Although I am free of Hep C and my liver and other health is very good for my age. I took it upon myself to try alternative approaches to healing from the Harvoni treatment and it seems to be working.

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Re: Cathy (# 701)

No but I got peripheral neuropathy as a side effect from harvoni and if I could go back to 2015 i would not take it

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I was one of the first treated with Harvoni in late 2014 to early 2015. Since then, I've gained a lot of weight, have shortness of breath and I developed night blindness. Has any one else experienced the same side effects?

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Re: Denny (# 696)

Denny what type of pain medication are you on? Since treatment my pain issues in my low back and upper back are horrid, I take hydromorphone in the morning and a demerol at night, it barely takes care of the pain, just the edge off

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Re: Stef (# 19)

I read through all of the posts and I got peripheral neuropathy from taking harvoni as a side effect, it sucks because there is no cure for me except I got rid of the hepatitis c. I was talked into taking the harvoni by the doctors and I had a low gen type so it was not necessary for me to take it. If it happened all over again I would never take it again! {edited for privacy}.

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Re: erna (# 697)

My thoughts on this medication are that your body knows when it's time to stop. In my case, 7 and a half weeks was all my body could tolerate. Although my doctor wanted me to be on this medication for twelve weeks, I stopped at 7 and a half weeks. My bloodwork at 3 mos post treatment shows no virus detected. My understanding is if you show no virus post harvoni at 3 months, it's considered a cure. The reason I stopped is because I started to spike a fever over 101 every day the 7th week, and I was extremely dizzy!! I also lost 40 pounds in that 7 week time. The neuropathy in my hands and feet caused by the pegasys treatment went into overdrive. I felt horrible for about a week after I quit taking this drug, and at the end of that week my fever finally broke, and I all of a sudden felt better than I have in a very long time. I was still dizzy as hell though. I also started craving oranges. I was going through oranges like a fiend! Orange juice too. It was a craving that wouldn't stop. I'm still drinking lots of oj. But not like I was after the week of hell. Now I'm dealing with tendonitis in my shoulder. Really severe, and extremely painful, and that started shortly after the harvoni treatment. I'm pretty sure it's related, considering how badly the neuropathy was from taking this drug. I start physical therapy this thursday. 4 weeks at three times per week. We'll see how that turns out. Plus, I've had insomnia for the past two months. That started when the pain was at its worst. Regardless, though, I'm cured! It worked. My doctor said 7 and a half weeks wasn't enough time for me to be hep c free, but my bloodwork says different. I'm supposed to have an appointment with her sometime this month. I'm not sure when that is though. I guess they'll let me know, but it took me two months just to find out what the results of my bloodwork was. Getting information from the V.A. health care system is like pulling teeth! They're just not very forthcoming. Anybody considering this treatment should think long and hard before you start. I don't know what the effects of taking this drug are going to be. It's a waiting game now.

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